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In a message dated 3/26/01 6:23:35 AM, kimrs@... writes:

<< She has an autoimmune disease, >>

Kim-

I wish you and your mom the best but I would not throw out this e-mail

address too soon. I would keep an open mind, if I could tell you how many

people get a diagnosis other than lyme and down the road they come back.

PLEASE research what is going on!!!! IT could save you alot of time,

frustration and $$$.

Stay in touch.

sue in nj

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Kim,

I'd still try and look into what is causing the unexplained autoimmune

reaction. I had very high antibodies to thyroid which I was told was an

autoimmune condition and they have now all gone with abx for lyme. Be

cautious especially if they are giving her cortisone, it improves symptoms

(obviously it depletes immune reactions) but ask any lymie who was ever

given cortisone (and they are legions!) how badly they fared afterwards.

Sorry, I don't want to send you into a worry spiral again but it might pay

to ask her docs if they have a good reaon for giving her what they are

giving her, ask for their reasonning to make sure they are not just looking

at symptoms as is so often the case.

Nelly

[ ] Thank you and update

> Hello. Many of you were kind enough to respond to me privately

> regarding whether my Mom, who had hospitalized almost 2 weeks without

> a diagnosis, had Lyme Disease. I just wanted to thank you. You're

> a great group of caring folks!

>

> We finally got a diagnosis on Saturday. She has an autoimmune disease,

> though they haven't pinpointed which one yet. Her antinuclear

> antibodies, which I guess is what they use to diagnose autoimmune

> diseases, was off the chart abnormal. They're treating her for this,

> and there has already been a marked improvement.

>

> Thanks so much for your messages during our time of desperation for

> a diagnosis! Guess I'll be leaving now....

>

> Kim

>

>

>

>

> Welcome to

>

> Easy Reference:

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> -Unsubscribe - Unsubscribe from the list

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format

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information about other diseases) to -Offtopic

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  • 1 year later...
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In a message dated 4/8/02 2:00:44 PM Eastern Daylight Time,

mglover@... writes:

> Donna, I forgot to mention when I wrote on Friday that your

> daughter's school has some great ideas for helping Maddie with

> transitions. I mentioned some of the ideas to my husband and he kept

> saying " she sounds just like Charlie " (Charlie takes his stuffed

> animals to school everyday as a transition object and it took him a

> month before we could inch him into his preschool room). He wants to

> add some of your ideas to Charlie, Jr.'s IEP.

>

Cool Marjorie!!! I am so glad you and your hubby are feeling directed.

Charlie is a very lucky little guy to have you both!!!! Keep us updated;

we'll be waiting to hear how things are going!!! {{{{hugs}}}} to Charlie!!

Donna

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Hi Everyone,

Beth and Irma and Everyone, Thank you so much for posting the

potty training tips! We've been trying to potty train Charlie for

two to three years now and these tips are great. I especially like

the ideas about the poster and asking Charlie to help us clean up

after him :)

Loriann, I am so sorry to hear about your Dad. We are keeping him in

our prayers.

Charlyne and everyone on the list with school problems, How are

things going with the school? We are thinking about you and are

hoping for the best.

Donna and everyone, As an update, we have an appointment with Dr.

Capone next Thursday. We read a lot about the gluten free caseine

free diet and started Charlie on it this morning. (He eats a gallon

of ice cream a day and goldfish and Cheerios). Thinking back, we

realized that the ice cream might be one of the reasons we've been

having so much trouble on car trips. We always feed him extra ice

cream (stop at Friendly's etc.) and bring goldfish to keep him

occupied in the car. (On the especially bad trip last fall when he

wouldn't stop screaming, he had eaten only ice cream and goldfish for

two days and we stopped to get him ice cream to stop his melt downs.)

We are hoping may be the GFCF diet will help. Has anyone else had

any luck on the diet? We are doing lots more research. Our home

internet access is still down (after a week :( and I can't wait for

my husband to access this site too!

Thank you all again for all your support and help. This is the best

we've felt in years! Wishing you all the best and lots of hugs too!

Marjorie

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In a message dated 4/10/02 7:43:29 PM Eastern Daylight Time,

mglover@... writes:

> Donna and everyone, As an update, we have an appointment with Dr.

> Capone next Thursday

Wow!!! Good for you Marjorie!!! You sure are a mover and a shaker...;-)

Let us know how you make out there, k?

Donna

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  • 5 years later...

Just a FYI, for us, the district did NOT pay for the private preschool

placement. They " didn't do that " , and although they didn't offer a full

inclusion preschool and we could have taken them to court on that, I

think they know that preschool is so short that by the time you'd get a

day in court, your child will be in kindergarten!

I was pretty irritated about this, but decided that if she didn't have

DS, we would have paid for our church preschool, just like we did for

her sisters. And, the district did provide all her services and

education in special day preschool, so although we had to get everything

through 2 diferent programs, it was a very good expereince for

. Rationalization, perhaps, but I've always said that this is

an area that I really would like to work on, even though we don't need

preschool services anymore! Now I just need to get a little time.

, mom to (11), (9 DS), and Sammy (8)

thebombtexas wrote:

> A big thank you to everyone who responded to my question for After 3

> Options for Adena. It seems the majority of you had children who

> went to a private preschool paid by the school district or a class

> combined of typical and special needs kids. I talked to our speech

> therapist today and she wants to go with us to help pick a teacher

> for Adena. She used to work for the school district and she said

> the speech therapist that replaced her had already quit and they had

> a big shortage of speech therapists. So what happens to the kids at

> that school? She replied they don't get speech therapy! Her mom is

> in charge of special education here at the Education Service Center

> where I work and they have advised several parents to pursue due

> process but apparently no one has followed through. Our speech

> therapist also advised that parents who rock the boat get sent to a

> place that provides private therapy instead of providing it through

> the school district. I have a feeling we are going to be up for a

> fight. I don't mind Adena going to a 1/2 day for just special needs

> and then maybe 1/2 day with typical. She does so well around typical

> children and models their behavior. I would like some input from

> those of you that have been there on questions I need to ask these

> teachers when we are visiting the classrooms and what I should look

> for. Our speech therapist said there a couple of teachers who are

> very rigid and she knows Adena will not function well in that type

> of environment. I definitely agree with that! I would also like to

> find out why they don't have an inclusive program. I have a big

> problem being tactful but I am learning so I appreciate your help!

>

>

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  • 2 years later...
Guest guest

Thank you to everyone who responded to my email about my 3 year old's

foot pain. Good news -- late yesterday he was complaining again, so I

looked at his foot and was thrilled to see that it was now swollen and

red. Took him to his pediatrician who said he had a bee sting and that

sometimes the physical reaction shows up a few days later. Benedryl

has worked wonders and I am so incredibly relieved.

This also taught me the lesson that I need to be careful about

attributing everything to Lyme (which I am definitely prone towards

doing since SO MUCH IS actually due to Lyme). Anyway, wanted to pass

on the good news.

Beth

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Guest guest

Thats Great!!!I know what you mean we do begin to blame everything on lyme

but.... whatever :)I am happy to hear hes feeling better:)

From: Beth Freishtat <beth@...>

Subject: [ ] Thank you and update

Date: Thursday, May 6, 2010, 10:49 AM

 

Thank you to everyone who responded to my email about my 3 year old's

foot pain. Good news -- late yesterday he was complaining again, so I

looked at his foot and was thrilled to see that it was now swollen and

red. Took him to his pediatrician who said he had a bee sting and that

sometimes the physical reaction shows up a few days later. Benedryl

has worked wonders and I am so incredibly relieved.

This also taught me the lesson that I need to be careful about

attributing everything to Lyme (which I am definitely prone towards

doing since SO MUCH IS actually due to Lyme). Anyway, wanted to pass

on the good news.

Beth

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Glad to hear that. Didn't he scream when he was stung ? I would have...lol.

From: Beth Freishtat <beth@...>

Subject: [ ] Thank you and update

Date: Thursday, May 6, 2010, 10:49 AM

Thank you to everyone who responded to my email about my 3 year old's 

foot pain. Good news -- late yesterday he was complaining again, so I 

looked at his foot and was thrilled to see that it was now swollen and 

red. Took him to his pediatrician who said he had a bee sting and that 

sometimes the physical reaction shows up a few days later. Benedryl 

has worked wonders and I am so incredibly relieved.

This also taught me the lesson that I need to be careful about 

attributing everything to Lyme (which I am definitely prone towards 

doing since SO MUCH IS actually due to Lyme).  Anyway, wanted to pass 

on the good news.

Beth

------------------------------------

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net: http://www.topix.net/health/lyme-disease

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