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Re: It's Me Again

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Quick thought. If your urine is changing color....especially to a darker

color, you might want to have your dr. give you an ultrasound. You could

have a gall stone that is backing up the bile duct into your liver. That

would explain a lot of your lab values.

Just a thought. And you can live without a gall bladder. You can't live

without a liver.

Your choice of UVA is an excellent one. That must mean that you are in VA.

If you said that before, I missed it.

More later,

Anne

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Quick thought. If your urine is changing color....especially to a darker

color, you might want to have your dr. give you an ultrasound. You could

have a gall stone that is backing up the bile duct into your liver. That

would explain a lot of your lab values.

Just a thought. And you can live without a gall bladder. You can't live

without a liver.

Your choice of UVA is an excellent one. That must mean that you are in VA.

If you said that before, I missed it.

More later,

Anne

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  • 7 years later...

Hi ,

I'm not sure how long you have been on MTX, but If you recently

started, 4 months is probably too long for a follow up to see if you

are progressing. While you probably need pain medication, continually

taking stronger meds or increasing dosages, seems a bit risky.

I'm certainly not an expert, but it seems that if you are actively

pursuing the treatment of PA, you need to be seeing your rheumy much

more frequently than you are. I know that insurance or funds might

be a problem, but perhaps you can work something out with the rheumy?

Unless you get this under control, you could be risking joint damage.

It's too bad that you are being foreclosed and that your wife is

leaving. At this point, you really need reach deep within yourself

and muster whatever you can to get your health headed in the right

direction. Once you do that, then you can start to deal with these

other problems.

Stay well,

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Even though your appointment is 4 months away, you can still call the

rheumys office and discuss these problems with his nurse. Just ask

for a call-back from either the doctor or his nurse. Let them know

you are in a tremendous amount of pain and that you are increasingly

depressed. They should either adjust your meds over the phone or

have you come in sooner to discuss options. If they don't do either,

find another rheumy. You don't have to wait until your next

appointment - call the doctor NOW. good luck, sherry z

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Hey , thanks, I had a great rheumy was seeing him for about a

year after i first got this , then he moved to a diff practice they no

longer take my ins , so my reg md reffered me to this new rheumy and

his earliest appointment was 4 months kinda sucks , and i have severe

joint damage , my elbow locked up total no movement at all so i had

surgery on it and they removed the entire elbow joint, was supposed to

be a simple bone scrap with a possible external hinge but when he got

in he said it was worse than he thought so HE choose to remove the

joint never informed me or my wife never knew till i started therapy

and my therapist told me something is not right it should not feel

like this, and refused to do therapy on me till i went and had a scan

on it thats when i found out what he had done, went back to the surgen

and he said oh yea it was worse than we thought so i went ahead and

removed the joint so now i just have the upper and lower arm bones

rubbing on top of each other, went to have a prostatic elbow this

surgen said yes i can fix it after i had seen 3 others who said

impossible too much damage was done she said u need a mri then we can

start from there , i had the mri went to her office a few days later

she walked in gave me a hug and said " i was wrong there is nothing i

can do except cut all the tendons holding everything in place or

remove your lower arm to stop your pain " i said no i will live with

the pain, see the bones rub together because there is nothing there to

cushion them so i have very little use of right arm and i am right

handed, lmao try to learn to wipe your butt with your left hand after

using your right for over 30 years , sounds simple right lmao Try to

start using a fork and spoon with your left hand after using right for

30 years again sounds simple right , i just know once they remove it

there is no going back , and they are making new breaks in this

everyday so i thought why not wait and one day i may be the next 6

million dollar man bionic elbow sorry bad joke but trying to keep my

spirits up john

>

> Hi ,

> I'm not sure how long you have been on MTX, but If you recently

> started, 4 months is probably too long for a follow up to see if you

> are progressing. While you probably need pain medication, continually

> taking stronger meds or increasing dosages, seems a bit risky.

> I'm certainly not an expert, but it seems that if you are actively

> pursuing the treatment of PA, you need to be seeing your rheumy much

> more frequently than you are. I know that insurance or funds might

> be a problem, but perhaps you can work something out with the rheumy?

> Unless you get this under control, you could be risking joint damage.

>

> It's too bad that you are being foreclosed and that your wife is

> leaving. At this point, you really need reach deep within yourself

> and muster whatever you can to get your health headed in the right

> direction. Once you do that, then you can start to deal with these

> other problems.

>

> Stay well,

>

>

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