Re: Primary Doctor Troubles

[Guest guest]

What part of the country do you live in?

Suzanne

On Nov 2, 2010, at 9:02 AM, likeaspeckofpepper wrote:

> I am unable to find a primary care Dr. that is supportive of my

> child's treatment from her llmd. I was wondering what everyone does

> about this or if it is not an issue for most. Thanks so much.

>

>

>

[Guest guest]

Hi Suzanne,

I am in New Jersey.

>

> > I am unable to find a primary care Dr. that is supportive of my

> > child's treatment from her llmd. I was wondering what everyone does

> > about this or if it is not an issue for most. Thanks so much.

> >

> >

> >

>

>

>

>

[Guest guest]

I have the same problem -- our pediatrician told me I was irresponsible for

having Maya on so many antibiotics. She gives me dirty looks. As a result I

just don't have the girls wee her and actually, other than the Lyme & Co., they

are pretty healthy and don't need the doctor anyway. We're in California.

________________________________

From: Suzanne <suzlwilliams@...>

Sent: Tue, November 2, 2010 11:11:32 AM

Subject: Re: [ ] Primary Doctor Troubles

What part of the country do you live in?

Suzanne

On Nov 2, 2010, at 9:02 AM, likeaspeckofpepper wrote:

> I am unable to find a primary care Dr. that is supportive of my

> child's treatment from her llmd. I was wondering what everyone does

> about this or if it is not an issue for most. Thanks so much.

>

>

>

[Guest guest]

I also have a terrible time with my ped doctor. She even told the school that

my daughter did NOT have chronic Lyme disease.....and wrote a letter to them.

It & #39;s truly abuse how they treat us - untill they or their children get this

they refuse to educate themselves - truly sad!!!!! Sorry you are all going

through this - BUT it sure will be amazing when our children become the doctors

and start helping the sick kids!!!!! Bless you all

[Guest guest]

We live in WI - any help here? Thanks

[Guest guest]

We just make a quick trip each year to get the form required by our

school system saying that their vaccines are up to date. We don't even

try to get their Doc to understand. Dr J cares for my boys in all the

important ways.

--Sue

On 11/2/2010 10:02 AM, likeaspeckofpepper wrote:

>

> I am unable to find a primary care Dr. that is supportive of my

> child's treatment from her llmd. I was wondering what everyone does

> about this or if it is not an issue for most. Thanks so much.

>

>

[Guest guest]

Dear Sue,

The kids school doesn't question Doctor J at all?  Because I have to have a

doctors letter stating that the girls are ill - because they chronically miss

school more days then what is allowed..........

thanks - Diane

________________________________

From: Sue McKeen <susanmckeen@...>

Sent: Tue, November 2, 2010 1:52:24 PM

Subject: Re: [ ] Primary Doctor Troubles

 

We just make a quick trip each year to get the form required by our

school system saying that their vaccines are up to date. We don't even

try to get their Doc to understand. Dr J cares for my boys in all the

important ways.

--Sue

On 11/2/2010 10:02 AM, likeaspeckofpepper wrote:

>

> I am unable to find a primary care Dr. that is supportive of my

> child's treatment from her llmd. I was wondering what everyone does

> about this or if it is not an issue for most. Thanks so much.

>

>

[Guest guest]

This has been an issue for us as well. Our Pediatrician was willing to " humor " us

until my sons herx reaction sent him to the hospital for 3 days. After that

terrifying experience I felt strongly about finding a primary care doctor that

was closer to home and available for " little emergencies " should one arise again

because his LLMD at the time was not and our old Pediatrician would no longer be

supportive. We were blessed to find a doctor who specializes in home care and

although he is not Lyme Literate he is sympathetic to our plight and understands

the controversy. He was willing to offer us additional medical support and has

been a great sounding board. We have also changed LLMD's since that awful

experience. Our current LLMD is closer to home and much easier to get a hold of

if we need to. He has even texted us to check up on the kids from time to time.

We have still had to use my old Pediatrician for vaccines and annual physicals

though.

>

> > I am unable to find a primary care Dr. that is

> supportive of my 

> > child's treatment from her llmd. I was wondering what

> everyone does 

> > about this or if it is not an issue for most. Thanks

> so much.

> >

> >

> >

>

>

>

>

[Guest guest]

Can you please tell me what dr's you use ?? Privately if you want.

>

> > I am unable to find a primary care Dr. that is

> supportive of my 

> > child's treatment from her llmd. I was wondering what

> everyone does 

> > about this or if it is not an issue for most. Thanks

> so much.

> >

> >

> >

>

>

>

>

[Guest guest]

i have heard to discontinue all vaccines when you have lyme...

On Tue, Nov 2, 2010 at 12:57 PM, Pavone <pavone1@...> wrote:

>

>

> This has been an issue for us as well. Our Pediatrician was willing to

> " humor " us until my sons herx reaction sent him to the hospital for 3 days.

> After that terrifying experience I felt strongly about finding a primary

> care doctor that was closer to home and available for " little emergencies "

> should one arise again because his LLMD at the time was not and our old

> Pediatrician would no longer be supportive. We were blessed to find a doctor

> who specializes in home care and although he is not Lyme Literate he is

> sympathetic to our plight and understands the controversy. He was willing to

> offer us additional medical support and has been a great sounding board. We

> have also changed LLMD's since that awful experience. Our current LLMD is

> closer to home and much easier to get a hold of if we need to. He has even

> texted us to check up on the kids from time to time. We have still had to

> use my old Pediatrician for vaccines and annual physicals though.

>

> >

> > > I am unable to find a primary care Dr. that is

> > supportive of my

> > > child's treatment from her llmd. I was wondering what

> > everyone does

> > > about this or if it is not an issue for most. Thanks

> > so much.

> > >

> > >

> > >

> >

> >

> >

> >

[Guest guest]

I have heard the same.......especially the flu one.........

________________________________

From: le Handy <kndplus2@...>

Sent: Tue, November 2, 2010 3:16:44 PM

Subject: Re: [ ] Primary Doctor Troubles

i have heard to discontinue all vaccines when you have lyme...

On Tue, Nov 2, 2010 at 12:57 PM, Pavone <pavone1@...> wrote:

>

>

> This has been an issue for us as well. Our Pediatrician was willing to

> " humor " us until my sons herx reaction sent him to the hospital for 3 days.

> After that terrifying experience I felt strongly about finding a primary

> care doctor that was closer to home and available for " little emergencies "

> should one arise again because his LLMD at the time was not and our old

> Pediatrician would no longer be supportive. We were blessed to find a doctor

> who specializes in home care and although he is not Lyme Literate he is

> sympathetic to our plight and understands the controversy. He was willing to

> offer us additional medical support and has been a great sounding board. We

> have also changed LLMD's since that awful experience. Our current LLMD is

> closer to home and much easier to get a hold of if we need to. He has even

> texted us to check up on the kids from time to time. We have still had to

> use my old Pediatrician for vaccines and annual physicals though.

>

> >

> > > I am unable to find a primary care Dr. that is

> > supportive of my

> > > child's treatment from her llmd. I was wondering what

> > everyone does

> > > about this or if it is not an issue for most. Thanks

> > so much.

> > >

> > >

> > >

> >

> >

> >

> >

[Guest guest]

ah. Well, that makes sense.

________________________________

From: Diane Biel <dkbmama@...>

Sent: Tue, November 2, 2010 1:31:26 PM

Subject: Re: [ ] Primary Doctor Troubles

I have heard the same.......especially the flu one.........

________________________________

From: le Handy <kndplus2@...>

Sent: Tue, November 2, 2010 3:16:44 PM

Subject: Re: [ ] Primary Doctor Troubles

i have heard to discontinue all vaccines when you have lyme...

On Tue, Nov 2, 2010 at 12:57 PM, Pavone <pavone1@...> wrote:

>

>

> This has been an issue for us as well. Our Pediatrician was willing to

> " humor " us until my sons herx reaction sent him to the hospital for 3 days.

> After that terrifying experience I felt strongly about finding a primary

> care doctor that was closer to home and available for " little emergencies "

> should one arise again because his LLMD at the time was not and our old

> Pediatrician would no longer be supportive. We were blessed to find a doctor

> who specializes in home care and although he is not Lyme Literate he is

> sympathetic to our plight and understands the controversy. He was willing to

> offer us additional medical support and has been a great sounding board. We

> have also changed LLMD's since that awful experience. Our current LLMD is

> closer to home and much easier to get a hold of if we need to. He has even

> texted us to check up on the kids from time to time. We have still had to

> use my old Pediatrician for vaccines and annual physicals though.

>

> >

> > > I am unable to find a primary care Dr. that is

> > supportive of my

> > > child's treatment from her llmd. I was wondering what

> > everyone does

> > > about this or if it is not an issue for most. Thanks

> > so much.

> > >

> > >

> > >

> >

> >

> >

> >

[Guest guest]

Yes, I have heard that too. In fact before we knew my kids were sick they

received both the flu and then the swine flu vaccine, shortly after they became

very symptomatic.  We have since felt that the vaccines played some role in

their Lyme, and although I wish i had known then what i know now, if the

vaccines made us aware of their illness i am grateful for it. However, I heard a

LLMD say that he sometimes recommends a flu shot to his ADULT patients to get

their immune system going. 

My sick kids were not due for any required vaccines this year (and we will no

longer receive any that are not legally necessary to attend school) just the

paper work. 

I will send you a private message shortly. I'm just curious though, how

is it that you are being treated by S.B. and Dr.J at the same time? S.B was

openly and adamantly opposed to our seeing Dr. J. during our visit. If S.B.

would have acknowledged our sons illness we would have been happy to be treated

there.

> >

> > > I am unable to find a primary care Dr. that is

> > supportive of my

> > > child's treatment from her llmd. I was wondering what

> > everyone does

> > > about this or if it is not an issue for most. Thanks

> > so much.

> > >

> > >

> > >

> >

> >

> >

> >

[Guest guest]

i know that here in california my sons primary dr. was trying to tell me he

will " have to have it to go to school. " not true tho, i just had to sign a

waiver and the school never gave us any problem but the dr. would always

bring it up at visits and give me an attitude, so i switched drs!

On Tue, Nov 2, 2010 at 2:26 PM, Pavone <pavone1@...> wrote:

>

>

> Yes, I have heard that too. In fact before we knew my kids were sick they

> received both the flu and then the swine flu vaccine, shortly after they

> became very symptomatic. We have since felt that the vaccines played some

> role in their Lyme, and although I wish i had known then what i know now, if

> the vaccines made us aware of their illness i am grateful for it. However, I

> heard a LLMD say that he sometimes recommends a flu shot to his ADULT

> patients to get their immune system going.

> My sick kids were not due for any required vaccines this year (and we will

> no longer receive any that are not legally necessary to attend school) just

> the paper work.

> I will send you a private message shortly. I'm just curious though,

> how is it that you are being treated by S.B. and Dr.J at the same time? S.B

> was openly and adamantly opposed to our seeing Dr. J. during our visit. If

> S.B. would have acknowledged our sons illness we would have been happy to be

> treated there.

>

>

> > >

>

> > > > I am unable to find a primary care Dr. that is

>

> > > supportive of my

>

> > > > child's treatment from her llmd. I was wondering what

>

> > > everyone does

>

> > > > about this or if it is not an issue for most. Thanks

>

> > > so much.

>

> > > >

>

> > > >

>

> > > >

>

> > >

>

> > >

>

> > >

>

> > >

[Guest guest]

Thanks everyone. It seems that I am not alone. She has had no other issues

except Lyme and Co. so all is well and I feel that her llmd provides very

comprehensive care. I just wish that I could find a supportive Dr. that is lyme

friendly to go to should the need arise.

As for the vaccinations, my child had a slew of them AND a tick bite

(reinfection) all in one week and then the real horror began. Never again.

There was no reason to have her receive so many vaccinations at one time. Had I

known then what I know now....

[Guest guest]

Stony Brook doesnt know yet that I am going to Dr. J. for the same reason...

> >

> > > I am unable to find a primary care Dr. that is

> > supportive of my

> > > child's treatment from her llmd. I was wondering what

> > everyone does

> > > about this or if it is not an issue for most. Thanks

> > so much.

> > >

> > >

> > >

> >

> >

> >

> >

[Guest guest]

I've not been able to find a primary doc who was supportive of the lyme

diagnosis. So, I just don't bring it up. We only go if she needs a physical and

for annual check ups so we can get her other meds filled. I wish I could be of

more help. It's really frustrating to say the least.

Best wishes!

Annie

________________________________

From: Tiffanie <tiffanies_towing@...>

Sent: Wed, November 3, 2010 11:11:42 AM

Subject: Re: [ ] Primary Doctor Troubles

 

Stony Brook doesnt know yet that I am going to Dr. J. for the same reason...

> >

> > > I am unable to find a primary care Dr. that is

> > supportive of my

> > > child's treatment from her llmd. I was wondering what

> > everyone does

> > > about this or if it is not an issue for most. Thanks

> > so much.

> > >

> > >

> > >

> >

> >

> >

> >

[Guest guest]

Really ??

> >

> > > I am unable to find a primary care Dr. that is

> > supportive of my

> > > child's treatment from her llmd. I was wondering what

> > everyone does

> > > about this or if it is not an issue for most. Thanks

> > so much.

> > >

> > >

> > >

> >

> >

> >

> >

[Guest guest]

hmmm....

>

> > >

>

> > > > I am unable to find a primary care Dr. that is

>

> > > supportive of my

>

> > > > child's treatment from her llmd. I was wondering what

>

> > > everyone does

>

> > > > about this or if it is not an issue for most. Thanks

>

> > > so much.

>

> > > >

>

> > > >

>

> > > >

>

> > >

>

> > >

>

> > >

>

> > >

[Guest guest]

just asked our llmd in CA last week and he adamantly said NO FLU SHOTS OR

VACCINES OF ANY KIND while we are being treated.

________________________________

From: pavone1 <pavone1@...>

Sent: Mon, November 8, 2010 6:56:58 AM

Subject: Re: [ ] Primary Doctor Troubles

hmmm....

>

> > >

>

> > > > I am unable to find a primary care Dr. that is

>

> > > supportive of my

>

> > > > child's treatment from her llmd. I was wondering what

>

> > > everyone does

>

> > > > about this or if it is not an issue for most. Thanks

>

> > > so much.

>

> > > >

>

> > > >

>

> > > >

>

> > >

>

> > >

>

> > >

>

> > >