Re: Please give me your advice/Mom for son

[Guest guest]

I am SOOOOO sorry to hear that you and your

son have been dx with lyme. I have living that

night mare for a few years.The worst is behind

us thank God. My son, daughter and I had lyme

( oh yea my dog too)

Just remember it does get better! just hold on!!

On 12/29/05, ebgb_glenda <ebgb_glenda@...> wrote:

>

> Hello everyone,

> My name is Glenda, I joined the group a while back and haven't

> been up to posting. I have been reading, reading enough to know u

> might be able to help me.

> My son and I have both been dx. with LD. We have been treating

> since May, except, he had to go off for 20 days and get another test

> that the school would take and put him in the special classes he so

> much needs.

> After restarting the antibioctic, it has not been as smooth as

> the first time. He has many of the mental symtoms. The past two days

> though, he is complaining of his neck. He can't move it up or down.

> Please tell me this is prob. a herx, or even more so I guess it is

> the LD because I have had this a long time with my neck. (one and

> the same I know) We are to see the Dr. Jan 11, meanwhile I have a

> pediatrision helping. I guess what I want your oppion on, knowing

> you are not a Dr. but you have been through this, is shouldnt I just

> request to lower his dosage? He seems fine phyisically except for

> being incontinint of bowel. I am very sick right now. I don't want

> to be off my toes as this pediatriction is not really Lyme lit. he

> is trying to help. Any response will be so much appreciated.

>

> Thank You

> Glenda and Charlie 6yrs. in Mo. (where we don't have Lyme) They are

> so wrong!!!!!!!!!!!!

>

>

>

>

>

>

>

>

> For up to date information about Lyme disease and the known co-infections

> delivered to your email address see:

> Robynns_Lyme_List/

>

>

[Guest guest]

If I were you I would be contacting the pediatrician or the LLMD that

you have an appointment with in January. Yes, we can have neck pain

with lyme but the stiff neck should be reported, IMHO.

Hang in there Mom,

>

> I am SOOOOO sorry to hear that you and your

>

> son have been dx with lyme. I have living that

>

> night mare for a few years.The worst is behind

>

> us thank God. My son, daughter and I had lyme

>

> ( oh yea my dog too)

>

> Just remember it does get better! just hold on!!

[Guest guest]

> >

> > I am SOOOOO sorry to hear that you and your

> >

> > son have been dx with lyme. I have living that

> >

> > night mare for a few years.The worst is behind

> >

> > us thank God. My son, daughter and I had lyme

> >

> > ( oh yea my dog too)

> >

> > Just remember it does get better! just hold on!!

>

Thank You Both, I did contact the doctor's, the pediatrition

said stay on same dose and it shouldn't be causing the stiff neck.

Duh, that's why I called. I can't call the Lyme Doc. untill I pay

him on the 11th. My son is better, I'm watching him close and I was

herxing too. Went off one antibiotic and zinc. Now slowly

recovering. Thank you all for listening, sometimes you just have to

talk to someone. Glenda and Charlie

[Guest guest]

Hi Glenda.

I was diagnosed with Lyme about 2 ½ years ago. After reading about it,

I felt sure I knew when I had probably been bitten. I live in Texas and

we don’t have any Lyme here either.(Ha) I guess they think they’re able

to read the signs at the state line and they’re smart enough to stay

where they’re supposed to.

Anyway, I felt sure I probably had the Lyme while I was pregnant. We

tested my daughter and she was positive. Then we found out that my

husband also had it. So, for the last three years, every one in our

house has been sick. My daughter is older than your son. She was 15

when she was diagnosed. I just wanted to let you know that all three of

us have neck pain. For us, it seems to always be on one side and goes

down to the shoulder and the arm. The more things we do, as far as

activity, the more we feel it and the further down our arm it goes. Our

doctor gave us a muscle relaxer for that and it helps a lot. Honestly,

I haven’t found a darn thing that relieves all the Lyme symptoms. I

wish there was something that we could take or do that would give us

periods of time that we weren’t feeling some type of discomfort. There

is a web site called Brain Talks where you can post questions. It’s

divided by category and has tons of different problems people have.

Lyme is one of the topics. I’ve found it to be another great place to

get information from other people. It’s always comforting to me to ask

people who have been where I’m at to see what it was like for them.

Even though it doesn’t relieve the symptoms, it does relieve the

worries.

[Guest guest]

I tried to look at this website and couldn't find it. I found one that was

www.braintalk.org but it didn't seem to have anything on Lyme. I searched for

Lyme on the website and it said nothing was found. Do you have the address of

this website?

Thanks,

Patty in MD

There is a web site called Brain Talks where you can post questions. It's

divided by category and has tons of different problems people have.

Lyme is one of the topics. I've found it to be another great place to

get information from other people.

[Guest guest]

http://brain.hastypastry.net/forums/search.php?searchid=803368

Also, scroll all the way to the bottom and find the words Forum Jump.

You can find other topics. Be sure to look through the entire list that

pops up because I've noticed that it will be in alphabetical order, than

another group will follow. You have to join, but it's free.

Re: [ ] Please give me your advice/Mom for son

I tried to look at this website and couldn't find it. I found one that

was www.braintalk.org but it didn't seem to have anything on Lyme. I

searched for Lyme on the website and it said nothing was found. Do you

have the address of this website?

Thanks,

Patty in MD

There is a web site called Brain Talks where you can post questions.

It's

divided by category and has tons of different problems people have.

Lyme is one of the topics. I've found it to be another great place to

get information from other people.

[Guest guest]

Hi, we live in Texas too. I was diagnosed 3 years ago but probably bit a long

time ago without a rash. My son is 12 and has been showing more symptoms of

fatigue, but sure enough he cam out positive 1/3 urine tests. Who treated your

son? Are there any doctors in TX who will treat kids? Thanks!