Embrel

[Guest guest]

Hello when first started her Embrel we asked if she would be able to

come off of the other meds that was the trade off for me I did not want to

give her another med . The only thing they told us was that she would be

able to come off of the pred,and that she will be on the metho. for at least

one more year. So I would think about it it will be 2 more shots a week I do

it at home and some times you just do not want to do it any more . Embrel

has better effect on some then others . well good luck

>From: " Anton GRUSS " <anton.gruss@...>

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>Subject: Embrel

>Date: Wed, 14 Jun 2000 07:45:57 +0200

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>Hello all,

>Viven (11) has been for 1.5 years now under MTX, cyclosporin and aspirin

>and

>10 mg cortison.

>He has helped him a lot after some bad months.

>Doctors think to put him on EMBREL now.

>

>In your experience, when you use EMBREL is it possible to discontinue all

>other drugs ??

>

>

>Anton GRUSS

>

>

>

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[Guest guest]

Anton wrote:

> Hello all,

> Viven (11) has been for 1.5 years now under MTX, cyclosporin and aspirin

and

> 10 mg cortison.

> He has helped him a lot after some bad months.

> Doctors think to put him on EMBREL now.

>

> In your experience, when you use EMBREL is it possible to discontinue all

> other drugs ??

>

>

> Anton GRUSS

Hello Anton,

We started Enbrel injections in December last year. At that stage she only

used steroids (that is the only drug which works for her, even mtx gives

zero effect). Just 2-3 days after starting Enbrel she was markedly better!

All inflammation sites improved. Hence, we could start lowering the pred

doses immediately. We followed a gradual tapering down scheme forward in

time and continued until the inflammation returened somewhat after a couple

of months. Then, we waited for a couple of months and tried further

reduction.

Prior December, she was in a steady state for a couple of years on a

constant high dose of pred, due to Enbrel she is now 40% lower in pred

consumption, and that is really a significant reduction and we are very

happy aboat that. However, her cushing syndrome has not reduced much, it

seems that there is a very long time delay (lag) of that process, some kind

of hysteresis.

Good luck, hope that Enbrel also works for Vivien, he and you really

deserves that.

Best regards

Helge

PS In March I think about climbing the Mount Blach mountain north of you in

Grenoble. You are lucky to have so many high points near you!

[Guest guest]

Hello, my name is Melodi and I am 23 years old. I was diagnosed with JRA at 6

years old and have been on quite a bit of drugs like your sons and daughters.

My drug history includes prendisione, tolectin, plaquenol,naprosyn,

methotrexate, gold injections and more recently Embrel injections. I am

incredibly pleased with Embrel. After about a 1 1/2 weeks I started seeing

tremendous results. My joint pain, swelling and morning stiffness decreased.

I am going on a year on this drug. I am still taking anti-inflammatory for

those wet days that really cause my joints to ache. I have been reading all

of the recent postings and would be happy to answer any questions that you or

your children may have. I am currently an elementary school teacher and have

come such a long way. I hope everyone is having a good summer!

Take care,

Melodi

[Guest guest]

Thanks Helen! I was hoping I would be able to get one of those free

somehow! I also have been using the laundry detergent bottle. It

works fine for me but just takes up a lot of room.

& Grant (11,Psa/Uveitis)

>

> To all of you that use Embrel or some other form of

shots.......you can order a FREE sharps container to put your used

needles in. It is the red hazardous boxes that they use at the

hospital for needles, but this one is a little smaller. I stumbled

across it a few weeks ago, when reading up on the embrel medicine.

It is through Enliven services. Once it is full, you can call them

back (the service is free as well) and they will tell you how to

dispose of the needles and the red box!

>

> here is the website, to order your free box!

>

> https://www.enlivenservices.com/ra/ongoingsupport/forms/sharps-

container.jsp

>

> Here is their homepage, I have found this site very helpful. They

are great about mailing you packets of info, after you have

registered.

>

> http://www.enlivenservices.com/ra/

>

> Our doctor told us to put our needles in an old laundry detergent

bottle, and dispose of them that way. However, I found that hard to

do, since the whole injector part didn't fit in there. I was having

to take the actual needle back off and but the needle only in the

laundry bottle.

>

> Hope that helps!

> Helen

>

>

>

_____________________________________________________________________

_______________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

[Guest guest]

Your welcome ! I was reaching for mine yesterday and ended up shutting it

all the way and locking it! I was so mad, since I only had 4-5 needles in

there!!!! Wonder if they will send me a new one right away......LOL

Helen

Re: Embrel

Thanks Helen! I was hoping I would be able to get one of those free

somehow! I also have been using the laundry detergent bottle. It

works fine for me but just takes up a lot of room.

& Grant (11,Psa/Uveitis)

>

> To all of you that use Embrel or some other form of

shots....... you can order a FREE sharps container to put your used

needles in. It is the red hazardous boxes that they use at the

hospital for needles, but this one is a little smaller. I stumbled

across it a few weeks ago, when reading up on the embrel medicine.

It is through Enliven services. Once it is full, you can call them

back (the service is free as well) and they will tell you how to

dispose of the needles and the red box!

>

> here is the website, to order your free box!

>

> https://www. enlivenservices. com/ra/ongoingsu pport/forms/ sharps-

container.jsp

>

> Here is their homepage, I have found this site very helpful. They

are great about mailing you packets of info, after you have

registered.

>

> http://www.enlivens ervices.com/ ra/

>

> Our doctor told us to put our needles in an old laundry detergent

bottle, and dispose of them that way. However, I found that hard to

do, since the whole injector part didn't fit in there. I was having

to take the actual needle back off and but the needle only in the

laundry bottle.

>

> Hope that helps!

> Helen

>

>

>

____________ _________ _________ _________ _________ _________ _

____________ ___

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

>

>

[Guest guest]

> >

> > To all of you that use Embrel or some other form of

> shots.......you can order a FREE sharps container to put your used

> needles in. It is the red hazardous boxes that they use at the

> hospital for needles, but this one is a little smaller. I stumbled

> across it a few weeks ago, when reading up on the embrel medicine.

> It is through Enliven services. Once it is full, you can call them

> back (the service is free as well) and they will tell you how to

> dispose of the needles and the red box!

> >

> > here is the website, to order your free box!

> >

> > https://www.enlivenservices.com/ra/ongoingsupport/forms/sharps-

> container.jsp

> >

> > Here is their homepage, I have found this site very helpful. They

> are great about mailing you packets of info, after you have

> registered.

> >

> > http://www.enlivenservices.com/ra/

> >

> > Our doctor told us to put our needles in an old laundry detergent

> bottle, and dispose of them that way. However, I found that hard to

> do, since the whole injector part didn't fit in there. I was having

> to take the actual needle back off and but the needle only in the

> laundry bottle.

> >

> > Hope that helps!

> > Helen

> >

> >

> >

> _____________________________________________________________________

> _______________

> > Be a better friend, newshound, and

> > know-it-all with Mobile. Try it now.

> http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

> >

[Guest guest]

Hi everyone .

I dont post much on here but do read a lot of stories on here.I was

diagnoised in june of last year with p .Then in Jan was diagnosed with

Psa. To start out with they put me on sulfrazine and ultram.My joints

still hurts.My fingers arent swelled right now but do have what they

call sausage digitsor nodules.My doctor is starting me on embrel but I

am have trouble with insurance wanting to pay for it.Said I havent

taken any of the other dmard.So whre do i go from here.Dont go back to

doctor till JUlY.As any one else had any trouble with insurance not

wanting to pay fo med because they havent tried any of the other dmards.

Thanks

[Guest guest]

Well, that's another blessing I have.... excellent insurance. I'm on

MTX and Enbrel. Has the dr tried you on MTX yet?

Dotti

[Guest guest]

, you need to call your rheumy's office and let them know that

the insurance will not pay for the meds they prescribed. They (the

rheumy) should either get busy persuading the insurance to pay or

they should prescribe one of the other DMARDs (like MTX) for you to

try first. But don't wait until your next appointment! Don't waste

time in pain. Call the rheumy's office immediately and get them

moving on plan B.

best,

sherry z

[Guest guest]

: it's your doctor's job to provide the insurance company with the

information they need to make an informed decision. Only he can do it and any

good doctor should be able to make the case. My insurance company initially

rejected Enbrel, also, but my doctor appealed and on the third try sent them

copies of the x-rays she had taken and that did the trick. Call your doctor (or

his assistant who works on these kinds of things) and ask what they're doing.

Don't wait.

Joanna Hoelscher

[Guest guest]

,

Have your doctor help you out because I am sure he/she is used to this. My

insurance denied me the first time and I had to resubmit. Call them, write down

the times you call, with whom you speak, what they say. Write them and better

yet, have your doctor send a letter. Stay on them. Enbrel is not new and the

insurance company knows that it works and have seen the results for sometime.

The benefits of Enbrel was two fold. It helped the psoriasis and my arthritis.

If you were taking this for psoriasis it would probably be easier to get on. BUT

you are getting a two in one effect from it. I have been on it for sometime. Now

I am down to a shot a week and sometimes can stretch it longer and my joints

have shown improvement. BE YOUR OWN ADVOCATE! Whatever you take and need to take

stay on the Insurance Company. Also, contact Enbrel. They may have some

information you can use and maybe help to deal with the insurance company.

My Best,

CB

[Guest guest]

I had the same problem a few times and there is a way for you to

fight it.

It should be on the form letter that the Insurance sends you when they

reject the drug.. I cannot remember at the moment the exact word that

is used

There is a process that you can take to ask for a reconsideration by

your insurance( I also did that with success but it took a bit of a

fight by writing and following their procedures)

I take provigal that helps me with being tired all the time with the

fibro and my insurance did not want to pay for it and Medicare made

them pay for it and each year( 5 years now) I have to have my doctor

send a note as to why it is needed for me

There are some groups that help with paying for medication if you are

in the US.

I am not sure if I am allowed to post them here or I would in this email

I had a problem when Enbrel stopped working and I had to get on

Orencia as soon as possible.. I spent a a long calling and writing to

organizations so I have the leads that I can pass on to anyone who

feels they may need help

You can also get the drug company to help also

I have a group now that pays for my medication and thank god now

Medicare pays for the infusion and I just pay the copay

I would be glad to pass them on to the group if I am allowed or if

anyone would like to know some of the organizations that you can get

on waiting lists,etc.. if they are full

You can email me privately and I would be glad to send them on to you

June

[Guest guest]

Have your doctor help you out because I am sure he/she is used to

this. My insurance denied me the first time and I had to resubmit.

Call them, write down the times you call, with whom you speak, what

they say. Write them and better yet, have your doctor send a letter.

Stay on them. Enbrel is not new and the insurance company knows that

it works and have seen the results for sometime. The benefits of

Enbrel was two fold. It helped the psoriasis and my arthritis. If you

were taking this for psoriasis it would probably be easier to get on.

BUT you are getting a two in one effect from it. I have been on it

for sometime. Now I am down to a shot a week and sometimes can

stretch it longer and my joints have shown improvement. BE YOUR OWN

ADVOCATE! Whatever you take and need to take stay on the Insurance

Company. Also, contact Enbrel. They may have some

" " <masseytdm@...>