Rash question

January 19, 2004

n still gets the rash when her arthritis is more active. She only got the fevers with the rash at the very beginning four years ago. When n is doing well the rash is absent or very minimal. Her arthritis has been acting up the last two weeks and some days the rash is very bad. (n, 15, systemic)

rash question

Hi everyone,

I was hoping I could get some input on the Still's rash. I used to get the rash when I got the high fevers. The fevers actually stopped 2 months ago (I hope I'm not jinxing myself!), but I still get the rash once in a while. I noticed it a couple of times while I was in the shower, so I'm assuming the heat from the shower brought it out. And then a few hours later, it will go away, just like it used to with the fevers. So I guess my question is, why do I still get the rash sometimes? I'm still on medication for my chronic symptoms (joint/muscle pain and swelling), so I know I'm not in complete remission. Does the fever mean that the disease is still active? I just think it's weird that I get it without the fevers like before. Thanks and hope everyone is feeling good!

Buffalo, NYVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

January 19, 2004

My rash comes out to play when I get stressed, really upset, nervous or when I do lots of exercise. Like if I go snowboarding or skating for the day, then my rash is usually pretty out there come the evening, but it only lasts a few hours. It also acts up when I have a hot bath and also if I go swimming. Hope this helps.

Patti~Canada

rash question

Hi everyone,

I was hoping I could get some input on the Still's rash. I used to get the rash when I got the high fevers. The fevers actually stopped 2 months ago (I hope I'm not jinxing myself!), but I still get the rash once in a while. I noticed it a couple of times while I was in the shower, so I'm assuming the heat from the shower brought it out. And then a few hours later, it will go away, just like it used to with the fevers. So I guess my question is, why do I still get the rash sometimes? I'm still on medication for my chronic symptoms (joint/muscle pain and swelling), so I know I'm not in complete remission. Does the fever mean that the disease is still active? I just think it's weird that I get it without the fevers like before. Thanks and hope everyone is feeling good!

Buffalo, NYVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

January 21, 2004

Thanks everyone for your input on my rash question. I guess I'm not too worried about it. I just think it's such a strange symptom to get, especially right now because it's not very consistent when it appears. I was so used to getting it with the fevers. And it's weird not getting fevers anymore (knock very loudly on wood) because I had them at least once a week for over a year, even while on the pred. and remicade. So it's helpful to know that others get in after showering too. I never thought about it in terms of stress or being tired. But I did just start working full time about a month ago after being off for a while, so my body is taking a while to adjust. Thanks again for all the replys. Take care...

Buffalo, NY

January 21, 2004

Thanks everyone for your input on my rash question. I guess I'm not too worried about it. I just think it's such a strange symptom to get, especially right now because it's not very consistent when it appears. I was so used to getting it with the fevers. And it's weird not getting fevers anymore (knock very loudly on wood) because I had them at least once a week for over a year, even while on the pred. and remicade. So it's helpful to know that others get in after showering too. I never thought about it in terms of stress or being tired. But I did just start working full time about a month ago after being off for a while, so my body is taking a while to adjust. Thanks again for all the replys. Take care...

Buffalo, NY

February 22, 2004

Has it been really cold where you live? Could it be excema? My son has

excema, and he gets it on the inside of his arms, behind his knees, and

sometimes on his cheeks, and at times it looks like a sun burn, and other

times it has tiny bumps with a lot of redness around them...most of the time

it itches him, but there have been times where he doesn't notice it's there,

he got it for the first time 2 years ago, and he has gotten it every winter

since then.

Jodi

>From: Kim D <smithkim@...>

>Reply-

>

>Subject: Rash question

>Date: Sun, 22 Feb 2004 02:00:30 -0600

>

>Ok,,here's a new one,,,when I was putting Logan to bed,tonight,,I noticed

>a rash on his arms. It was on the inside of his arms,,going from his

>wrists to his elbow. It looked like a sunburn,,but that isn't a normal

>sunburn place. I just checked on him,,and its still there(he has been in

>bed,for about 3 hours) Also,,he looked like its starting on his

>cheeks.Any ideas ?

>

>Kim and Logan 6 poly & connective tissue disorder,,etc,etc

>

>________________________________________________________________

>The best thing to hit the Internet in years - Juno SpeedBand!

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February 22, 2004

Kim

melissas rash looked like that but it started on her hands and went around her wrist and mid ways of the forearm strange about it the face later developed it also

this was a week before thanksgiving when i noticed her hands took her to the er and they said it was dermatis gave me cortisone cream and it didnt help much

i took a digital pic of it for the dr to see as of today she still has the rash

we bought different lotions and creams her face also the odd thing is it goes and comes and it comes back when she puts her hands in water lolol oddest rash i have ever heard of

have you tried cortisone cream yet?

Robbin

February 24, 2004

Has it been really cold where you live? Could it be excema?

*************************************

Jodi,

Cold ? Ha ! I wish !! We live in Texas,,and we don't really get cold

weather . It did snow a couple of weeks ago,,but not just a couple of

hours,,and that is probably the only winter weather we'll have,for the

rest of the year.

I had his pediatrician look at it today,,and he is stumped. he told me

to bring him back,on Friday,,if its still there. It pretty much comes and

goes,,but it is much worse,,when he takes a bath,,or washes his arms,in

warm water. Very strange !

Kim and Logan 6 poly & connective tissue disorder,,etc,etc

________________________________________________________________

The best thing to hit the Internet in years - Juno SpeedBand!

Surf the Web up to FIVE TIMES FASTER!

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November 8, 2004

Hi Barb and other fellow Samterites!

thanks for your reply, Barb - that's interesting about prolonged steroid use. Had been on steroids for 2 years before the rash started, so perhaps that could be it. I now seem to need prednisolone 60mg for about 1 week in 9. The rest of the time i survive on nose drops and puffers for my lungs. Would love to have the confidence and be able to stop all medication for a while - wonder how long I would survive before a trip to hosp for the nebulizer!

It's really wierd talking at last to other Samterites. I have felt totally alone in the past, dealing with this condition which no-one seems to know much about. I'm very lucky at the moment because my sinuses and lungs are in a relatively stable condition. Since my op almost 5 years ago my polyps have come and gone many times but never reached a point where they need to be operated on. The worst part of the whole thing for me at the moment is the rash. Have been referred to an immunologist in Bristol but I can't stand being treated like an "interesting case" by the medics. When will they realise that they are dealing with intelligent human beings with feelings. Also, from previous bad experiences, I have little faith in the medical system and have learnt not to rely on it to provide all my answers and make me better. (Both my parents are Drs - my father a Consultant Immunologist, so I don't say this lightly). I do realise that the only person who can make me

better is ME.

I'm much more interested in trying to manage my condition myself. Have been looking at this from a holistic point of view and have learnt so much about myself and how I work! In a strange way, this condition has opened many exciting new windows of opportunity for spiritual development - something I had never thought about before. I do wonder whether any one else has looked into other means of healing themselves and what luck they have had. I would love to know if anyone has had any spiritual experiences that they would be able to share, or if anyone has any positive stories to share that would give us some encouragement.

I would love to know if I have struck a chord with anyone, or if I'm way off track.....

Look forward to hearing from you,

Becky x

bmv1966 <bmv1966@...> wrote:

Becky-I few other posts along the way have discussed this type of rash. I don't think it was a reaction to the Singulair. I don't take any leukotriene receptor antagonists because for me, they show no improvement in my nasal symptoms. I do think the rash is related to stess and my adrenal gland. I do have adrenal insuffiency from prolonged oral steroid use.The three times this rash appeared correlated to stressful situations:1.Tapering off Medrol and beginning Singulair2.Taking Medrol with Biaxin, turns out there is a steroid enhancing effect from the macrolide antibiotic, so this resulted in a sudden large decrease of the steroid after the course of antibiotic3.While undergoing ASA densensitization at s Hopkins the rash appeared due to the prolonged reactions I had to ASA.They finally

concluded the rash stems from low cortisol levels in my case. This was after numerous tests and a biopsy of the rash.Take care-Barb V

ALL-NEW Messenger - all new features - even more fun!

November 9, 2004

This makes some sense to me. I usually get the rash while I am taking prednisone or after I have recently taken it. From what my doctor tells me, we taper the dose so that the adrenal glands will start to produce cortisol again. So maybe the rash is caused by the glands being out of sync from the prednisone and/or trying to get back into sync. I am pretty sure that it has to do with the prednisone (not necessarily an allergic reaction) because I do not get the rash when I have been off of the prednisone for extended period of time - which unfortunately doesn't happen too often.

Just a thought.

Rob

I few other posts along the way have discussed this type of rash. I don't think it was a reaction to the Singulair. I don't take any leukotriene receptor antagonists because for me, they show no improvement in my nasal symptoms. I do think the rash is related to stess and my adrenal gland. I do have adrenal insuffiency from prolonged oral steroid use.The three times this rash appeared correlated to stressful situations:1.Tapering off Medrol and beginning Singulair2.Taking Medrol with Biaxin, turns out there is a steroid enhancing effect from the macrolide antibiotic, so this resulted in a sudden large decrease of the steroid after the course of antibiotic3.While undergoing ASA densensitization at s Hopkins the rash appeared due to the prolonged reactions I had to ASA.They finally concluded the rash stems from low cortisol levels in my case. This was after numerous tests and a biopsy of the rash.Take care-Barb V

June 16, 2006

Beth,

It could be nothing serious and just caused by the cast.I can't think of the

name but it seems like there is some sore of rash that looks like red pin

pricks that are associated with some type of arthritis related autoimmune

disease.

I pray it's just the cast.

Hugs

Becki and 7 systemic

June 17, 2006

Beth,

Do just like your doing. First step :-). Possible it is the skin

reaction being out in air again.

Hydrocortisone is best with this though or the Antibotic creams. If it hurts

and itchy then try Neosporin with pain. These 2 creams are on hand here at

my house. Call the Dr though Monday unless it gets worse. In the cast the skin

can become dry. 's arm looked so skinny when hers came off and whitish

lolol. Let me know how it goes.

Robbin

June 12, 2007

could it be yeast? Maybe try some clotrimazole (lotrimin) cream and see if that makes it go away.

On Tue, 12 Jun 2007 19:42:51 -0700 (PDT) Beth Yohnk <yohnkmom@...> writes:

I hate to beat a dead horse with another rash question, but I'm going to ask anyway. Miss Hannah, who has been flaring for several weeks, has developed a rash. It is all over her leg, mainly on the back of her knee and top front of her thigh. It is worse on her left leg which is the leg she has been wearing the supporter on for her weakened knee. I was set to blame it on that (it's been hot and humid here), but when I went tonight to put some cortisone cream on it, I noticed several bumps on her other leg too. The rash is raised and bumpy and she says it hurts more than it itches. The back of the knee where it is at its worst is warm to the touch.

Any ideas? Do we need to see the ped for this, or keep watching it. It started over the weekend is much worse today than the last several days.

Beth & Hannah, unspecified arthritis; asthma; gerd; migraines

Sending prayers & happy thoughts,

Beth :-)

June 8, 2008

Valarie,

Petichiae is looks like tiny broken blood vessels and I do not thing ever

itches. I do not know what you have going on . Could be a viral something????

BARBIE

Rash question

so Ive got a rash question:)

Last week, from no where, began a rash that really, really looked like

petechaie(likely spelled wrong). All over, and very, very itchy.

Benedryl didnt help, went to dr, she thought it also looked like

petechaie, and questioned about recent bloody noses, bloody spit,

etc(which hadnt happened). However, under glass, the rash did blanch,

which I think is good right.....petechaie doesnt blanch...at least,

thats what I was thinking. Did a pred burst, along with Atarax, took

over a week to clear. Immediately after that rash cleared, what looked

like an acne breakout began. But, not like normal acne, more like,

immediately, a huge area of acne(which is not typical) exploded (very,

very red and raised with teeny white bumps on the ends)and spread,

became itchy and sort of tender to touch. Have continued the Atarax,

which does help a little with the itch. we've been out of state on my

sons MAW trip, so we've not been to a dr again yet. Will call tomorrow

if its still there....... but, does this sound like anything familiar?

it just seems weird for two rashes to crop up at the same time......no

changes in soaps, foods, etc.

valarie

mom to 3 w/CVID

April 6, 2011

I am on Alinia (1 month) and Azith (3 weeks) and Mepron (2 yrs). I

developed a severe rash on both of my knees (hives) and I am pretty

sure I have developed a latex allergy (I had a band-aid there), but am

wondering if anyone else has developed hives in response to the meds.

Would it start a month or so after starting the meds? I'm really

hoping it is the latex thing since I need these meds (and doubt it's

azith since I was on that a year or so ago with no problems), but

wanted to check in. I also have an appointment with an allergist.

Thanks so much,

Beth

beth@...

April 6, 2011

I can't really help you other than my kids seem to get rashes at odd times. I

know you can get a secondary bulls-eye rash at any time during treatment so I

don't know why other rashes wouldn't be the same. I wonder if you put a

band-aid on another spot, if you feel comfortable doing that now, just to see if

you get the same kind of reaction. I would guess if you got the rash on both

knees that that would be related to the critters/meds.

Elaine

________________________________

From: Beth Freishtat <beth@...>

CaliforniaLyme ;

Sent: Wed, April 6, 2011 8:01:04 AM

Subject: [ ] Rash question