Doxycycline

[Guest guest]

Hi philip

I was on doxycycline for roseacea (sp?) and I also heard its the treatment

for ulcers caused by the helicobacter virus

marie

At 11:14 AM 09/21/1999 -0400, you wrote:

>From: Philip L Comer <philcome@...>

>

>Is anyone else on doxycycline? I have been told that it can help with

>some viruses? Is that true?

>

>Phil

>

>

>>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

Phil:

My daughter is on doxy for Mycoplasma. I am not aware of any antibiotic than

can treat a virus.

Dianne

[Guest guest]

Marie:

I believe Heliobacter is a bacteria, not a virus.

Dianne

[Guest guest]

In a message dated 9/21/99 11:10:43 AM Eastern Daylight Time,

philcome@... writes:

> Is anyone else on doxycycline?

Yes Phil...... I am on Doxy, and I have read it might have antiviral

properties, we are treating mycoplasmal infection etc. , and myco is not a

bact. or virus so it does have properties unknown...

I will try to remember where I read and will forward it...

Susy

[Guest guest]

> Phil:

> My daughter is on doxy for Mycoplasma. I am not aware of any

> antibiotic than

> can treat a virus.

I just read something a couple weeks ago that said Doxycycline

is effective against the Parvo virus. The reasons they speculate

this might be true can be read at:

http://www.garynull.com/documents/arthritis/mycoplasma%5Fexperiments.htm

Patti

--

[Guest guest]

Yes, It is. Although one can have ulcers without the bacteria - as I do.

Best thing is to be tested!

Christie

At 06:47 PM 9/22/99 EDT, you wrote:

>From: FDSCAFE@...

>

>Marie:

>I believe Heliobacter is a bacteria, not a virus.

>

>Dianne

>

>>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

In a message dated 9/22/99 9:00:43 PM, SkariPM@... writes:

<< http://www.garynull.com/documents/arthritis/mycoplasma%5Fexperiments.htm >>

Patti:

Thanks for the Very interesting article. I am going to make a copy and give

it to the Infectious Disease Specialist in our county who told me that this

illness was " all in my head, " and that the reason my family had it is because

I was making them hysterical. Don't know if it will help any, but at least I

can try.

Thanks again,

Dianne

[Guest guest]

In a message dated 9/24/99 1:15:18 PM Eastern Daylight Time, FDSCAFE@...

writes:

<< I am going to make a copy and give

it to the Infectious Disease Specialist in our county who told me that this

illness was " all in my head, " and that the reason my family had it is

because

I was making them hysterical. Don't know if it will help any, but at least

I >>

Dianne, a famous specialist told me he's just waiting for the day when a PWC

will sue a doctor for malpractice.......failure to diagnose is malpractice!

And he and a few others will be more than willing to testify!

Gail

[Guest guest]

In a message dated 9/24/99 11:11:42 PM Eastern Daylight Time,

GAILRONDA@... writes:

> .failure to diagnose is malpractice!

Gail, I have a friend that is going to school to be able to do just

that, one day you will hear alot of malpractice suits.........

Susy

[Guest guest]

In a message dated 9/24/99 11:17:58 PM Eastern Daylight Time, SUSYDOG@...

writes:

<< one day you will hear alot of malpractice suits. >>

I can't wait. We hear from patients every day from all over who complain

that their doctors won't diagnose them. Time to make them pay the

consequences. A decade and more has given them enough time.

Gail

[Guest guest]

> Dianne, a famous specialist told me he's just waiting for the

> day when a PWC

> will sue a doctor for malpractice.......failure to diagnose

> is malpractice!

> And he and a few others will be more than willing to testify!

Maybe I will be the first one. Could you please give me

more information on what the law means by " failure to

diagnose " ? does that mean if one doc says you're OK

and another says you have something, like fibro, you can

sue the first one? (for example) or does it mean if you

go to a doc and he doesn't find the source of your problem

you can sue? PLEASE give me more info! I will need to

get moving on this soon if I am going to do it. I just

found out something today about my case that made me hopping

mad. I used to be so much against lawsuits, I tell you, this

illness is turning me into a tiger!

Patti

--

[Guest guest]

Patti, just failure to diagnose is malpractice. It is up to the doctor to

know about illnesses and to diagnose and is not in his realm to decide

whether he " believes " in them or not. Not giving a diagnoses or not

believing leads to emotional pain along with the illness. The CDC gave it's

case definition a long time ago ('88) and he has no excuse not to diagnose.

Gail

[Guest guest]

At 01:44 PM 9/25/99 EDT, you wrote:

>From: GAILRONDA@...

>

>Patti, just failure to diagnose is malpractice. It is up to the doctor to

>know about illnesses and to diagnose and is not in his realm to decide

>whether he " believes " in them or not.

AMEN to this!! Now how to get doctors expand their " belief " systems!?

Not giving a diagnoses or not

>believing leads to emotional pain along with the illness.

I think this is the worst part of this DD. We really need a strong

national organization with strong advocacy efforts as MS society, AIDS,

etc. I am member of lupus foundation, and it is only in the past year that

there is a formal advocacy office at national level and increased support

to state chapters. And in turn, state chapters can further support local

chapters. But this has taken a lot of time and serious effort and

cooperation. Thank goodness the paid personnel are healthy! I believe the

problems are worse for CFS people because of name of DD and because of

various things it can be. Diagnosis & treatment are shots in the dark! I

wish I were healthy enough to jump into serious advocacy efforts, but have

learned I can't do everything even though I used to do so much. So, I am

here doing what I can - supporting the need to explore various treatment

modalities, and hopefully educating others (maybe a few docs too? - one can

hope!).

Well, please pardon the digression; I get upset when someone is mistreated

by doctors and by system that doesn't seem to care about their disabled

citizens. And here again, I have to tell myself I must choose my battles -

I can't have them all!

Christie - climbing off of soapbox

[Guest guest]

Thanks Jeff, interesting stuff.

I would like to point out a couple things in relation to implication of

the articles that doxycycline is helping with arthritis and gum disease,

not because it kills germs, but because of its mild anti-inflammatory

effects or enzyme inhibiting properties.

Dr. Garth Nicolson has found that approximately 50% of arthritis

patients tested were infected with mycoplasma (a bacteria like " germ " ).

When treated with doxycycline they improved. The implication of his

study being that doxycycline helps the arthritis patients by virtue of

its antibiotic effect.

He also has found that may Gulf War Illness patients suffering from

mycoplasma infection have frequent gum infections. Quoting from one of

his papers:

" Oxidative Therapy for Chronic Infections

Oxidative therapy appears to be useful in suppressing infections.

Hyperbaric oxygen, American Biologics Dioxychlor are useful, or peroxide

baths using 2 cups of Epsom salt in 20 inches of hot bath or Jacuzzi.

After 5 min add 2-4 bottles 16 oz. of 30% hydrogen peroxide. Repeat 2-3X

week; no vitamins 8 hr before bath. The hydrogen peroxide is added after

your pores open. Hydrogen peroxide can also be directly applied to skin

after a work-out or hot shower/tub. One approach is to apply Swedish

Beauty type A tanning accelerator for 5 min before peroxide. Leave

hydrogen peroxide on for 5 min and then wash off. For oral irrigation,

mix 1 part 30% hydrogen peroxide with 2 parts water and use like a mouth

wash 3X per day. Most chronic illness patients have dental problems, and

infections are common. "

I would a go even little further to offer a limited challenge to the

statement

made in one of the papers that " Over the past ten years researchers have

found antibiotics can also fight many diseases NOT CAUSED BY BACTERIA "

[emphasis is mine]. With the advent of genetic engineering we now know

that bacteria can transport novel or foreign genetic material into the

body. Depending on the location the foreign genetic material is

deposited it can disrupt and/or permanently alter the normal function of

the cells in that area, and indirectly others which interact with those

cells

which become altered: thereby potentially causing an endless number of

diseases, or conditions which mimic those diseases by producing

identical

problems.

What this means is that even noninfectious diseases (or those we have

always assumed were noninfectious) such as ALS, MS etc. can be caused by

bacteria if those bacteria are carrying genetic material of a kind that

can be destructive to the body's normal cellular structure and

function. Once the abnormal genetic changes occur as a result of the

bacteria depositing its load of genetic crap in previously normal cells

of course the disease that results may or may not be reversible. It

all depends on exactly what disruptive effects the bacteria is

producing.

I would recommend a great paper to the list as a starting point in

understanding just exactly how far genetic engineering has come, and how

Gulf War Illness and vaccine problems may be directly related. You can

find it at http://online.sfsu.edu/~rone/GE%20Essays/Redesigning.htm.

Also see the book by Dr. Pollack entitled " Signs of Life " .

If you think the advanced research cronies in the Pentagon (and their

contractors) are not way ahead of us in applying this to warfare, guess

again.

Thanks for your help Jeff. Don't put yourself out on my account. I

have come to suspect you are right about doxycycline having some

immunosuppresant effects, I just don't think that is why it works for

Gulf War Illness.

Rick

http://www.compuage.com/~rdharrison/Index.html

[Guest guest]

I was wondering if any body else has had the experience of losing their sense

of taste while taking doxycycline? For me it's not necessarily a bad thing.

I've lost 24 pounds while taking doxy, and it has been a blessing.

The herxheimer reactions are not as pleasant, but I'm willing to put up with

the herx since I have seen overall improvement, especially in my pain levels

and lymph nodes calming down.

Barb

[Guest guest]

I'm in my fourthnmonth of it and haven't noticed any affect on taste.

Phil

KB46@... wrote:

> From: KB46@...

>

> I was wondering if any body else has had the experience of losing their sense

> of taste while taking doxycycline? For me it's not necessarily a bad thing.

> I've lost 24 pounds while taking doxy, and it has been a blessing.

>

> The herxheimer reactions are not as pleasant, but I'm willing to put up with

> the herx since I have seen overall improvement, especially in my pain levels

> and lymph nodes calming down.

> Barb

>

> > This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

http://www.folkarts.com/idef/introduction.htm lists various tests -- including

the 'take 30 days of doxcyc' and see if you herx test... :-)

---------- Original Message ----------------------------------

From: " Theresa Romani " <tromani@...>

How would I know if I am a good candidate to try doxy? Are there any tests<BR>

that would be helpful first, ie for various bacteria, myco? Where is the<BR>

best place to have such tests done?

[Guest guest]

Dr. Gabe Mirkin has a radio show. He would probably be a good doc. You can

find out about testing at www.immed.org.

Christy

n a message dated 2/15/00 11:34:29 AM Pacific Standard Time,

tromani@... writes:

<<

From: " Theresa Romani " <tromani@...>

I have been on cipro for an incipient bone infection which seems to have

responded quite well. The podiatrist I see for this mentioned the belief

that FMS and CFS patients harbor all sorts of bacteria that await a stress

to the system to manifest and he thinks that was true for me. I told him

about this list and the idea that long term antibiotic treatment (esp. doxy)

seems to help some people. He offerred to put me in touch with his father,

another MD who has said this for years and would be willing to put me on

doxy (Dr. Gabe Mirkin). Does anyone know of him in regards to FMS or CFS?

How would I know if I am a good candidate to try doxy? Are there any tests

that would be helpful first, ie for various bacteria, myco? Where is the

best place to have such tests done? I started ImmunoPro less than a week ago

and had to cut way back on that but am feeling ok on 1 tsp/day right now.

How quickly can one move up the dose without feeling the flu effects?

Thanks,

Theresa >>

[Guest guest]

Radha - I tested neg for mycoplasma and have had some success with both

erthromycin and acyclovir (I'm pos for stealth virus) - no success with

either doxy or oral gancyclovir! Deb

Doxycycline

> From: radha21@...

>

> i wanted to know if any of u take doxy antibiotics who have tested

negative

> for mycoplasma. i've tested negative, but my doc is has agreed to give me

rx

> for doxy. is there any way to tell difference between viral and bacterial

> infections?

> Radha

>

> ------------------------------------------------------------------------

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>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

In a message dated 5/11/00 5:04:53 PM Pacific Daylight Time,

tyree.pines@... writes:

<< by a prescribing doctor. But a few days ago, my husband, who has

post-polio, decided he'd like to go on the doxy and not bother with the

doctor, blood tests, and prescription. I ordered 2 bottles of 100mg doxy

(30 each) for a total with shipping of $30.93. Today the order arrived.

I compared the capsule to my daughter's prescription, and it was

identical, down to the blue color and name and number on the capsule.

There was absolutely NO DIFFERENCE! The only difference was in the

packaging. It comes in a bottle identified as >>

Wow, can you please keep us posted as to if it has the same effects?

[Guest guest]

[Patti:] Very, clever April. Kudos to you!

----

In the past, I've posted here how to get doxycycline over-the-counter. I

hadn't actually ordered any previously since my daughter is getting hers

by a prescribing doctor. But a few days ago, my husband, who has

post-polio, decided he'd like to go on the doxy and not bother with the

doctor, blood tests, and prescription. I ordered 2 bottles of 100mg doxy

(30 each) for a total with shipping of $30.93. Today the order arrived.

I compared the capsule to my daughter's prescription, and it was

identical, down to the blue color and name and number on the capsule.

There was absolutely NO DIFFERENCE! The only difference was in the

packaging. It comes in a bottle identified as " Bird-Biotic " with

instructions for treating birds.

Still, $30 a month, while not prohibitive, isn't exactly cheap. I then

noticed that the bottle came from Laboratories, and the web page

was:

www.thomaslabs.com <http://www.thomaslabs.com>

I checked out the site and found that I could order it even cheaper.

Here is the text from their web page:

========================

DOXYCYCLINE HYCLATE

100 mg

Bird Biotic is for the control of non-specific bacterial infections in

birds and racing pigeons. Not for use on birds intended for human

consumption.

Order #50148 30 capsules $11.95

Order #50036 100 capsules $29.95

===============================

I then went to the ordering page, and noted that UPS shipping within the

continental U.S. is free. I'm not sure that their ordering page is

secure (I didn't see a lock/key symbol at the bottom of the screen), so

you might prefer to order by phone at (800) 359-8387. You must have a

minimum order of $25.00. Here is some of the text from the ordering

page:

=================================

NO

HANDLING

FEE FOR

ARIZONA

CUSTOMERS STANDARD

HANDLING

$25.00 Minimum Order

$25.00 to $99.99 add $9.99

$100.00 and Over NO FEE

FREE

UPS GROUND

SHIPPING ON

ALL ORDERS

WITHIN THE

CONTINENTAL

UNITED STATES

=========================

I think next month I'll order from my doxy from Labs. I'll keep

the list posted on my experience.

April

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This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Hi Tony,

Exxon Mobil have never insisted that people take doxycycline as malarial

prophylaxis - howver it it a requirement for all working in EG to take some

form of malarial prophylaxis and many prefer doxycycline to mefloquine.

Malarone is quickly becoming the prophylactic of choice -don't have to take

it for a month when you get back etc. Due to its expense (and some GP's

haven't heard of it/non UK licensed as a prophylactic) it is still not

widely in use.

Cheers,

Bill

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

[Guest guest]

Obviously the choice of antimalarial is dependent on the country being

visited.

For proguanil/chloroquine resistant areas the best choice is still

mefloquine. It has an established usage profile, is cheap and costs

little.Many people don't like it because of the side effects (sleep

disturbance mainly) and the overplayed, rare neuro psychiatric effects. For

this reason some jobs can't take it, divers for example, and I like to trial

a new user about 3 weeks before their trip. Time constraints can be a

problem here.

Doxcycline is extremely cheap and has the advantage of usually being

available in the less salubrious areas of the world. It has only been

licensed for prophylaxis recently. Unfortunately it can cause

photosensitivity, not the best thing in a malarial area.

Malarone is rapidly becoming a major player even without licensed status.

Its main advantage is the rapid onset of action and rapid discontinuation on

return. Unless you're on a 6/6 cycle or longer you will never be " drug free "

with the other products. Data about its use as prophylactic agent is limited

it seems to be about 99% effective and in my experience (and I use it a lot)

nobody has reported adverse side effects. One guy even wanted to stay on it

when he home because it made his dreams " extremely interesting " . I didn't

ask further. It is extremely expensive at the moment. It's apparently

expensive to make and has to be dispensed in treatment packs ( 12 tablets)

rather than in amounts for prophylaxis (probably 22 tabs) making it

difficult to give out the correct amount for a trip. (Under European

legislation medications can now only be dispensed in original blister

packaging) The price should come down when it gets licensed and the GPs

start giving it out to the holidaymakers.

Greg

Re: Doxycycline

>

> Hi Tony,

>

> Exxon Mobil have never insisted that people take doxycycline as malarial

[Guest guest]

Just thought you might be interested to know that as vets we have been using

Doxycycline as a drug for respiratory disease in small animals and pigeons

for sometime under the guise of Ronaxin and ornicure.Might be worth a trip

to the vets!Only trouble is that we probably get charged even more than the

medics do for it!

Simon

P.S. It helps our patients fly faster! any takers?

Re: Doxycycline

>

> Hi Tony,

>

> Exxon Mobil have never insisted that people take doxycycline as malarial

> prophylaxis - howver it it a requirement for all working in EG to take

some

> form of malarial prophylaxis and many prefer doxycycline to mefloquine.

> Malarone is quickly becoming the prophylactic of choice -don't have to

take

> it for a month when you get back etc. Due to its expense (and some GP's

> haven't heard of it/non UK licensed as a prophylactic) it is still not

> widely in use.

>

> Cheers,

> Bill

>

>

>

> _________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

>

>

>

>

[Guest guest]

Very interesting Simon - unfortunately doxycycline costs pennies, don't

suppose you use Malarone??

Bill

>

>Just thought you might be interested to know that as vets we have been

>using

>Doxycycline as a drug for respiratory disease in small animals and pigeons

>for sometime under the guise of Ronaxin and ornicure.Might be worth a trip

>to the vets!Only trouble is that we probably get charged even more than the

>medics do for it!

>

>Simon

_________________________________________________________________________

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