hip pain

[Guest guest]

Hi Tammy,

Did the doctor do hip X-ray to see what the hip ball and socket are

doing?? If not, get those done first. Also, how is the knee on that

leg...any pain there? Pain travels sooo check all possibilities.

You could be pinching a nerve back there in the back of the hip...and it

may not be directly spine related.

Both celebrex and/or predizone can be hard on the kidneys and liver for

some folks. If you're taking them you should have blood work done about

every six months.

Just some thoughts,

Karin (hip surgery last December)

________________________________________________________________

YOU'RE PAYING TOO MUCH FOR THE INTERNET!

Juno now offers FREE Internet Access!

Try it today - there's no risk! For your FREE software, visit:

http://dl.www.juno.com/get/tagj.

[Guest guest]

Let me ask you - do you take your medication at night. My grandfather was

crippled by arthritis and there is a family history of arthritis. My Uncle was

a doctor who research arthritis for this very reason.

1) If the medication says take every four hours - take every four hours. Do not

take every four hours until I go to bed. Do not take it every four hours or so

as the pain says I need it. Do not take it every time you wake-up. YOU MUST

FOLLOW THE DIRECTIONS. A lot of arthritis medications have other

purposes/benefits, besides as a pain killer. (it thins the blood, cuts the

inflammation, etc.)

2) Schedule your meds so that you take them just before you go to sleep and a

half hour prior to getting out of bed.

a) Reason for taking your med just before you go to sleep, is to help you relax.

If you are in pain you cannot relax thus you cannot sleep well. Plus the first

hours of sleep at night is usually your deepest and most restful.

Reason for taking your meds ½ hour prior to getting out of bed. You have

done nothing doing the past 8 hours except lay in bed, so of course all of your

body is going to be sore from none use. In addition, you have not had any pain

medication for the last 4 hours. Add these too items together you will be in

pain.

By taking the medication and allowing it to work for a half hour, you should be

able to move a lot easier.

>>> <tynywonder@...> 10/09/00 01:40PM >>>

Hi Folks! I need some advice, I am currently taking celebrex for arthritis

and I have one leg shorter than the other; therefore, I do wear a built-up

shoe. I have recently been experiencing some excruciating pain in my hip

near my spine, and I have been to see an orthopedic doctor and he gave me a

prescription for predizone which I never got filled. This pain is while I am

sleeping and right as I get up in the morning and for the last 2 nights (or

mornings), I have moved to the couch and for some reason it feels better,

does anyone have any personal experience with this? The orthopedic dr. gave

me 3 options, one was have surgery and risk not being able to move hips

again, or get braces for my legs or, just deal with the pain and continue

with anti-inflammatory meds. I would like to know who has been through this

same experience and what was done about it?

Thanks for the input on my issue!

Tammy

[Guest guest]

In a message dated 10/9/00 1:40 PM Eastern Daylight Time, tynywonder@...>

<< The orthopedic dr. gave

me 3 options, one was have surgery and risk not being able to move hips

again, or get braces for my legs or, just deal with the pain and continue

with anti-inflammatory meds. I would like to know who has been through this

same experience and what was done about it? >>

I had experienced some severe hip pain awhile back. I wound up seeing an

orthopedic doctor and he recommended I watch my weight. He also prescribed

some pain medication such as Ultram. I was careful in how I got around and

used a back massager and kept myself propped up when I slept and after a few

weeks went back to my orthopedic doctor and from doing what he said things

seem to be getting a bit better than before.

Helen

[Guest guest]

To Tammy again:

What other medication I took for the hip pain was Artrotec (sp.)? That

worked the best compared to Ultram, but again I would check with my doctors

as far as medication goes. What works for one may not work for another and

there are other alternatives than just taking medicine.

When I first experienced the hip pain I went to my regular doctor. I then

decided to see a specialist who specialized in someone with dwarfism since I

had never been to see one plus the pain didn't seem to be going away.

What I have been doing lately as far as pain goes is walking. I love to

walk. It is cheap and you can do it anywhere. I also suggest getting a good

pair of walking sneakers whether Reebok or what have you. I used to wear my

sneakers down like wearing a car down. :-0 I have learned to ditch them when

they are worn down since that has an effect on your legs, back, hip.

Helen

[Guest guest]

I hardly believe this story and Im the one telling it.

My lower back, more precisely my right hip has been " going out " about once

a week for several weeks to the point that I can't turn over in bed nor

walk across the room very well....excruciating pain which radiates up into

the lower back..I knew it was either the psoas or quad.....s muscle from

work I did with a Myofacial pain guy last spring.

But his practice is 100 miles from me and driving of any kind agrevates it.

I have been beginning to notice that this hip pain is associated with the

times I am doing the 4 days of DMSA chelation....just the last two times

and was wondering if there was a connection...

Any way...yesterday I complained about how overwelmed I felt on one of my

mercury surviving list, then a post came in from someone on this list

about how she'd dealt with leg pain by doing a water enema, then a coffee

enema, then an ozonated water enema, then rectal ozone insulfation and the

leg pain had gone away entirely.

So I decided to try it....I didnt have coffee and it was cold outside

(where my ozone generator is) but I did a water enema, then an ozonated

water enema last nite....then went to bed not noticing any

difference.....but after I got up this morning, I felt the most pain free I

have felt for weeks....like I had a whole different back....so I drank a

quart of ozonated water today.

fabulous!!

Jaen Treesinger

Bengals from the RainForest

........amazingly smart, incredibly fast and just gorgeous!

Check out new pictures on our website at: http://www.bengal-cat.com

[Guest guest]

> Well, I was feeling so sooo good after my recent right hip

> replacement on Dec. 9. I was just about doing anything. Walking up

> to a mile a day. Then BAM!!!! Something happened. It happened in my

> sleep. I woke up to pain in my hip and down my leg, I also found

> myself laying on my left side with my right knee over my left leg. I

> usually have a pillow under that right knee, but somehow the knee

> slipped off. I guess I was in that position too long.

Please let us know what the doctor said.

Charlotte in Iowa

[Guest guest]

Hi . She has had the popped out feeling also. Right now she says it

only hurts when she moves it. I will probably wait a few days to see if it gets

better on its own. If not, I will call her rheumy. Thanks. Kim

In a message dated 4/9/2005 7:56:51 PM Central Standard Time,

scsarah@... writes:

The first joint that I began having problems with was my hip, but pain

wasn't the main symptom. It would feel like it had " popped out " , and

then hurt. Since then I have lost some range of motion, but I was very

flexible before and the loss of range of motion hasn't been a problem

(now my range of motion in that joint is about average). When it did

hurt, it was on the outside of the hip.

(14, likely poly)

[Guest guest]

Thanks Debi. Did your daughter's hurt all the time? She says it only hurts

when she moves it. It is only the left one. It doesn't hurt to the touch. Right

now, she is only complaining about pain. I think I will wait a few days and

see how it feels. I hope your daughter is able to find some relief. Thanks

again. Kim

In a message dated 4/9/2005 6:50:34 PM Central Standard Time,

debiannp@... writes:

leigh (11/poly) has had hip pain 5 times in the past year. The

first time last July the Doctors wanted to rule out hip septicemia.

(diagnosis was bursitis of the hip) After that it has been JRA. Very

painful for her and debilitating. The only thing that is keeping it at

bay is prednisone, injectable MTX and Enbrel.

The pain is on the outside of her hip. I think this is one of the

worst spots to have it. Thankfully we found a wheel chair reasonable

and that allows her to move about the house on her own and makes trips

to the mall fun. We only use it on those really bad days.

Please email me if you have any questions that maybe I could help

with. debip1117@...

Debi (leigh 11/poly)

[Guest guest]

> My daughter is complaining about pain on the outside of her hip when

she

> walks.

leigh (11/poly) has had hip pain 5 times in the past year. The

first time last July the Doctors wanted to rule out hip septicemia.

(diagnosis was bursitis of the hip) After that it has been JRA. Very

painful for her and debilitating. The only thing that is keeping it at

bay is prednisone, injectable MTX and Enbrel.

The pain is on the outside of her hip. I think this is one of the

worst spots to have it. Thankfully we found a wheel chair reasonable

and that allows her to move about the house on her own and makes trips

to the mall fun. We only use it on those really bad days.

Please email me if you have any questions that maybe I could help

with. debip1117@...

Debi (leigh 11/poly)

[Guest guest]

The first joint that I began having problems with was my hip, but pain

wasn't the main symptom. It would feel like it had " popped out " , and

then hurt. Since then I have lost some range of motion, but I was very

flexible before and the loss of range of motion hasn't been a problem

(now my range of motion in that joint is about average). When it did

hurt, it was on the outside of the hip.

(14, likely poly)

On Apr 9, 2005 7:50 PM, Debi <debiannp@...> wrote:

>

>

>

> > My daughter is complaining about pain on the outside of her hip when

> she

> > walks.

> leigh (11/poly) has had hip pain 5 times in the past year. The

> first time last July the Doctors wanted to rule out hip septicemia.

> (diagnosis was bursitis of the hip) After that it has been JRA. Very

> painful for her and debilitating. The only thing that is keeping it at

> bay is prednisone, injectable MTX and Enbrel.

> The pain is on the outside of her hip. I think this is one of the

> worst spots to have it. Thankfully we found a wheel chair reasonable

> and that allows her to move about the house on her own and makes trips

> to the mall fun. We only use it on those really bad days.

>

> Please email me if you have any questions that maybe I could help

> with. debip1117@...

>

> Debi (leigh 11/poly)

>

>

>

[Guest guest]

Did your daughter's hurt all the time? She says it only hurts

> when she moves it. It is only the left one. It doesn't hurt to the

touch.

I asked her and she said extremely when she moved it but also just

sitting there. BUT sneezing was the worst. Both of her hips hurt at

different times.( different flares?)

HTH

Debi (leigh/Poly)

[Guest guest]

Kim,

has the hip pain off and on. Sometimes it's for day's on end.

Sometimes it's both hips at the same time and sometimes it's one at a time.

There's a procedure the PT does to her hips which help alot. says the

same

thing about how it feels. Feels like the hip is out of socket.

Have you watched your daughter walk bare footed? How does her feet land

back on the ground? Do they land flat or is it landing on the side then the rest

on the floor. Has your daughter been check for leg differences? Since she has

JRA theres several thing's that can cause the hips to become more painful.

The way the PT told me was when one thing is out of line it can throw the whole

body off.

The procedure that is done on to help is new to some.

say's she felt relief soon as it was over. You can see the difference yourself

also. I will get the name of the procedure and let you know. The range of motion

is alot better. The only bad advantage is this procedure has to be done when

it happens again. It's a fix for a few weeks til it slips again.

Robbin

[Guest guest]

Robbin is right about the PT thing, also strengthening the muscles in the

hip region can help to keep the hip in place. If the muscles get weak the hip

can sort of slip out. I would definitely get her get checked for any leg

deformity. I have a supenated leg.. basically I walk on the side of my foot,

if I

were to put my foot flat my knee turns inward almost completely facing the

other knee and my hip changes the way it sits in the socket.. My left leg is

the same way but less severe... they have absolutely no clue why this happened

but it was when I was developing in the womb my legs developed weird.. in

fact so did my shoulders as of I can pop my left one out of socket with

absolutely no problem... have them check for something like that because my leg

use

to always feel like it was coming out of socket when I got x-rays done well

they figured out that although my hip was slipping out my ankle is now bone to

bone.. i have an ankle foot orthotic (i dont wear it.. i should.. but i dont)

and when I did wear it my hip stayed better in place.. it was built up to

allow me to walk on the side of my foot (because it hurt to turn my knee inward

so much and to have my hip sittiing incorrectly in the socket) but most of

the pressure was on the orthotic and not on my ankel. It might be as simple

as needing some sort of shoe insert to help with the legs staying in proper

placement. Make an appointment with a orthapedic.. they will be able to tell

you what is what. PT is definitely a good idea and maybe some inserts will

help. Hope she starts feeling better..

Lots of Love

(Poly JRA and Spondy, 20)

[Guest guest]

Kim,

Hip pain is so annoying, isn't it? It's just such a useful, used part of

the body...

Both of my boys have hip pain in varying degrees...Owen started out with hip

pain (ended up being an avascular necrosis in the left hip) but still goes

through flares in his right hip where he swings his hip to walk so that it

doesn't have to rotate in the joint as much to avoid pain. Liam has hip

pain also, during flares, and he has a tendency to shuffle to avoid the

movement in the joint. Both of them would say, hands down, that it is one

of their most debilitating joints, where they would pound through the pain

to run even when their knees or back hurt, they are out for the count when

it comes to their hips, they can't just plug through.

With both of them, it hurts both on the outside of the hip and between their

legs, in the groin area. It is tender to the touch on the inside of the hip

and sometimes a bruised feeling on the outside, but not always. It also

moves the quickest of all their joints towards a worrisome lack of mobility.

I hope that your daughter gets relief soon.

[Guest guest]

Hi Kim. complained of hip pain, and when the dr checked it, we

found he actually had inflammation in his pelvic rim. This led to the

spondyloarthropy diagnosis. It is the tendons that wrap through that

area that were inflamed for him. I would tell the dr and have him/her

check for inflammation in the area. Good luck, Michele ( 17, pauci

& spondy)

hip pain

My daughter is complaining about pain on the outside of her hip when she

walks. It just started out of the blue yesterday, as far as she is

aware. Can

anyone share what symptoms you would have if you had arthritis starting

in the

hip? I think I read the pain would be in the groin area, is this

correct? She

has had pain in the groin area before, but not this time. Thanks. Kim

[Guest guest]

Hi Carol,

Its something that you just ask this. I experienced that type of pain

when I started using our treadmill last week. Was so surprised, thought

I was taking it slow, but guess not. A soak in the hottub helps it to

relax a bit. I have slowed my self down with the exercising and it

seems to have resolved itself. It was as you described though. It

pulled horribly, hurt like a son of a gun. Geez as if I needed anything

else to double me over.

[Guest guest]

Carol,

This may or may not prove useful. It sure helped me figure some stuff out. If not the piriformis, you might click on the hip and look at the other motions and muscles in this region...

http://www.deeptissue.com/learn/hip/piriform.htm

kam

[Guest guest]

We got an upright exercise bicycle in Feb., but this pain has just

seemed to get worse this past month or so, and I only notice it after

I've gone grocery shopping (the next day). I only use the bike maybe

three times a week at the most, and even then I can only go for around

6 minutes each time. I wish the store had an electric scooter. Just

about the time I was seriously thinking about starting to use one

there....the two they had have now disappeared. Maybe they broke or

something. And the comment the other day from someone else about using

a wheelchair or electric scooter at the mall----as far as I know the

mall doesn't have anything like that to rent. Besides that, I'm not

going to make my 80 yr. old mother push me around in a wheelchair!!

Then she'd have to be in it next!!! I'd have to get my 15 yr. old to do

it.

Carol (CA)

>

>

> Hi Carol,

> Its something that you just ask this. I experienced that type of pain

> when I started using our treadmill last week. Was so surprised,

thought

> I was taking it slow, but guess not. A soak in the hottub helps it to

> relax a bit. I have slowed my self down with the exercising and it

> seems to have resolved itself. It was as you described though. It

> pulled horribly, hurt like a son of a gun. Geez as if I needed

anything

> else to double me over.

>

>

>

[Guest guest]

Carol,

Yes, before revision...everything in my hips hurt. I had pririformis

syndrome going bigtime which was very difficult to deal with when I

had to walk long distances. I also found that the muscles that were

on the upper part of the buttock would fatigue very quickly and hurt

or spasm if I was standing and trying to do something on a

countertop.

If you have flatback and your torso is not aligned over your pelvis

your body is trying to compensate in ways it was not designed

too...putting a tremendous load on your hips, knees and underlying

joints, tendons and muscles. When you think how well the design of

the average human body serves movement and consider the permanant

forward leaning posture we slowly assume....it is a wonder our

bodies hold up at all!

I hope you can find some comfort soon. I will put in a 60 sec.

commercial for water work outs instead of weight bearing activity.

You might find you are able to do more to strengthen your core

muscles which are important to maintain throughout this ordeal!

Take Care, Cam

[Guest guest]

I have similar pain, especially if I have been sitting in hard chairs, standing or walking a lot. It has progressed to both hips, legs and feet. My right hand bothers me a lot, but they say that it is carpal tunnel. That has progressed to during the day, especially when I have pain at the top of the rod area.

With the hips, legs & feet, I believe it's because our body has been so out of balance for so long that the muscle are taking longer and longer to recover from over-use. I use the walker a lot more, instead of the cane, as it helps even the gait more and the pain doesn't start as fast. If I know that I have a lot of walking and/or carrying to do, then I will use my scooter. I know that I'm not getting as good quality of sleep, like I used to, which is contributing to the problem. I finally get to see the surgeon tomorrow, so he might have some hints to help in the meantime (let's hope).

As for the malls, call the Administration office to enquiry about scooter availability. If they don't have them now, they might invest in some to improve their customer service and awareness. Some places just need reminding of the aging/disabled population and the services that are required, even the design of such places as the bathroom. Most architects only go by the building code that is required and not the actual function-ability for the users. A recent example that I came across, for my power-chair user brother, is that a brand new housing facility has wheelchair assessible built suites (which were only on the second-fourth floor) but the elevator was so small that he could only back in or out (no turning room) and 3 mobile people had to squeeze into the corners. The suites were nice, but how does a person comfortably move from floor to floor, to enjoy the diningroom or other activities? More awareness of the professionals/governments, in all areas, is needed.

Llweyn

-----Original Message-----From: [mailto: ]On Behalf Of CarolSent: April 30, 2006 7:18 PM Subject: [ ] Hip PainDoes anyone out there (who hasn't had revision surgery--or those of you who have had it remember before?) get terrible pain in hip area after you walk alot? It seems to be in the muscles or ligaments on the OUTSIDE of the hip--not the hip joint itself. Mine hurts soooo bad after shopping Fri. evening, and this seems to happen every week. I really feel it Saturday. The only thing that helps me is TWO ULTRAM every 6 hrs. I get a stabbing pain in my left lower back when I bend over too much (more than once) and that's the one that if I bend over too often, that pain shoots down my left leg. The rt. hip though is the new issue, that and my left shoulder seems to hurt all of the time, too. I have "knots" in my upper back above the left shoulder blade. Carol (CA)

[Guest guest]

Carol,

I've had significant hip pain over the past few years. (I haven't

had a revsion.) It started as siatic pain, which runs through the

buttocks, for me - around the side of my hips, and down the leg.

Over the past year, it moved more to the side and my doctor

diagnosed me as also having bursitis. He pocked his finger into the

spot and knew it right away. He prescribed leg lifts lying on my

side, figure D's, and a stretch. It's helped somewhat. As to

walking, when I first start a walking routine, I'm in alot of

additional pain. However, if I keep it up, do it regularly, and

increase slowly, it helps.

As to the knots, I've got them all over, too. I go to PT 2X/week -

largely for the manual to rub out the knots and spasms. When they

get really bad, Vallium works wonders. (My doctor says its better

than muscle relaxers for the back.) My upper trap is a mess, and I

just keep working on it with stretches, heat, antiinflamatants,

Vallim, and manual therapy. Some weeks are better than others. All

of this comes with having a body that is not balanced and having a

cervical area that has a hard time compensating for the unnatural

alignment below. Keep trying new things, and hope that something

works for you. There are also a number of different types of

injections around that you could look into (lydocayne, steriods,

botox).

Although a revision could help significantly with lower body pain

and disability, I wonder whether or not it helps with the thorasic

and cervical complications.

If bending hurts, don't do it. Standing up is hard enough. Using

those muscles to bend at the waist would be exhausting on them.

Build up your knees if you can so that you can squat, use a grabber,

or have your family pick up after you.

>

> I have similar pain, especially if I have been sitting in hard

chairs,

> standing or walking a lot. It has progressed to both hips, legs

and feet. My

> right hand bothers me a lot, but they say that it is carpal

tunnel. That has

> progressed to during the day, especially when I have pain at the

top of the

> rod area.

>

> With the hips, legs & feet, I believe it's because our body has

been so out

> of balance for so long that the muscle are taking longer and

longer to

> recover from over-use. I use the walker a lot more, instead of the

cane, as

> it helps even the gait more and the pain doesn't start as fast. If

I know

> that I have a lot of walking and/or carrying to do, then I will

use my

> scooter. I know that I'm not getting as good quality of sleep,

like I used

> to, which is contributing to the problem. I finally get to see the

surgeon

> tomorrow, so he might have some hints to help in the meantime

(let's hope).

>

> As for the malls, call the Administration office to enquiry about

scooter

> availability. If they don't have them now, they might invest in

some to

> improve their customer service and awareness. Some places just need

> reminding of the aging/disabled population and the services that

are

> required, even the design of such places as the bathroom. Most

architects

> only go by the building code that is required and not the actual

> function-ability for the users. A recent example that I came

across, for my

> power-chair user brother, is that a brand new housing facility has

> wheelchair assessible built suites (which were only on the second-

fourth

> floor) but the elevator was so small that he could only back in or

out (no

> turning room) and 3 mobile people had to squeeze into the corners.

The

> suites were nice, but how does a person comfortably move from

floor to

> floor, to enjoy the diningroom or other activities? More awareness

of the

> professionals/governments, in all areas, is needed.

>

> Llweyn

> [ ] Hip Pain

>

>

> Does anyone out there (who hasn't had revision surgery--or those

of you

> who have had it remember before?) get terrible pain in hip area

after

> you walk alot? It seems to be in the muscles or ligaments on the

> OUTSIDE of the hip--not the hip joint itself. Mine hurts soooo

bad

> after shopping Fri. evening, and this seems to happen every

week. I

> really feel it Saturday. The only thing that helps me is TWO

ULTRAM

> every 6 hrs. I get a stabbing pain in my left lower back when I

bend

> over too much (more than once) and that's the one that if I bend

over

> too often, that pain shoots down my left leg. The rt. hip though

is the

> new issue, that and my left shoulder seems to hurt all of the

time,

> too. I have " knots " in my upper back above the left shoulder

blade.

>

> Carol (CA)

>

[Guest guest]

I've got severe degeneration at C5-6 and 6-7, with loss of cervical lordosis, stenosis, osteophytes, disc dehydration and height loss, and bulging. Prior to revision, I basically had a headache for about 3 years, and several attacks of really severe neck pain and headaches - The Headache is quite simply the worst pain I have ever experienced, utterly unlivable with, and scarcely touched by painkillers other than that htey knock me out totally.

However, being upright has made all the difference in the world. I don't have a permanent low-grade, nagging headache any longer, and the relief that has been is incredible. In fact, I would actually say that that was the first major and noticeable pain reduction was that even though my neck was painful while adjusting to the new posture, the muscle tension and associated headache from having my neck craned and the weight of my head hanging from the muscles, rather than sitting atop the spinal column, was just gone.

Of late I've been bent forward again due to the stenosis, and I'm feeling the difference. I'm tending to have a headache again, and my neck is a lot more crunchy again. I'm positive that if the stenosis can be controlled or otherwise fixed, that while my neck will be more problematic than the average person's, it will nevertheless be manageable.

I know that there are no guarantees, but I'd guess that others having the revision could benefit in terms of neck pain also.

titch-- " The older I grow the more I distrust the familiar doctrine that age brings wisdom. " - H. L. Mencken

[Guest guest]

<dreimutter1957@...> wrote:

> Point of the whole long story...yes, pain in the front of your hip IN

> THE GROIN AREA, especially if a) it radiates to your knee, is worse

> with flexing and raising the leg, c) is worse with turning your foot

> inward, d) is worse when you move your whole leg inward, or e) causes

> any limping CAN be due to arthritis instead of fibromyalgia.

Thanks so much for sharing your story! It helps explain a LOT for me.

patty in the Pineywoods of East Texas

[Guest guest]

I've had some bad experiences with dox who do not understand FMS...and who

have poo pooed my pain because of it. So what if I experience pain more

thoroughly than those without FMS? It's still PAIN!!!!! ugh.

Anyway, IMHO, any time a joint is causing pain that is unrelieved, or has

become chronic instead of episodic, it is appropriate to strongly request

X-Rays and then if the Xray is negative or even if it shows something, an

MRI. As I've posted before, my knee damage does not show up in a regular

xray although I have such damage that I need a replacement..and a hip can be

the same way! We do not always have synovial change with our

damage...unlike some other forms of arthritis. My knees had totally normal

fluid the last time they were checked. Some dox seem to think we all should

have the diagnostic changes of rheumatoid.. Some still say 'It's just old

age rheumatism, take aspirin.' ugh. Do they ever read? Your increased

pain could also be due to back changes which would be diagnosed via MRI of

the lower spine.. but you don't know unless the doc orders the tests.

The MRI costs the doc nothing but if it's positive, the doc is responsible

for making sure it's treated in an appropriate manner. Some docs just don't

want that responsibility, IMO. It's YOUR body, YOUR insurance, etc...YOU

are the consumer here.. Sometimes, if those hesitant dox see a patient

writing in their journal and see, by accident, lol, a chart of pain and

symptoms, they tend to pay closer attention. I had a doc once who knew that

I would refer to my 'notes' on each visit..He referred me to a rheumy

finally.

Good luck..

Delane

[ ] Re: Hip Pain

Hi Delane

You wrote: > Because my FMS is secondary and not primary, it is

triggered my active PA

I saw my primary doctor a couple weeks ago to get a new prescription

for the increased pain in my low back and right hip. She said that the

fibro makes one more sensitive to pain in general and that was

probably why I was experiencing more discomfort.

When I see my rheumy next month, I plan to detail the changes to her.

Would it be appropriate to ask for an MRI just to be sure there isn't

more going on than the fibro exaggerating the pain? The last x-rays

were taken in Sept. showing nothing to explain this much pain.

> The symptoms of FMS can be the same as PA at times...

Yup, that's what's happening.

> It galls me that your symptoms are 'dismissed'...not right, not good

medical

> practice at all.

That's the hard part for me as a patient -- knowing what can be

expected from " modern " physicians. In " the old days " , they'd tell us

what needed to be done; now, it seems, they expect us to tell them

what we want or need. !!!

>I feel for you, really I do.

I'm sure do and I truly appreciate that.

Patty in a wet, thunderstormy Pineywoods of East Texas

[Guest guest]

In , " Patty B " wrote: " So nothing

showed on the x-rays? "

Only thing that showed on the Xrays was " a large subchondral cyst "

which they attributed to " just " osteoarthritis. Wasn't until they did

the MRI that the true extent of inflammation and destruction of the

bone was revealed.

My situation isn't nearly as bad as yours was but I'd rather prevent

that. Are there other things to do along with anti-inflammatories and

biologics? Currently, I'm taking Mobic, Methotrexate and Enbrel.

Other than naproxen, Methotrexate, and Enbrel, it was basically

supportive therapies to ease the pain. Lidocaine patches helped with

the severe sciatica a little bit, physical and massage therapy....the

diathermy in particular really helped, and steroid injections and some

nerve blocks into the joint. But the pain was still bad enough towards

the end that I ended up supplementing the naproxen with a couple of

Ultracets and an extra dose of ibuprofen each day (yes, I know, that

was horrendous on the kidneys probably, but I was desperate.) It was

only the hip replacement that TRULY resolved the situation.