Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 CONGRADULATIONS goes out to Robbie and also Josh yall can do anything you set your mind to Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 Georgina your right when the child is takeing it for asthma its different doses but the doses in pill form is 5 first day and decrease 1 each day the inhaled inhaler is on a 2 to 4 times a day i am not sure on the JRA kids dose but i am assumeing its been higher dose than for asthmatic treatments i dont condone predisone but i also am fearful of the side effects as with any medication Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 this sounds like they are allowing your body to adjust to smaller doses slowly this seems to be ok but no one knows but if you have any doubts or you start haveing any problems i would be calling the dr ASAP with asthma they start them with 5 pills the next day its 4 pills the next is 3 pills the next 2 pills the next 1 pill and thats it its been awhile since my kids were takeing it but i think it was 20mgs per pill so that would be start with 100mgs and within a week your off totally but i also see your fear in the decreaseing the body chemical response to the decrease just call the doctor if theres ANY signs of pain or anything that you feel is not right Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2000 Report Share Posted October 15, 2000 In a message dated 10/15/2000 1:58:29 PM Pacific Daylight Time, gmckin@... writes: > Congratulations to , for getting a role in the play That's > wonderful news! Wish her well. She will be in our thoughts. > > Take care, > Georgina Thanks,she also has a role in the school musical, West Side Story. One thing I will say for jenny, she pushes on, no matter what. We parents are fortunate to have such a wonderful group of kids ....God has blessed us . Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2000 Report Share Posted October 15, 2000 Congratulations to , for getting a role in the play That's wonderful news! Wish her well. She will be in our thoughts. Take care, Georgina AplBlssm@... wrote: > has been on them for 2 years, with maybe a week without. She has bad > flare up's when the dose gets too low. One of the biggest problems is the > weight it keeps on Jen. at 17, she is no small girl, weighing about 250. This > does not help her joints, but any exercise, including walking bring on > severe pain and swelling, but God bless her, she keeos going. The end of this > month will be in a local production of Romeo and t Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 Angie, I have missed you!!!!!!!!!! AJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2000 Report Share Posted November 17, 2000 Have you all gotten flu shots this year? What are your opinions, please? Should we? Why or why not? Someone told me I should get them every other year? I got one last year but have not yet this year. Thanks, Fran Re: GO Clinical Trials >Hi Everyone, > If you look at the following study you'll see that a significant >improvement was obtained in TED (Graves' ophthalmopathy) with vitamin B3 >(nicotinamide--a form of niacin). 300 mgs of nicotinamide a day was used. >Allopurinol is an inhibitor of xanthine oxidase. Xanthine oxidase is a >molybdenum-based enzyme. Since molybdenum and copper are antagonists, a >copper deficiency could allow excess xanthine oxidase to proliferate. If >xanthine oxidase is involved in the genesis of TED, then this is a possible >explanation of why copper might help reduce TED. > The significance of this study is that it really offers evidence that TED >is a nutritional deficiency disease. > ><< Department of Ophthalmology, Red Cross Hospital, Athens, Greece. > mastorak@... > > PURPOSE: To report the effect of antioxidant agents in the treatment of mild > and moderately severe Graves' ophthalmopathy. METHODS: Prospective, > nonrandomized, comparative study performed at a referral center. A series of > 11 patients with mild or moderately severe, active, newly diagnosed Graves' > ophthalmopathy were included in the study. Allopurinol (300 mg daily) orally > and nicotinamide (300 mg daily) orally were used for 3 months. A complete > ophthalmologic examination was performed before and 1 and 3 months after > initiation of treatment. The response to treatment was estimated separately > for each component of the disease and overall by its effect on a total eye > score. Eleven patients with mild or moderately severe, active, newly > diagnosed Graves' ophthalmopathy who received placebo were also examined at > the same time points. Patients in each group were recruited consecutively. > Although nonsmoking was not an exclusion criterion, all patients were > cigarette smokers. RESULTS: Nine (82%) of 11 patients treated with oral > antioxidants showed improvement of mild to moderately severe Graves' > ophthalmopathy versus three (27%) of 11 patients in the control group (P > <.05). Soft tissue inflammation was the component of the disease that > responded more to treatment. No side effects of antioxidant treatment were > recorded. Patients' satisfaction was high. CONCLUSIONS: This pilot study > presents encouraging results in the treatment of mild and moderately severe > Graves' ophthalmopathy with antioxidant agents. To evaluate these >preliminary > results, randomized prospec-tive studies are needed. >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2000 Report Share Posted November 18, 2000 Not me - I feel that I have been so medicated, and over-medicated, that I just won't go for it. I'd rather get the flu. Two of my friends went for it and came down with bad flu this year after the shot. Of course that couldn't have had anything to do with the shot, but makes me wonder. I'll take my chances. Kate frances point wrote: > Have you all gotten flu shots this year? What are your opinions, please? > Should we? Why or why not? > Someone told me I should get them every other year? > I got one last year but have not yet this year. > Thanks, > Fran > Re: GO Clinical Trials > > >Hi Everyone, > > If you look at the following study you'll see that a significant > >improvement was obtained in TED (Graves' ophthalmopathy) with vitamin B3 > >(nicotinamide--a form of niacin). 300 mgs of nicotinamide a day was used. > >Allopurinol is an inhibitor of xanthine oxidase. Xanthine oxidase is a > >molybdenum-based enzyme. Since molybdenum and copper are antagonists, a > >copper deficiency could allow excess xanthine oxidase to proliferate. If > >xanthine oxidase is involved in the genesis of TED, then this is a possible > >explanation of why copper might help reduce TED. > > The significance of this study is that it really offers evidence that > TED > >is a nutritional deficiency disease. > > > ><< Department of Ophthalmology, Red Cross Hospital, Athens, Greece. > > mastorak@... > > > > PURPOSE: To report the effect of antioxidant agents in the treatment of > mild > > and moderately severe Graves' ophthalmopathy. METHODS: Prospective, > > nonrandomized, comparative study performed at a referral center. A series > of > > 11 patients with mild or moderately severe, active, newly diagnosed > Graves' > > ophthalmopathy were included in the study. Allopurinol (300 mg daily) > orally > > and nicotinamide (300 mg daily) orally were used for 3 months. A complete > > ophthalmologic examination was performed before and 1 and 3 months after > > initiation of treatment. The response to treatment was estimated > separately > > for each component of the disease and overall by its effect on a total eye > > score. Eleven patients with mild or moderately severe, active, newly > > diagnosed Graves' ophthalmopathy who received placebo were also examined > at > > the same time points. Patients in each group were recruited consecutively. > > Although nonsmoking was not an exclusion criterion, all patients were > > cigarette smokers. RESULTS: Nine (82%) of 11 patients treated with oral > > antioxidants showed improvement of mild to moderately severe Graves' > > ophthalmopathy versus three (27%) of 11 patients in the control group (P > > <.05). Soft tissue inflammation was the component of the disease that > > responded more to treatment. No side effects of antioxidant treatment were > > recorded. Patients' satisfaction was high. CONCLUSIONS: This pilot study > > presents encouraging results in the treatment of mild and moderately > severe > > Graves' ophthalmopathy with antioxidant agents. To evaluate these > >preliminary > > results, randomized prospec-tive studies are needed. >> > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 I had mine a couple of weeks ago and I was fine..Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 NO flu shot for me! Did that two years ago and was so sick couldn't move for two days! I had a business trip that cost the company an additional $1600 because I had to change flights! Several other folks were also sick after the shot.....too much of a coincidence. Also heard of some other problem one can develop from the flu shot (can't remember the illness) so decided never again! My internist told me I should get one since I collapsed a lung 10 years ago...don't care, not having any problems so why tempt fate? Mona Re: GO Clinical Trials >Hi Everyone, > If you look at the following study you'll see that a significant >improvement was obtained in TED (Graves' ophthalmopathy) with vitamin B3 >(nicotinamide--a form of niacin). 300 mgs of nicotinamide a day was used. >Allopurinol is an inhibitor of xanthine oxidase. Xanthine oxidase is a >molybdenum-based enzyme. Since molybdenum and copper are antagonists, a >copper deficiency could allow excess xanthine oxidase to proliferate. If >xanthine oxidase is involved in the genesis of TED, then this is a possible >explanation of why copper might help reduce TED. > The significance of this study is that it really offers evidence that TED >is a nutritional deficiency disease. > ><< Department of Ophthalmology, Red Cross Hospital, Athens, Greece. > mastorak@... > > PURPOSE: To report the effect of antioxidant agents in the treatment of mild > and moderately severe Graves' ophthalmopathy. METHODS: Prospective, > nonrandomized, comparative study performed at a referral center. A series of > 11 patients with mild or moderately severe, active, newly diagnosed Graves' > ophthalmopathy were included in the study. Allopurinol (300 mg daily) orally > and nicotinamide (300 mg daily) orally were used for 3 months. A complete > ophthalmologic examination was performed before and 1 and 3 months after > initiation of treatment. The response to treatment was estimated separately > for each component of the disease and overall by its effect on a total eye > score. Eleven patients with mild or moderately severe, active, newly > diagnosed Graves' ophthalmopathy who received placebo were also examined at > the same time points. Patients in each group were recruited consecutively. > Although nonsmoking was not an exclusion criterion, all patients were > cigarette smokers. RESULTS: Nine (82%) of 11 patients treated with oral > antioxidants showed improvement of mild to moderately severe Graves' > ophthalmopathy versus three (27%) of 11 patients in the control group (P > <.05). Soft tissue inflammation was the component of the disease that > responded more to treatment. No side effects of antioxidant treatment were > recorded. Patients' satisfaction was high. CONCLUSIONS: This pilot study > presents encouraging results in the treatment of mild and moderately severe > Graves' ophthalmopathy with antioxidant agents. To evaluate these >preliminary > results, randomized prospec-tive studies are needed. >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 I'd say if your elderly and in a nursing home, get one, otherwise I wouldn't! > Re: GO Clinical Trials > > > >Hi Everyone, > > If you look at the following study you'll see that a significant > >improvement was obtained in TED (Graves' ophthalmopathy) with vitamin B3 > >(nicotinamide--a form of niacin). 300 mgs of nicotinamide a day was used. > >Allopurinol is an inhibitor of xanthine oxidase. Xanthine oxidase is a > >molybdenum-based enzyme. Since molybdenum and copper are antagonists, a > >copper deficiency could allow excess xanthine oxidase to proliferate. If > >xanthine oxidase is involved in the genesis of TED, then this is a > possible > >explanation of why copper might help reduce TED. > > The significance of this study is that it really offers evidence that > TED > >is a nutritional deficiency disease. > > > ><< Department of Ophthalmology, Red Cross Hospital, Athens, Greece. > > mastorak@... > > > > PURPOSE: To report the effect of antioxidant agents in the treatment of > mild > > and moderately severe Graves' ophthalmopathy. METHODS: Prospective, > > nonrandomized, comparative study performed at a referral center. A > series > of > > 11 patients with mild or moderately severe, active, newly diagnosed > Graves' > > ophthalmopathy were included in the study. Allopurinol (300 mg daily) > orally > > and nicotinamide (300 mg daily) orally were used for 3 months. A > complete > > ophthalmologic examination was performed before and 1 and 3 months after > > initiation of treatment. The response to treatment was estimated > separately > > for each component of the disease and overall by its effect on a total > eye > > score. Eleven patients with mild or moderately severe, active, newly > > diagnosed Graves' ophthalmopathy who received placebo were also examined > at > > the same time points. Patients in each group were recruited > consecutively. > > Although nonsmoking was not an exclusion criterion, all patients were > > cigarette smokers. RESULTS: Nine (82%) of 11 patients treated with oral > > antioxidants showed improvement of mild to moderately severe Graves' > > ophthalmopathy versus three (27%) of 11 patients in the control group (P > > <.05). Soft tissue inflammation was the component of the disease that > > responded more to treatment. No side effects of antioxidant treatment > were > > recorded. Patients' satisfaction was high. CONCLUSIONS: This pilot study > > presents encouraging results in the treatment of mild and moderately > severe > > Graves' ophthalmopathy with antioxidant agents. To evaluate these > >preliminary > > results, randomized prospec-tive studies are needed. >> > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 GOOD QUESTION!!!!!!!! Flu Shot Hi group -- tis the season, does anyone know if it is ok for us to get a flu shot??? Thanks, from Michigan 12/29/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 It is highly recommended that we do get flu shots. > Hi group -- tis the season, does anyone know if it is ok for us to get a flu > shot??? > > Thanks, > > from Michigan > 12/29/00 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 Hi Everyone, Regarding a flu shot, I got one yesterday and have felt fine since I had it. I had rather take my chances getting a shot, than having a bad case of the flu during flu season. Has anyone had a bad reaction to it. Thanks for responding! Kate in Louisburg, NC 241/170; surgery Oct 20, 2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 Im afraid to get a flu shot because I am one of those people who react to everything. Working in the hospital they insisted we all have a hepatitis vaccine. They said noone reacts badly to them. Guess what!!!! Phyllis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 ---I got a flu shot last year and had no reaction no problem(never had reaction)...... Lori In @y..., iam642@a... wrote: > Hi group -- tis the season, does anyone know if it is ok for us to get a flu > shot??? > > Thanks, > > from Michigan > 12/29/00 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 LOL, I got the chicken pox from the chicken pox vaccine. I've had a few flu shots, and have always reacted mildly. I also test positive for TB with the skin test, so have to have an x-ray. I think I'll skip it this year. I think I'm coming down with the flu anyway. I figure someone at the picnic gave it to me. manda > Im afraid to get a flu shot because I am one of those people who react to > everything. > Working in the hospital they insisted we all have a hepatitis vaccine. > They said noone reacts badly to them. Guess what!!!! Phyllis > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 Just wanted to thank everyone for your quick response about my flu shot question. I truly appreciate it. God bless. from Michigan 12/29/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 Holly got her flue shot wednesday, and the only reaction thus far, is a 2 inch hivey looking mark around the site and her arm hurts, i called the ped and they said that is all a normal reaction. AJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 Hi Christy, I hope Abbie's feeling better real soon. Aloha, Georgina gazelle34@... wrote: > > , > > As I said before Abbie had her flu shot on Friday. Saturday (yesterday) was > pretty bad. Hot swollen joints everywhere and rash in places I haven't seen > it in months. But today she seems better. I think having the weekend to sleep > it off helped. But she has been having some rough days in the past couple of > weeks, so I don't know. We're just taking it a day at a time. > > Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 Hi , Seems like most advise that children with JRA, at least here on the list, do get the flu shot. Josh, though, has never had one. His rheumatologist didn't mention anything about it on Friday and I didn't bring it up, either. Good luck, in making your decision. Aloha, Georgina karens tribe wrote: > > I was just getting to write a post about the flu shot when i came across > this one. I or any of my children ever had flu shots. My mom always has but > i never bothered with the shot. Tabithas school nurse suggested me asking > her doctor about her getting the flu shot this year.She thinks this will > help Tabitha not miss as many school days this winter..which i have to laugh > considering her absences before was never due to the flu, itself. Now i know > awhile back there was a big discussion on her about the flu shot..and i need > some opinions on it before i decide to let her get it or not. I need to know > if this flu shot can cause her to get sick or her arthritis to flare up..she > has a low immune system as it is. i would appreciate it deeply if some of > yall can give me some insight on this shot. > Thanks > karen and tab(16..poly) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 , As I said before Abbie had her flu shot on Friday. Saturday (yesterday) was pretty bad. Hot swollen joints everywhere and rash in places I haven't seen it in months. But today she seems better. I think having the weekend to sleep it off helped. But she has been having some rough days in the past couple of weeks, so I don't know. We're just taking it a day at a time. Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 Christy, That seems interersting, it seemed to do the same thing to holly :-( very perplexing this arthritis business is huh??? Aj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 I was just getting to write a post about the flu shot when i came across this one. I or any of my children ever had flu shots. My mom always has but i never bothered with the shot. Tabithas school nurse suggested me asking her doctor about her getting the flu shot this year.She thinks this will help Tabitha not miss as many school days this winter..which i have to laugh considering her absences before was never due to the flu, itself. Now i know awhile back there was a big discussion on her about the flu shot..and i need some opinions on it before i decide to let her get it or not. I need to know if this flu shot can cause her to get sick or her arthritis to flare up..she has a low immune system as it is. i would appreciate it deeply if some of yall can give me some insight on this shot. Thanks karen and tab(16..poly) From: gazelle34@... Reply- Subject: flu shot Date: Fri, 26 Oct 2001 18:23:37 EDT Abbie had her flu shot today, and we had quite a good conversation about it with her pediatrician. We discussed live and inactivated (killed) vaccines. I had been hearing that there were flu vaccines of both types. Apparently that is false. At least this year. It is an inactivated vaccine, so should be less likely to cause a problem. Christy _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 Dear , Kate just got her flu shot--and whie I'm always concerned about it--she gets it because of the meds she's on--particularly Enbrel as the side effects from it can be higher risks for upper respitory infections, bronchitis and pneaumonia. So if she were to get hit with the flu it could be a very bad situation. Just my 2 cents. and Kate (severe poly and avascular necrosis of both hips) Quote Link to comment Share on other sites More sharing options...
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