mtx

[Guest guest]

In a message dated 1/10/04 12:01:27 AM Eastern Standard Time,

Arthurnator@... writes:

<< WOW what a differance,he went from nothing to great until his pred got

tapered

3 mg.The poor 3yr old was begging for another shot.He is now back to oral

and

the same dose Caitlin is starting on.

It was that got labs and a liver panal done the day they prescribed

MTX.In the old days you got a chest x-ray too and after so much of it a

liver

biopsy.Like I said earlier things have come a long way and they know so much

more

about it.

Hope this helps.

Hugs >>

Hi Becki:

Is a liver panel a blood test? I know the doctors have checked Caitlin's

liver functions during the hospital stay and if done by blood, since then. She

also had a chest x-ray to check for fluid, etc. in and around her lungs. Maybe

these a new enough that he didn't repeat them. Something I'll check with him

on Tuesday when we go back.

Take care.

Patty

[Guest guest]

Patty,

You are absolutely correct so they probably will not be repeated until 4 weeks after starting.

Hugs

Becki

[Guest guest]

. It's Methotrexate. It is an injectable drug either give oral

or through a needle.

Alia and Caroline, age 2, pauci and uveitis

> What is MTX?

[Guest guest]

Ok is on MTX injectable. I thought that might be it but wanted

to be sure. He was on the MTX pills but the Dr. said the injectable worked

better and wanted to go ahead and use it so we switched a couple weeks

ago. I asked him if he feels like it has helped any more but he just said he

didn't think so that it was about the same.

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[Guest guest]

In a message dated 3/14/04 2:09:12 PM Central Standard Time, Emeraldsx3@... writes:

.. We are now in the second week of Caitlin going cold turkey off of it. Good thing, too, her hair is still falling out. It seems to have 'cured' the headaches.

Hi Patty,

I am so happy that Caitlin is doing fine off the MTX and her headaches have eased up.Poor baby losing her hair.It has happened but isn't very common at such low doses our kids take.I hope it stops real soon.

Hugs

Becki and 5 systemic

[Guest guest]

<< I am so happy that Caitlin is doing fine off the MTX and her headaches

have

eased up.Poor baby losing her hair.It has happened but isn't very common at

such low doses our kids take.I hope it stops real soon.>>

Thanks Becki. We are hoping it stops ASAP too. She's got such beautiful

long blonde hair. I am afraid if it continues the best thing would be to cut it

and, of course, she's not at all interested in that.

Weird how she tolerated the med pretty well, but her side effect was the hair

falling out and apparently, the headaches.

Just hoping and praying that the next month, while it's working it's way out

of her system, nothing rears it's ugly head.

Take care.

Patty

[Guest guest]

Hi ,

How awful,keep hunting because a couple differant people make it.s is made by Xanodyne.

Have you tried calling the rheumy?They might be able to help you out.

Good luck and I hope you find some.

Hugs

Becki and 5systemic

[Guest guest]

Just a thought , but is her prescription through Walgreens? And if so, are any in the area where she is heading? Last time went to CA it was easy for him to get his prescription filled out there. He took the bottle in, and they are all hooked up by computer so he got his MTX (pills) there. Same thing when my hubby forgot his meds when we were in Florida. You could call ahead and find out if the pharmacy has it in stock. It will save you the hassle of overnight and all. Michele

-----Original Message-----From: WILLIAM PRICE [mailto:bc.price@...] Sent: Wednesday, July 14, 2004 2:10 PM Subject: mtx

I just went to the pharmacy to get some extra injectable mtx since n is going out of town for 4 weeks. They said that they were out of it and it was a manufacturing delay. We are in Oregon, so I don't know if it is national or not. I just thought I would let everyone know. They tried another pharmacy, but they are all out until the end of July. n leaves tomorrow , so we are on the hunt for it now. We have enough until the end of July, but her trip extends until August, so I guess I could overnight her the stuff when it comes in. (n, 15,systemic)

[Guest guest]

Thanks for the suggestion.

RE: mtx

Just a thought , but is her prescription through Walgreens? And if so, are any in the area where she is heading? Last time went to CA it was easy for him to get his prescription filled out there. He took the bottle in, and they are all hooked up by computer so he got his MTX (pills) there. Same thing when my hubby forgot his meds when we were in Florida. You could call ahead and find out if the pharmacy has it in stock. It will save you the hassle of overnight and all. Michele

-----Original Message-----From: WILLIAM PRICE [mailto:bc.price@...] Sent: Wednesday, July 14, 2004 2:10 PM Subject: mtx

I just went to the pharmacy to get some extra injectable mtx since n is going out of town for 4 weeks. They said that they were out of it and it was a manufacturing delay. We are in Oregon, so I don't know if it is national or not. I just thought I would let everyone know. They tried another pharmacy, but they are all out until the end of July. n leaves tomorrow , so we are on the hunt for it now. We have enough until the end of July, but her trip extends until August, so I guess I could overnight her the stuff when it comes in. (n, 15,systemic)

[Guest guest]

Oh man, I hope that's not true! We went to the pharmacy on Monday and they wouldn't fill it because it was too soon. Maybe they were just out!

Alia and Caroline, age 2, poly and uveitis

-----Original Message-----From: WILLIAM PRICE [mailto:bc.price@...]Sent: Wednesday, July 14, 2004 2:10 PM Subject: mtx

I just went to the pharmacy to get some extra injectable mtx since n is going out of town for 4 weeks. They said that they were out of it and it was a manufacturing delay. We are in Oregon, so I don't know if it is national or not. I just thought I would let everyone know. They tried another pharmacy, but they are all out until the end of July. n leaves tomorrow , so we are on the hunt for it now. We have enough until the end of July, but her trip extends until August, so I guess I could overnight her the stuff when it comes in. (n, 15,systemic)

[Guest guest]

I just found out i spelled it wrong the correct spelling is

methotrexate. I take 10 mgs a week thanks again for any

information you have

> I was wondering what exactly methetraxite can do to the lungs. I

> never had a chest xray before i started it and have heard comments

> that it can cause problems with the lungs any information would be

> helpful

>

> Thank YOu

> Angie Long

[Guest guest]

Dear Debbie,

You and I are exactly in the same boat. You completely expressed how I

feel. I just try to remember that I am not alone since I found this site. I

am trying MTX and hate it. side effects are horrible and pain not much

better.But I keep on pluggin' for my 5 & 7 y/o.But most days its very hard

even for them.Thanks for joining the site and write when you need to.Tish

[Editor's Note: Tish: What side effects are you experiencing? Have you

discussed them with your rheumatologist? If you are experiencing side effects

and not getting any benefit, why are you still taking it? There are many other

medications out there and one of them might be right for you. Kathy F.]

[Guest guest]

Tish what dosage of MTX are you taking, and are you also taking Folic Acid? I'm

on 17.5 mg of MTX and take 1200 mgs of Folic Acid on the days that I don't take

the MTX. Aside from being a little tired on the two days following my MTX dose,

I really don't feel any side effects. And I am seeing improvement in my overall

condition. I've been on the MTX for 3 months now.

Diane

Diane Neri

[Guest guest]

In a message dated 19/02/2006 18:23:35 GMT Standard Time,

bigjkahuna@... writes:

Hey new here been on mtx for 3 months up to 25mg a week is this a

common does , makes me very sick when i take it also anyone else taking

indomethacin i have been on this for 3 months also 3 times a day

@50mg,if i dont take the indomethacin i cant walk my feet and knees

hurt so bad and is anyone else having pain in their chest it goes away

when i take the indomethacin, these are just a few of several ?? i have

any help would be greatly appreciated kahuna

Hi ,

I must have missed you yesterday among the new people. Welcome to the group.

Snap! Well, almost. I am on MTX too but at 20mg. I also take Indomethacine

but I am just about to change that for something else as I think it is finally

beginning to go for my stomach. I have been on it for 17 years.

The MTX doesn't make me feel sick. I was in the early days of taking it but

that was because they added Ciclosporin to it and I'm certain it was that

rather than the MTX. However, I have heard others say that it makes them sick.

Glad to have you in the group and hope to hear more from you in the future.

Good luck,

PS: I guess its not a good idea to say snap when we all have problems with

our bones! lol

[Guest guest]

Doesn't burn? My daughter is fine with the needle stick. She says it's the burning after the medicine goes in that hurts. EMLA doesn't numb that.Get a sneak peek of the all-new AOL.com.

[Guest guest]

I have been on both the pills and the injections of methotrexate and it was my

experience that the pills made me sick and the shot doesn't! I still get tired

though for a few days. Elly

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[Guest guest]

I have been on both the pills and the injections of methotrexate and it was my

experience that the pills made me sick and the shot doesn't! I still get tired

though for a few days. Elly

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[Guest guest]

Hi Everyone, I have been on injectable mtx for about 5 years,2 years ago I had a

bad flare and enbrel was added, so on Tues. I take 17 and a half mg of MTX by

injection and 1 enbrel shot.On Fridays I take one enbrel shot.I haven't had any

problems with the injections,but the pills not only don't work for me,but I feel

very nauseated.It took about a month when I first started the mtx to feel any

different,but since then it's been doing it's job.I still have pain,but my

individual joint pain isn't as intense.Hope this helps someone.

Elly

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[Guest guest]

Hi Everyone, I have been on injectable mtx for about 5 years,2 years ago I had a

bad flare and enbrel was added, so on Tues. I take 17 and a half mg of MTX by

injection and 1 enbrel shot.On Fridays I take one enbrel shot.I haven't had any

problems with the injections,but the pills not only don't work for me,but I feel

very nauseated.It took about a month when I first started the mtx to feel any

different,but since then it's been doing it's job.I still have pain,but my

individual joint pain isn't as intense.Hope this helps someone.

Elly

---------------------------------

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[Guest guest]

Hi Everyone, I have been on injectable mtx for about 5 years,2 years ago I had a

bad flare and enbrel was added, so on Tues. I take 17 and a half mg of MTX by

injection and 1 enbrel shot.On Fridays I take one enbrel shot.I haven't had any

problems with the injections,but the pills not only don't work for me,but I feel

very nauseated.It took about a month when I first started the mtx to feel any

different,but since then it's been doing it's job.I still have pain,but my

individual joint pain isn't as intense.Hope this helps someone.

Elly

---------------------------------

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[Guest guest]

I have had both, mostly the light headedness, my rheumatologist said it was

possible but encouraged me to keep going with it as I am not on a therapeutic

dosage yet.  My GI doc recommended injectable MTX which I am going to talk about

with my rheumy.  I have Crohn's as well as PA which I understand is common as

well.

MARIE GOODINE <mgoodine@...>

[Guest guest]

I take my MTX on Thursday night before bed (I am not working so Thursday works

for me). That way I don't have too many side effects the next day besides

feeling a little " green " for a few hours the next morning.  By afternoon I am

feeling normal...if normal is possible for us. LOL.

 

Sharon

[Guest guest]

Thanks Penny

Had my 3 injection and still made me sick at my stomach and light

headed. Don't know if its worth it or not. It does seem to help the

arthritis a little. Hope your arthritis gets better mine seems to be

getting worse it first started in my hands and the my left leg and now

both elbows. I'm taking sulfazine and Ultram 50mg plus MTX and still have pain.

I hope that the MTX would work. Hope it works for you.

Take care

[Guest guest]

I hate MTX too. My doctor says I will get used to it. I hope it's pretty soon. I

hate being sick and nausea from it. Take care

[Guest guest]

Nausea and light-headedness are common side effects for MTX. I took

MTX for about a year. The first dose had me in bed for 3 days with flu-

like symptoms. But my rheumy gave me lots of tips to help and it got

better and after about 3 months I had no more problems. Here's what I

did:

Split the dose. Take half of it Friday morning and half of it Friday

night.

Take Zantac the day before and a couple of days after your dose. Or

you can use the over-the-counter equivalent of Zantac. (Some other

people here have had luck with Benadryl instead of Zantac.)

Take folic acid. The doctor should have prescribed that along wih the

MTX. Most of us take 1-5 mg per day, which is much much more than the

common supplement dose for folic acid. He should have given you this

as a prescription. I started at 1 mg, but when I reported the nausea

and other side effects, she told me to take up to 3 mg. Some other

people here have taken as much as 5 mg.

Finally, part of the problem is that your body is still adjusting to

the MTX. The side effects usually lessen over time no matter what you

do. Your body adjusts and things settle down. But I sure appreciated

having all those other tips that helped in the meantime.

One of the things many people don't realize about PA is that it attacks

the tendons and other connective tissue just as much as the joints.

Your elbow problems are likely tendinitis. I've sure had that problem

myself. Couldn't even cook because I couldn't lift the pots. And, yes,

whatever helps the PA overall should help your elbow problem.

best regards,

sherry z