Re: new to group. Son sick

[Guest guest]

Hi . Glad you joined. I am a lurker here but can feel for you since my

daughter has psoriatic arthritis. What you described about the toe happened to

my daughter as well. She was diagnosed with psoriatic arthritis around 6 years

old. She had the sausage toe you described. Sometimes it's also called sausage

digit. You can google pics and see. Probably the same thing your son has. We had

almost a year or run around from all kinds of docs before we met the rheumy that

finally figured it all out. You are on the right path with getting him in to see

the rheumy. I am not familiar with how fast or slow this condition can take

hold. I wish I had answers for you but keep your chin up and be strong for your

son. It is good he has you to help him. I do hope the docs will get the pain

under control so he can at least be better able to deal with all the other

things that are going on with him. This group is the best for support and

questions you may have. I

swear the people on here know more then some of the docs! Best wishes for you

son and for you. Keep us updated.

Jen from PA

mom to:

11yo dd w/ PA

7 yo ds (in 2 weeks) ds w/hypermobility

3 yo dd w/ possible PA

[Guest guest]

My attack came very suddenly with no prior signs of Psoriasis or arthritis pain.

I went from being very physically active to barely able to function or sleep

from the pain. It started in Dec 2007 and Methotrexate was no help. In June 2008

I started 100mg twice daily Minocycline antibiotic and 50mg Diclofenac. I

stopped the Methotrexate the week I started Minocycline and weaned off

Prednisone in 30 days. I continue to do well on Antibiotic Protocol and am back

to playing golf again and maintain most of my physical activity.

vinnylid

[Guest guest]

,

I am so sorry for your son. Watching our children suffer is the worst thing for

a mother. He sounds like his symptoms struck like a Mac truck. I started with

the knees at 15. Another three years until I was diagnosed. Mine progressed

slowly until after the birth of my second child when I was 25. Then it

" attacked. " It does sound like PA. Don't be scared of the meds when he is

diagnosed. They have saved me from total immobility. This group is great for

gaining knowledge and support on our journey with this disease. My thoughts and

prayers are with your family. Please keep us posted!

-Eileen