Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 Hi everyone, My son and daughter are doing fairly well and are in school this year " full time " but still miss an awful lot of school and seem to struggle along because of it. My 7th grader constantly has make up work pileing up and is penalized for late work while my 5th grader misses out on important classroom discussions and notes and then does poorly on tests. The school administration and teachers have been very understanding of our circumstance and since my kids are still young I havent made an issue of it but Im wondering if my kids would do better with a more formal arrangment like IEP's or 504's , but have no idea where to start. Can anyone please give me some pointers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 If they are in public school........get the 504 plan - do you have a doctors note stating why they are chronically ill and miss due to this? The 504 or IEP under OHI (other health impairment) would be a great thing for you to have!! It could give your children extra amount of day to hand homework in - also tutor at schools expense if needed - also on-line classes if available at school expense - could also if your child is going though a lyme flareup and has missed so much homework they can cut the homework load - or make different homework that is less extensive, also could just go on a pass or fail grade as this would be more if your children are not in high school yet - bathroom breaks when ever needed - more time between classes with no tardies - this also would protect your child and you if your child would miss X amount of day and then a truancy would come into effect - this would protect you both to that. Let me think what else.........I would get one in place ASAP - start with talking with the school nurse she is the one to get the ball rolling and gather up a team of people that will be an advocate along with you to help your child in any way they would need. If I think of anything else I will let you know..........but please do this........protection is good now adays!! Diane Biel (WI) ________________________________ From: pavone1 <pavone1@...> Sent: Thu, April 7, 2011 8:13:03 AM Subject: [ ] school trouble  Hi everyone, My son and daughter are doing fairly well and are in school this year " full time " but still miss an awful lot of school and seem to struggle along because of it. My 7th grader constantly has make up work pileing up and is penalized for late work while my 5th grader misses out on important classroom discussions and notes and then does poorly on tests. The school administration and teachers have been very understanding of our circumstance and since my kids are still young I havent made an issue of it but Im wondering if my kids would do better with a more formal arrangment like IEP's or 504's , but have no idea where to start. Can anyone please give me some pointers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 This would also help with teachers having to give your child al classroom notes or even taping the classes that notes were taken and missed. It can give your child an open ended time to hand things in and extra time at end of quarter to hand thing in..... On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: >Hi everyone, > >My son and daughter are doing fairly well and are in school this year > " full time " but still miss an awful lot of school and seem to struggle along because of it. My 7th grader constantly has make up work pileing up and is penalized for late work while my 5th grader misses out on important classroom discussions and notes and then does poorly on tests. The school administration and teachers have been very understanding of our circumstance and since my kids are still young I havent made an issue of it but Im wondering if my kids would do better with a more formal arrangment like IEP's or 504's , but have no idea where to start. Can anyone please give me some pointers. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 Also if in class labs were missed they can give you a modified at home assignment to do instead ..... sorry for all the posts but my mind is remembering things that our plans. helped with....also a special ed teacher that can be used at any time to help your child during the school day to help with homework ... like a time everyday as a study hall. On Thu Apr 7th, 2011 8:57 AM CDT Diane Biel wrote: >This would also help with teachers having to give your child al classroom notes or even taping the classes that notes were taken and missed. It can give your child an open ended time to hand things in and extra time at end of quarter to hand thing in..... > >On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: > >>Hi everyone, >> >>My son and daughter are doing fairly well and are in school this year >> " full time " but still miss an awful lot of school and seem to struggle along because of it. My 7th grader constantly has make up work pileing up and is penalized for late work while my 5th grader misses out on important classroom discussions and notes and then does poorly on tests. The school administration and teachers have been very understanding of our circumstance and since my kids are still young I havent made an issue of it but Im wondering if my kids would do better with a more formal arrangment like IEP's or 504's , but have no idea where to start. Can anyone please give me some pointers. >> >> >> >> >> >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 Thanks Diane! These are some of the things that would really help them out. Problem is they are in private school.Im confused about what that means exactly. I know our school handles students with lots of " disabilities " , usually they use resources from that students local school district. but really I dont need resources as much as accomadations. things like not taking grade points of tests for late assignments and the teacher taking responsibility for notes missed not requiring my daughter to get them from a friend who may not take good notes, etc. Any idea how this could work in a private setting? ________________________________ From: Diane Biel <dkbmama@...> Lyme Treatment Sent: Thu, April 7, 2011 10:03:24 AM Subject: Re: [ ] school trouble Also if in class labs were missed they can give you a modified at home assignment to do instead ..... sorry for all the posts but my mind is remembering things that our plans. helped with....also a special ed teacher that can be used at any time to help your child during the school day to help with homework ... like a time everyday as a study hall. On Thu Apr 7th, 2011 8:57 AM CDT Diane Biel wrote: >This would also help with teachers having to give your child al classroom notes >or even taping the classes that notes were taken and missed. It can give your >child an open ended time to hand things in and extra time at end of quarter to >hand thing in..... > >On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: > >>Hi everyone, >> >>My son and daughter are doing fairly well and are in school this year >> " full time " but still miss an awful lot of school and seem to struggle along >>because of it. My 7th grader constantly has make up work pileing up and is >>penalized for late work while my 5th grader misses out on important classroom >>discussions and notes and then does poorly on tests. The school administration >>and teachers have been very understanding of our circumstance and since my kids >>are still young I havent made an issue of it but Im wondering if my kids would >>do better with a more formal arrangment like IEP's or 504's , but have no idea >>where to start. Can anyone please give me some pointers. >> >> >> >> >> >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 Well- in our case our oldest went to 8th grade in public school for the accommodation that private could not provide. She had gym dropped and late start along with an on-line class. As for our 6th grader that we just pulled from private school but have not put her in the public crazyness ......home schooling on-line right now and pray she can go back to private school once 7th grade starts..............private school was very helpfull for us untill we have had problems like this - they could only do so much for us ....... did give us extended times on homework and at end of quarter...but public school could not help us - the only thing public school could help us with is if my daughter took the tests they gave and it showed she needed special education because of it - my girl is a smart cookie so we didnt even try - -in my understanding private school is unable to offer a 504 or IEP at least ours.....call and find out - if they can then that would be great but for us our child would of had to be pulled out of the private school and go to the public. Just not an option yet for us that we are willing to do...........ugggg - so sorry you are going through this.........makes me mad as private should be able to offer everythiing the public could........but find out for sure........your child deserves these rights because of their disability's at this time!!! End of last school year we were given 20 extra days to complete all outstanding homework - but it was at our expense to provide the tutor - that is what happened this year also but she just couldn't attend even 1/4 days and we were looking at many many hours of tutoring at our expense..(17 per hour ........just couldn't do it.....and the work load was just too much for her - have her now in www.time4learning.com and our private school will take that and admit her to 7th grade next year with no problems...........why does everything have to be so complicated!!!! Our private school did do everything they could......find out what they can do and bring up what would help your child and see if any way they could do some of the thing that would help........my children have always played the sick and catch up game - so sad.............let me know if you have any other questions - the private school called in the public school and we had a meeting but couldn't offer much unless they were students of the public........   PRAYERS to you and your children!!! Diane OHHH the private school did go by what her doctor said she could attend - 1/2 days at first and they did cut out the extra classes that where not core classes - gym, Spanish, religion, art, band,........??? maybe that would help at this point and then add back when you can..........this would of worked GREAT but she was unable to even make it at all......... ________________________________ From: Pavone <pavone1@...> Sent: Thu, April 7, 2011 9:14:45 AM Subject: Re: [ ] school trouble  Thanks Diane! These are some of the things that would really help them out. Problem is they are in private school.Im confused about what that means exactly. I know our school handles students with lots of " disabilities " , usually they use resources from that students local school district. but really I dont need resources as much as accomadations. things like not taking grade points of tests for late assignments and the teacher taking responsibility for notes missed not requiring my daughter to get them from a friend who may not take good notes, etc. Any idea how this could work in a private setting? ________________________________ From: Diane Biel <dkbmama@...> Lyme Treatment Sent: Thu, April 7, 2011 10:03:24 AM Subject: Re: [ ] school trouble Also if in class labs were missed they can give you a modified at home assignment to do instead ..... sorry for all the posts but my mind is remembering things that our plans. helped with....also a special ed teacher that can be used at any time to help your child during the school day to help with homework ... like a time everyday as a study hall. On Thu Apr 7th, 2011 8:57 AM CDT Diane Biel wrote: >This would also help with teachers having to give your child al classroom notes >or even taping the classes that notes were taken and missed. It can give your >child an open ended time to hand things in and extra time at end of quarter to >hand thing in..... > >On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: > >>Hi everyone, >> >>My son and daughter are doing fairly well and are in school this year >> " full time " but still miss an awful lot of school and seem to struggle along >>because of it. My 7th grader constantly has make up work pileing up and is >>penalized for late work while my 5th grader misses out on important classroom >>discussions and notes and then does poorly on tests. The school administration >>and teachers have been very understanding of our circumstance and since my kids > >>are still young I havent made an issue of it but Im wondering if my kids would >>do better with a more formal arrangment like IEP's or 504's , but have no idea >>where to start. Can anyone please give me some pointers. >> >> >> >> >> >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 i have dealt with private before and it comes down to meeting with the principal and maybe even the board to get your issues resolved. you need to write down and be very clear and specific of what you want addressed and how you would like it handled when you meet with them. best wishes. On Thu, Apr 7, 2011 at 7:14 AM, Pavone <pavone1@...> wrote: > > > Thanks Diane! These are some of the things that would really help them out. > > Problem is they are in private school.Im confused about what that means > exactly. > I know our school handles students with lots of " disabilities " , usually > they use > resources from that students local school district. but really I dont need > resources as much as accomadations. things like not taking grade points of > tests > for late assignments and the teacher taking responsibility for notes missed > not > requiring my daughter to get them from a friend who may not take good > notes, > etc. Any idea how this could work in a private setting? > > ________________________________ > From: Diane Biel <dkbmama@...> > Lyme Treatment > Sent: Thu, April 7, 2011 10:03:24 AM > Subject: Re: [ ] school trouble > > > Also if in class labs were missed they can give you a modified at home > assignment to do instead ..... sorry for all the posts but my mind is > remembering things that our plans. helped with....also a special ed teacher > that > can be used at any time to help your child during the school day to help > with > homework ... like a time everyday as a study hall. > > On Thu Apr 7th, 2011 8:57 AM CDT Diane Biel wrote: > > >This would also help with teachers having to give your child al classroom > notes > >or even taping the classes that notes were taken and missed. It can give > your > >child an open ended time to hand things in and extra time at end of > quarter to > >hand thing in..... > > > >On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: > > > >>Hi everyone, > >> > >>My son and daughter are doing fairly well and are in school this year > >> " full time " but still miss an awful lot of school and seem to struggle > along > >>because of it. My 7th grader constantly has make up work pileing up and > is > >>penalized for late work while my 5th grader misses out on important > classroom > >>discussions and notes and then does poorly on tests. The school > administration > >>and teachers have been very understanding of our circumstance and since > my kids > >>are still young I havent made an issue of it but Im wondering if my kids > would > >>do better with a more formal arrangment like IEP's or 504's , but have no > idea > >>where to start. Can anyone please give me some pointers. > >> > >> > >> > >> > >> > >> > >> > >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 Private schools are not held to the same laws that cover IDEA (504s and IEPs). Those laws and requirements deal only with public schools. It is a private schools option to allow accomodations, however they are not bound by law to do so. Charlotte iamwhimsy@... http://whimsy.t35.com Re: [ ] school trouble Also if in class labs were missed they can give you a modified at home assignment to do instead ..... sorry for all the posts but my mind is remembering things that our plans. helped with....also a special ed teacher that can be used at any time to help your child during the school day to help with homework ... like a time everyday as a study hall. On Thu Apr 7th, 2011 8:57 AM CDT Diane Biel wrote: >This would also help with teachers having to give your child al classroom notes >or even taping the classes that notes were taken and missed. It can give your >child an open ended time to hand things in and extra time at end of quarter to >hand thing in..... > >On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: > >>Hi everyone, >> >>My son and daughter are doing fairly well and are in school this year >> " full time " but still miss an awful lot of school and seem to struggle along >>because of it. My 7th grader constantly has make up work pileing up and is >>penalized for late work while my 5th grader misses out on important classroom >>discussions and notes and then does poorly on tests. The school administration >>and teachers have been very understanding of our circumstance and since my kids >>are still young I havent made an issue of it but Im wondering if my kids would >>do better with a more formal arrangment like IEP's or 504's , but have no idea >>where to start. Can anyone please give me some pointers. >> >> >> >> >> >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 Thanks everyone! I guess I'll put a call into each of their principals. Im really not very good at this. I just hate to be the squeaky wheel and ask for " favors " which is why I was hoping for some legal ground to stand on. Life with Lyme continues to stretch me. ________________________________ From: CT <iamwhimsy@...> Sent: Thu, April 7, 2011 10:34:44 AM Subject: Re: [ ] school trouble Private schools are not held to the same laws that cover IDEA (504s and IEPs). Those laws and requirements deal only with public schools. It is a private schools option to allow accomodations, however they are not bound by law to do so. Charlotte iamwhimsy@... http://whimsy.t35.com Re: [ ] school trouble Also if in class labs were missed they can give you a modified at home assignment to do instead ..... sorry for all the posts but my mind is remembering things that our plans. helped with....also a special ed teacher that can be used at any time to help your child during the school day to help with homework ... like a time everyday as a study hall. On Thu Apr 7th, 2011 8:57 AM CDT Diane Biel wrote: >This would also help with teachers having to give your child al classroom notes >or even taping the classes that notes were taken and missed. It can give your >child an open ended time to hand things in and extra time at end of quarter to >hand thing in..... > >On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: > >>Hi everyone, >> >>My son and daughter are doing fairly well and are in school this year >> " full time " but still miss an awful lot of school and seem to struggle along >>because of it. My 7th grader constantly has make up work pileing up and is >>penalized for late work while my 5th grader misses out on important classroom >>discussions and notes and then does poorly on tests. The school administration >>and teachers have been very understanding of our circumstance and since my kids > >>are still young I havent made an issue of it but Im wondering if my kids would >>do better with a more formal arrangment like IEP's or 504's , but have no idea >>where to start. Can anyone please give me some pointers. >> >> >> >> >> >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 I agree - but once you speak up for your child - don't look at it as being the squeaky wheel ......... you are your child's best advocate and this will empower you even more.........sending prayers  Diane ________________________________ From: Pavone <pavone1@...> Sent: Thu, April 7, 2011 10:08:29 AM Subject: Re: [ ] school trouble  Thanks everyone! I guess I'll put a call into each of their principals. Im really not very good at this. I just hate to be the squeaky wheel and ask for " favors " which is why I was hoping for some legal ground to stand on. Life with Lyme continues to stretch me. ________________________________ From: CT <iamwhimsy@...> Sent: Thu, April 7, 2011 10:34:44 AM Subject: Re: [ ] school trouble Private schools are not held to the same laws that cover IDEA (504s and IEPs). Those laws and requirements deal only with public schools. It is a private schools option to allow accomodations, however they are not bound by law to do so. Charlotte iamwhimsy@... http://whimsy.t35.com Re: [ ] school trouble Also if in class labs were missed they can give you a modified at home assignment to do instead ..... sorry for all the posts but my mind is remembering things that our plans. helped with....also a special ed teacher that can be used at any time to help your child during the school day to help with homework ... like a time everyday as a study hall. On Thu Apr 7th, 2011 8:57 AM CDT Diane Biel wrote: >This would also help with teachers having to give your child al classroom notes >or even taping the classes that notes were taken and missed. It can give your >child an open ended time to hand things in and extra time at end of quarter to >hand thing in..... > >On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: > >>Hi everyone, >> >>My son and daughter are doing fairly well and are in school this year >> " full time " but still miss an awful lot of school and seem to struggle along >>because of it. My 7th grader constantly has make up work pileing up and is >>penalized for late work while my 5th grader misses out on important classroom >>discussions and notes and then does poorly on tests. The school administration >>and teachers have been very understanding of our circumstance and since my kids > > >>are still young I havent made an issue of it but Im wondering if my kids would >>do better with a more formal arrangment like IEP's or 504's , but have no idea >>where to start. Can anyone please give me some pointers. >> >> >> >> >> >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 This is important: you are NOT asking for favors. That is the big thing they get wrong. You are not asking for your child to get extra, you are asking to level the playing field because your child is ill. It is not an " advantage " over other children who have time and consistency to be able to take notes, attend class and take tests and turn in assignments on time. You need to understand, so you can make THEM understand, that this is not an " extra privilege " thing. When my daughter was in fifth grade and allegedly had fibromyalgia, we asked (per doctor's suggestion) for her to be able to lie down at lunchtime. The administrator, who hated our daughter for completely unclear reasons (largely having to do with the fact that she was an idiot and my daughter is smart and articulate) refused because it was a " special privilege. " Right, like my child wouldn't prefer to be well and able to play at lunch instead of resting. It was ridiculous. Anyway, that is the big thing they teach you when you learn about accommodations. It is not extra privileges, it is help to get the child through school. (and I would add -- what " advantages " does a child of 5th grade or 7th grade gain over classmates anyway. It's not like the grades count.) Natasha ________________________________ From: Diane Biel <dkbmama@...> Sent: Thu, April 7, 2011 8:12:27 AM Subject: Re: [ ] school trouble I agree - but once you speak up for your child - don't look at it as being the squeaky wheel ......... you are your child's best advocate and this will empower you even more.........sending prayers Diane ________________________________ From: Pavone <pavone1@...> Sent: Thu, April 7, 2011 10:08:29 AM Subject: Re: [ ] school trouble Thanks everyone! I guess I'll put a call into each of their principals. Im really not very good at this. I just hate to be the squeaky wheel and ask for " favors " which is why I was hoping for some legal ground to stand on. Life with Lyme continues to stretch me. ________________________________ From: CT <iamwhimsy@...> Sent: Thu, April 7, 2011 10:34:44 AM Subject: Re: [ ] school trouble Private schools are not held to the same laws that cover IDEA (504s and IEPs). Those laws and requirements deal only with public schools. It is a private schools option to allow accomodations, however they are not bound by law to do so. Charlotte iamwhimsy@... http://whimsy.t35.com Re: [ ] school trouble Also if in class labs were missed they can give you a modified at home assignment to do instead ..... sorry for all the posts but my mind is remembering things that our plans. helped with....also a special ed teacher that can be used at any time to help your child during the school day to help with homework ... like a time everyday as a study hall. On Thu Apr 7th, 2011 8:57 AM CDT Diane Biel wrote: >This would also help with teachers having to give your child al classroom notes >or even taping the classes that notes were taken and missed. It can give your >child an open ended time to hand things in and extra time at end of quarter to >hand thing in..... > >On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: > >>Hi everyone, >> >>My son and daughter are doing fairly well and are in school this year >> " full time " but still miss an awful lot of school and seem to struggle along >>because of it. My 7th grader constantly has make up work pileing up and is >>penalized for late work while my 5th grader misses out on important classroom >>discussions and notes and then does poorly on tests. The school administration >>and teachers have been very understanding of our circumstance and since my kids > > > >>are still young I havent made an issue of it but Im wondering if my kids would >>do better with a more formal arrangment like IEP's or 504's , but have no idea >>where to start. Can anyone please give me some pointers. >> >> >> >> >> >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 100% agree Natasha...............that is exactly what I wanted to come out of my mouth - normal kids have so many hours during the day - a sick child only has x amount of hours during the day........work should be dealt with according to that........... You go girl!!!! Diane ________________________________ From: Natasha Moiseyev <nmoiseyev@...> Sent: Thu, April 7, 2011 10:20:02 AM Subject: Re: [ ] school trouble  This is important: you are NOT asking for favors. That is the big thing they get wrong. You are not asking for your child to get extra, you are asking to level the playing field because your child is ill. It is not an " advantage " over other children who have time and consistency to be able to take notes, attend class and take tests and turn in assignments on time. You need to understand, so you can make THEM understand, that this is not an " extra privilege " thing. When my daughter was in fifth grade and allegedly had fibromyalgia, we asked (per doctor's suggestion) for her to be able to lie down at lunchtime. The administrator, who hated our daughter for completely unclear reasons (largely having to do with the fact that she was an idiot and my daughter is smart and articulate) refused because it was a " special privilege. " Right, like my child wouldn't prefer to be well and able to play at lunch instead of resting. It was ridiculous. Anyway, that is the big thing they teach you when you learn about accommodations. It is not extra privileges, it is help to get the child through school. (and I would add -- what " advantages " does a child of 5th grade or 7th grade gain over classmates anyway. It's not like the grades count.) Natasha ________________________________ From: Diane Biel <dkbmama@...> Sent: Thu, April 7, 2011 8:12:27 AM Subject: Re: [ ] school trouble I agree - but once you speak up for your child - don't look at it as being the squeaky wheel ......... you are your child's best advocate and this will empower you even more.........sending prayers Diane ________________________________ From: Pavone <pavone1@...> Sent: Thu, April 7, 2011 10:08:29 AM Subject: Re: [ ] school trouble Thanks everyone! I guess I'll put a call into each of their principals. Im really not very good at this. I just hate to be the squeaky wheel and ask for " favors " which is why I was hoping for some legal ground to stand on. Life with Lyme continues to stretch me. ________________________________ From: CT <iamwhimsy@...> Sent: Thu, April 7, 2011 10:34:44 AM Subject: Re: [ ] school trouble Private schools are not held to the same laws that cover IDEA (504s and IEPs). Those laws and requirements deal only with public schools. It is a private schools option to allow accomodations, however they are not bound by law to do so. Charlotte iamwhimsy@... http://whimsy.t35.com Re: [ ] school trouble Also if in class labs were missed they can give you a modified at home assignment to do instead ..... sorry for all the posts but my mind is remembering things that our plans. helped with....also a special ed teacher that can be used at any time to help your child during the school day to help with homework ... like a time everyday as a study hall. On Thu Apr 7th, 2011 8:57 AM CDT Diane Biel wrote: >This would also help with teachers having to give your child al classroom notes >or even taping the classes that notes were taken and missed. It can give your >child an open ended time to hand things in and extra time at end of quarter to >hand thing in..... > >On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: > >>Hi everyone, >> >>My son and daughter are doing fairly well and are in school this year >> " full time " but still miss an awful lot of school and seem to struggle along >>because of it. My 7th grader constantly has make up work pileing up and is >>penalized for late work while my 5th grader misses out on important classroom >>discussions and notes and then does poorly on tests. The school administration >>and teachers have been very understanding of our circumstance and since my kids > > > > >>are still young I havent made an issue of it but Im wondering if my kids would >>do better with a more formal arrangment like IEP's or 504's , but have no idea >>where to start. Can anyone please give me some pointers. >> >> >> >> >> >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 I think it must go school to school, with private schools. My 11 year old is also at a private school and it is very different from the public schools. For one, I think it is less adversarial -- of course, they have an interest in keeping my son and his tuition $$ there, but they also want him to be successful. He's had to make up a lot of work and for that stuff, the teachers don't penalize him. However, they do if he's been at school and *should have* been able to handle the assignment in a timely way. I doubt the above is helpful, but I guess my advice would be to talk to your kids' teachers, and also the head of the school, so everyone is on the same page. On Thu, Apr 7, 2011 at 10:14 AM, Pavone <pavone1@...> wrote: > > > Thanks Diane! These are some of the things that would really help them out. > > Problem is they are in private school.Im confused about what that means > exactly. > I know our school handles students with lots of " disabilities " , usually > they use > resources from that students local school district. but really I dont need > resources as much as accomadations. things like not taking grade points of > tests > for late assignments and the teacher taking responsibility for notes missed > not > requiring my daughter to get them from a friend who may not take good > notes, > etc. Any idea how this could work in a private setting? > > ________________________________ > From: Diane Biel <dkbmama@...> > Lyme Treatment > Sent: Thu, April 7, 2011 10:03:24 AM > Subject: Re: [ ] school trouble > > > Also if in class labs were missed they can give you a modified at home > assignment to do instead ..... sorry for all the posts but my mind is > remembering things that our plans. helped with....also a special ed teacher > that > can be used at any time to help your child during the school day to help > with > homework ... like a time everyday as a study hall. > > On Thu Apr 7th, 2011 8:57 AM CDT Diane Biel wrote: > > >This would also help with teachers having to give your child al classroom > notes > >or even taping the classes that notes were taken and missed. It can give > your > >child an open ended time to hand things in and extra time at end of > quarter to > >hand thing in..... > > > >On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: > > > >>Hi everyone, > >> > >>My son and daughter are doing fairly well and are in school this year > >> " full time " but still miss an awful lot of school and seem to struggle > along > >>because of it. My 7th grader constantly has make up work pileing up and > is > >>penalized for late work while my 5th grader misses out on important > classroom > >>discussions and notes and then does poorly on tests. The school > administration > >>and teachers have been very understanding of our circumstance and since > my kids > >>are still young I havent made an issue of it but Im wondering if my kids > would > >>do better with a more formal arrangment like IEP's or 504's , but have no > idea > >>where to start. Can anyone please give me some pointers. > >> > >> > >> > >> > >> > >> > >> > >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 One last thing -- probably you already know this, but just general advice: the attitude you go in with is usually what is reflected back to you. So if you go in friendly, open, willing to listen to advice -- that's what you get back. If you go in adversarial, thinking you are going to have to fight for this -- that's what you get back, a fight. Good luck! I'm sure the school wants your children to succeed too. LEslie On Thu, Apr 7, 2011 at 9:57 AM, Diane Biel <dkbmama@...> wrote: > > > This would also help with teachers having to give your child al classroom > notes or even taping the classes that notes were taken and missed. It can > give your child an open ended time to hand things in and extra time at end > of quarter to hand thing in..... > > On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: > > >Hi everyone, > > > >My son and daughter are doing fairly well and are in school this year > > " full time " but still miss an awful lot of school and seem to struggle > along because of it. My 7th grader constantly has make up work pileing up > and is penalized for late work while my 5th grader misses out on important > classroom discussions and notes and then does poorly on tests. The school > administration and teachers have been very understanding of our circumstance > and since my kids are still young I havent made an issue of it but Im > wondering if my kids would do better with a more formal arrangment like > IEP's or 504's , but have no idea where to start. Can anyone please give me > some pointers. > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 One problem is as I have found teachers need to understand the child condition .... yes the child might of been in school that day but when they were home they were in bed and unable to finish the homework as a normal child would of been able too. On Thu Apr 7th, 2011 10:44 AM CDT Farhangi wrote: >I think it must go school to school, with private schools. My 11 year old >is also at a private school and it is very different from the public >schools. For one, I think it is less adversarial -- of course, they have an >interest in keeping my son and his tuition $$ there, but they also want him >to be successful. He's had to make up a lot of work and for that stuff, the >teachers don't penalize him. However, they do if he's been at school and >*should have* been able to handle the assignment in a timely way. > >I doubt the above is helpful, but I guess my advice would be to talk to your >kids' teachers, and also the head of the school, so everyone is on the same >page. > > > >On Thu, Apr 7, 2011 at 10:14 AM, Pavone <pavone1@...> wrote: > >> >> >> Thanks Diane! These are some of the things that would really help them out. >> >> Problem is they are in private school.Im confused about what that means >> exactly. >> I know our school handles students with lots of " disabilities " , usually >> they use >> resources from that students local school district. but really I dont need >> resources as much as accomadations. things like not taking grade points of >> tests >> for late assignments and the teacher taking responsibility for notes missed >> not >> requiring my daughter to get them from a friend who may not take good >> notes, >> etc. Any idea how this could work in a private setting? >> >> ________________________________ >> From: Diane Biel <dkbmama@...> >> Lyme Treatment >> Sent: Thu, April 7, 2011 10:03:24 AM >> Subject: Re: [ ] school trouble >> >> >> Also if in class labs were missed they can give you a modified at home >> assignment to do instead ..... sorry for all the posts but my mind is >> remembering things that our plans. helped with....also a special ed teacher >> that >> can be used at any time to help your child during the school day to help >> with >> homework ... like a time everyday as a study hall. >> >> On Thu Apr 7th, 2011 8:57 AM CDT Diane Biel wrote: >> >> >This would also help with teachers having to give your child al classroom >> notes >> >or even taping the classes that notes were taken and missed. It can give >> your >> >child an open ended time to hand things in and extra time at end of >> quarter to >> >hand thing in..... >> > >> >On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: >> > >> >>Hi everyone, >> >> >> >>My son and daughter are doing fairly well and are in school this year >> >> " full time " but still miss an awful lot of school and seem to struggle >> along >> >>because of it. My 7th grader constantly has make up work pileing up and >> is >> >>penalized for late work while my 5th grader misses out on important >> classroom >> >>discussions and notes and then does poorly on tests. The school >> administration >> >>and teachers have been very understanding of our circumstance and since >> my kids >> >>are still young I havent made an issue of it but Im wondering if my kids >> would >> >>do better with a more formal arrangment like IEP's or 504's , but have no >> idea >> >>where to start. Can anyone please give me some pointers. >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> > >> > >> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 It's definitely not asking for " favors " . If you don't advocate for your child, who will? Nobody! It is up to you to ensure that your children receive what they need in order to be successful in school. Think of all educational possibilities, even those that are not " standard " . We actually have been unorthodox in my daughter's education (which in MI is easy), and pulled her from public high school at the beginning of her junior year, which was in September, and went back to homeschooling (which we did at the beginning of elementary for entirely different reasons). In January she started at the local community college with one class a week (3 credits). She will continue through the 2 summer sessions with one class each (this time at 2 times a week because summer sessions are shorter), and then she is hoping to try a full class load (4 classes) when the fall session starts. By letting her go to the community college instead of high school, she is able to schedule her classes at times that work for her (usually evening), she is able to participate on campus with various groups if she feels up to it, and in general she is with others (classmates) that are there for an education, not because they are required to be. She is also able to choose classes that fit her abilities at the time. For example she's not taking a math class yet because she is still struggling with her math abilities due to the Lyme. This is a situation that may be unorthodox (in effect she will never complete public high school and has instead received a homeschool diploma and " graduated " when she was 16 1/2), however it works for her. In the best of circumstances she will complete her associates degree in science 6 - 12 months after she would have graduated public high school. In the worst of circumstances (health wise), she will obtain her associates " on schedule " if she had graduated with her class from public high school. Charlotte iamwhimsy@... http://whimsy.t35.com Re: [ ] school trouble Thanks everyone! I guess I'll put a call into each of their principals. Im really not very good at this. I just hate to be the squeaky wheel and ask for " favors " which is why I was hoping for some legal ground to stand on. Life with Lyme continues to stretch me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 I just read the messages about " school problems " and just wanted to add that my daughter's school was extremely understanding about her Lyme and anxiety that she experiences during times of illness. We did get a formal 504 plan when she entered middle school due to the structure of having so many different teachers with whom we'd need to communicate. It was the best move I made. I was nervous going in to request the plan and was not really sure at that time what my daughter would need (extra time to complete assignments, etc) but the 504 coordinator helped and has been a great help all year. I realize not everybody has positive experiences with school admin but we have to be advocates for our kids. Millie Sent from my iPhone On Apr 7, 2011, at 11:08 AM, Pavone <pavone1@...> wrote: Thanks everyone! I guess I'll put a call into each of their principals. Im really not very good at this. I just hate to be the squeaky wheel and ask for " favors " which is why I was hoping for some legal ground to stand on. Life with Lyme continues to stretch me. ________________________________ From: CT <iamwhimsy@...> Sent: Thu, April 7, 2011 10:34:44 AM Subject: Re: [ ] school trouble Private schools are not held to the same laws that cover IDEA (504s and IEPs). Those laws and requirements deal only with public schools. It is a private schools option to allow accomodations, however they are not bound by law to do so. Charlotte iamwhimsy@... http://whimsy.t35.com Re: [ ] school trouble Also if in class labs were missed they can give you a modified at home assignment to do instead ..... sorry for all the posts but my mind is remembering things that our plans. helped with....also a special ed teacher that can be used at any time to help your child during the school day to help with homework ... like a time everyday as a study hall. On Thu Apr 7th, 2011 8:57 AM CDT Diane Biel wrote: >This would also help with teachers having to give your child al classroom notes >or even taping the classes that notes were taken and missed. It can give your >child an open ended time to hand things in and extra time at end of quarter to >hand thing in..... > >On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: > >>Hi everyone, >> >>My son and daughter are doing fairly well and are in school this year >> " full time " but still miss an awful lot of school and seem to struggle along >>because of it. My 7th grader constantly has make up work pileing up and is >>penalized for late work while my 5th grader misses out on important classroom >>discussions and notes and then does poorly on tests. The school administration >>and teachers have been very understanding of our circumstance and since my kids > >>are still young I havent made an issue of it but Im wondering if my kids would >>do better with a more formal arrangment like IEP's or 504's , but have no idea >>where to start. Can anyone please give me some pointers. >> >> >> >> >> >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 You guys are great! Natasha, wanna come with me to meet with our principals? I'm only on the other side of the country. You are all right it isnt asking for " favors " , my kids deserve a level playing field. I'm just so out of my element. Thanks for all the great advise, definitely moivating. Ive already waited too long to take care of this for them. ________________________________ From: Millie Reagle <mildge2@...> " " < > Sent: Thu, April 7, 2011 11:51:58 AM Subject: Re: [ ] school trouble I just read the messages about " school problems " and just wanted to add that my daughter's school was extremely understanding about her Lyme and anxiety that she experiences during times of illness. We did get a formal 504 plan when she entered middle school due to the structure of having so many different teachers with whom we'd need to communicate. It was the best move I made. I was nervous going in to request the plan and was not really sure at that time what my daughter would need (extra time to complete assignments, etc) but the 504 coordinator helped and has been a great help all year. I realize not everybody has positive experiences with school admin but we have to be advocates for our kids. Millie Sent from my iPhone On Apr 7, 2011, at 11:08 AM, Pavone <pavone1@...> wrote: Thanks everyone! I guess I'll put a call into each of their principals. Im really not very good at this. I just hate to be the squeaky wheel and ask for " favors " which is why I was hoping for some legal ground to stand on. Life with Lyme continues to stretch me. ________________________________ From: CT <iamwhimsy@...> Sent: Thu, April 7, 2011 10:34:44 AM Subject: Re: [ ] school trouble Private schools are not held to the same laws that cover IDEA (504s and IEPs). Those laws and requirements deal only with public schools. It is a private schools option to allow accomodations, however they are not bound by law to do so. Charlotte iamwhimsy@... http://whimsy.t35.com Re: [ ] school trouble Also if in class labs were missed they can give you a modified at home assignment to do instead ..... sorry for all the posts but my mind is remembering things that our plans. helped with....also a special ed teacher that can be used at any time to help your child during the school day to help with homework ... like a time everyday as a study hall. On Thu Apr 7th, 2011 8:57 AM CDT Diane Biel wrote: >This would also help with teachers having to give your child al classroom notes >or even taping the classes that notes were taken and missed. It can give your >child an open ended time to hand things in and extra time at end of quarter to >hand thing in..... > >On Thu Apr 7th, 2011 8:13 AM CDT pavone1 wrote: > >>Hi everyone, >> >>My son and daughter are doing fairly well and are in school this year >> " full time " but still miss an awful lot of school and seem to struggle along >>because of it. My 7th grader constantly has make up work pileing up and is >>penalized for late work while my 5th grader misses out on important classroom >>discussions and notes and then does poorly on tests. The school administration >>and teachers have been very understanding of our circumstance and since my kids > > >>are still young I havent made an issue of it but Im wondering if my kids would >>do better with a more formal arrangment like IEP's or 504's , but have no idea >>where to start. Can anyone please give me some pointers. >> >> >> >> >> >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 Interesting, Charlotte. Can she eventually take her GED if she wants? Also, one other suggestion for helping middle-high school students. My son, due to huge anxiety issues at the beginning of the year (8th gr) was not able to attend science class. This is a problem in that he has missed the labs that they do in class. The school/teacher has been ok with this but I'm sure it won't fly in high school so am not sure what to do about that. Suggestions? Anyway, an assistant, who is also in the class for an IEP student has taken notes for my son all year. She then gives them to him after class and we cover the notes and reading at home or he does it during the library (where he goes while missing science). So, maybe a qualified student can take notes for other kids in this situation. Sorry, that took a long time to make my point. Elaine ________________________________ Lyme Disease News continually updated from thousands of sources around the net: http://www.topix.net/health/lyme-disease MedWorm: The latest items on: Lyme Disease http://tinyurl.com/23dgy8 Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 Look into an on-line class that the public school has to offer him if he has a IEP - BINGO ________________________________ From: <ecckwalk@...> Sent: Thu, April 7, 2011 1:42:31 PM Subject: Re: [ ] school trouble  Interesting, Charlotte. Can she eventually take her GED if she wants? Also, one other suggestion for helping middle-high school students. My son, due to huge anxiety issues at the beginning of the year (8th gr) was not able to attend science class. This is a problem in that he has missed the labs that they do in class. The school/teacher has been ok with this but I'm sure it won't fly in high school so am not sure what to do about that. Suggestions? Anyway, an assistant, who is also in the class for an IEP student has taken notes for my son all year. She then gives them to him after class and we cover the notes and reading at home or he does it during the library (where he goes while missing science). So, maybe a qualified student can take notes for other kids in this situation. Sorry, that took a long time to make my point. Elaine ________________________________ Lyme Disease News continually updated from thousands of sources around the net: http://www.topix.net/health/lyme-disease MedWorm: The latest items on: Lyme Disease http://tinyurl.com/23dgy8 Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 Well, just my two cents. My daughter has an IEP but it is under " OHI " other health impairment.......meaning this falls under her being chronically ill......a letter from any doctor stating this child has CFS or Chronic Lyme disease ......... the letter just needs to state that this child is being treated for this and this disease will cause chronic illness therefore this child will chronicly miss school. This is good enough for our school - but this is public...not private our private school was unable to give any of this......so first step first.....if you can work it out with the pricipal (not teacher) that you can get a letter stating this....maybe even cut the school day so it is shorter.....take some of the extra classe out that are not needed so you child can spent the time she does have on the core classes. Now back to my daughters IEP...was a 504......it states.......CFS, Chronic Lyme Disease, Migraines, IBS, depression, anxiety........your llmd doesn't need your child's medical records for any of this - he just needs to send a letter stating this is what this child is being treated for and this is what happens with this disease.........if the school needs more from a specialist of there choice they will have to pay for it - (I couldn't see this school doing so and because of the grade level) As someone already stated that grades until 9th really don't matter - that is why sometimes they will just go under a pass fail grading system.........work with the Principal not the teachers.....once you educate the principle on this then they should have a meeting with all teachers and educate them on what your poor child is dealing with. I was sent a letter once from a mom that her llmd sent to the school - just cant remember who that was - I will try and find it or if someone remember who sent this to me please would you be willing to do the same here??? I printed out abunch of stuff on what this disease will do.......many websites have great information - www.lymedisease.org has good stuff for children....... I know its so overwhelming at first but once you get threw this is will be easier.........public school works with this all the time but private schools do not need to offer anything......that is why my 6th grader was lucky with just going in 1/2 days and only doing the core subjects...but now is being home schooled - to enter 7th grade they only need to know what on-line program she took and if she finished this......... Hang in there girl!!! Diane (sorry about the spelling errors....my head is pounding right now ________________________________ From: Farhangi <lesliefarhangi@...> Sent: Sat, April 9, 2011 8:54:59 AM Subject: Re: [ ] school trouble You might consider getting tested by a neuropsychologist. My son has been -- it is a long story, he's been to two different ones on the advice of his doctors. They can diagnose lyme-related cognitive issues, there is a profile for lyme patients. Neither one of my son's neuropsychologists were particularly " lyme literate " but they both said his symptoms were consistent w/lyme, and one went as far as diagnosing him with lyme. This testing, which around here is $2500 or so, was covered by our insurance. If you have something that says the cognitive issues are related to lyme, I'm sure that would help you. I would just ask the doctor (they are all ph.d's) if he/she diagnoses lyme and is familiar with the constellation of symptoms lyme presents. Having said all that, we also were working with a neurologist and my son does *not* have lyme. He had a vitamin deficiency which made him feel horrible (constant headaches, lethargy, aches and pains that came and went -- sound like lyme??!!). Once we put him on the vitamin it was like night and day, the headaches completely disappeared, energy level was up and no more aches and pains. However his cognitive issues were still there. He had an MRI, and the neurologist could explain why it wasn't lyme. Apparently lyme brain scans have many " UBO's " or " unidentified bright objects " scattered throughout the brain. And, my son has a scar in his brain in the frontal lobe, which is causing the poor memory, slow processing speed etc. In other words, which explains the cognitive issues. Hope this helps someone! On Sat, Apr 9, 2011 at 8:41 AM, Pavone <pavone1@...> wrote: > > > Thanks Jeanne I might take you up on that offer. I'm a bit overwhelmed > by it all. My 5th graders teacher called me yesterday sounding annoyed > and frustrated with us. My daughters grades are poor and she has never > been so scattered,always unprepared and missing things. I'm not sure but > from what i've been reading I dont think my kids would qualify for an IEP. > A specialsit for Learning Disabilites? Does it have to be a Lyme literate > specialist? Would my kids LLMD know how to preceed if there are cognitive > issues? he is not a ped dr. and isn't great with notes and paperwork. > > ________________________________ > From: Karczmar <ckarczmar@...> > > Sent: Fri, April 8, 2011 8:39:13 PM > Subject: Re: [ ] school trouble > > You should definitely get an IEP. But, they will have to be identified with > an " exceptionality " -in our case with our son it is ADHD which is augmented > by the Lyme-the Lyme is not mentioned as part of the exceptionality or the > IEP. So your kids should be diagnosed by a specialist for any Learning > Disability or special needs condition and then you have to set up a meeting > with your school administrator and Special Ed team. START ON IT RIGHT AWAY, > even if they're doing ok now so that the IEP is in place later on when it > really matters - school administrations are often quite slow with this > process and it may require constant nudging. But, once it gets in place it > is well worth it. > > All the best, > > ck > > On Thu, Apr 7, 2011 at 6:13 AM, pavone1 <pavone1@...> wrote: > > > > > > > Hi everyone, > > > > My son and daughter are doing fairly well and are in school this year > > " full time " but still miss an awful lot of school and seem to struggle > > along because of it. My 7th grader constantly has make up work pileing up > > and is penalized for late work while my 5th grader misses out on > important > > classroom discussions and notes and then does poorly on tests. The school > > administration and teachers have been very understanding of our > circumstance > > and since my kids are still young I havent made an issue of it but Im > > wondering if my kids would do better with a more formal arrangment like > > IEP's or 504's , but have no idea where to start. Can anyone please give > me > > some pointers. > > > > > > > > > > > > -- > *Karczmar, MFA, PGD* > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 how did they find the vitamin deficiency?? ________________________________ From: Farhangi <lesliefarhangi@...> Sent: Sat, April 9, 2011 8:54:59 AM Subject: Re: [ ] school trouble You might consider getting tested by a neuropsychologist. My son has been -- it is a long story, he's been to two different ones on the advice of his doctors. They can diagnose lyme-related cognitive issues, there is a profile for lyme patients. Neither one of my son's neuropsychologists were particularly " lyme literate " but they both said his symptoms were consistent w/lyme, and one went as far as diagnosing him with lyme. This testing, which around here is $2500 or so, was covered by our insurance. If you have something that says the cognitive issues are related to lyme, I'm sure that would help you. I would just ask the doctor (they are all ph.d's) if he/she diagnoses lyme and is familiar with the constellation of symptoms lyme presents. Having said all that, we also were working with a neurologist and my son does *not* have lyme. He had a vitamin deficiency which made him feel horrible (constant headaches, lethargy, aches and pains that came and went -- sound like lyme??!!). Once we put him on the vitamin it was like night and day, the headaches completely disappeared, energy level was up and no more aches and pains. However his cognitive issues were still there. He had an MRI, and the neurologist could explain why it wasn't lyme. Apparently lyme brain scans have many " UBO's " or " unidentified bright objects " scattered throughout the brain. And, my son has a scar in his brain in the frontal lobe, which is causing the poor memory, slow processing speed etc. In other words, which explains the cognitive issues. Hope this helps someone! On Sat, Apr 9, 2011 at 8:41 AM, Pavone <pavone1@...> wrote: > > > Thanks Jeanne I might take you up on that offer. I'm a bit overwhelmed > by it all. My 5th graders teacher called me yesterday sounding annoyed > and frustrated with us. My daughters grades are poor and she has never > been so scattered,always unprepared and missing things. I'm not sure but > from what i've been reading I dont think my kids would qualify for an IEP. > A specialsit for Learning Disabilites? Does it have to be a Lyme literate > specialist? Would my kids LLMD know how to preceed if there are cognitive > issues? he is not a ped dr. and isn't great with notes and paperwork. > > ________________________________ > From: Karczmar <ckarczmar@...> > > Sent: Fri, April 8, 2011 8:39:13 PM > Subject: Re: [ ] school trouble > > You should definitely get an IEP. But, they will have to be identified with > an " exceptionality " -in our case with our son it is ADHD which is augmented > by the Lyme-the Lyme is not mentioned as part of the exceptionality or the > IEP. So your kids should be diagnosed by a specialist for any Learning > Disability or special needs condition and then you have to set up a meeting > with your school administrator and Special Ed team. START ON IT RIGHT AWAY, > even if they're doing ok now so that the IEP is in place later on when it > really matters - school administrations are often quite slow with this > process and it may require constant nudging. But, once it gets in place it > is well worth it. > > All the best, > > ck > > On Thu, Apr 7, 2011 at 6:13 AM, pavone1 <pavone1@...> wrote: > > > > > > > Hi everyone, > > > > My son and daughter are doing fairly well and are in school this year > > " full time " but still miss an awful lot of school and seem to struggle > > along because of it. My 7th grader constantly has make up work pileing up > > and is penalized for late work while my 5th grader misses out on > important > > classroom discussions and notes and then does poorly on tests. The school > > administration and teachers have been very understanding of our > circumstance > > and since my kids are still young I havent made an issue of it but Im > > wondering if my kids would do better with a more formal arrangment like > > IEP's or 504's , but have no idea where to start. Can anyone please give > me > > some pointers. > > > > > > > > > > > > -- > *Karczmar, MFA, PGD* > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2011 Report Share Posted April 12, 2011 We have a meeting tomorrow with my daughters teacher and principal and I'm compiling a list of requests and accommodations that might be helpful for her. If you have any ideas or know something that really helped your kids out please let me know. Also, her Dr. recommend having a Q EEG anyone have experience with this? He also recommended Pleo Not, anyone try that? ________________________________ From: <ecckwalk@...> Sent: Sun, April 10, 2011 11:01:35 PM Subject: Re: [ ] school trouble Thanks, Charlotte. I'm not sure how our high school would handle the online science in place of the labs though. The whole freshman year is basically lab work and write-ups w/ 2 huge lab projects throughout the year. We'll see and won't really know if his anxiety sets in until he starts the class. Just want to have a potential plan in place. take care, Elaine ________________________________ ________________________________ Lyme Disease News continually updated from thousands of sources around the net: http://www.topix.net/health/lyme-disease MedWorm: The latest items on: Lyme Disease http://tinyurl.com/23dgy8 Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2011 Report Share Posted April 13, 2011 Dear our daughter had a Q EEG done a few weeks ago, & it showed that she had " suspected calcification of white matter " , so she is now doing an MRI & CT scan to explore that, & will start the neuro-feedback as a part of her brain rehab next week - I'll let you know how it goes. The neuro-psych was actually really great at showing her on the screen where her problems were - she thought it was really cool that she could see what her brain was doing. As far as accommodations go - we've just asked the dept of education here in Canberra to provide our daughter with someone to push her & her wheelchair to/from/between classes (it's not cool when you are 16 to have your mum come into the school and push you around). If your daughter doesn't need that, then maybe she can have someone carry her books etc. The other thing that has been vital for us is flexible assessment - if she is too sick to do a presentation or test, can she do a paper, or blog, or power point presentation etc. The teacher also emails her all the work that she misses when she is in hospital or too sick to go to school. I hope that helps - I'm sure that other people have lots of other ideas. Cheers Nikki > > Re: school trouble > > Posted by: " Pavone " pavone1@... pavone1 > > Tue Apr 12, 2011 2:23 pm (PDT) > > > > We have a meeting tomorrow with my daughters teacher and principal and > I'm > compiling a list of > requests and accommodations that might be helpful for her. If you have > any ideas > or know something that really > helped your kids out please let me know. > > Also, her Dr. recommend having a Q EEG anyone have experience with this? > He also recommended Pleo Not, anyone try that? > > -- www.lymedisease.org.au Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2011 Report Share Posted April 13, 2011 I am sorry - I didn't see this - This is what has helped us in the past..........always good to have things in the papers if you might need it in the future........ No tardies for classes........extra time between classes if needed Use of school elevator if needed Extra time to make up homework - extra time at the end of quarter (even if the child was at school that day he or she still might need extra time to hand things in because these children most likely go home and rest and do not have as much homework time at home as normal kids... tutor if needed on-line classes if needed late start time......meaning if you can cut out a extra class they do not need the credit for so they can come in an hour or two later in the morning - also maybe take an on-line class so they can come in later in the morning bathroom access at any time during class ........I am having such brain fog this morning..........make sure the chronic illness will not count against you for a truancy - If my brain kicks back in and I think of anything I will let you know - good luck and remember you hold the cards.........your child is going though a hard treatment program and they should be treated with as much compassion as a child going through cancer treatments.......I would print off symptoms of this illness and an explanation of what this illness is so they would understand it better - also had copies for teachers so they also would be educated.....the hard thing still is when you have a new teacher and they feel that the child is just slacking off.....I make sure I nip it in the butt right away as our children work hard for every day or hour they are able to attend school and do the homework - Diane ________________________________ From: Nikki <ncoleman@...> Sent: Wed, April 13, 2011 7:32:53 AM Subject: [ ] Re: school trouble Dear our daughter had a Q EEG done a few weeks ago, & it showed that she had " suspected calcification of white matter " , so she is now doing an MRI & CT scan to explore that, & will start the neuro-feedback as a part of her brain rehab next week - I'll let you know how it goes. The neuro-psych was actually really great at showing her on the screen where her problems were - she thought it was really cool that she could see what her brain was doing. As far as accommodations go - we've just asked the dept of education here in Canberra to provide our daughter with someone to push her & her wheelchair to/from/between classes (it's not cool when you are 16 to have your mum come into the school and push you around). If your daughter doesn't need that, then maybe she can have someone carry her books etc. The other thing that has been vital for us is flexible assessment - if she is too sick to do a presentation or test, can she do a paper, or blog, or power point presentation etc. The teacher also emails her all the work that she misses when she is in hospital or too sick to go to school. I hope that helps - I'm sure that other people have lots of other ideas. Cheers Nikki > > Re: school trouble > > Posted by: " Pavone " pavone1@... pavone1 > > Tue Apr 12, 2011 2:23 pm (PDT) > > > > We have a meeting tomorrow with my daughters teacher and principal and > I'm > compiling a list of > requests and accommodations that might be helpful for her. If you have > any ideas > or know something that really > helped your kids out please let me know. > > Also, her Dr. recommend having a Q EEG anyone have experience with this? > He also recommended Pleo Not, anyone try that? > > -- www.lymedisease.org.au ------------------------------------ Lyme Disease News continually updated from thousands of sources around the net: http://www.topix.net/health/lyme-disease MedWorm: The latest items on: Lyme Disease http://tinyurl.com/23dgy8 Quote Link to comment Share on other sites More sharing options...
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