Tindamax

[Guest guest]

My daughter is on Cipro, Doryx (doxy), Nystatin, Plaquenil, and Rifampin plus

seroquel and cymbalta for neuropsych.  A boatload for one 11 year old kid but

the combo does seem to be working and I have complete confidence in Dr. H.  We

do tindamax every day.

From: jchabot <jchabot@...>

Subject: [ ] Tindamax

Date: Saturday, March 13, 2010, 9:36 AM

 

Hi,

Is anyone's child here on three meds for lyme?My son is on Zithromax, Rifampin

and now the doctor just prescribed Tindamax.I'm really concerned because he is

also on two other meds for his ocd and tics.He said to just give him the

tindamax on weekends only.

Any input?

Hugs

judy

[Guest guest]

Hi Judy,

My son (11, now 12) has been on Rifampin, Azith and Tindamax (every day) all at

the same time. No problems other than the Tindamax brought out the bulls-eye

rash. Then he started Plaq and Septra and/or Alinia when he stopped the

Tindamax. He has also recently started Zoloft and Busbar (anxiety). He really

has not had negative side affects from anything but I know it's scary.

I assume we have the same Dr H, as in this reply, and I trust what he has us

doing as well.

Best wishes.

Elaine

[Guest guest]

Hi,

Our daughter just started Tindamax, she is supposed to take 250mg twice a day(

500mg) for just two days a week.

She is sensitive to meds, so we only started 125mg once a day for two days. She

took the Tindamax on Sunday and Monday.

I was just wondering how other children have reacted? I know this can be a

tough med.

Wednesday and today, she is feeling a bit lightheaded, and nauseous. Just

looking for some input from other parents of Children on how they reacted when

starting the Tindamax.

Thanks for any input.

[Guest guest]

my daughters have taken it in big blasts and never have any negative effects

that I could tell. It's always been part of a larger cocktail of drugs when

they've taken it.

Natasha

________________________________

From: <ecckwalk@...>

Sent: Thu, July 8, 2010 9:01:26 PM

Subject: Re: [ ] Tindamax

Hello, my son (12) was on it for a while and I don't really remember any

reactions to it (maybe some dark circles under his eyes) other than it brought

out a secondary bullseye rash on his thigh. I took photos, mailed it to my dr

and that is what he said. Since my son has never had a positive Western Blot,

this was reassurance for us that we are doing the right thing.

Best wishes,

Elaine

________________________________

From: heb555 <heb555@...>

Sent: Thu, July 8, 2010 9:05:38 AM

Subject: [ ] Tindamax

Hi,

Our daughter just started Tindamax, she is supposed to take 250mg twice a day(

500mg) for just two days a week.

She is sensitive to meds, so we only started 125mg once a day for two days. She

took the Tindamax on Sunday and Monday.

I was just wondering how other children have reacted? I know this can be a tough

med.

Wednesday and today, she is feeling a bit lightheaded, and nauseous. Just

looking for some input from other parents of Children on how they reacted when

starting the Tindamax.

Thanks for any input.

[Guest guest]

Hello,

Sorry if I'm sounding repetitive with this since I've posted on this topic

before, but I feel this is important.  My son (age 7) took Tindamax for two

days

per week and weeks later had a tremendous setback with neuropsych symptoms. 

Evidently the med was hightly effective in breaking the cysts but was not well

tolerated at all.  Adults that I know that have taken it have also reported a

significant resurfacing of symptoms after feeling the best ever since

contracting Lyme, though well after beginning the med.  My point is

to continue

assessing for possible med reactions even if intially, your child seems fine.

Kim

 

________________________________

From: Natasha Moiseyev <nmoiseyev@...>

Sent: Fri, July 9, 2010 4:35:34 AM

Subject: Re: [ ] Tindamax

 

my daughters have taken it in big blasts and never have any negative effects

that I could tell. It's always been part of a larger cocktail of drugs when

they've taken it.

Natasha

________________________________

From: <ecckwalk@...>

Sent: Thu, July 8, 2010 9:01:26 PM

Subject: Re: [ ] Tindamax

Hello, my son (12) was on it for a while and I don't really remember any

reactions to it (maybe some dark circles under his eyes) other than it brought

out a secondary bullseye rash on his thigh. I took photos, mailed it to my dr

and that is what he said. Since my son has never had a positive Western Blot,

this was reassurance for us that we are doing the right thing.

Best wishes,

Elaine

________________________________

From: heb555 <heb555@...>

Sent: Thu, July 8, 2010 9:05:38 AM

Subject: [ ] Tindamax

Hi,

Our daughter just started Tindamax, she is supposed to take 250mg twice a day(

500mg) for just two days a week.

She is sensitive to meds, so we only started 125mg once a day for two days. She

took the Tindamax on Sunday and Monday.

I was just wondering how other children have reacted? I know this can be a tough

med.

Wednesday and today, she is feeling a bit lightheaded, and nauseous. Just

looking for some input from other parents of Children on how they reacted when

starting the Tindamax.

Thanks for any input.

[Guest guest]

totally normal, think of any antibiotics as inflamers. they will always make

the symptoms worse, and can even add a few new ones...just for fun!

(mom of 3)

>

> Hi,

> Our daughter just started Tindamax, she is supposed to take 250mg twice a

day( 500mg) for just two days a week.

>

> She is sensitive to meds, so we only started 125mg once a day for two days.

She took the Tindamax on Sunday and Monday.

>

> I was just wondering how other children have reacted? I know this can be a

tough med.

>

> Wednesday and today, she is feeling a bit lightheaded, and nauseous. Just

looking for some input from other parents of Children on how they reacted when

starting the Tindamax.

>

> Thanks for any input.

>

[Guest guest]

heb555 <heb555@...> wrote:

>Thanks for all the replies. She is still feeling a bit light headed since

beginning the Tindamax on Sunday and Monday ( two days a week),

>

[Guest guest]

My daughter started it a few weeks ago. The first couple weeks were

pretty rough: she'd take it for two days and then have a couple really

bad days with symptoms resurfacing or getting much worse. Seems to have

less impact now, even though it still takes something out of her.

Kim wrote:

>

>

> Hello,

> Sorry if I'm sounding repetitive with this since I've posted on this

> topic

> before, but I feel this is important. My son (age 7) took Tindamax

> for two days

> per week and weeks later had a tremendous setback with neuropsych

> symptoms.

> Evidently the med was hightly effective in breaking the cysts but was

> not well

> tolerated at all. Adults that I know that have taken it have also

> reported a

> significant resurfacing of symptoms after feeling the best ever since

> contracting Lyme, though well after beginning the med. My point is

> to continue

> assessing for possible med reactions even if intially, your child

> seems fine.

> Kim

>

>

> ________________________________

> From: Natasha Moiseyev <nmoiseyev@...

> <mailto:nmoiseyev%40sbcglobal.net>>

>

> <mailto: %40>

> Sent: Fri, July 9, 2010 4:35:34 AM

> Subject: Re: [ ] Tindamax

>

>

> my daughters have taken it in big blasts and never have any negative

> effects

> that I could tell. It's always been part of a larger cocktail of drugs

> when

> they've taken it.

>

> Natasha

>

> ________________________________

> From: <ecckwalk@... <mailto:ecckwalk%40>>

>

> <mailto: %40>

> Sent: Thu, July 8, 2010 9:01:26 PM

> Subject: Re: [ ] Tindamax

>

> Hello, my son (12) was on it for a while and I don't really remember any

> reactions to it (maybe some dark circles under his eyes) other than it

> brought

> out a secondary bullseye rash on his thigh. I took photos, mailed it

> to my dr

> and that is what he said. Since my son has never had a positive

> Western Blot,

> this was reassurance for us that we are doing the right thing.

> Best wishes,

> Elaine

>

> ________________________________

> From: heb555 <heb555@... <mailto:heb555%40verizon.net>>

>

> <mailto: %40>

> Sent: Thu, July 8, 2010 9:05:38 AM

> Subject: [ ] Tindamax

>

> Hi,

> Our daughter just started Tindamax, she is supposed to take 250mg

> twice a day(

> 500mg) for just two days a week.

>

> She is sensitive to meds, so we only started 125mg once a day for two

> days. She

> took the Tindamax on Sunday and Monday.

>

> I was just wondering how other children have reacted? I know this can

> be a tough

>

> med.

>

> Wednesday and today, she is feeling a bit lightheaded, and nauseous. Just

> looking for some input from other parents of Children on how they

> reacted when

> starting the Tindamax.

>

> Thanks for any input.

>

>

[Guest guest]

Hi Judy,

My daughter who is now 10 was on Tindamax as well. We had to take her off

because her ocd became intolerable and she said she just felt like she was going

crazy. She would run through the house screaming and holding her head and

saying she thought she was going to die. It was a horrific experience. We also

could not get through ANY school work and everything was the biggest deal.

After going off the Tindamax she began to feel more normal and now she is doing

very well but at some point we'll need to address the cyst buster issue and I'm

not sure what we'll do.

* ´¨) ¸.• ´¸.•* ´¨)¸. •*¨)

(¸.•´ (¸ ;. •´ Tricia

God is faithful always and in all ways!

www.ReviveOurHearts.org

www.knowGOD.org

________________________________

From: jchabot <jchabot@...>

Sent: Fri, January 28, 2011 8:30:48 PM

Subject: [ ] tindamax

Hi Everyone,

My 9 yr old son has been on tindamax for 2 months now(weekends only) on top of

the zithromax and rifampin, which he has been on for 15 months. He is telling me

that everyday he feels like he is in a dream that he cannot wake up from (

brainfog?) He cannot remember anything anyone says to him. It is taking him

literally 4 hours to do three homework assignments and his emotions are that of

a 2 year old. His ocd and separation aniety is horrendous. Any thoughts on

this???

I don't know if I should put him back on the antipsychotics because his ocd " bad

thoughts " is just constant.

thanks

judy

[Guest guest]

Oh Judy, I'm so sorry.  It really helped my son to repeatedly tell him that,

" This is the bugs making you feel this way.  They like to go into your brain

and

mess things up.  It will get better.  This is not who you are.  Did you feel

like this before you got sick? No, well you won't once we get you better. "   I'm

sure you've done all of this.  My dr told him this too.

Have him try hot baths with 1-2 cups of epsom salts.  Stay in for at least 20

min. Rinse off afterward to rinse off the toxins.  Drink lots of water w/

lemon,

esp while in the bath.  We also used Pinella (NutraMedix) as a brain/nerve

cleanse. (The day I started this my head got warm and my chiropractor noticed

it

right away).  My son also started Zoloft which didn't seem to help much but

then

we paired it w/ Buspirone, an anti-seizure med which also works as a mood

stabelizer.  It's just so scary.  My son also started having " scary, bad

thoughts " .  All of this started when he first stopped the Rifampin for

Bartonella.  It probably took almost 6 mths for him to feel mostly " normal "

again.  Another thing our dr (medical!) told him to do was, every night

before

bed make a list of all the " bad things or thoughts " for that day.  He didn't

have to show me or tell me about the bad list. Then tear the page out of the

binder, wad it up and throw it in the fire.  If we did't have a fire that night

then we would light it on fire in the woodstove.  Then, make another list of

all

the good things of that day.  I found that my son had so many things to write

on

the good side and he seemed to benefit from burning the bad.  He was eager to

do

this every night for about a week and then he just seemed to not need to do it

anymore.  I wasn't so sure about this at first but it ended up working quite

well for him.

To say " hang in there " sounds so simple but it will get better.  I'm assuming

your dr feels this is a herx since he wants you to stick with it. How long has

he been taking it?  And he only takes it on weekends did you say?

Elaine

________________________________

From: jchabot <jchabot@...>

Sent: Tue, February 1, 2011 5:45:17 AM

Subject: Re: [ ] Re: tindamax

 

Hi Elaine,

Thank you for sharing. I don't know what the detox treatment is. My son's psych

symptoms are awful. He says he feels like his head and ears are all plugged up

and in a constant state of panic saying he can't tell if he is awake or in a

dream, ans askingif he is going to die.(he only takes the tindamax on weekends)

The doctor said he wants him to take this, regardless of his symptoms. We tried

flagyl and he had the same effect.

He started xanax yesterday and it is doing nothing.

Hugs

Judy

From: ecckwalk <ecckwalk@...>

Subject: [ ] Re: tindamax

Date: Monday, January 31, 2011, 10:13 PM

 

HI Judy,

I really don't know much about the scans since my sons and I have not had any. I

know others who have had them though. What I understand is that it can show

lesions. I'm not positive but I think that might be some damage, but I'm pretty

sure that the lesions can improve. And, I don't think there have to be lesions

if you have lyme. Probably like everything else, it can be individual.

I'm looking back at my notes from when my son (12) took Tindamax. Five days

after starting he developed a small bullseye rash on his inner thigh. I couldn't

believe it! I took a photo and my dr confirmed it. She said the rash can emerge

anytime during treatment. I was so excited to see it...This was our first

confirmation of lyme since his WB was negative although tested + for Bart. He

was on it for 6 wks and everything else was fine.

In looking back at when I took Tindamax, lots of stuff got stirred-up; heart

palps, anxiety, achy, strange feelings, fatigue, balance, tingling, feeling hot,

rapid heartbeat, etc, but pressure cleared in my head. I think Tindamax is a

hard-hitter. It looks like I took it for 4 mths and during those months I had a

lot of symptoms.

Do you think your son is herxing? Is it psych issues that have gotten worse? For

me, personally and as a mom, those are the WORST to deal with. Not from Tindamax

but my son and I have had the " I think I'm going crazy feeling. " Are you trying

all the detox stuff? Is your dr aware of his reaction?

I'm so sorry.

Elaine

>

> >

>

>

>

>

>

>

>

[Guest guest]

Hi Elaine,

I do tell my son constantly this is the lyme giving you these feelings of panic

and ocd, but 2 minutes later he's saying " Ocd is telling me this "

 

Where would I get the Pinella? I never heard of this.

 

Oh boy, so this is going to  get worse when we stop the rifampin too? It never

ends does it?

 

I have so much to learn about all of this and he has been sick for so long , you

would think I would know all of this by now.I better get doing some more

research.

My son started the tindamax 2 months ago and has gone downhill ever since.

 

Thanks so much for the advice. I really like your idea about the bad thought

list and burning it, etc. That might help my son as well.

thanks so much!

Hugs

judy

From: ecckwalk <ecckwalk@...>

Subject: [ ] Re: tindamax

Date: Monday, January 31, 2011, 10:13 PM

 

HI Judy,

I really don't know much about the scans since my sons and I have not had any. I

know others who have had them though. What I understand is that it can show

lesions. I'm not positive but I think that might be some damage, but I'm pretty

sure that the lesions can improve. And, I don't think there have to be lesions

if you have lyme. Probably like everything else, it can be individual.

I'm looking back at my notes from when my son (12) took Tindamax. Five days

after starting he developed a small bullseye rash on his inner thigh. I couldn't

believe it! I took a photo and my dr confirmed it. She said the rash can emerge

anytime during treatment. I was so excited to see it...This was our first

confirmation of lyme since his WB was negative although tested + for Bart. He

was on it for 6 wks and everything else was fine.

In looking back at when I took Tindamax, lots of stuff got stirred-up; heart

palps, anxiety, achy, strange feelings, fatigue, balance, tingling, feeling hot,

rapid heartbeat, etc, but pressure cleared in my head. I think Tindamax is a

hard-hitter. It looks like I took it for 4 mths and during those months I had a

lot of symptoms.

Do you think your son is herxing? Is it psych issues that have gotten worse? For

me, personally and as a mom, those are the WORST to deal with. Not from Tindamax

but my son and I have had the " I think I'm going crazy feeling. " Are you trying

all the detox stuff? Is your dr aware of his reaction?

I'm so sorry.

Elaine

>

> >

>

>

>

>

>

>

>

[Guest guest]

Pinella is from nutramedix.com It is a great company. If you buy any 4

products you get a 5th free, free shipping and a 10% discount.

hugs,

Elaine

________________________________

From: jchabot <jchabot@...>

Sent: Tue, February 1, 2011 1:14:43 PM

Subject: Re: [ ] Re: tindamax

Hi Elaine,

I do tell my son constantly this is the lyme giving you these feelings of panic

and ocd, but 2 minutes later he's saying " Ocd is telling me this "

Where would I get the Pinella? I never heard of this.

Oh boy, so this is going to get worse when we stop the rifampin too? It never

ends does it?

I have so much to learn about all of this and he has been sick for so long , you

would think I would know all of this by now.I better get doing some more

research.

My son started the tindamax 2 months ago and has gone downhill ever since.

Thanks so much for the advice. I really like your idea about the bad thought

list and burning it, etc. That might help my son as well.

thanks so much!

Hugs

judy

From: ecckwalk <ecckwalk@...>

Subject: [ ] Re: tindamax

Date: Monday, January 31, 2011, 10:13 PM

HI Judy,

I really don't know much about the scans since my sons and I have not had any. I

know others who have had them though. What I understand is that it can show

lesions. I'm not positive but I think that might be some damage, but I'm pretty

sure that the lesions can improve. And, I don't think there have to be lesions

if you have lyme. Probably like everything else, it can be individual.

I'm looking back at my notes from when my son (12) took Tindamax. Five days

after starting he developed a small bullseye rash on his inner thigh. I couldn't

believe it! I took a photo and my dr confirmed it. She said the rash can emerge

anytime during treatment. I was so excited to see it...This was our first

confirmation of lyme since his WB was negative although tested + for Bart. He

was on it for 6 wks and everything else was fine.

In looking back at when I took Tindamax, lots of stuff got stirred-up; heart

palps, anxiety, achy, strange feelings, fatigue, balance, tingling, feeling hot,

rapid heartbeat, etc, but pressure cleared in my head. I think Tindamax is a

hard-hitter. It looks like I took it for 4 mths and during those months I had a

lot of symptoms.

Do you think your son is herxing? Is it psych issues that have gotten worse? For

me, personally and as a mom, those are the WORST to deal with. Not from Tindamax

but my son and I have had the " I think I'm going crazy feeling. " Are you trying

all the detox stuff? Is your dr aware of his reaction?

I'm so sorry.

Elaine

>

> >

>

>

>

>

>

>

>

[Guest guest]

I don't know if it will help all of you, but I was put on Ketek (an

antibiotic) several years ago for lyme/coinfections, and it had a similar

effect on me (extreme anxiety; I was incredibly tightly wound -- I can

remember hyperventilating over planning my 7 year old's birthday party --

not like me at all!). At least with those types of symptoms, the anxiety

etc went away as soon as I was off the meds.

I hope all your children feel better soon! And I'm reading this thread with

interest b/c my son is due to go on tindamax in a little while.

On Tue, Feb 1, 2011 at 4:14 PM, jchabot <jchabot@...> wrote:

>

>

> Hi Elaine,

> I do tell my son constantly this is the lyme giving you these feelings of

> panic and ocd, but 2 minutes later he's saying " Ocd is telling me this "

>

> Where would I get the Pinella? I never heard of this.

>

> Oh boy, so this is going to get worse when we stop the rifampin too? It

> never ends does it?

>

> I have so much to learn about all of this and he has been sick for so long

> , you would think I would know all of this by now.I better get doing some

> more research.

> My son started the tindamax 2 months ago and has gone downhill ever since.

>

> Thanks so much for the advice. I really like your idea about the bad

> thought list and burning it, etc. That might help my son as well.

> thanks so much!

> Hugs

> judy

>

> -

>

[Guest guest]

Hi ,

thank you for sharing!

Hugs

judy

>

>

> Hi Elaine,

> I do tell my son constantly this is the lyme giving you these feelings of

> panic and ocd, but 2 minutes later he's saying " Ocd is telling me this "

>

> Where would I get the Pinella? I never heard of this.

>

> Oh boy, so this is going to get worse when we stop the rifampin too? It

> never ends does it?

>

> I have so much to learn about all of this and he has been sick for so long

> , you would think I would know all of this by now.I better get doing some

> more research.

> My son started the tindamax 2 months ago and has gone downhill ever since.

>

> Thanks so much for the advice. I really like your idea about the bad

> thought list and burning it, etc. That might help my son as well.

> thanks so much!

> Hugs

> judy

>

> -

>