Re: advice needed - Lithium helps generate new grey matter in the brain

[Guest guest]

Thaniks, . I'm on the other side of the country, in the county with

the highest number of lyme cases in the nation . . . (Dutchess County, NY).

Good luck to you with the supplements and yes, please do keep me (us)

posted, I'd love to hear how they work.

Even though the neurologist is not a big lyme believer, I do think he is a

good neurologist, and in a way, it carries even more weight if HE thinks

this is due to lyme.

I feel much more hopeful after hearing everyone's responses, again, thank

you.

On Sat, Feb 26, 2011 at 2:00 PM, Guillen <lovingmama@...>wrote:

>

>

>

> Hi there. I too have neuro lyme and poor cognitive function. I met with

> someone this past monday in Mill Valley, who works with LLMD's in San

> and Santa , he recommended two products to me and my 7 year old

> daughter. He believes 90% of the general population are deficient in trace

> minerals, and we can all benefit from detoxing (especially those of us with

> Lyme), which both of these supplements address:

> ConcenTrace:

>

http://www.vitacost.com/Trace-Minerals-Research-Low-Sodium-ConcenTrace-Trace-Min\

eral-DropsZNatural-

> http://znatural.com/index-html.htmlI've been thinking about supplementing

> with Lithium, which is in the ConcenTrace, and the ZNatural is a magnesium

> silica molecule detox compound. I was led to believe that they can help

> tremendously with fatigue/energy and brain fog issues. I started with only 5

> drops and am going up in 5 drop increments every 3-4 days, so I am not at

> the full dose yet, so it's too soon to be able to give an opinion as to

> effectiveness, but I will keep you posted. I'm planning to give it to my

> daughter once I've given it try for 2 weeks.

> I haven't done much research on Lithium yet, but I've heard from others

> with Lyme that they use it to help protect their brain from neurotoxins. It

> was listed as a supportive supplement (as lithium orotate) in a book that I

> checked out of my local library: http://www.lymebook.com/top10book (which

> also mentions its ability to help generate new grey matter in the brain).

> Here is a link I found with some general information about Lithium:

> http://tahomaclinicblog.com/lithium-the-misunderstood-mineral-part-1/

> Also, not sure where you are located, but I can give you the name of a Lyme

> Literate pediatric and adult neurologist in San , California if you

> are interested.

> Best of luck,

>

> >

> > From: lesliefarhangi@...

> > Date: Sat, 26 Feb 2011 12:30:54 -0500

> > Subject: Re: [ ] advice needed

> >

> > Thank you so much everyone, I am so glad I posted. I hesitated -- I can't

> > even speak about my son publicly these days without bursting into tears,

> > which is a bit embarrassing! :-)

> >

> > I do not know how reversible or not the damage is -- we haven't had a

> follow

> > up appt with the neurologist yet, plus he is running a TON of bloodwork

> > (which I agree with, to see if there's something autoimmune going on too

> > etc) and also doing a sleep study and more neuropsych testing. After all

> > the tests are in, we'll go back to our LLMD and get his take too.

> >

> > Those lesions might be the same thing -- the radiologist thought his was

> > either caused by a stroke, or inflammation, and also was not sure what

> the

> > effect was. The difference is that our neurologist believes it is

> > consequential. Treatment has *not* improved my son's cognitive function.

> >

> > Thank you SO much for telling me about the interactive metronome -- this

> is

> > EXACTLY what I'm hoping to learn. I am completely up for trying a bunch

> of

> > therapies like this over the rest of the school year and over the summer.

> > As it is, he isn't really able to cope with sixth grade.

> >

> > Again, thank you so much for the words of support. I feel like this is a

> > very dark time for us.

> >

> >

> >

> > On Sat, Feb 26, 2011 at 10:51 AM, Faces <faces@...> wrote:

> >

> > >

> > >

> > > What does your LLMD say about the lesion? I am just wondering if it

> > > really is permanent. My daughter had a SPECT scan that showed problems

> > > that our regular doctor described as the cortex dieing and felt it was

> > > nonreversable damage. She had several MRIs that showed small white

> > > spots, some kind of lesion? that they were not sure what caused it. The

> > > neurologist felt they were inconsequential. This is not what your

> doctor

> > > described, but in my daughters case treatment has vastly improved her

> > > cognitive function and her LLMD said that sometimes the SPECT scans do

> > > show improvement over time. (We have not had a repeat one done though.)

> > > I am just wondering if this is truly permanent damage or something that

> > > can come back? I really do not know, but if the neurologist is not

> > > really Lyme literate, I would want to get to one who is.

> > >

> > > So sorry that the Lyme was missed even when you mentioned a tick bite!!

> > > My daughter was bitten around age 2 or so and we never knew it. She had

> > > ring worm that would not go away and CFS type symptoms and tons of

> > > insect bites, but no known tick. She was not diagnosed for a dozen

> years.

> > >

> > > Good luck,

> > >

> > >

> > >

> > >

> > > On 2/26/2011 8:24 AM, Farhangi wrote:

> > > >

> > > > My 11 year old has had neurological complications from lyme. Our LLMD

> > > > referred us to a great neurologist, who is in the middle of doing a

> ton

> > > of

> > > > tests. However, an MRI shows a lesion in his frontal lobe that the

> > > > neurologist believes is caused by the lyme inflammation. This is

> > > upsetting

> > > > because the damage is permanent.

> > > >

> > > > In the midst of this I called my son's pediatrician (at first the

> > > > radiologist thought the lesion was an old stroke) and asked her about

> an

> > > > office visit I remembered from when my son was 2. I remembered him

> > > > dragging

> > > > his left leg, and so I asked her to go over her notes and see if

> there

> > > was

> > > > anything that would shed light on his current situation. She read

> them to

> > > > me over the phone. She said I told her that he had been bitten by a

> tick

> > > > two months earlier, and that he was definitely dragging his left leg

> and

> > > > didn't want to be touched on his left side. She did not do a lyme

> test.

> > > >

> > > > OK, so now for my questions:

> > > >

> > > > 1. it is unlikely, but does anyone have any experience with trying to

> > > > overcome such a brain injury? My only hope, I think, is some kind of

> > > > neural

> > > > feedback to try and build other pathways to replace the damaged ones

> > > > in his

> > > > brain. I don't know if this is even possible.

> > > >

> > > > 2. Seems like the pediatrician committed malpractice to me -- I live

> in a

> > > > highly lyme endemic area, why the !@#$% *wouldn't* she have just done

> > > > a lyme

> > > > test, thus preventing permanent brain damage? Comments? Of course we

> > > don't

> > > > know for sure if he had lyme then b/c no test was done. I am furious,

> and

> > > > one outcome I would want is education for the doctors here that when

> a

> > > > child

> > > > (or anyone) comes in with unusual symptoms -- and especially if they

> say

> > > > they've been bitten by a tick -- for god's sake, just run the test!

> > > > (Understanding it is not 100% accurate, but it is 100% more accurate

> than

> > > > doing nothing!!).

> > > >

> > > >

> > > >

> > > >