advice needed

[Guest guest]

My 11 year old has had neurological complications from lyme. Our LLMD

referred us to a great neurologist, who is in the middle of doing a ton of

tests. However, an MRI shows a lesion in his frontal lobe that the

neurologist believes is caused by the lyme inflammation. This is upsetting

because the damage is permanent.

In the midst of this I called my son's pediatrician (at first the

radiologist thought the lesion was an old stroke) and asked her about an

office visit I remembered from when my son was 2. I remembered him dragging

his left leg, and so I asked her to go over her notes and see if there was

anything that would shed light on his current situation. She read them to

me over the phone. She said I told her that he had been bitten by a tick

two months earlier, and that he was definitely dragging his left leg and

didn't want to be touched on his left side. She did not do a lyme test.

OK, so now for my questions:

1. it is unlikely, but does anyone have any experience with trying to

overcome such a brain injury? My only hope, I think, is some kind of neural

feedback to try and build other pathways to replace the damaged ones in his

brain. I don't know if this is even possible.

2. Seems like the pediatrician committed malpractice to me -- I live in a

highly lyme endemic area, why the !@#$% *wouldn't* she have just done a lyme

test, thus preventing permanent brain damage? Comments? Of course we don't

know for sure if he had lyme then b/c no test was done. I am furious, and

one outcome I would want is education for the doctors here that when a child

(or anyone) comes in with unusual symptoms -- and especially if they say

they've been bitten by a tick -- for god's sake, just run the test!

(Understanding it is not 100% accurate, but it is 100% more accurate than

doing nothing!!).