Re: Neurologic Lyme- no fun at all

[Guest guest]

Annie:

Oh, my! You are really earning your money as a mother! YOu have amazing

strength. I have no advice to help you maintain your calmness. I find myself

yelling at my son even when I know it is the Lyme talking. I just have to think

there is hope if she can get on IV rocephin. Does she have bartonella as a

coinfection? There is a really good article called Manifestations of

Neurological Lyme Disease. It helped me see the many ways that the brain,

behavior and personality are impacted. My son's personality changed over night

after a virus. For a year he had to have someone with him around the clock. We

never knew what he might attempt or when. I thought it would never end, but it

did.

Thinking of you,

Kari

[Guest guest]

Hi Kari,

I would really like to see that article you mentioned. Can I find it on the

web?

Annie,

I am so sorry you are going through that. My daughter was having episodes but

it wasn't too bad until she was put on Tindamax. Then it was horrible. I

didn't know how to handle it either but I knew it was the med because she had

never been like that before, I mean she was having anxiety, panic attacks and

some OCD stuff but soon after I began giving her the Tindamax she we would tell

me that she felt like she was going crazy and she acted like it.

I'm thinking about finding a psychiatrist or counselor - just someone who can

give me tools to use when she's having her panic attacks. Every morning my

daughter (10yo) asks me if we're going anywhere. If I say yes she begins pacing

the floor and her anxiety level rises the closer we have to go. I end up having

to drag her out of the house and sometimes she gets a little physical with me.

I almost find myself detaching myself from the situation and just being matter

of fact, " we have to do this - get in the car - you'll be fine " . Once we get to

where we're going and she sees that everything's ok, non threatening she settles

down. It's exhausting. Emotionally, I'm drained. That's when I'm typically

less patient. I also have lyme and bartonella so I have to somehow take care of

myself through this madness.

My daughter and I prayed for you and yours this morning because we know a small

bit of what you're going through.

hugs,

* ´¨) ¸.• ´¸.•* ´¨)¸. •*¨)

(¸.•´ (¸ ;. •´ Tricia

[Guest guest]

How often is your daughter on tindamax ?

From: Tricia Soderstrom <TriciaSod@...>

Subject: Re: [ ] Re: Neurologic Lyme- no fun at all

Date: Thursday, October 28, 2010, 12:39 PM

Hi Kari,

I would really like to see that article you mentioned.  Can I find it on the

web?

Annie,

I am so sorry you are going through that.  My daughter was having episodes but

it wasn't too bad until she was put on Tindamax.  Then it was horrible.  I

didn't know how to handle it either but I knew it was the med because she had

never been like that before, I mean she was having anxiety, panic attacks and

some OCD stuff but soon after I began giving her the Tindamax she we would tell

me that she felt like she was going crazy and she acted like it.

I'm thinking about finding a psychiatrist or counselor - just someone who can

give me tools to use when she's having her panic attacks.  Every morning my

daughter (10yo) asks me if we're going anywhere.  If I say yes she begins

pacing

the floor and her anxiety level rises the closer we have to go.  I end up

having

to drag her out of the house and sometimes she gets a little physical with me. 

I almost find myself detaching myself from the situation and just being matter

of fact, " we have to do this - get in the car - you'll be fine " .  Once we get

to

where we're going and she sees that everything's ok, non threatening she settles

down.  It's exhausting.  Emotionally, I'm drained.  That's when I'm typically

less patient.  I also have lyme and bartonella so I have to somehow take care

of

myself through this madness.

My daughter and I prayed for you and yours this morning because we know a small

bit of what you're going through.

hugs,

* ´¨)  ¸.•  ´¸.•* ´¨)¸. •*¨)

(¸.•´ (¸ ;. •´ Tricia   

[Guest guest]

She's off of it for now. First we started pulsing her one week on and one week

off with her other med. The dr. wanted me to give her 1 twice a day. I didn't

- I gave it to her 1 once a day. Then after a month I figured she did ok so I

gave it to as recommended and that caused a problem with vomiting and diarrhea

and behavior. The dr. took her off for a week and said just to do weekends

instead. When I gave it to her again it was just causing her to go crazy and

each weekend got worse. I didn't think it was the Tindamax but my daughter said

it was making her crazy. She refused to take it again. When we talked to the

dr. she said yeah take her off. So, now that she's been off for 3 weeks I can

see it was definitely the Tindamax.

I'm not sure what we'll do but for now she's not taking it.

* ´¨) ¸.• ´¸.•* ´¨)¸. •*¨)

(¸.•´ (¸ ;. •´ Tricia

________________________________

From: Tiffanie <tiffanies_towing@...>

Sent: Thu, October 28, 2010 2:52:58 PM

Subject: Re: [ ] Re: Neurologic Lyme- no fun at all

How often is your daughter on tindamax ?

[Guest guest]

Hmmm. s been on since July, two consecutive days during the week. I give

him a pill on Sat. and one on Sun. he seems to be doing ok on it. How old is she

?

From: Tricia Soderstrom <TriciaSod@...>

Subject: Re: [ ] Re: Neurologic Lyme- no fun at all

Date: Thursday, October 28, 2010, 5:19 PM

She's off of it for now.  First we started pulsing her one week on and one week

off with her other med.  The dr. wanted me to give her 1 twice a day.  I

didn't

- I gave it to her 1 once a day.  Then after a month I figured she did ok so I

gave it to as recommended and that caused a problem with vomiting and diarrhea

and behavior.  The dr. took her off for a week and said just to do weekends

instead.  When I gave it to her again it was just causing her to go crazy and

each weekend got worse.  I didn't think it was the Tindamax but my daughter

said

it was making her crazy.  She refused to take it again.  When we talked to the

dr. she said yeah take her off.  So, now that she's been off for 3 weeks I can

see it was definitely the Tindamax.

I'm not sure what we'll do but for now she's not taking it.

* ´¨)  ¸.•  ´¸.•* ´¨)¸. •*¨)

(¸.•´ (¸ ;. •´ Tricia   

________________________________

From: Tiffanie <tiffanies_towing@...>

Sent: Thu, October 28, 2010 2:52:58 PM

Subject: Re: [ ] Re: Neurologic Lyme- no fun at all

 

How often is your daughter on tindamax ?

[Guest guest]

I would love to see that article too!

>

> Hi Kari,

> I would really like to see that article you mentioned. Can I find it on the

> web?

>

> Annie,

> I am so sorry you are going through that. My daughter was having episodes but

> it wasn't too bad until she was put on Tindamax. Then it was horrible. I

> didn't know how to handle it either but I knew it was the med because she had

> never been like that before, I mean she was having anxiety, panic attacks and

> some OCD stuff but soon after I began giving her the Tindamax she we would

tell

> me that she felt like she was going crazy and she acted like it.

>

> I'm thinking about finding a psychiatrist or counselor - just someone who can

> give me tools to use when she's having her panic attacks. Every morning my

> daughter (10yo) asks me if we're going anywhere. If I say yes she begins

pacing

> the floor and her anxiety level rises the closer we have to go. I end up

having

> to drag her out of the house and sometimes she gets a little physical with me.

> I almost find myself detaching myself from the situation and just being matter

> of fact, " we have to do this - get in the car - you'll be fine " . Once we get

to

> where we're going and she sees that everything's ok, non threatening she

settles

> down. It's exhausting. Emotionally, I'm drained. That's when I'm typically

> less patient. I also have lyme and bartonella so I have to somehow take care

of

> myself through this madness.

>

> My daughter and I prayed for you and yours this morning because we know a

small

> bit of what you're going through.

>

>

> hugs,

>

> * ´¨) ¸.• ´¸.•* ´¨)¸. •*¨)

> (¸.•´ (¸ ;. •´ Tricia

>

>