Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 hello to all, i have read so many emails but never asked for opinions or any questions. Lord knows I have one now. I was dx with lyme about a year and a half after symptoms. Now in the past year i hv been on iv, doxy,zithro, rocefin and leviquin. I have not seen improvements. I am now with a walker, speech problems and weakness all over, so much that typing is hard. As anyone gotten so bad and yet had some sort of recovery? Reaching rock bottom Aida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi Aida I have had lyme for 30yrs, dx 5yrs ago. Got dx w/ MS 12 yrs ago. I have alot of neuro damage. After 5yrs of abx, still not normal and still suffering. If you would like to talk, email me privately. aida ricardo <aidaricardo@...> wrote: hello to all, i have read so many emails but never asked for opinions or any questions. Lord knows I have one now. I was dx with lyme about a year and a half after symptoms. Now in the past year i hv been on iv, doxy,zithro, rocefin and leviquin. I have not seen improvements. I am now with a walker, speech problems and weakness all over, so much that typing is hard. As anyone gotten so bad and yet had some sort of recovery? Reaching rock bottom Aida Questions and/or comments can be directed to the list owner at -Owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 aida hello yes I have gotten bad not a walker but seisures frontal lobe damage and bed ridden for two yrs. As I am in bad sprits right now from herxing I want you to know I went into remission 3 times and it does get better. we have get support from our fellow lymies just stick with the meds and make sure you have good drs. it does get better. God bless I'll pray for you and your family and stay positive you need to. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 Has she been tested for mycoplasma fermentens? It is a coinfection of Lyme that can cause kids to have many of the symptoms you have described, my daughter had it and was treated with the antibiotic Rifampin. [ ] Neurologic Lyme My daughter first got Lyme In utero. She was treated and got to live like a normal kid for over a year. Aparently she got bit this spring or summer and has a horrendous case of neurologic Lyme. She's having visual, auditory and sensory halucinations, some she knows are real some not. On her good days she she works through it and goes to school. When it's bad it's really bad. I'm a single Mom with maybe a couple hours relief a week and the longer it goes on the harder time I'm having remaining calm through it. The other night she thought I was a gargoyle and the medicine I was giving her was poison. She's already on antibiotics and herbs. We're working on getting her on IV Rocephin. She's being treated by a psychiatrist who specializes in Lyme so we have all the medical angles covered, it's how to deal with her symptoms at home I need help with. Has anyone else dealt with this? Do you have any suggestions? I'm doing the best I can but the helplessness I feel makes it worse. I know she needs me to be calm but when she's screaming and moaning in horror, talking to herself, walking around in circles throwing things on the ground at the imaginary stuff she sees, I have a really rough time staying calm. I'm working on getting a psych nurse to come help but I don't have a lot of hope for that. [The entire original message is not included] Quote Link to comment Share on other sites More sharing options...
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