Re: Another day, another setback. Or victory. Hard to tell.

[Guest guest]

I think will find this is a great solution. That's wonderful that your parents

are willing to help. I love the fact that my daughter can sleep in during her

herx week, she can get in a hot tub or lie down and watch a movie (usually

school related). Then on days she feels well she really works so hard. I have

a 10yo and 13yo with Lyme. My 13 yo is pretty independent except for Math so it

works out really well because I typically work one on one with my 10yo.

If you ever need any online resources or ideas let me know, I'd be happy to

help.

* ´¨) ¸.• ´¸.•* ´¨)¸. •*¨)

(¸.•´ (¸ ;. •´ Tricia

________________________________

From: Natasha Moiseyev <nmoiseyev@...>

Sent: Thu, October 28, 2010 12:46:34 PM

Subject: [ ] Another day, another setback. Or victory. Hard to

tell.

We just made the decision yesterday to pull Child #1 from school and homeschool

her for the rest of the year. If she starts to feel better (I hope, I hope), we

will still keep her out to give her time to gain stamina and strength, rather

than (as we have before) stuffing her back in school the minute she shows the

slightest spark of renewed energy.

She is happy with this. I feel relief and tranquility with this. We live with

my parents, by their kindness, and they have offered to help tutor her in some

subjects to fill in what the district tutor will not (given past experience). I

can't work to pay the med bills and then also work with my daughter, which

otherwise I would LOVE to do.

Her little sister is pretty sad and angry that she is this sick. But that

second child is well enough to go most days this year, thrives on social

interaction and a big environment, and is generally in need to school. We have

told her to do her best but not to worrk excessively about hte grades because

they don't reflect her true learning, and besides it's middle school so who

cares.

One day, one week at a time.

I cannot describe the relief from the constant mental and emotional turmoil I

felt at this situation for the past months, now that we have made this

resolution. If anything could help her get over her pain, it is taking away all

the unnecessary stress.

Anyway, I thank everyone for writing about their diverse circumstances to

catalyze my epiphany -- so many roads to our goals and dreams and we cannot

plan, only rejoice in the good days.

Natasha

[Guest guest]

I am so sorry you and your family are going through this.  We almost made the

decision to home school our son but were able to ease up some stuff from school

so it helped.  Yes, stress is incredibly difficult for this disease.  Try to

believe that things will get better.  I know a college student who missed most

of her jr, sr years of high school but is now a 4pt at Berkley!  Hang in there

and know that many of us understand.

Elaine

________________________________

From: Natasha Moiseyev <nmoiseyev@...>

Sent: Thu, October 28, 2010 9:46:34 AM

Subject: [ ] Another day, another setback. Or victory. Hard to

tell.

 

We just made the decision yesterday to pull Child #1 from school and homeschool

her for the rest of the year. If she starts to feel better (I hope, I hope), we

will still keep her out to give her time to gain stamina and strength, rather

than (as we have before) stuffing her back in school the minute she shows the

slightest spark of renewed energy.

She is happy with this. I feel relief and tranquility with this. We live with

my parents, by their kindness, and they have offered to help tutor her in some

subjects to fill in what the district tutor will not (given past experience). I

can't work to pay the med bills and then also work with my daughter, which

otherwise I would LOVE to do.

Her little sister is pretty sad and angry that she is this sick. But that

second child is well enough to go most days this year, thrives on social

interaction and a big environment, and is generally in need to school. We have

told her to do her best but not to worrk excessively about hte grades because

they don't reflect her true learning, and besides it's middle school so who

cares.

One day, one week at a time.

I cannot describe the relief from the constant mental and emotional turmoil I

felt at this situation for the past months, now that we have made this

resolution. If anything could help her get over her pain, it is taking away all

the unnecessary stress.

Anyway, I thank everyone for writing about their diverse circumstances to

catalyze my epiphany -- so many roads to our goals and dreams and we cannot

plan, only rejoice in the good days.

Natasha