Re: Hello, I am from from Vancouver,BC Canada and I am a support person

[Guest guest]

Hi , welcome to the group. I am not sure what light treatment is, are there

alternative therapies that you can try? I am very fortunate to live in a state

that has sun almost the entire year and I am still vitamin D deficient, I think

it is part of the disease. I am on Humira and vitamin B injections, I inject

Humira every other week and vitamin B once a month. I have not been able to

exercise at all due to exhaustion and pain, I hope that one day I will be able

to start a light workout program, my weight has become an issue for me and I do

watch what I eat with no weight loss luck. I hope you can get your own light

treatment for your home if you find it works than it is a very good idea. Living

in a cold, damp environment where the sun doesn't shine much does not help with

joint pain for sure. I hope you have a good day and find the help and

information you need.

Lori in AZ 

[Guest guest]

check book  healing psoriasis the natural alternative john pagano, d.c. make

sure it is latest edition.  although it is for ps. i feel that it might be

helpful.  i bought it for a member of my family who has psa.  i have rosacea,

osteo A, fibromyalgia  and some psoriasis, along with many other health

problems.  check into EFT, and use your computer search

asking  it questions  --such as ps or psa. and homeopathic medicine, psa and

food, etc.

you might come up with ideas to help.  i try to go natural if i can.  goat's

milk products may help with skin.  bought some cream and soap from grace's farm

store thru mail but they

are located in Bellingham area. re MS,  years ago i saw a book on ms by someone

named

Swank.  Check into this on search.  take care!

Bernice Freedman <bf7lf7hf7@...>

[Guest guest]

HIYA,

I wanted to write you to tell you that I also was afraid of some of the

treatments for the first 5 years I was diagnosed with this disease. However,

after long consideration, I finally did decide to start methotrexate and Humira

about 9 weeks ago. I wasn't sure, because I had tried Humira before and it did

nothing except make me feel weak and worse.

But, I went to a new doctor, and he said we had to use 20 mg of methotrexate a

week so that my over active immune system doesn't keep the Humira from working.

I knew the side effects would be hard with the methotrexate, especially the weak

dizzy and nauseating ones.

But, I promised myself to stick with it for 6 months.

Well, I am happy to report that after 9 weeks it is really working.

It is the first thing that has. Especially with my spine and hips, as well as

hands - and the rash.

It took alot of consideration to go on this, especially after having thyroid

cancer and an abnormal breast mammogram in the last 1 1/2 years. But, I was at

a point, where quality of life is so much more important to me - so I did it.

It is a personal decision for all, and if I lived in an area where the fungal

lung infections are happening, I would not have taken it.

But, I don't, and I am having pretty remarkable results.

Yes, I still have pain, take pain meds and Provigil -- but I function so much

better now. I am able to go into work part time, instead or working from home

100% like before, and I even did some light gardening yesterday! I am able to

walk a mile 2-3 times a week right now and my costochondritis has calmed down

alot.

I just wanted to post this for everyone - I am very hopeful, and if this is as

much function and benefit I get from the drugs right now, I feel like I can

handle it, which is very different than from before.

Thanks for listening!

[Guest guest]

HIYA,

I wanted to write you to tell you that I also was afraid of some of the

treatments for the first 5 years I was diagnosed with this disease. However,

after long consideration, I finally did decide to start methotrexate and Humira

about 9 weeks ago. I wasn't sure, because I had tried Humira before and it did

nothing except make me feel weak and worse.

But, I went to a new doctor, and he said we had to use 20 mg of methotrexate a

week so that my over active immune system doesn't keep the Humira from working.

I knew the side effects would be hard with the methotrexate, especially the weak

dizzy and nauseating ones.

But, I promised myself to stick with it for 6 months.

Well, I am happy to report that after 9 weeks it is really working.

It is the first thing that has. Especially with my spine and hips, as well as

hands - and the rash.

It took a lot of consideration to go on this, especially after having thyroid

cancer and an abnormal breast mammogram in the last 1 1/2 years. But, I was at

a point, where quality of life is so much more important to me - so I did it.

It is a personal decision for all, and if I lived in an area where the fungal

lung infections are happening, I would not have taken it.

But, I don't, and I am having pretty remarkable results.

Yes, I still have pain, take pain meds and Provigil -- but I function so much

better now. I am able to go into work part time, instead or working from home

100% like before, and I even did some light gardening yesterday! I am able to

walk a mile 2-3 times a week right now and my costochondritis has calmed down a

lot.

I just wanted to post this for everyone - I am very hopeful, and if this is as

much function and benefit I get from the drugs right now, I feel like I can

handle it, which is very different than from before.

Thanks for listening!

THANKS FOR TELLING this to us in to me, well now for me i really do not know

where to begin, Can not take any of the treatments i have tried taking every

thing that is out there. I AM PRONE to infections very bad i have Diabetes not

to mention all the other things but hope you the very best. .