Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Nikki, my story is very close to yours. You said your daughters were diagnosed when they were 11 but then at 15 your one daughter took a severe turn for the worse. Having 2 daughters also with congenital Lyme, not diagnosed till 5 and 8, on antibiotics for 3 years but now off because they seem to be better...your daughter getting so ill again makes me wonder if we should still be treating them?? What treatment were you using for your girls? Did the other daughter get better? Im sorry for all you have been through, I will be praying for you and your family. Barbara Re: [ ] Naturopath le she's treated my two daughters, my husband & myself. I got bitten by a tick in Japan in 1987 & got Lyme Disease, gave it to my husband (that was fun to explain to my grandmother about how he got it from me), and then I gave it to my two girls before they were born. They are 15 now (they are twins). One has mild LD, one has it severely (which makes them very interesting research material apparently). We are from Australia & I didn't know I had LD until the girls were 11 (the Dr's thought I had ALS). The daughter with severe LD has been sick all her life but the Dr's could never work out why - in 2009 she rapidly deteriorated over 6 months and is now in a wheelchair and can't use her arms properly either, and often has trouble swallowing, and is in constant pain. Dr Nicola was able to diagnose the girls & my husband (it is hard to get your blood to the IgenX lab from Australia, so we waited until we got to the US, knowing it would be easier). Having said all that Dr Nicola has helped myself, my other daughter & my husband a lot, and my sicker daughter is starting to turn around (we are no longer worried that she is going to die). It will be a long slow recovery for her. We like Dr Nicola - she was the first Dr/Naturopath that I went to who knew more about LD than I did. She is very good with both my girls, who don't like the other Dr's who are treating them. We found that because we don't have insurance she is actually much much cheaper than a LLMD who we also see (we are only in the US for 9 months, so we thought that we'd get as many treatment options as we could). I also like the fact that she can continue to treat us when we get back to Australia via telephone consultations (but that is probably something you don't have to worry about). I'm pretty sure that Dr Nicola works with kids, because she also specialises in Aspergers/Autism in kids, as well as Lyme Disease. Hope this helps. Best of luck with your son. Nikki > > > > > > > Hi > > > > we've used Dr Nicola McFazden (a medically trained naturopath, so she can > > prescribe abx). We've found her very very good. She uses abx, herbs, > > supplements, drops etc. She has an office in San Diego and Connecticut > > (she's just setting up the office there, I think she'll be doing consults > > there very soon, but she may have already started) & she does phone consults > > (she also does a visiting clinic in Australia once or twice a year). She has > > treated all my family for Lyme & we are really happy with her, she's give us > > some amazing results. > > > > She has a chapter in the book " Insights Into Lyme Disease Treatment: 13 > > Lyme-Literate Health Care Practitioners Share Their Healing Strategies " > > (which is a really good resource by the way - > > http://www.amazon.com/Insights-Into-Lyme-Disease-Treatment/dp/0982513801 > > > > She goes to all the conferences and is very up to date with the latest lyme > > disease research (which I like). > > > > Her website is here - http://www.drnicola.com/ > > > > She treats every person differently, doesn't use a one protocol fixes all > > (all 4 of us in our house were treated differently, with good success). > > > > Hope this helps > > > > Cheers > > > > Nikki > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Barbara we have an unusual story in a way, because we are from Australia - here is the timeline & what treatment has worked/not worked. 1987 - I was living in Japan as an exchange student and was bitten by a tick at the Nara Temple in Japan, whilst patting a deer (if only I knew then what I knew now, I'd give those deer a VERY wide berth). I had the classic rash, and remember the tick bite (my friend just picked off the tick with her fingers). I started to get sick within a month, and experienced chronic fatigue like symptoms in the summer that year (and every year since). I returned to Australia in 1988, much sicker than when I went to Japan in 1987 (I was there for a year). 1994 - my twin girls were born after a very troubled pregnancy, where I spent 3 months in hospital before they were born. The Dr's couldn't work out what was wrong with me, but I had a number of problems with my lungs, my brain ( " autoimmune encephalitis " ), and my uterus (I had an " irritable uterus " and went into labor at 30 weeks - they kept me in hospital and gave me ventolin every four hours for 6 weeks until my girls were born- every 3.5 hours the ventolin would wear off and the contractions would start up again. I breast fed both my girls until they were 7 months old, until I got so sick I couldn't continue. 2000 - between 1994 & 2000, I had been having horrible digestive symptoms (diagnosed as all of the following at one time or another - irritable bowel syndrome, inflamatory bowel disease, proctitis, chrons disease). By 2000 it was chronic & I was really starting to struggle (also I'd just started a super stressful job, and I think that tipped me over the edge). I was very tired, but struggled on - I was worse in the hot weather. By 2001 I was retired by the church I worked for (as a minister), as I was having trouble standing up and walking. By 2002 I was walking with a stick and by 2003 I was in an electric wheelchair. My daughters had very different health when they were babies & children. H had a lot of trouble breathing when she was born & both girls ended up in the intensive care nursery when they were born (but only for 1 week). J was healthy all through her childhood, but H was constantly sick with ear infections, stomach problems, diagnosed as having a hearing impairment, ADHD, Dyslexia & had seizures from when she was about 4 until she was 13. Interestingly the Dr's could never find a reason for her seizures, and the medication didn't work to control them. Interestingly when her seizures stopped, her chronic fatigue issues started. In 2009 we moved from Australia to the US (via 2 months in Europe). This was very stressful for H, as she was leaving her boyfriend and all her close friends behind (we were always only going to be away for a year, but that feels like an eternity for a 15 y.o.). She got very sick when we got to europe, but it wasn't until we got to the US that she lost the use of her arms & legs & had trouble swallowing. H went through all my symptoms (in the same order), but instead of over a decade, experienced them in 6 months, so it was a very frightening time for us. What has worked (for all of us).... - in 2003, when I was really at my sickest, I started having Bowen Therapy (see here about it http://en.wikipedia.org/wiki/Bowen_Technique ). This made a big difference, and I think kept me alive long enough to get a diagnosis and proper treatment for Lyme Disease. I think that the Bowen therapy helped to strengthen my immune system, and get rid of toxic chemicals (I know that there has been some research that says that Bowen therapy can be very beneficial for Lyme Disease sufferers). My daughters were having regular Bowen Therapy at the time as well, & their health was good (although when we look back on it now we know that they had Lyme Disease at that stage as well). - in 2006 I was diagnosed with Lyme Disease, but there was no specialist in Australia to treat me (Lyme disesase is much rarer in Australia, although becoming more common). My local Dr put me on the Bursascano guidelines (5 months IV, then oral abx), and that worked really well (until I got a c.diff infection because I hadn't been taking probiotics - I know how vital it is now). I had a huge surge in good health. When I look back on it now though I realise that it didn't treat the co-infections (that I didn't know existed). I think the Burascanno guidelines have now changed to take that into account, but I'm not sure. - in 2008/9 I was finding that I was no longer able to drive, and I was continuing to have to use my electric wheelchair. I came across Dr Nicola McFadzean through the Australian Lyme Disease email list. She diagnosed me with co-infections, & put me on a combination of abx, drops & supplements. By September I was not needing my wheelchair very much. At that point Dr Nicola & I decided that I would swap over to Dr H in Hyde Park, NY, because it was my only chance to have a " big gun " treat us - I think that this was Dr Nicola underselling herself a lot, and very gracious of her to hand me over to Dr H and be focusing on what was best for me, rather than her bank balance. We will be returning to her treatment when we go back to Australia )via phone. She was proposing the same treatment as Dr H when he took over, so I don't see a huge difference between the two, except that my girls much prefer Dr Nicola & she us MUCH cheaper (especially if you don't have insurance). BTW, by December I wasn't using my wheelchair at all, and by February I was starting to not use my walking stick all the time. - Oct 2009 - Dr H (Hyde Park NY) was very concerned when he heard that I'd had active Lyme when I was pregnant, & insisted that we bring my 2 girls to see him (we had hoped he would ask to see H at least - Dr Nicola had started to treat her, but had only just started when Dr H took over). He eventually diagnosed them as having LD (as well as my husband, who also got it from me). My daughter H has stopped her deterioration, and has finally started to turn around, although she is still in her wheelchair, some of her symptoms are much better, which is a huge relief (we are no longer frightened she will die). My other daughter J did a short round of abx, then went on to the Limited Cowden protocol, and this has helped her energy levels and general health a lot - she only had mild LD - manifesting itself in mild chronic fatigue). So in summary, what has worked for all of us - Bowen Therapy (and some acupuncture when I couldn't get Bowen Therapy) - long term abx (both IV & oral) - PROBIOTICS - I can't stress enough how vital they are, as you can die from a c. diff infection, which is a side effect of long term abx - seeing Dr Nicola & taking her herbs, drops & supplements (as well as her abx) as well as seeing Dr H - taking Mepron - truly this is liquid gold, but it costs $1000 a bottle (although Glaxo Kline has a very generous assistance program (called Bridges to Access), which is how I get it). - getting counselling - helps with the stress, and working through things, which in turn helps with the healing - having as low a toxic chemical life as I can (we either eat organic or wash fruit & vege thoroughly), we don't use regular cleaners in the house (we use vinegar, bi-carb soda & microfiber cloths, which work really well), no air freshners, scented shampoos, fragrance etc. - lots of rest & pacing myself (a good way of explaining pacing yourself to kids is through spoon theory - you can see it here http://www.butyoudontlooksick.com/articles/personal-essays/the-spoon-theory-writ\ ten-by-christine-miserandino/ If you can't get the link to work (I couldn't) google spoon theory & you'll come across it. I'm very sorry that this is so long. I hope it helps to answer some of your questions. Best of luck with you & your family's Lyme Disease journey. You will be in my prayers too. Cheers Nikki > > Nikki, my story is very close to yours. You said your daughters were diagnosed when they were 11 but then at 15 your one daughter took a severe turn for the worse. Having 2 daughters also with congenital Lyme, not diagnosed till 5 and 8, on antibiotics for 3 years but now off because they seem to be better...your daughter getting so ill again makes me wonder if we should still be treating them?? What treatment were you using for your girls? Did the other daughter get better? Im sorry for all you have been through, I will be praying for you and your family. Barbara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Did your children have IV also? ________________________________ From: Nikki <ncoleman@...> Sent: Tue, February 16, 2010 4:23:41 PM Subject: Re: [ ] question for Nikki  Barbara we have an unusual story in a way, because we are from Australia - here is the timeline & what treatment has worked/not worked. 1987 - I was living in Japan as an exchange student and was bitten by a tick at the Nara Temple in Japan, whilst patting a deer (if only I knew then what I knew now, I'd give those deer a VERY wide berth). I had the classic rash, and remember the tick bite (my friend just picked off the tick with her fingers). I started to get sick within a month, and experienced chronic fatigue like symptoms in the summer that year (and every year since). I returned to Australia in 1988, much sicker than when I went to Japan in 1987 (I was there for a year). 1994 - my twin girls were born after a very troubled pregnancy, where I spent 3 months in hospital before they were born. The Dr's couldn't work out what was wrong with me, but I had a number of problems with my lungs, my brain ( " autoimmune encephalitis " ), and my uterus (I had an " irritable uterus " and went into labor at 30 weeks - they kept me in hospital and gave me ventolin every four hours for 6 weeks until my girls were born- every 3.5 hours the ventolin would wear off and the contractions would start up again. I breast fed both my girls until they were 7 months old, until I got so sick I couldn't continue. 2000 - between 1994 & 2000, I had been having horrible digestive symptoms (diagnosed as all of the following at one time or another - irritable bowel syndrome, inflamatory bowel disease, proctitis, chrons disease). By 2000 it was chronic & I was really starting to struggle (also I'd just started a super stressful job, and I think that tipped me over the edge). I was very tired, but struggled on - I was worse in the hot weather. By 2001 I was retired by the church I worked for (as a minister), as I was having trouble standing up and walking. By 2002 I was walking with a stick and by 2003 I was in an electric wheelchair. My daughters had very different health when they were babies & children. H had a lot of trouble breathing when she was born & both girls ended up in the intensive care nursery when they were born (but only for 1 week). J was healthy all through her childhood, but H was constantly sick with ear infections, stomach problems, diagnosed as having a hearing impairment, ADHD, Dyslexia & had seizures from when she was about 4 until she was 13. Interestingly the Dr's could never find a reason for her seizures, and the medication didn't work to control them. Interestingly when her seizures stopped, her chronic fatigue issues started. In 2009 we moved from Australia to the US (via 2 months in Europe). This was very stressful for H, as she was leaving her boyfriend and all her close friends behind (we were always only going to be away for a year, but that feels like an eternity for a 15 y.o.). She got very sick when we got to europe, but it wasn't until we got to the US that she lost the use of her arms & legs & had trouble swallowing. H went through all my symptoms (in the same order), but instead of over a decade, experienced them in 6 months, so it was a very frightening time for us. What has worked (for all of us).... - in 2003, when I was really at my sickest, I started having Bowen Therapy (see here about it http://en.wikipedia.org/wiki/Bowen_Technique ). This made a big difference, and I think kept me alive long enough to get a diagnosis and proper treatment for Lyme Disease. I think that the Bowen therapy helped to strengthen my immune system, and get rid of toxic chemicals (I know that there has been some research that says that Bowen therapy can be very beneficial for Lyme Disease sufferers). My daughters were having regular Bowen Therapy at the time as well, & their health was good (although when we look back on it now we know that they had Lyme Disease at that stage as well). - in 2006 I was diagnosed with Lyme Disease, but there was no specialist in Australia to treat me (Lyme disesase is much rarer in Australia, although becoming more common). My local Dr put me on the Bursascano guidelines (5 months IV, then oral abx), and that worked really well (until I got a c.diff infection because I hadn't been taking probiotics - I know how vital it is now). I had a huge surge in good health. When I look back on it now though I realise that it didn't treat the co-infections (that I didn't know existed). I think the Burascanno guidelines have now changed to take that into account, but I'm not sure. - in 2008/9 I was finding that I was no longer able to drive, and I was continuing to have to use my electric wheelchair. I came across Dr Nicola McFadzean through the Australian Lyme Disease email list. She diagnosed me with co-infections, & put me on a combination of abx, drops & supplements. By September I was not needing my wheelchair very much. At that point Dr Nicola & I decided that I would swap over to Dr H in Hyde Park, NY, because it was my only chance to have a " big gun " treat us - I think that this was Dr Nicola underselling herself a lot, and very gracious of her to hand me over to Dr H and be focusing on what was best for me, rather than her bank balance. We will be returning to her treatment when we go back to Australia )via phone. She was proposing the same treatment as Dr H when he took over, so I don't see a huge difference between the two, except that my girls much prefer Dr Nicola & she us MUCH cheaper (especially if you don't have insurance). BTW, by December I wasn't using my wheelchair at all, and by February I was starting to not use my walking stick all the time. - Oct 2009 - Dr H (Hyde Park NY) was very concerned when he heard that I'd had active Lyme when I was pregnant, & insisted that we bring my 2 girls to see him (we had hoped he would ask to see H at least - Dr Nicola had started to treat her, but had only just started when Dr H took over). He eventually diagnosed them as having LD (as well as my husband, who also got it from me). My daughter H has stopped her deterioration, and has finally started to turn around, although she is still in her wheelchair, some of her symptoms are much better, which is a huge relief (we are no longer frightened she will die). My other daughter J did a short round of abx, then went on to the Limited Cowden protocol, and this has helped her energy levels and general health a lot - she only had mild LD - manifesting itself in mild chronic fatigue). So in summary, what has worked for all of us - Bowen Therapy (and some acupuncture when I couldn't get Bowen Therapy) - long term abx (both IV & oral) - PROBIOTICS - I can't stress enough how vital they are, as you can die from a c. diff infection, which is a side effect of long term abx - seeing Dr Nicola & taking her herbs, drops & supplements (as well as her abx) as well as seeing Dr H - taking Mepron - truly this is liquid gold, but it costs $1000 a bottle (although Glaxo Kline has a very generous assistance program (called Bridges to Access), which is how I get it). - getting counselling - helps with the stress, and working through things, which in turn helps with the healing - having as low a toxic chemical life as I can (we either eat organic or wash fruit & vege thoroughly), we don't use regular cleaners in the house (we use vinegar, bi-carb soda & microfiber cloths, which work really well), no air freshners, scented shampoos, fragrance etc. - lots of rest & pacing myself (a good way of explaining pacing yourself to kids is through spoon theory - you can see it here http://www.butyoudo ntlooksick. com/articles/ personal- essays/the- spoon-theory- written-by- christine- miserandino/ If you can't get the link to work (I couldn't) google spoon theory & you'll come across it. I'm very sorry that this is so long. I hope it helps to answer some of your questions. Best of luck with you & your family's Lyme Disease journey. You will be in my prayers too. Cheers Nikki > > Nikki, my story is very close to yours. You said your daughters were diagnosed when they were 11 but then at 15 your one daughter took a severe turn for the worse. Having 2 daughters also with congenital Lyme, not diagnosed till 5 and 8, on antibiotics for 3 years but now off because they seem to be better...your daughter getting so ill again makes me wonder if we should still be treating them?? What treatment were you using for your girls? Did the other daughter get better? Im sorry for all you have been through, I will be praying for you and your family. Barbara > Reply to sender | Reply to group Messages in this topic (2) Recent Activity: * New Members 2 Visit Your Group Start a New Topic Lyme Disease News continually updated from thousands of sources around the net: http://www.topix.net/health/lyme-disease MedWorm: The latest items on: Lyme Disease http://tinyurl.com/23dgy8 Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Thank you Nikki for all your info and your story! I'm so glad to hear you all are improving with treatment. When I get a chance I will explain my story too but I just wanted to thank you for taking the time to answer my questions. Both my kids were treated by Dr. Ray of New Haven, CT, are you aware of him? If you are on the East coast he is a pediatric Lyme specialist who is the BEST. I would highly recommend him for your girls. If you need more info about him please let me know. Thanks again, Barbara From: Nikki <ncoleman@...> Subject: Re: [ ] question for Nikki Date: Tuesday, February 16, 2010, 1:23 PM  Barbara we have an unusual story in a way, because we are from Australia - here is the timeline & what treatment has worked/not worked. 1987 - I was living in Japan as an exchange student and was bitten by a tick at the Nara Temple in Japan, whilst patting a deer (if only I knew then what I knew now, I'd give those deer a VERY wide berth). I had the classic rash, and remember the tick bite (my friend just picked off the tick with her fingers). I started to get sick within a month, and experienced chronic fatigue like symptoms in the summer that year (and every year since). I returned to Australia in 1988, much sicker than when I went to Japan in 1987 (I was there for a year). 1994 - my twin girls were born after a very troubled pregnancy, where I spent 3 months in hospital before they were born. The Dr's couldn't work out what was wrong with me, but I had a number of problems with my lungs, my brain ( " autoimmune encephalitis " ), and my uterus (I had an " irritable uterus " and went into labor at 30 weeks - they kept me in hospital and gave me ventolin every four hours for 6 weeks until my girls were born- every 3.5 hours the ventolin would wear off and the contractions would start up again. I breast fed both my girls until they were 7 months old, until I got so sick I couldn't continue. 2000 - between 1994 & 2000, I had been having horrible digestive symptoms (diagnosed as all of the following at one time or another - irritable bowel syndrome, inflamatory bowel disease, proctitis, chrons disease). By 2000 it was chronic & I was really starting to struggle (also I'd just started a super stressful job, and I think that tipped me over the edge). I was very tired, but struggled on - I was worse in the hot weather. By 2001 I was retired by the church I worked for (as a minister), as I was having trouble standing up and walking. By 2002 I was walking with a stick and by 2003 I was in an electric wheelchair. My daughters had very different health when they were babies & children. H had a lot of trouble breathing when she was born & both girls ended up in the intensive care nursery when they were born (but only for 1 week). J was healthy all through her childhood, but H was constantly sick with ear infections, stomach problems, diagnosed as having a hearing impairment, ADHD, Dyslexia & had seizures from when she was about 4 until she was 13. Interestingly the Dr's could never find a reason for her seizures, and the medication didn't work to control them. Interestingly when her seizures stopped, her chronic fatigue issues started. In 2009 we moved from Australia to the US (via 2 months in Europe). This was very stressful for H, as she was leaving her boyfriend and all her close friends behind (we were always only going to be away for a year, but that feels like an eternity for a 15 y.o.). She got very sick when we got to europe, but it wasn't until we got to the US that she lost the use of her arms & legs & had trouble swallowing. H went through all my symptoms (in the same order), but instead of over a decade, experienced them in 6 months, so it was a very frightening time for us. What has worked (for all of us).... - in 2003, when I was really at my sickest, I started having Bowen Therapy (see here about it http://en.wikipedia .org/wiki/ Bowen_Technique ). This made a big difference, and I think kept me alive long enough to get a diagnosis and proper treatment for Lyme Disease. I think that the Bowen therapy helped to strengthen my immune system, and get rid of toxic chemicals (I know that there has been some research that says that Bowen therapy can be very beneficial for Lyme Disease sufferers). My daughters were having regular Bowen Therapy at the time as well, & their health was good (although when we look back on it now we know that they had Lyme Disease at that stage as well). - in 2006 I was diagnosed with Lyme Disease, but there was no specialist in Australia to treat me (Lyme disesase is much rarer in Australia, although becoming more common). My local Dr put me on the Bursascano guidelines (5 months IV, then oral abx), and that worked really well (until I got a c.diff infection because I hadn't been taking probiotics - I know how vital it is now). I had a huge surge in good health. When I look back on it now though I realise that it didn't treat the co-infections (that I didn't know existed). I think the Burascanno guidelines have now changed to take that into account, but I'm not sure. - in 2008/9 I was finding that I was no longer able to drive, and I was continuing to have to use my electric wheelchair. I came across Dr Nicola McFadzean through the Australian Lyme Disease email list. She diagnosed me with co-infections, & put me on a combination of abx, drops & supplements. By September I was not needing my wheelchair very much. At that point Dr Nicola & I decided that I would swap over to Dr H in Hyde Park, NY, because it was my only chance to have a " big gun " treat us - I think that this was Dr Nicola underselling herself a lot, and very gracious of her to hand me over to Dr H and be focusing on what was best for me, rather than her bank balance. We will be returning to her treatment when we go back to Australia )via phone. She was proposing the same treatment as Dr H when he took over, so I don't see a huge difference between the two, except that my girls much prefer Dr Nicola & she us MUCH cheaper (especially if you don't have insurance). BTW, by December I wasn't using my wheelchair at all, and by February I was starting to not use my walking stick all the time. - Oct 2009 - Dr H (Hyde Park NY) was very concerned when he heard that I'd had active Lyme when I was pregnant, & insisted that we bring my 2 girls to see him (we had hoped he would ask to see H at least - Dr Nicola had started to treat her, but had only just started when Dr H took over). He eventually diagnosed them as having LD (as well as my husband, who also got it from me). My daughter H has stopped her deterioration, and has finally started to turn around, although she is still in her wheelchair, some of her symptoms are much better, which is a huge relief (we are no longer frightened she will die). My other daughter J did a short round of abx, then went on to the Limited Cowden protocol, and this has helped her energy levels and general health a lot - she only had mild LD - manifesting itself in mild chronic fatigue). So in summary, what has worked for all of us - Bowen Therapy (and some acupuncture when I couldn't get Bowen Therapy) - long term abx (both IV & oral) - PROBIOTICS - I can't stress enough how vital they are, as you can die from a c. diff infection, which is a side effect of long term abx - seeing Dr Nicola & taking her herbs, drops & supplements (as well as her abx) as well as seeing Dr H - taking Mepron - truly this is liquid gold, but it costs $1000 a bottle (although Glaxo Kline has a very generous assistance program (called Bridges to Access), which is how I get it). - getting counselling - helps with the stress, and working through things, which in turn helps with the healing - having as low a toxic chemical life as I can (we either eat organic or wash fruit & vege thoroughly), we don't use regular cleaners in the house (we use vinegar, bi-carb soda & microfiber cloths, which work really well), no air freshners, scented shampoos, fragrance etc. - lots of rest & pacing myself (a good way of explaining pacing yourself to kids is through spoon theory - you can see it here http://www.butyoudo ntlooksick. com/articles/ personal- essays/the- spoon-theory- written-by- christine- miserandino/ If you can't get the link to work (I couldn't) google spoon theory & you'll come across it. I'm very sorry that this is so long. I hope it helps to answer some of your questions. Best of luck with you & your family's Lyme Disease journey. You will be in my prayers too. Cheers Nikki > > Nikki, my story is very close to yours. You said your daughters were diagnosed when they were 11 but then at 15 your one daughter took a severe turn for the worse. Having 2 daughters also with congenital Lyme, not diagnosed till 5 and 8, on antibiotics for 3 years but now off because they seem to be better...your daughter getting so ill again makes me wonder if we should still be treating them?? What treatment were you using for your girls? Did the other daughter get better? Im sorry for all you have been through, I will be praying for you and your family. Barbara > Quote Link to comment Share on other sites More sharing options...
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