5 year old with motor tics - anyone else? advice?

[Guest guest]

Hi all,

This is my first post. My 5 year old son was just diagnosed with Lyme 2 weeks

ago. His primary issue is neurological. He developed a motor tic (mouth

stretching) approximately 6 months after the tick bites and has had several

others since then. Obviously, it has taken a long time to 'connect the dots' to

Lyme. I had never heard of Lyme causing motor and vocal tics. I know, even

with Lyme, this is a more unusual presentation. Does anyone else's child have

motor/vocal tics due to Lyme? If so, any suggestions for treatment?

We have been to see an LLMD and he put my son on oral amoxicillin. I did

mention to the doc that we had seen an improvement in my son's motor tics toward

the end of abx treatment for other illnesses (strep, URI) last fall, so that

might be why. However, my son has been on the amox. for a little over 2 weeks

now and there is NO improvement in his motor tics this time. After the last

round of abx in December (for URI... 10 day course), his motor tics came back

worse than ever before and I wonder if it's because the borrelia were pissed at

being attacked and came back even stronger afterward.

I've read that when there is neuro involvement due to Lyme, IV antibiotics are

usually used. I'm a little leery of IV because of the risks, but I wonder if we

don't see improvement and need to go to IV, are we making it worse by trying

orals first?? I guess I just don't know if orals can ever be as effective as

IV. Does it just take longer, or is there no way orals can ever penetrate as

well?

Any advice would be appreciated!