Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 Welcome to both and Lesley! I'm Lizz and live in Livonia NY, about 30 miles south of Rochester. My kids are all grown, my husband and I teach at the local school (3rd grade for me and technology for him) and I have a shop in Geneseo to sell my " stuff " . You'll love this list. Feel free to discuss anything.....we do! Lizz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 In a message dated 4/7/02 9:20:27 AM Pacific Daylight Time, writes: i am a new mwmber to this suppport group but have been on prednisone lots os times and my doctor tape me down very slowly. I usually have to go to 5mg every other day for a week or two before i can stop because your pituitary gland needs time to restart.. Of coure it depends on how long you have been on it and what your dr. recommends. Hello, . Welcome to the group. Have you considered staying on a maintenance dosage of Prednisone, as you have had to restart it many times? Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2005 Report Share Posted April 25, 2005 _http://www.kombu.de/suche2.htm_ (http://www.kombu.de/suche2.htm) Hi , Welcome! Please try the page above, you will find maybe some people willing to give you a baby with the starter. Scroll down the page until you get to the USA, than you will be able to choose the closest person to the place you live. Good luck, ILeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2005 Report Share Posted April 25, 2005 You don't always have to buy it. On the Kombucha Exchange (the page I gave you) you may email people and most of them are willing to give away their babies Kombucha. It is much easier to get them this way, you don't have to deal with shipping, wich is not always good for the culture. This is how I got my first one, from a nice lady in my area. God Bless! Ileana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2005 Report Share Posted April 25, 2005 > > _http://www.kombu.de/suche2.htm_ (http://www.kombu.de/suche2.htm) > > Hi , > > Welcome! > > Please try the page above, you will find maybe some people willing to give > you a baby with the starter. Scroll down the page until you get to the USA, > than you will be able to choose the closest person to the place you live. > > Good luck, > ILeana Thanks ILeana! ) I emailed someone to see if they would send me one. We'll see what happens. If not, then I guess I can always buy one from one of those websites? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 : I'm glad you introduced yourself. When I hear stories so similar to mine, it helps to confirm we are on the right road in treatment. I wasn't crazy afterall. I'm sorry you had to go through this with your boys. Do they have congenital Lyme? My boys are 15 and 17 with congenital Lyme. One really sick, one not. I lived in Rocky Mount, NC for 3 years and it was there that I started getting so sick. We moved to get away fromt he pine pollen, but it was actually the Lyme in me coming out. Not one doctor brought up Lyme. What state is ready for Lyme and sickness brought on by a tick bite? Frustrating! Better days ahead, Kari > > From: Natasha Moiseyev <nmoiseyev@...> > Subject: Re: [ ] Re:: difficulty breathing > > Date: Monday, October 25, 2010, 10:40 AM > > I keep telling my daughter that. And she IS getting better, but with rampant > symptoms for 5 years, she is now 15 months into treatment and definitely better > (no longer spends the days and nights alone in her dark room in bed moaning) she > > > wants to be better NOW. Her little sister, also congenital, is bouncing back > more quickly but this morning also woke up in pain. > > I wake up in the night with my heart racing, worrying about hem, what they have > due for school, how to push it through, how to make money for living. > > I believe that the Lyme we have encountered is actually genetically engineered > -- probably on Plum Island or the like. Whoever created it should rot in hell. > > Natasha > > ________________________________ > From: Pavone <pavone1@...> > > Sent: Mon, October 25, 2010 7:14:27 AM > Subject: Re: [ ] Re:: difficulty breathing > >  > Natasha, > It was disappointing that they didn't even mention the " first " vaccine that > caused such pain and suffering for so many. Still there is hope for a better > future for all of us. The more progress gained through research the better. > > My heart goes out to you and your girls. Watching your child suffer is > torture... I can't imagine how difficult it must be to deal with it all when you > > > yourself are sick. I'm so sorry your family is going through all of this. > > I have two sick also, my oldest and first to be treated is 7 months in treatment > > > now and doing amazingly well. He was unable to pick his head up off a pillow > last spring and now he is back in school. My daughter has only just begun and I > know that it gets worse before it gets better. I'm just hanging in there right > now as I watch her spiral downward, its scary, I keep looking to my sons > progress for encouragement and hope for her. My first trip to a Lyme Ped. I meet > > > a woman who was there for a follow up with her son and she said " they do get > better " and i hung onto that for a long time last spring and now I can say that > to you first hand, " they do get better " . Hang in there! > > Quote Link to comment Share on other sites More sharing options...
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