Guest guest Posted March 2, 2010 Report Share Posted March 2, 2010 Has anyone's kids been diagnosed with Lupus??? I would like to know your story if they have been.......has treatment for lupus helped at all? thanks - Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2010 Report Share Posted March 3, 2010 We haven't been through the Lupus dx, however there are numerous lymies that received a dx of lupus that was later changed to lyme (lupus was a mis-dx) Charlotte iamwhimsy@... http://whimsy.t35.com Re: [ ] Lupus?? Has anyone's kids been diagnosed with Lupus??? I would like to know your story if they have been.......has treatment for lupus helped at all? thanks - Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2010 Report Share Posted March 3, 2010 Dear Diane we had a Dx of Lupus, which turned out to be a dangerous misdiagnosis, as Lyme turned out to be the true dx (which responded to treatment, unlike the lupus treatment which initially made us feel great, but then almost killed us). Lupus is a common misdiagnosis in Lyme Disease. It is essential that if you or your child has Lyme Disease, that you DO NOT take any steriods, which is the standard treatment for Lupus - this is because it depresses the immune system (in Lupus in the immune system is overactive and starts attacking your own body), which means that the Lyme bacteria & co-infections can multiply and have a field day, thus making the Lyme Disease much worse - it can have fatal implications in the long run (although steriods in the short term will make you feel like you have more energy, it will make you much much sicker in the long term if you have Lyme Disease). Also, one other thing - statistically Lupus in children is very rare (it is more common in women than men, and in women of " child bearing age " ), but Lyme Disease in children is much more common (because they are outside more than adults and have a higher exposure to the ticks). I guess based on that I would be very sceptical of a lupus diagnosis for a child (even if they have a positive blood test), and would ask for a Lyme Disease specialist (not an infectious diseases specialist) to give a second opinion. Good luck with your healing journey, whether it is from Lyme Disease or Lupus. Cheers Nikki Re: Lupus?? < /message/2722;_ylc=X3oDMTJydmxsN2\ RtBF9TAzk3MzU5NzE1BGdycElkAzE0MzEyMjEwBGdycHNwSWQDMTcwNTEwNjAxMgRtc2dJZAMyNzIyBH\ NlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzEyNjc2MTQ4MjA-> Posted by: " Diane Biel " dkbmama@... <mailto:dkbmama@...?Subject=%20Re%3A%20Lupus%3F%3F> dkbmama <dkbmama> Tue Mar 2, 2010 1:37 pm (PST) Has anyone's kids been diagnosed with Lupus??? I would like to know your story if they have been.......has treatment for lupus helped at all? thanks - Diane Quote Link to comment Share on other sites More sharing options...
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