Guest guest Posted December 3, 2010 Report Share Posted December 3, 2010 Our daughter was on for almost 5 months, and she was struggling the whole time with effects -- got better, went off it, and that was in September. Now she is slowly declining so we have her out of school and are trying to evaluate. Her LLMD thinks it may be a mold issue. Argh. ________________________________ From: Farhangi <lesliefarhangi@...> Lyme Treatment Sent: Fri, December 3, 2010 4:07:38 AM Subject: [ ] IV length of time Hi, My son is about to start IV rocephin so I've been looking into it. I think the " protocol " says 4 weeks; however a friend of mine was on it 7 months. I asked her how her doctor decided on that length of time and she said he monitored her lyme levels (I don't know which exact test) and kept her on it until the levels had gone down enough (again, I don't know details, like what was " enough " ). She struggled w/cognitive problems and had tried various oral antibiotics with spotty results. The oral rocephin seems to have cured her -- she did it 3 years ago, and so far no relapses. I live in Dutchess County NY (not far from Hyde Park!) so Lyme is relatively common. I've been doing internet research and it is grim -- I think people who've had bad experiences tend to post more than people who had an uncomplicated time and are cured, which gives you a skewed picture. Anyway, hope that is helpful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2010 Report Share Posted December 11, 2010 I had the Iv for 3 months. The plan was for 6 months, but I got pregnant. So we are going to continue the Iv after the baby is born. I had no problems. I " Loved " my IV. It made me feel like myself again!!! My doc knew how long he wanted to have it in. He said as long as I have had lyme and my issues...atleast 6 months! He always stressed he didnt want to pull it early. The Iv gave me ( which we can all be different) More energy and I could " think " so much better!! Lyme Treatment From: lesliefarhangi@... Date: Fri, 3 Dec 2010 07:07:38 -0500 Subject: [ ] IV length of time Hi, My son is about to start IV rocephin so I've been looking into it. I think the " protocol " says 4 weeks; however a friend of mine was on it 7 months. I asked her how her doctor decided on that length of time and she said he monitored her lyme levels (I don't know which exact test) and kept her on it until the levels had gone down enough (again, I don't know details, like what was " enough " ). She struggled w/cognitive problems and had tried various oral antibiotics with spotty results. The oral rocephin seems to have cured her -- she did it 3 years ago, and so far no relapses. I live in Dutchess County NY (not far from Hyde Park!) so Lyme is relatively common. I've been doing internet research and it is grim -- I think people who've had bad experiences tend to post more than people who had an uncomplicated time and are cured, which gives you a skewed picture. Anyway, hope that is helpful. Quote Link to comment Share on other sites More sharing options...
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