Re: triggers

[Guest guest]

Hi Suzie,

Very interesting! I had no idea that there were '30 known triggers.' I had my

own ideas about there being some relationship between my son's onset and his

bout with the chicken pox but no one ever confirmed or denied any relation. If I

were you, I'd call or write the doctors and ask if they would be kind enough to

elaborate and describe further what the known triggers are. Maybe they are doing

some research there that hasn't been mentioned in the mainstream. Let them know

that there

are several of us online that would be most interested to learn more about this

intriguing possibility! If they can locate the actual triggers, it seems like

they're really making some headway in solving this continuing problem.

When Josh first got sick, I also thought that there was a lot more to this than

the doctors were telling me. I thought they were trying to hide some terrible

truths from me, sort of like some conspiracy, where they knew more than I did. I

was so desperate for information. I called medical centers out of state, I

called my son's earliest pediatrician, I questioned everyone who would listen.

If a nurse had actually kept certain information from me, like in tearing out

pages from an

informational booklet, that really would have fueled my paranoia! That was a

very unprofessional way for them to behave, IMO. I'd call the arthritis

foundation and request that a new copy of the booklet be mailed to me! Maybe

you're right, in wanting a second opinion. At the very least, to help put your

mind more at ease. I think it's very important to have a health care team that

you feel comfortable working with. If you can't trust them, you won't feel

confident with the treatments

they suggest.

I think it's great that your son's symptoms are being controlled with just an

NSAID. He's very lucky, then. It still may take a while, though. You never know

with this. It's sometimes hard to adjust to these new routines but in time,

things should get easier.

Good Luck.

~Georgina

[Guest guest]

Could be something like STIFF MAN SYNDROME, they jerk or stiffen when

undetected stimulus is present (my son had some symptoms of this - ie slight

touch, baby crying, balloon popping). Myelin involved? Their sympathetic

nervous system is a little miswired becuase of myelin nicks, which is also

seen on epleptics at times

[ ] triggers

>From: " Diamond " <laura.diamond@...>

>

>Hi,

>I've joined this list to find out if anyone has shared my experience.

>

>I was diagnosed with a seizure disorder in my early teens, after

>having had several grand mal seizures throughout my childhood.

>I've been on Dilantin ever since (I'm 30 now), and it is very well

>controlled.

>

>However, I'd always had a theory about one of the triggers for my

>seizures, but it seemed so odd that I never gave it much thought. A

>recent experience made me think of it again and I wanted to see what

>others thought.

>

>I have no health insurance right now, and so I can't afford to go to

>a neurologist to discuss my theory.

>

>Here's my experience:

>I've always felt that touching (as in someone touching my hair or my

>face lightly) could trigger my seizures. I've had two seizures while

>getting my hair cut in the past. I had a near seizure at a makeup

>counter a few weeks ago when the counterwoman was applying a cream

>under my eye. I was able to fight off the seizure, by stopping her

>and sitting on the floor until the nausea and dizziness passed. (I

>always get about a minute of severe nausea before I seize).

>

>Has anyone ever heard of this kind of trigger? I would be very

>curious to know if I am not alone in this experience.

>

>-

>

>

>------------------------------------------------------------------------

>MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE!

>Get a NextCard Visa, in 30 seconds! Get rates as low as

>0.0% Intro or 9.9% Fixed APR and no hidden fees.

>Apply NOW!

>1/2122/4/_/442641/_/953178176/

>------------------------------------------------------------------------

>

>_

>

>

[Guest guest]

,

Each of us is unique in what may trigger a seizure and yours sounds

very plausable to me. I was very senstive to anything that startled

me, noises etc. and for a long time even the phone ringing could set

off a seizure.

Zoe

> Here's my experience:

> I've always felt that touching (as in someone touching my hair or my

> face lightly) could trigger my seizures. I've had two seizures

while

> getting my hair cut in the past. I had a near seizure at a makeup

> counter a few weeks ago when the counterwoman was applying a cream

> under my eye. I was able to fight off the seizure, by stopping her

> and sitting on the floor until the nausea and dizziness passed. (I

> always get about a minute of severe nausea before I seize).

>

> Has anyone ever heard of this kind of trigger? I would be very

> curious to know if I am not alone in this experience.

>

> -

[Guest guest]

GEZZZZZZZZ Jane,

You really have a box of stuff that belongs to everyone and not to

you. Please give eack one their part of what happened to you. Then if they

can't handle it then hand them brosures so they can get help. But, the

beatuiful person that came out of all of this horror. Don't expect it to

change their minds but that they know YOU KNOW. Refusing to take on the

responsibility for their abuse, will no longer be tolorated. ZERO TOLERANCE

!!! Tell the whole family. Make sure you have another place to live, and you

need the treatment for this disease. Save your money, and work hard to get

money. To do otherwise it would alway be at your door like hounding wolfs

and he would WIN?????? No Dear Heart you will have won. Take back your

power. TIRRIGERS you have a life time of triggers. Even as your friends

play away. God loves you and will never leave you. NO MATTER WHAT. This is

a program that will stand by you no matter what. Will be there in sadness

and in joy.

You are not alone.

Brie

[Guest guest]

I would also add dairy and wheat products for sensitive people. Everyone is

different and you really have to be a detective to find out what if any foods

are triggers. Speaking from personal experience, I flare when I eat wheat

products, dairy, red meat, and chocolate. I pretty much have to stay away from

those. There is a lot of info on the net about triggers and leaky gut which many

feel plays a role in autoimmune diseases such as psoriasis and PsA. I agree with

a about the water. I drink 3 quarts per day. We are asking our bodies to

process drugs in addition to function and that requires a lot of water. Patty

[Guest guest]

Dr. Weil (M.D. from Harvard and Director of the Program in Integrative

Medicine at the University of Arizona) has a very good summary of his

anti-inflammatory diet in response to a question he was asked about the use of

drugs for treating psoriatic arthritis. You can find it at:

http://www.drweil.com/drw/u/id/QAA252789

For those interested in alternative therapies, he's probably the most reliable

source and there is much more on his website (http://www.drweil.com) about

treating inflammatory disease.

Joanna Hoelscher

[Guest guest]

Dear , yes, your thyroid function can get worse or better

depending on the amount of either physical or emotional stress you are under.

Your adrenals secrete the hormone cortisol and cortisol is needed to help get

the thyroid hormone into your cells. I would encourage you to get the 24 hour

salivary adrenal profile done from Genova Diagnostics to see where your

cortisol and DHEA levels lie at four specific times during the day. You collect

your saliva in a test tube at 8.00a.m. - 12 noon, 4.00p.m. and again at

midnight and then send it back to Genova and they will send the results to you

between 7 to 10 days. Go to our FILES section from the Home Page of this forum,

scroll down the FOLDERS there until you see 'Discounts' and open that and then

click on 'Genova Diagnostics' and follow the instructions there in order to get

the discount they allow TPA members to have. If it is shown you are suffering

with low adrenal reserve, or 'adrenal fatigue' then you will need to start a

course of adrenal glandulars if your results are not too bad, or alternatively,

you may need a short course of hydrocortisone, which will boost your adrenal

function, and, in turn, boost your thyroid function too.

You should ask your GP to check the following blood tests to see

if any of them are low in the reference range@ Ferritin (stored iron), vitamin

B12, vitamin D3, magnesium, folate, copper and zinc. If any of these are low,

no amount of thyroid hormone replacement is going to work as it should until

these are boosted.

T3 has a very short half life of about 2 days, and you should

know very quickly whether the extra dose of T3 is working, so you should not

have to wait for 6 weeks. We recommend waiting 6 weeks before getting thyroid

function tests done when taking levothyroxine (T4) because T4 has a long half

life.

You can check out your adrenal function by answering the

questions in the Adrenal Questionnaire (look in the FOLDER 'Adrenals') and also

doing the Home Tests.

Good luck with your MA.

Luv - Sheila

PS

- , can you write to me privately at sheila[@]tpauk[dot]com and tell me

the name of your consultant who recommended T3 please?

I haven't always been 100 % symptom free, but was managing ok in a stable range

of -2.9.

After a month of increasing thyroid symptoms my GP has just told me that my

thyroid is low again at -5.3 and is increasing the T3 from 35mc.g daily to

40mcg.

I am just completing my MA and have been really busy, dose anyone know if

thyroid worsening is related or directly caused by to how phyidscally active

you are or how much stress you are under; and if so how best to manage things?

Is there anyway for me to know if this bout of lowering thyroid will continue

or stop quite soon? My GP said she would need to wait six weeks to see if I had

stablized on the new dose of T3.

I am also being checked for possible lupus, and having an MRI scan on my neck

which has a swollen lymph node.

Know I've been really lucky with my GP and consultant prescribing T3 and that

I've pretty much finished the MA!

regards

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.439 / Virus Database: 271.1.1/2980 - Release Date: 07/04/10

18:35:00

[Guest guest]

Hi , Some of us do need surprising amounts of T3 to be well- just go back and ank for a further dose incresase- and yes stress won't help the situation- maybe he needs to look as your prednisone dose temporarily too ( I take it so I know how it can affect you) T3 is very quick acting it is in and out of the body in a couple of days. It's T4 thyroxine that needs to be left for 6 weeks to stabilise as it has a half life of 5 days so takes at least 25 days to level out. Shout, scream make a fuss- you need a higher dose ( I take 80mcg plus Armour for comparison). some docs think that 60mcg is top wack and you're below that. Your TSH should be nil on T3 only and the FT3 in the top quarter of the range. To get it tested your doc should write 'taking T3' on the form or the lab may take it on themselves not to do it. > thyroid treatment > From: susanmortimer@...> Date: Mon, 5 Jul 2010 17:56:19 +0000> Subject: Triggers> > dear all,> > I have been diagnoised with low thyroid for almost 2 years now. > > I had reactions to T4 and was luckily placed on T3 and prednislone and refered to an endo specialist.> > I haven't always been 100 % symptom free, but was managing ok in a stable range of -2.9.> > After a month of increasing thyroid symptoms my GP has just told me that my thyroid is low again at -5.3 and is increasing the T3 from 35mc.g daily to 40mcg.> > I am just completing my MA and have been really busy, dose anyone know if thyroid worsening is related or directly caused by to how phyidscally active you are or how much stress you are under; and if so how best to manage things?> > Is there anyway for me to know if this bout of lowering thyroid will continue or stop quite soon? My GP said she would need to wait six weeks to see if I had stablized on the new dose of T3.> > I am also being checked for possible lupus, and having an MRI scan on my neck which has a swollen lymph node.> > Know I've been really lucky with my GP and consultant prescribing T3 and that I've pretty much finished the MA!> > regards> > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >