Achilles tendon

[Guest guest]

My sister was tested for HLA-B27 and it came back neg. I told her

there are all sorts of HLA's I think she might have the HLA-CW6. Her

achilles tendon hurt all the time and so do her heels, she said

yesterday that her thighs are begining to hurt also. She does not have

the skin psorisa(I don't either) but I have the gene HLA-B27. I need

some input to make her understand that she needs to get tested again,

I know that it is very expensive and she really doesn't have the money

or health ins. She will be on Medicare in 2 yrs. She was dx,as a

paranoid schiczo 7 months ago and just now got SS. I need Help!!

Thanks, Sharon

(Editor's Note: Sharon, in my opinion, re-testing is a waste of money since

relatively few of us with PA test positive for the HLA-B27 marker. The absence

of the marker doesn't mean anything. It also sounds like your sister could have

plantar fasciitis as that causes tremendous heel pain. You don't say if she is

under the care of a good rhuematologist or if she is taking any medication to

fight the disease or why she is believed to have PA. Please give us more

background information as this may enable other folks here to provide comments

and suggestions. Kathy F. )

[Guest guest]

Thank you so much not only did that help me it helped my

sister too! Sharon

- In , " cindyatc " <cindyatc@...>

wrote:

>

> I've been one of those " lurking " and taking in all the great info

> everyone has provided. I intoduced myself earlier (from a

different

> email address), but as a reminder, I'm 44, teach and work in the

area

> of athletic training/sportsmedicine and have had P since I was 6

and

> PA for about 9 years.

>

> Now, why I really wrote! I find that GENTLE stretching of the

> achilles helps reduce not only achilles pain, but foot pain since

> fibers from the achilles tendon interlace with fibers from the

> plantar fascia on the bottom of the foot. Also, foot orthotics

can

> sometimes help by readjusting the mechanics of the foot, thereby

> taking pressure off the achilles.

>

>

>

[Guest guest]

Kathy,

That is my sister's name also, but she has the same

symptoms as I do and she does not even have a doctor,

she has to go to the free health clinic. Her hands

swell between the knuckles like mine(they stay that

way) Her knees swell, her ankles swell, she has

fatigue but that is from her thyroid not working right

and they haven't put her on any meds for it, like I

said no insurance. She got the test done because she

knew someone at the clinic that ordered the test done.

Remember she is a paranoid schizo and she takes meds

for that the state has to give her the meds for that,

otherwise she would be in jail. She had to sign papers

stating that she would take her meds daily on her own

and if she doesn't she goes to jail. They check her

often blood levels and she can only get her meds 5

days before she runs out and she has to bring the

bottle to prove she only has 5 days left worth. They

think she has some kind of arthritis but they can only

treat mental disorders, they found her thyroid to be

out of control and she needs to have it taken out but,

they only do mental disorders. I told her the

stretching that advised her on and she is happy

with that for now. She lives with me to help me with

daily life activities. My father lives with me also ,

he is in a wheel chair had a hip replacement and they

had to take off 3 inches of his leg bone so he can not

walk every good. They were staying with me before I

became sick and I was taking care of them now it's

like my sister and I have to take care of each other

and Dad. Who is also a Paranoid schizo but has not

been dx with it altho I see the signs and he will not

go to the doctor. He stays mostly to himself in his

room. I have a 13 yr old son who has never known me to

be well. When I was pregnant with him they found

cervical cancer.After I had him they did cryosurgery

and that fixed that. Of course he does not remember

that. When he was 7 I had colon cancer stage 2 and had

to go to Baylor hospital for surgery and then when I

cam home one of my many docs wanted pictures of my

breast and I was back in the hospital again for

surgery in my left breast it came back noncancerous,

but for a 7 yr old he has always been scared I am

going to die. After my surgery, I had to wait 2 weeks

before they could start chemo and radiation at the

same time because it fights cancer better. I had

radiation everyday and chemo once a week. I went from

130lbs. to 89 lbs. I looked like death, and pretty

much felt like it too. I was ready to give up and my

" husband " at the time left me with his 2 yr old son so

as not to have to pay for daycare. He left me twice

during my chemo experience. I was 36 at the time and

had 4 children I wanted 6 but during radiation I went

thru menopause. So am on premarin for the rest of my

life yes it causes cancer too, but like 3 or 4 of my

docs said my body used to make it what was the

difference? They wanted me to have a total histoectomy

but had to wait for me to gain weight. I still have

not had that done. This started in 1999 Dec.23rd I was

dx. with colon cancer. In Sept.of 2000 after all my

treatments I had a sore throat on the right side only,

back to the doc, had a CAT done from chest up found 4

spots on my thyroid. I had cancer again! Yes believe

me I cried and wanted to die! My " husband " was

actually thoughtful and bought me a big arrangement of

flowers. I still had to go back to the hospital and

have surgery again. Thank God for the medical

insurance I had at work at that time. Yes all my hair

fell out, which I did not think would be to big of a

deal!!! How vain women are!!!I had a wonderful case

manager at the time, when I had the colon cancer I was

scared to death because they told me I had 50- 50 o/o

of living. So I am a nurse and I asked my manager

about the doc in Baylor who was going to do my

suregry, all about his credentials, how many people he

had die on him , just everything. Once I finally got

to go back to work which was factory work,I worked for

Trane making air conditioners. They gave my job away

because they didn't think I was coming back. I

noticed that I had fatgiue all the time, but thinking

I was just being paranoid didn't say anything about

it. Then all my joints would ache all the time and

that went on for a few years I would go to work come

home and go to sleep weekends I used to work as a

nurse and I just thought I was overdoing it, from what

all I had been thru. Then in 2004 my right elbow

swelled up and really hurt and my left index finger

swelled up,normally you talk to your mate about things

being different, mine said it was all in my head that

I WANTED to be sick, so instead of going to the doc I

waited it out. My finger swelled so big was so tight I

could not move it.I broke down and went to my PCP. She

said gout blood test came back pos. she also sent me

to Rhemy. who tested me for lupus, gout, RA AND PA.

lupus neg. Ra neg. gout and PA postive. I had let it

go for so long that mh Rheny showed me how bad my back

and hips are he put 1 finger on each side of my hips

on the pressure points and I fell to the ground. He

said start your SS papers because you will never be

able to work again. I can not take any of the stuff

like Enbrel ie. they can cause cancer, and I am at too

high of a risk. He said there was nothing he could do

for me, methotrexate landed me in the hosptial, went

back to him and he said well maybe this Spring they

might come out with something you can take, see you

this Spring. What about something for this pain???? OH

take advil. Went to PCP who has me on Lyrica and

Advanza. Plus I have clinical depresssion ie. no

thyroid. So I am on 3 different antidepressants who I

see a shrink for. My " Husband " left me a year ago and

we are divorced because I have too many things wrong

with me.I hurt all the time. MY 2 oldest kids will

have nothing to do with me ie. I am always tired or

always asleep. I don't want to get out and go to the

mall( OMG I would die from the walk from the car to

the mall). I feel sorry for myself that's why I stay

in bed, not realizing some days I can't get out of

bed. Going to Wal-mart is a whole day for me, I sleep

for 2 days afterwards. MY 21 yr old son is here but it

is because he needs a place to live for right now but

I can say that he has cleaned up my yard and I have

wanted him to do it for so long, but he states that is

his payment for staying with me. My 13 yr old is in

counseling because he is so scared I am going to die

before he is ready to be out on his own. I have told

him until I am blue in the face and will continue that

God will not take me away from him until he doesn't

need me anymore that the devil can do whatever he

wants to my body but God will not let him kill me

until he can live without me. Well now that I have

written you a book, I will close I think I just needed

to get it all off my chest andI thank you with all my

heart for reading this. Sharon

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