Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 I am posting this on the WI group that I belong too.............my llmd is not accepting any more patients right now....sad because he is great.......where do they live in WI? thanks - Diane ________________________________ From: Natasha Moiseyev <nmoiseyev@...> Sent: Tue, September 21, 2010 9:17:59 AM Subject: [ ] LLMD in or near Wisconsin?  For cousin and her mom. Anyone know of a good one? Natasha ________________________________ From: jchabot <jchabot@...> Sent: Tue, September 21, 2010 6:04:44 AM Subject: Re: [ ] HI , My son is 8 and was diagnosed last year. He had the neck pain and stiffness as well as the pain behind his knees and severe, what he calls as " pumping headaches " He has been on antibiotics for almost a year and still has psychiatric symptoms from the lyme as well as fatigue. My son's was positive , but the western blot was negative, than after going to the LLMD he was diagnosed with a positive western blot I'm so sorry you are going through this!! Just wanted to let you know you are not alone Hugs judy ________________________________ From: " michellerwood@... " <michellerwood@...> Sent: Tue, September 21, 2010 8:41:31 AM Subject: Re: [ ] send me your private email address Sent from my Verizon Wireless BlackBerry [ ] My son,17 was diagnosed on Aug. 26. He started with pain in his jaw, stiffness in his neck, fever and a rash behind his knee. The blood test was negative but the rash disappeared about 4 days after starting doxycycl 100mg. After a week of taking this he was sick to his stomach so the dr. switched him to amox. for 2 more weeks. Last Tuesday while still on meds he started with the same symptoms all over again. We went to the ER that night as the neck pain was getting worse. They did a spinal tap and ruled out Lyme meningitis. By Thursday afternoon he started with a headache that is worse when he sits or stands and as of today it has not gotten any better. The dr. wants him to see a neuro and I am having a hard time getting him in anytime soon. I am new to this group and would love to know if people have had similar situations as I am thinking this is all still the Lyme disease. I live in Bethlehem, PA and if anyone knows a good place to go for help I would appreciate it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 Oconomowoc. Thanks ... ________________________________ From: Diane Biel <dkbmama@...> Sent: Tue, September 21, 2010 8:32:10 AM Subject: Re: [ ] LLMD in or near Wisconsin? I am posting this on the WI group that I belong too.............my llmd is not accepting any more patients right now....sad because he is great.......where do they live in WI? thanks - Diane ________________________________ From: Natasha Moiseyev <nmoiseyev@...> Sent: Tue, September 21, 2010 9:17:59 AM Subject: [ ] LLMD in or near Wisconsin? For cousin and her mom. Anyone know of a good one? Natasha ________________________________ From: jchabot <jchabot@...> Sent: Tue, September 21, 2010 6:04:44 AM Subject: Re: [ ] HI , My son is 8 and was diagnosed last year. He had the neck pain and stiffness as well as the pain behind his knees and severe, what he calls as " pumping headaches " He has been on antibiotics for almost a year and still has psychiatric symptoms from the lyme as well as fatigue. My son's was positive , but the western blot was negative, than after going to the LLMD he was diagnosed with a positive western blot I'm so sorry you are going through this!! Just wanted to let you know you are not alone Hugs judy ________________________________ From: " michellerwood@... " <michellerwood@...> Sent: Tue, September 21, 2010 8:41:31 AM Subject: Re: [ ] send me your private email address Sent from my Verizon Wireless BlackBerry [ ] My son,17 was diagnosed on Aug. 26. He started with pain in his jaw, stiffness in his neck, fever and a rash behind his knee. The blood test was negative but the rash disappeared about 4 days after starting doxycycl 100mg. After a week of taking this he was sick to his stomach so the dr. switched him to amox. for 2 more weeks. Last Tuesday while still on meds he started with the same symptoms all over again. We went to the ER that night as the neck pain was getting worse. They did a spinal tap and ruled out Lyme meningitis. By Thursday afternoon he started with a headache that is worse when he sits or stands and as of today it has not gotten any better. The dr. wants him to see a neuro and I am having a hard time getting him in anytime soon. I am new to this group and would love to know if people have had similar situations as I am thinking this is all still the Lyme disease. I live in Bethlehem, PA and if anyone knows a good place to go for help I would appreciate it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 Please have her email me at dkbmama@... I will get her in contact with a person who knows everything about WI and the llmd's.........I went to a doc in that town for over five years that mistreated me.............I am about 45 min away from them - even two of my three girls were born at the hospital there  thanks, Diane ________________________________ From: Natasha Moiseyev <nmoiseyev@...> Sent: Tue, September 21, 2010 12:45:21 PM Subject: Re: [ ] LLMD in or near Wisconsin?  Oconomowoc. Thanks ... ________________________________ From: Diane Biel <dkbmama@...> Sent: Tue, September 21, 2010 8:32:10 AM Subject: Re: [ ] LLMD in or near Wisconsin? I am posting this on the WI group that I belong too.............my llmd is not accepting any more patients right now....sad because he is great.......where do they live in WI? thanks - Diane ________________________________ From: Natasha Moiseyev <nmoiseyev@...> Sent: Tue, September 21, 2010 9:17:59 AM Subject: [ ] LLMD in or near Wisconsin? For cousin and her mom. Anyone know of a good one? Natasha ________________________________ From: jchabot <jchabot@...> Sent: Tue, September 21, 2010 6:04:44 AM Subject: Re: [ ] HI , My son is 8 and was diagnosed last year. He had the neck pain and stiffness as well as the pain behind his knees and severe, what he calls as " pumping headaches " He has been on antibiotics for almost a year and still has psychiatric symptoms from the lyme as well as fatigue. My son's was positive , but the western blot was negative, than after going to the LLMD he was diagnosed with a positive western blot I'm so sorry you are going through this!! Just wanted to let you know you are not alone Hugs judy ________________________________ From: " michellerwood@... " <michellerwood@...> Sent: Tue, September 21, 2010 8:41:31 AM Subject: Re: [ ] send me your private email address Sent from my Verizon Wireless BlackBerry [ ] My son,17 was diagnosed on Aug. 26. He started with pain in his jaw, stiffness in his neck, fever and a rash behind his knee. The blood test was negative but the rash disappeared about 4 days after starting doxycycl 100mg. After a week of taking this he was sick to his stomach so the dr. switched him to amox. for 2 more weeks. Last Tuesday while still on meds he started with the same symptoms all over again. We went to the ER that night as the neck pain was getting worse. They did a spinal tap and ruled out Lyme meningitis. By Thursday afternoon he started with a headache that is worse when he sits or stands and as of today it has not gotten any better. The dr. wants him to see a neuro and I am having a hard time getting him in anytime soon. I am new to this group and would love to know if people have had similar situations as I am thinking this is all still the Lyme disease. I live in Bethlehem, PA and if anyone knows a good place to go for help I would appreciate it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 oh, great. Her name is rebecca simons, just so you recognize the name when she emails... thanks again. Natasha ________________________________ From: Diane Biel <dkbmama@...> Sent: Tue, September 21, 2010 11:04:40 AM Subject: Re: [ ] LLMD in or near Wisconsin? Please have her email me at dkbmama@... I will get her in contact with a person who knows everything about WI and the llmd's.........I went to a doc in that town for over five years that mistreated me.............I am about 45 min away from them - even two of my three girls were born at the hospital there thanks, Diane ________________________________ From: Natasha Moiseyev <nmoiseyev@...> Sent: Tue, September 21, 2010 12:45:21 PM Subject: Re: [ ] LLMD in or near Wisconsin? Oconomowoc. Thanks ... ________________________________ From: Diane Biel <dkbmama@...> Sent: Tue, September 21, 2010 8:32:10 AM Subject: Re: [ ] LLMD in or near Wisconsin? I am posting this on the WI group that I belong too.............my llmd is not accepting any more patients right now....sad because he is great.......where do they live in WI? thanks - Diane ________________________________ From: Natasha Moiseyev <nmoiseyev@...> Sent: Tue, September 21, 2010 9:17:59 AM Subject: [ ] LLMD in or near Wisconsin? For cousin and her mom. Anyone know of a good one? Natasha ________________________________ From: jchabot <jchabot@...> Sent: Tue, September 21, 2010 6:04:44 AM Subject: Re: [ ] HI , My son is 8 and was diagnosed last year. He had the neck pain and stiffness as well as the pain behind his knees and severe, what he calls as " pumping headaches " He has been on antibiotics for almost a year and still has psychiatric symptoms from the lyme as well as fatigue. My son's was positive , but the western blot was negative, than after going to the LLMD he was diagnosed with a positive western blot I'm so sorry you are going through this!! Just wanted to let you know you are not alone Hugs judy ________________________________ From: " michellerwood@... " <michellerwood@...> Sent: Tue, September 21, 2010 8:41:31 AM Subject: Re: [ ] send me your private email address Sent from my Verizon Wireless BlackBerry [ ] My son,17 was diagnosed on Aug. 26. He started with pain in his jaw, stiffness in his neck, fever and a rash behind his knee. The blood test was negative but the rash disappeared about 4 days after starting doxycycl 100mg. After a week of taking this he was sick to his stomach so the dr. switched him to amox. for 2 more weeks. Last Tuesday while still on meds he started with the same symptoms all over again. We went to the ER that night as the neck pain was getting worse. They did a spinal tap and ruled out Lyme meningitis. By Thursday afternoon he started with a headache that is worse when he sits or stands and as of today it has not gotten any better. The dr. wants him to see a neuro and I am having a hard time getting him in anytime soon. I am new to this group and would love to know if people have had similar situations as I am thinking this is all still the Lyme disease. I live in Bethlehem, PA and if anyone knows a good place to go for help I would appreciate it! Quote Link to comment Share on other sites More sharing options...
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