Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Worse Lyme fog could very well be his worse-before-better reaction to the IV meds. It does not necessarily happen the first day -- can be several days after, and can last a while. My kids tanked after they started IV Rocephin, but they did get better. Also my younger daughter was getting a LOT worse in the neuropsych department and started on Byron White drops (1 drop 2x/day) and is already improving from brain fog. She did herx with that for a couple of days -- joint pain and headaches -- just to let you know. Natasha ________________________________ From: Farhangi <lesliefarhangi@...> Lyme Treatment Sent: Fri, January 28, 2011 7:46:15 AM Subject: [ ] brain fog getting worse My 11 year old son has been on IV zithromax (couldn't tolerate rocephin) for a few weeks and has just started IM bicillin. HIs teacher just wrote me a long email saying his brain fog was getting worse, not better. I will discuss this at our next doctor's appt., but that's a week away and I wonder if anyone has any experience with this? His main Lyme symptoms are brain fog, and a severely compromised immune system. I know about herx reactions, and he's had bad headaches with the antibiotics which are much improved now. Is increasing brain fog part of a herx reaction? On the other hand, maybe it is too long after the antibiotics started for a herx? (I thought they started a few days after your first dose). Any experiences or guidance or wisdom would be much appreciated! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Yes, brain fog could be that 'gets-worse-before-gets-better' event. How is he handling the IM Bicillin? Do you ice before the shot and how many shots/wk? Best wishes, Elaine Lyme Disease News continually updated from thousands of sources around the net: http://www.topix.net/health/lyme-disease MedWorm: The latest items on: Lyme Disease http://tinyurl.com/23dgy8 MARKETPLACE Stay on top of your group activity without leaving the page you're on - Get the Toolbar now. ________________________________ Find useful articles and helpful tips on living with Fibromyalgia. Visit the Fibromyalgia Zone today! Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 He's doing Ok with the bicillin. I assume you mean handing the discomfort? He earns 2 hours of horrible video games for each shot, and he loves the games so much that he willingly has them . . . (the games were banned while school is in session, so this is a high value treat for him). No we are not icing, but he does get anasthetic spray at the site first, and today (3rd shot) we are going to try giving ibuprofen ahead of time. It occurs to me that if it is a herx reaction, then the time frame fits with the start of the bicillin, so maybe that is it. He's getting 2 shots/week. It is so hard when it is your child -- any kind of problem or set back is so stressful! Thank you for your support and feedback -- leslie > > Yes, brain fog could be that 'gets-worse-before-gets-better' event. > How is he handling the IM Bicillin? Do you ice before the shot and how many > shots/wk? > Best wishes, > Elaine > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > > MARKETPLACE > Stay on top of your group activity without leaving the page you're on - Get the > Toolbar now. > > ________________________________ > > Find useful articles and helpful tips on living with Fibromyalgia. Visit the > Fibromyalgia Zone today! > > Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use > . > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Re Bicilin, I learned something counterintuitive -- you put in HEAT after the shot and it helps disperse and cause less muscle ache. ________________________________ From: <ecckwalk@...> Sent: Fri, January 28, 2011 8:29:37 AM Subject: Re: [ ] brain fog getting worse Yes, brain fog could be that 'gets-worse-before-gets-better' event. How is he handling the IM Bicillin? Do you ice before the shot and how many shots/wk? Best wishes, Elaine Lyme Disease News continually updated from thousands of sources around the net: http://www.topix.net/health/lyme-disease MedWorm: The latest items on: Lyme Disease http://tinyurl.com/23dgy8 MARKETPLACE Stay on top of your group activity without leaving the page you're on - Get the Toolbar now. ________________________________ Find useful articles and helpful tips on living with Fibromyalgia. Visit the Fibromyalgia Zone today! Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Interesting. A friend says to ice before and after. I wonder if you ice before, for pain of the shot, then heat after to spread the meds? Lyme Disease News continually updated from thousands of sources around the net: http://www.topix.net/health/lyme-disease MedWorm: The latest items on: Lyme Disease http://tinyurl.com/23dgy8 MARKETPLACE Stay on top of your group activity without leaving the page you're on - Get the Toolbar now. ________________________________ Find useful articles and helpful tips on living with Fibromyalgia. Visit the Fibromyalgia Zone today! Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 I think maybe so. We ended up using th lidocaine cream and ice before, and then a heating pad after and it worked great. ________________________________ From: <ecckwalk@...> Sent: Fri, January 28, 2011 10:06:04 AM Subject: Re: [ ] brain fog getting worse Interesting. A friend says to ice before and after. I wonder if you ice before, for pain of the shot, then heat after to spread the meds? Lyme Disease News continually updated from thousands of sources around the net: http://www.topix.net/health/lyme-disease MedWorm: The latest items on: Lyme Disease http://tinyurl.com/23dgy8 MARKETPLACE Stay on top of your group activity without leaving the page you're on - Get the Toolbar now. ________________________________ Find useful articles and helpful tips on living with Fibromyalgia. Visit the Fibromyalgia Zone today! Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Thanks for this -- we had a different nurse today and funnily enough she said the same thing! We are going to bring a thermacare pad to the next appointment. On Fri, Jan 28, 2011 at 12:49 PM, Natasha Moiseyev <nmoiseyev@...>wrote: > > > Re Bicilin, I learned something counterintuitive -- you put in HEAT after > the > shot and it helps disperse and cause less muscle ache. > > ________________________________ > From: <ecckwalk@... <ecckwalk%40>> > < %40> > Sent: Fri, January 28, 2011 8:29:37 AM > Subject: Re: [ ] brain fog getting worse > > > Yes, brain fog could be that 'gets-worse-before-gets-better' event. > How is he handling the IM Bicillin? Do you ice before the shot and how many > > shots/wk? > Best wishes, > Elaine > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > > MARKETPLACE > Stay on top of your group activity without leaving the page you're on - Get > the > Toolbar now. > > ________________________________ > > Find useful articles and helpful tips on living with Fibromyalgia. Visit > the > Fibromyalgia Zone today! > > Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use > > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Does he take any supplements to help with brain function? Kriill/fish oil, Vitamin D3 and acetyl-l-carnitine are very helpful. There are also supplements that my kids used to take that the naturopath prescribed that were for kids with autism that helped although its been awhile so not sure what brand. I know my husband and I notice a huge difference in brain function when we miss our supplements for a couple days. [ ] brain fog getting worse My 11 year old son has been on IV zithromax (couldn't tolerate rocephin) for a few weeks and has just started IM bicillin. HIs teacher just wrote me a long email saying his brain fog was getting worse, not better. I will discuss this at our next doctor's appt., but that's a week away and I wonder if anyone has any experience with this? His main Lyme symptoms are brain fog, and a severely compromised immune system. I know about herx reactions, and he's had bad headaches with the antibiotics which are much improved now. Is increasing brain fog part of a herx reaction? On the other hand, maybe it is too long after the antibiotics started for a herx? (I thought they started a few days after your first dose). Any experiences or guidance or wisdom would be much appreciated! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Yes, he is on a ton of supplements, for brain function and also to strengthen his immune system which is very depressed (he was diagnosed with shingles in December -- the pediatrician says she sees one case a year!). I'd have to go downstairs to doublecheck all of them, but fish oil is definitely one. Thank you. On Fri, Jan 28, 2011 at 3:49 PM, Barb Spaulding <barbspaulding@...>wrote: > > > Does he take any supplements to help with brain function? Kriill/fish oil, > Vitamin D3 and acetyl-l-carnitine are very helpful. There are also > supplements that my kids used to take that the naturopath prescribed that > were for kids with autism that helped although its been awhile so not sure > what brand. I know my husband and I notice a huge difference in brain > function when we miss our supplements for a couple days. > > [ ] brain fog getting worse > > My 11 year old son has been on IV zithromax (couldn't tolerate rocephin) > for > a few weeks and has just started IM bicillin. HIs teacher just wrote me a > long email saying his brain fog was getting worse, not better. I will > discuss this at our next doctor's appt., but that's a week away and I > wonder > if anyone has any experience with this? > > His main Lyme symptoms are brain fog, and a severely compromised immune > system. I know about herx reactions, and he's had bad headaches with the > antibiotics which are much improved now. Is increasing brain fog part of a > herx reaction? On the other hand, maybe it is too long after the > antibiotics started for a herx? (I thought they started a few days after > your first dose). > > Any experiences or guidance or wisdom would be much appreciated! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2011 Report Share Posted January 29, 2011 Hi , they say juiced celery can help with brain fog (I don't know how many video games that is worth) but it does seem to help me. It reduces the inflammation in the brain and from what I understand brain fog is basically an autoimmune response, inflammation, reacting to the bacteria. Does that make sense? I add carrots and cucumber so it tastes better, but you could experitment with apples or something sweeter. (Maybe not citrus with celery though, that just makes it sour). > > Does he take any supplements to help with brain function? Kriill/fish oil, Vitamin D3 and acetyl-l-carnitine are very helpful. There are also supplements that my kids used to take that the naturopath prescribed that were for kids with autism that helped although its been awhile so not sure what brand. I know my husband and I notice a huge difference in brain function when we miss our supplements for a couple days. > > [ ] brain fog getting worse > > > My 11 year old son has been on IV zithromax (couldn't tolerate rocephin) for > a few weeks and has just started IM bicillin. HIs teacher just wrote me a > long email saying his brain fog was getting worse, not better. I will > discuss this at our next doctor's appt., but that's a week away and I wonder > if anyone has any experience with this? > > His main Lyme symptoms are brain fog, and a severely compromised immune > system. I know about herx reactions, and he's had bad headaches with the > antibiotics which are much improved now. Is increasing brain fog part of a > herx reaction? On the other hand, maybe it is too long after the > antibiotics started for a herx? (I thought they started a few days after > your first dose). > > Any experiences or guidance or wisdom would be much appreciated! > > > > Quote Link to comment Share on other sites More sharing options...
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