Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Dr. asked me to send his letter below on to Lyme patients. Ellen Thank you all again for the support you have given me. These past few months have been very difficult, but all the signs of caring and appreciation from Lyme patients have kept me going. As for the May 25th hearing of my case, it is true that I do want people to attend. But I have asked Ellen Lubarsky to keep a list of those who are planning to come. That way we can know the room will be filled and, if we need a larger room, can request one as soon as possible. If you plan to come, please contact Ellen. ellenluba@... I just want to remind people that hearing participants need to be very quiet and respectful. Otherwise, there is a risk that any disturbance will backfire and antagonize the hearing committee. The patients who attended my last hearing gave me so much strength just by being there. I know it wasn't easy for them to sit there quietly, but they managed to behave superbly, and I know that helps my case. So far it seems that the hearing committee is fair. Our quarrel is not with them. Our quarrel is with Yale and the IDSA and other establishment critics of ILADS doctors. So my hearing would not be the appropriate place for Lyme patients to make their anger known. Please continue to look for posts from Ellen Lubarsky about my case. As with the Burrascano case, I realize that many Lyme disease patients will want to rally for their rights and let those involved with public policy know that real people are being hurt by the shortage of health care for patients with chronic Lyme disease--rights that I realize are very important. However, to avoid antagonizing the medical board, I am just asking that you not do this at my hearing. Ray , MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 I'm confused. Can anyone tell me who the " authorities " were in a previous post. (I copied the post below.) It was stated that the authorities want many Lyme disease folks at the hearing. Is Ellen the " authorities " or are there two groups asking for us to be there? Is Ellen collecting names but the authorities the ones who will grant us extra space when we arrive? Do we need to tell Ellen and the authorities we're going to be there? Another email last week went out saying we didn't need to tell anyone anything. This being a public event meant we could just go if we wanted to and didn't have to sign up with anyone or any organization. Telling Ellen if we were coming was just a Lyme thing. Can someone look into this for me and let me know precisely what HAS to be done to attend Dr ' hearings? Are there official authorities that we need to email at the building where the hearing is being held to reserve seats? If we fail to email anyone first will we be denied access? Do we need to email multiple parties for different reasons? If you went to the first hearing day, will you PLEASE tell me what happened to you when you got there? Did you have to show an email from Ellen or the authorities to get in? Did you just walk in? Was there extreme security? I can only guess everything will be the same this time so I'd like to know how it worked last time. Any help would be deeply appreciated! =) Robynn From: nathalie escudier <nathalie.escudier@...> Date: Thu May 11, 2006 10:55 am Subject: Fwd: HEARING update n1675004 > > We have contacted those who have a say concerning how many should > attend the Hearing. We were told by the authorities that they want > everyone to attend the Hearing who can. They will make overflow > rooms available. So, please if you want to come and support Dr. > quietly and respectfully ( not a rally ) there will be room > for all. It needs to be made obvious that Dr. has made a > deep impact on people's lives. We don't have to make it a Lyme > issue but just to be there in support will make an impression. Dr. > has saved many lives. Re: [ ] Fwd:Note from Dr. Dr. asked me to send his letter below on to Lyme patients. Ellen Thank you all again for the support you have given me. These past few months have been very difficult, but all the signs of caring and appreciation from Lyme patients have kept me going. As for the May 25th hearing of my case, it is true that I do want people to attend. But I have asked Ellen Lubarsky to keep a list of those who are planning to come. That way we can know the room will be filled and, if we need a larger room, can request one as soon as possible. If you plan to come, please contact Ellen. ellenluba@... I just want to remind people that hearing participants need to be very quiet and respectful. Otherwise, there is a risk that any disturbance will backfire and antagonize the hearing committee. The patients who attended my last hearing gave me so much strength just by being there. I know it wasn't easy for them to sit there quietly, but they managed to behave superbly, and I know that helps my case. So far it seems that the hearing committee is fair. Our quarrel is not with them. Our quarrel is with Yale and the IDSA and other establishment critics of ILADS doctors. So my hearing would not be the appropriate place for Lyme patients to make their anger known. Please continue to look for posts from Ellen Lubarsky about my case. As with the Burrascano case, I realize that many Lyme disease patients will want to rally for their rights and let those involved with public policy know that real people are being hurt by the shortage of health care for patients with chronic Lyme disease--rights that I realize are very important. However, to avoid antagonizing the medical board, I am just asking that you not do this at my hearing. Ray , MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 The health Commisioner said that they are not disouraging attendence. Dr. Jone's lawyer said that it is ok for anyone to come and show support...and a patient of doctor told us that he feels that the more come to support him the better. Ellen said they are just collecting names for conveinence. You don't have to give your name or make any reservations. Hope to see alot of you there. I was not at the first hearing but friends were. They said the room was only half full and that is why they reserved a smaller room this time...but provisions are supposed to be made for overflow. The first hearing was very quiet and respectful so there is no logical reason to fear that there will be any trouble at this one. Margie T Robynn <Robynn@...> wrote: I'm confused. Can anyone tell me who the " authorities " were in a previous post. (I copied the post below.) It was stated that the authorities want many Lyme disease folks at the hearing. Is Ellen the " authorities " or are there two groups asking for us to be there? Is Ellen collecting names but the authorities the ones who will grant us extra space when we arrive? Do we need to tell Ellen and the authorities we're going to be there? Another email last week went out saying we didn't need to tell anyone anything. This being a public event meant we could just go if we wanted to and didn't have to sign up with anyone or any organization. Telling Ellen if we were coming was just a Lyme thing. Can someone look into this for me and let me know precisely what HAS to be done to attend Dr ' hearings? Are there official authorities that we need to email at the building where the hearing is being held to reserve seats? If we fail to email anyone first will we be denied access? Do we need to email multiple parties for different reasons? If you went to the first hearing day, will you PLEASE tell me what happened to you when you got there? Did you have to show an email from Ellen or the authorities to get in? Did you just walk in? Was there extreme security? I can only guess everything will be the same this time so I'd like to know how it worked last time. Any help would be deeply appreciated! =) Robynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 I just want to say THANK YOU to all who attend in support of Dr. and his dedication to curing our kids! We travel from Oregon to see Dr J, my 8 and 6 year old daughters both have Lyme and co-infections (and my husband and I also). If we could we'd nominate him for sainthood (although he's so humble he would probably be embarrassed to hear it) He has been a true angel to our family and we will be sending positive thoughts and prayers to everyone during this challenging time! Barbara --- <faces@...> wrote: > Dr. asked me to send his letter below on to > Lyme > patients. > Ellen > > Thank you all again for the support you have given > me. These past few months have been very difficult, > but all the signs of caring and appreciation from > Lyme patients have kept me going. > > As for the May 25th hearing of my case, it is true > that I do want people to attend. But I have asked > Ellen Lubarsky to keep a list of those who are > planning to come. That way we can know the room > will > be filled and, if we need a larger room, can > request > one as soon as possible. If you plan to come, > please > contact Ellen. ellenluba@... > > I just want to remind people that hearing > participants need to be very quiet and respectful. > Otherwise, there is a risk that any disturbance will > backfire and antagonize the hearing committee. The > patients who attended my last hearing gave me so > much > strength just by being there. I know it wasn't > easy > for them to sit there quietly, but they managed to > behave superbly, and I know that helps my case. > > So far it seems that the hearing committee is fair. > > Our quarrel is not with them. Our quarrel is with > > Yale and the IDSA and other establishment critics of > ILADS doctors. So my hearing would not be the > appropriate place for Lyme patients to make their > anger known. > > Please continue to look for posts from Ellen > Lubarsky > about my case. > > As with the Burrascano case, I realize that many > Lyme disease patients will want to rally for their > rights and let those involved with public policy > know > that real people are being hurt by the shortage of > health care for patients with chronic Lyme > disease--rights that I realize are very > important. However, to avoid antagonizing the > medical board, I am just asking that you not do > this > at my hearing. > Ray , MD > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 I'm confused. Can anyone tell me who the " authorities " were in a previous post. (I copied the post below.) It was stated that the authorities want many Lyme disease folks at the hearing. Is Ellen the " authorities " or are there two groups asking for us to be there? Is Ellen collecting names but the authorities the ones who will grant us extra space when we arrive? Do we need to tell Ellen and the authorities we're going to be there? Another email last week went out saying we didn't need to tell anyone anything. This being a public event meant we could just go if we wanted to and didn't have to sign up with anyone or any organization. Telling Ellen if we were coming was just a Lyme thing. Can someone look into this for me and let me know precisely what HAS to be done to attend Dr ' hearings? Are there official authorities that we need to email at the building where the hearing is being held to reserve seats? If we fail to email anyone first will we be denied access? Do we need to email multiple parties for different reasons? If you went to the first hearing day, will you PLEASE tell me what happened to you when you got there? Did you have to show an email from Ellen or the authorities to get in? Did you just walk in? Was there extreme security? I can only guess everything will be the same this time so I'd like to know how it worked last time. Any help would be deeply appreciated! =) Robynn From: nathalie escudier <nathalie.escudier@...> Date: Thu May 11, 2006 10:55 am Subject: Fwd: HEARING update n1675004 > > We have contacted those who have a say concerning how many should > attend the Hearing. We were told by the authorities that they want > everyone to attend the Hearing who can. They will make overflow > rooms available. So, please if you want to come and support Dr. > quietly and respectfully ( not a rally ) there will be room > for all. It needs to be made obvious that Dr. has made a > deep impact on people's lives. We don't have to make it a Lyme > issue but just to be there in support will make an impression. Dr. > has saved many lives. Re: [ ] Fwd:Note from Dr. Dr. asked me to send his letter below on to Lyme patients. Ellen Thank you all again for the support you have given me. These past few months have been very difficult, but all the signs of caring and appreciation from Lyme patients have kept me going. As for the May 25th hearing of my case, it is true that I do want people to attend. But I have asked Ellen Lubarsky to keep a list of those who are planning to come. That way we can know the room will be filled and, if we need a larger room, can request one as soon as possible. If you plan to come, please contact Ellen. ellenluba@... I just want to remind people that hearing participants need to be very quiet and respectful. Otherwise, there is a risk that any disturbance will backfire and antagonize the hearing committee. The patients who attended my last hearing gave me so much strength just by being there. I know it wasn't easy for them to sit there quietly, but they managed to behave superbly, and I know that helps my case. So far it seems that the hearing committee is fair. Our quarrel is not with them. Our quarrel is with Yale and the IDSA and other establishment critics of ILADS doctors. So my hearing would not be the appropriate place for Lyme patients to make their anger known. Please continue to look for posts from Ellen Lubarsky about my case. As with the Burrascano case, I realize that many Lyme disease patients will want to rally for their rights and let those involved with public policy know that real people are being hurt by the shortage of health care for patients with chronic Lyme disease--rights that I realize are very important. However, to avoid antagonizing the medical board, I am just asking that you not do this at my hearing. Ray , MD Quote Link to comment Share on other sites More sharing options...
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