Re: HI. I'M A NEW MEMBER/Judy

[Guest guest]

Hi Judy,

My son started treatment last September, though he did not get on the right

combo of meds til Nov, confirmed by Dr J when we finally saw him in Dec. I have

not seen any improvement either, and I feel disheartened by this at times also.

Dr. J beleives my son's is congenital and said 5-7 years of treatment. Hard to

wrap my brain around that, but we will continue on in good faith.

Dara

>

> Dr. J said, 1-2 years ,or more on the antibiotics. I just thought I would see

some type of improvement mentally by now.

> I'm not giving up, but feel like it!!

> Hugs

> Judy

>

>

>

>

> ________________________________

> From: smd <merrymom1013@...>

>

> Sent: Sat, January 23, 2010 8:40:49 PM

> Subject: Re: [ ] HI. I'M A NEW MEMBER/Elaine

>

>  

> Judy writes: I'm wondering if he will ever show any improvement! !!!

> What did Dr. J tell you? When he started seeing my daughter he told us that in

his experience cases like hers took 2-3 years on average to get better, and

occasionally 4-5 years.

> Her improvement was minimal and I wasn't always 100% sure that she was getting

better. But we persisted & trusted Dr J (the only one who offered any hope for

recovery), & sure enough at about 2.5 years into treatment, we realized she was

significantly better. The symptoms resolved very slowly & one at a time. After

4.5 years, he is calling her cured & she is finally off abx. So, his guesstimate

at that first visit was right on target. Don't give up.

> Sue

>

>

>

[Guest guest]

Hi Dara,

Thank you for the encouraging words.!!!

I have not been tested for lyme myself, although I feel I have many of the

symptoms. I have to wonder about congenital lyme too.

I wish you and your son well!

Hugs

Judy

________________________________

From: darabeth2003 <dara.alewine@...>

Sent: Sat, January 23, 2010 10:18:52 PM

Subject: Re: [ ] HI. I'M A NEW MEMBER/Judy

 

Hi Judy,

My son started treatment last September, though he did not get on the right

combo of meds til Nov, confirmed by Dr J when we finally saw him in Dec. I have

not seen any improvement either, and I feel disheartened by this at times also.

Dr. J beleives my son's is congenital and said 5-7 years of treatment. Hard to

wrap my brain around that, but we will continue on in good faith.

Dara

>

> Dr. J said, 1-2 years ,or more on the antibiotics. I just thought I would see

some type of improvement mentally by now.

> I'm not giving up, but feel like it!!

> Hugs

> Judy

>

>

>

>

> ____________ _________ _________ __

> From: smd <merrymom1013@ ...>

>

> Sent: Sat, January 23, 2010 8:40:49 PM

> Subject: Re: [ ] HI. I'M A NEW MEMBER/Elaine

>

>  

> Judy writes: I'm wondering if he will ever show any improvement! !!!

> What did Dr. J tell you? When he started seeing my daughter he told us that in

his experience cases like hers took 2-3 years on average to get better, and

occasionally 4-5 years.

> Her improvement was minimal and I wasn't always 100% sure that she was getting

better. But we persisted & trusted Dr J (the only one who offered any hope for

recovery), & sure enough at about 2.5 years into treatment, we realized she was

significantly better. The symptoms resolved very slowly & one at a time. After

4.5 years, he is calling her cured & she is finally off abx. So, his guesstimate

at that first visit was right on target. Don't give up.

> Sue

>

>

>