Exercise

[Guest guest]

For those of us that can not tolerate much exercise, Ive read that using a

small exercise trampoline is good to clear Lympth System. Just small bounces

doesnt require much energy usage.

We all dont have energy for different or many reasons, could be just adrenals,

thyroid .. But more likel Mitochonrial Disorder has now been linked to Lyme, it

is intracelluar .. thats why we feel like every cell in our bods is drains,

because they are !! ..in reading one piece on Mitochondrial Disorder, over doing

it exercise etc wise has long term harmful effects on Mitochondria in our cells,

that we can not regain .. now, thats scarey !! True or not I know I know I try

and take it easy. Just do a search on Mitochondria Disorder by itself and with

the word Lyme as well, and youll find info on it.

[Guest guest]

Interesting - I just heard last night that all this is related to my

shoulder/rotator cuff. The mitochodria seems to be thrashed. :-(

I appreciate your posting this - I will read!

W.

_____

From:

[mailto: ] On Behalf Of

Sent: Thursday, July 16, 2009 12:27 PM

Subject: [ ] Re: exercise

For those of us that can not tolerate much exercise, Ive read that using a

small exercise trampoline is good to clear Lympth System. Just small bounces

doesnt require much energy usage.

We all dont have energy for different or many reasons, could be just

adrenals, thyroid .. But more likel Mitochonrial Disorder has now been

linked to Lyme, it is intracelluar .. thats why we feel like every cell in

our bods is drains, because they are !! ..in reading one piece on

Mitochondrial Disorder, over doing it exercise etc wise has long term

harmful effects on Mitochondria in our cells, that we can not regain .. now,

thats scarey !! True or not I know I know I try and take it easy. Just do a

search on Mitochondria Disorder by itself and with the word Lyme as well,

and youll find info on it.

[Guest guest]

Qigong or Tai Chi easy are great ways to get exercise without harming

muscle or tissue.

It also is great for lymph node drainage which is a natural way to detox.

Just make

sure to drink lots of water during the day.

Elaina

_____

From:

[mailto: ] On Behalf Of Sharon Schaefer

Sent: Tuesday, July 14, 2009 9:42 PM

Subject: Re: [ ] Re: exercise

I feel so much better if I go to the gym and get at least 30 minutes of

cardio and then work with the machines a bit. My pain goes away. I have way

more energy. I just feel good all over. My daughter (14) also has chronic

lyme and while it is sometimes difficult to drag her to the gym, she always

thanks me for doing it because of how good she feels when we are finished.

[Guest guest]

I was reading the exercise posts. I can't do anything. I use to speed walk 6

miles a day until Lyme. Now I can't make it up my stairs without being really

out of breath. Going to the store and such is exhausting. I gained over 80

pounds in four years. My doctors keep saying to loose weight. DUH! If I could I

would. I get so frustrated with them. I hate being so heavy.

Jaye

________________________________

~

Enjoy the little things,

for one day you may look back and realize

they were the big things.

~ Brault

~

[Guest guest]

Jaye,

Take heart. Treat the lyme. Since starting treatment, I've been able to lose 40

pounds (in 2 1/2 years). In the deepest throes of the illness, it was simply

impossible to lose. Doctors who focus on the weight gain are looking at the

wrong problem; weight gain is a symptom not the illness.

I did begin to do floor stretches when I could. I did not have the energy to do

standing poses or qui gung or anything that required standing, but i could lie

on the floor and do gentle stretches. I had to force myself to do it because of

lack of energy, and 20 minutes was considered a 'session'. But my muscles and

joints appreciated being stretched.

Do what you can. Best wishes, jo

>

> I was reading the exercise posts. I can't do anything. I use to speed walk 6

miles a day until Lyme. Now I can't make it up my stairs without being really

out of breath. Going to the store and such is exhausting. I gained over 80

pounds in four years. My doctors keep saying to loose weight. DUH! If I could I

would. I get so frustrated with them. I hate being so heavy.

>

> Jaye

>

>

> ________________________________

>

>

> ~

> Enjoy the little things,

> for one day you may look back and realize

> they were the big things.

> ~ Brault

> ~

>

>

>

>

>

[Guest guest]

Ok Jo. But it's really hard to be like this. I've dealt with the heaviness way

too long. I'm so out of breath and my muslces are very weak. I use to have good

strength. I was tiny but mighty. LOL. I have valance issues now that make even

walking hard at times. I had a bad fall in MAy, broke half a front tooth and did

a number to my lip and just above. Took four stitches to put lip back to where

it belongs. Laying down to do stretches sounds more my level at the moment. Yet

I dream often I'm out speed walking and in heaven.

Thank you for the input I'll try little steps to get started.

Jaye

Sent from my iPhone.

On Jul 18, 2009, at 10:04 AM, " judyjo27 " <judyjo44@...> wrote:

Jaye,

Take heart. Treat the lyme. Since starting treatment, I've been able to lose 40

pounds (in 2 1/2 years). In the deepest throes of the illness, it was simply

impossible to lose. Doctors who focus on the weight gain are looking at the

wrong problem; weight gain is a symptom not the illness.

I did begin to do floor stretches when I could. I did not have the energy to do

standing poses or qui gung or anything that required standing, but i could lie

on the floor and do gentle stretches. I had to force myself to do it because of

lack of energy, and 20 minutes was considered a 'session'. But my muscles and

joints appreciated being stretched.

Do what you can. Best wishes, jo

>

> I was reading the exercise posts. I can't do anything. I use to speed walk 6

miles a day until Lyme. Now I can't make it up my stairs without being really

out of breath. Going to the store and such is exhausting. I gained over 80

pounds in four years. My doctors keep saying to loose weight. DUH! If I could I

would. I get so frustrated with them. I hate being so heavy.

>

> Jaye

>

>

> ________________________________

>

>

> ~

> Enjoy the little things,

> for one day you may look back and realize

> they were the big things.

> ~ Brault

> ~

>

>

>

>

>

[Guest guest]

Oh jaye, I know exactly how you feel, having been there for many years. The

feeling of powerlessness and frustration about being fat on top of being so ill

was so painful. I'm still at least 40 pounds overweight, but I am on the way

down instead of stuck so its easier to cope with.

I tried several kinds of 'diets' to try to improve my health (before i was

diagnosed with lyme and cfids had no known cause or cure); what worked to slowly

begin to lose weight was a high protein diet based on the ideas in The Protein

Power Diet by Drs. Eades.

Now for several years I've been off and on raw foods. I went to the Optimum

Health Institute in San Diego for a detox on raw foods and wheatgrass. i had

wanted to go for years but was too sick! Each time I went, I got a little boost

and some weight loss.

But the most important thing for me was treating the lyme. I used Buhner.

As far as exercise, it was so hard to make myself even get down and stretch

because I was so fatigued. So I started giving myself a little sticker on a

calendar each time i did it. It was enough of a motivator to help. Sometimes in

the winter, there would only be 2 stickers on the calendar. Summers 6 or 8. With

treatment, my calendar got more and more peppered with stickers. Last summer I

swam 3 times a week. This summer I'm doing a wider variety of exercises,

including walking which I could not do before due to fatigue and pain.

I will be leaving the group here for a while because I am going to be a

'missionary' at the Optimum Health institute starting in August. It will be a

longer detox, demanding I know, but my goal is to come back healthier and

thinner.

Wising you the very best in your treatment Jaye.

jo

I am not promoting any kind of diet; just sharing my experience.

> >

> > I was reading the exercise posts. I can't do anything. I use to speed walk 6

miles a day until Lyme. Now I can't make it up my stairs without being really

out of breath. Going to the store and such is exhausting. I gained over 80

pounds in four years. My doctors keep saying to loose weight. DUH! If I could I

would. I get so frustrated with them. I hate being so heavy.

> >

> > Jaye

> >

> >

> > ________________________________

> >

> >

> > ~

> > Enjoy the little things,

> > for one day you may look back and realize

> > they were the big things.

> > ~ Brault

> > ~

> >

> >

> >

> >

> >

[Guest guest]

Thank you Jo for your advice and help. Best wishes and good luck next month.

Jaye

Sent from my iPhone.

On Jul 19, 2009, at 10:38 AM, " judyjo27 " <judyjo44@...> wrote:

Oh jaye, I know exactly how you feel, having been there for many years. The

feeling of powerlessness and frustration about being fat on top of being so ill

was so painful. I'm still at least 40 pounds overweight, but I am on the way

down instead of stuck so its easier to cope with.

I tried several kinds of 'diets' to try to improve my health (before i was

diagnosed with lyme and cfids had no known cause or cure); what worked to slowly

begin to lose weight was a high protein diet based on the ideas in The Protein

Power Diet by Drs. Eades.

Now for several years I've been off and on raw foods. I went to the Optimum

Health Institute in San Diego for a detox on raw foods and wheatgrass. i had

wanted to go for years but was too sick! Each time I went, I got a little boost

and some weight loss.

But the most important thing for me was treating the lyme. I used Buhner.

As far as exercise, it was so hard to make myself even get down and stretch

because I was so fatigued. So I started giving myself a little sticker on a

calendar each time i did it. It was enough of a motivator to help. Sometimes in

the winter, there would only be 2 stickers on the calendar. Summers 6 or 8. With

treatment, my calendar got more and more peppered with stickers. Last summer I

swam 3 times a week. This summer I'm doing a wider variety of exercises,

including walking which I could not do before due to fatigue and pain.

I will be leaving the group here for a while because I am going to be a

'missionary' at the Optimum Health institute starting in August. It will be a

longer detox, demanding I know, but my goal is to come back healthier and

thinner.

Wising you the very best in your treatment Jaye.

jo

I am not promoting any kind of diet; just sharing my experience.

> >

> > I was reading the exercise posts. I can't do anything. I use to speed walk 6

miles a day until Lyme. Now I can't make it up my stairs without being really

out of breath. Going to the store and such is exhausting. I gained over 80

pounds in four years. My doctors keep saying to loose weight. DUH! If I could I

would. I get so frustrated with them. I hate being so heavy.

> >

> > Jaye

> >

> >

> > ________________________________

> >

> >

> > ~

> > Enjoy the little things,

> > for one day you may look back and realize

> > they were the big things.

> > ~ Brault

> > ~

> >

> >

> >

> >

> >

[Guest guest]

I have really bad knees from arthritis. Bone on bone. I have to have fluid

take off them about every 2 months. My doctor doesn't want me doing any

exercise except for the pool but I don't have access to a pool right now. I was

wandering what you all do for exercise? Walking is out of the question because

when I do much walking or standing my knees swelling to the point where I cant

bend them. I have thought about trying a recumbent stationary bike. Ant

suggestions? I don't want to hurt my knees anymore but I do need some kind of

exercise.

Thanks,

P.S. Dr. took 64ml of fluid off my right knee yesterday and today I was down 4

pounds on the scale. That's how bad the fluid in my knees is.

[Guest guest]

Have you checked you local YMCA. They even have arthritis classes.

Suzanne Woodring <agapesue@...>

[Guest guest]

Hi,

Just to clarify about having insurance verses not, yes its always easier

to have insurance. You have to pay alot to get the needed care. The

premiums keep going up which makes it worrisome . Also for the girl that

is having a rough time, you will find your way. One step at a time. You

may want to go to church and ask for the clergy to help you. Regardless

of money PsA affects us all the same and having yourself heard in

cyberville is awesome and I hope that this helps. Look on the bright

side, you have your dog, you have computer access, you have a way to get

assistance. YOU LIVE IN AMERICA. YOU DO COME FIRST. DO NOT LOSE FAITH.

[Guest guest]

I did walking and cleaning house and looking after my farm was exercise.

Madderra #235

ASSE International Representative

Host Families Needed/www.asse.com

Gift Baskets and Floral arrangements

Order Now

www.mylabellabaskets.com/fsmfarms.html

417 288 0085

[ ] exercise

So I have heard that exercise is essential in the recovery of lyme, but how

can I exercise when I am so fatigued and sooooooooo dizzy??? I have gained 30

pounds in the last 8 months, without eating barely anything! I am already

depressed and miserable, adding all that weight makes me even more miserable,

has anybody been able to find some kind of exercise that helps get rid of the

lyme and keep the weight off while feeling so crummy/dizzy/tired????

Thank you

Bridget

[Guest guest]

Hello Bridget...Many lymies have thyroid problems and do not convert T4 to the

active form T3 and I think they are producing rT3 and the enzyme is disrupted. 

Get a thorough endocrine work up on all your hormones...Good Luck...also a diet

without yeast and sugar is helpful...Dolores

From: bridget <blueyes7648@...>

Subject: [ ] exercise

Date: Friday, March 19, 2010, 9:23 PM

 

So I have heard that exercise is essential in the recovery of lyme, but how can

I exercise when I am so fatigued and sooooooooo dizzy??? I have gained 30 pounds

in the last 8 months, without eating barely anything! I am already depressed and

miserable, adding all that weight makes me even more miserable, has anybody been

able to find some kind of exercise that helps get rid of the lyme and keep the

weight off while feeling so crummy/dizzy/ tired????

Thank you

Bridget

[Guest guest]

I have heard in the beginning not to expect to exercise and if you can to do

yoga or Pilates. After 6 months of treatment I can now function like a somewhat

normal person. I am thinking of trying my hand at pilates. I tried to Exercise

by walking vigorously a few weeks ago but it through me into a herx the next

day. I gained 50 pounds and don't eat alot either. Also my epinepherine levels

are really low. I wonder if that's common for lymies?

It is sooo frustrating because you can't fit into your normal clothes, you are

treated differently and although my sisters brother parents know I have Lyme

they still expect me to loose like I didn't have this disease. They don't

realize we aren't lazy and don't sit around eating Bon bons all day. Haha

My husband has been good but now that we see some recovery he even said him and

I should get gastric bypass. Haha. I had to help him remember what I eat every

day and that I don't have an appetite so that wouldn't make sense for me. Maybe

they can go in and cut all those bugs out. Haha

So I definately hear your frustration. Just keep telling yourself it's only

temporary. That's what I do for now.

Sincerely

Ann

Sent from my iPhone

On Mar 19, 2010, at 2:23 PM, " bridget " <blueyes7648@...> wrote:

So I have heard that exercise is essential in the recovery of lyme, but how can

I exercise when I am so fatigued and sooooooooo dizzy??? I have gained 30 pounds

in the last 8 months, without eating barely anything! I am already depressed and

miserable, adding all that weight makes me even more miserable, has anybody been

able to find some kind of exercise that helps get rid of the lyme and keep the

weight off while feeling so crummy/dizzy/tired????

Thank you

Bridget

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

Ann...you probably have thyroid issues...please see an endocrinologist and ask

to have him/her check out all your hormones...free T4, free T3 , rT3 and all

others....lymies have lots of endocrine issues....Do you have a good LLMD ? 

Also if you cut out bread products ...no yeast or sugar..that should

help....Good Luck on your journey to recovery...and start doing some research

to  figure out all the issues ...my e-mail is dclaesson@...,

Dolores

So I have heard that exercise is essential in the recovery of lyme, but how can

I exercise when I am so fatigued and sooooooooo dizzy??? I have gained 30 pounds

in the last 8 months, without eating barely anything! I am already depressed and

miserable, adding all that weight makes me even more miserable, has anybody been

able to find some kind of exercise that helps get rid of the lyme and keep the

weight off while feeling so crummy/dizzy/ tired????

Thank you

Bridget

------------ --------- --------- ------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix. net/health/ lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl. com/23dgy8

[Guest guest]

Try and walk every day. It builds up your muscles and strength and helps

depression. Just push yourself a little each day. This is what I did and this is

what helped me get better. I forced myself to walk every day and I did farm work

as I could.

arah Madderra #235

ASSE International Representative

Host Families Needed/www.asse.com

Gift Baskets and Floral arrangements

Order Now

www.mylabellabaskets.com/fsmfarms.html

417 288 0085

Re: [ ] exercise

It's worth a shot. Though my experience with this has not been good.

I've got my thyroid, adrenal (yes, the epi levels issue is common with Lyme,

too), and reproductive hormones nicely supported. Have had for a decade, and it

did help with some symptoms, which is why I'll vociferously recommend this as

good symptomatic relief to anybody who'll listen. And I've been doing Pilates as

part of my PT (which after eight months is getting me nowhere in terms of

reconditioning), and try to get a walk or two in every week. And, like most of

us, I eat about a meal and a half per day.

But none of this has done much more than stabilize my weight. I'm 60 pounds

up, and have been sitting right here at 212 pounds (give or take) since the last

millennium. It's not going anywhere, and there's not much I can do about it.

I've tried everything Lymies and CFS patients are supposed to do. I've finally

just accepted that this is how it is.

I'd consider a lapband, but I know people who've been really messed up by

them. Also, I don't recover quickly from anesthesia -- it takes months for that

crud to clear my system. And finally: I'm really dubious that I could eat much

less than I already do and still function.

BTW: I've got a new problem that I'm trying to understand. Over the past six

months, I've developed full-blown, constant arthritis in almost every major

joint. In the past, it was mainly just my left knee and the small joints in my

hands -- Lyme arthritis was a minor symptom for me compared to the

neuroborreliosis and carditis. But now it's both knees, my right hip, and both

shoulders (one of which is freezing up tight). Also: there's an intermittent

sharp ache in my lower right leg that is sometimes so painful I just want to

cry. (This may have been the bite site; no idea if that's connected.)

This is all brand new, and I'm wondering if the antibiotics might actually be

aggravating it. It cropped up around the time of my last abx switcharound, which

was in October, so I'm wondering if this antibiotic combo is somehow targeting

my joints, and this is a herx that happens to look like arthritis. Or if I'm

having an inflammatory reaction caused by the abx themselves, which is

manifesting as arthritis. Or if the physical therapy is creating problems of its

own (I've laid off it for the past month). Or if it's just the door prize for

making it past 50, and would have happened regardless of Lyme. (I did get an MRI

on my left knee, and they found quite a bit of arthritic stuff in the joint.)

Not sure how to puzzle this one out, but it sure seems odd to be having this

classic Lyme symptom flare up so strongly as I headed into my second year of

treatment. Thoughts?

Sara

On Mar 20, 2010, at 10:38 53AM, Dolores Claesson wrote:

> Ann...you probably have thyroid issues...please see an endocrinologist and

ask to have him/her check out all your hormones...free T4, free T3 , rT3 and all

others....lymies have lots of endocrine issues....Do you have a good LLMD ? Also

if you cut out bread products ...no yeast or sugar..that should help....Good

Luck on your journey to recovery...and start doing some research to figure out

all the issues ...my e-mail is dclaesson@..., Dolores

>

>

>

> So I have heard that exercise is essential in the recovery of lyme, but how

can I exercise when I am so fatigued and sooooooooo dizzy??? I have gained 30

pounds in the last 8 months, without eating barely anything! I am already

depressed and miserable, adding all that weight makes me even more miserable,

has anybody been able to find some kind of exercise that helps get rid of the

lyme and keep the weight off while feeling so crummy/dizzy/ tired????

> Thank you

> Bridget

>

> ------------ --------- --------- ------

>

> Lyme Disease News continually updated from thousands of sources around the

> net: http://www.topix. net/health/ lyme-disease

>

> MedWorm: The latest items on: Lyme Disease

> http://tinyurl. com/23dgy8

>