Re: PLEASE HELP! On the verge....

[Guest guest]

my daughter uses Seroquel. It works on the moods as well as the pain. However,

if that's not an option our doctor has also used Abilify and Zoloft with kids.

Psychotropic meds absolutely work on the Lyme mood things. Zoloft is good for

anxiety in general and might help as it is used for OCD as well. My kids have

had help from Cymbalta as well (and that works on the neuro pain too).

I wouldn't rule out herbs too quickly.

This is so tough. Definitely try the psych drugs.

Natasha

________________________________

From: exec5565 <exec5565@...>

Sent: Thu, February 3, 2011 6:32:40 PM

Subject: [ ] PLEASE HELP! On the verge....

My daughter is 9 and has Lyme and Bartonella. She recently had a midline put in

for IV treatment of Rocephin because her rage attacks were out of control. She

was like a wild animal. 3 days into treatment, she got a 6 inch blood clot which

luckily we caught and are now treating with 2 injections daily of Lovenox. For a

child who is already so anxious, and can't even stand in the bathroom by

herself, you can just imagine how the shots are going.

At the moment, we are not treating Lyme or Bartonella because I am nervous to

use any herbs (which is what Dr. C primarily uses for treatment) because of

their effect on the blood clot. We have met with a couple of Psychiatrists to

try to find a psychotropic drug to help calm my daughter during this time and

during treatment. One doc recommended Seroquel. Another Abilify. There is a

strong history of Diabetes in the family so we quickly ruled out Seroquel. Her

symptoms are rage, anger, hostility, anxiety, fear, OCD and motor and vocal

tics.

Has anyone had any luck with Psychotropic drugs with their children and if so,

can you provide any guidance as to which drugs you have worked with?

Thanks so much. I am treading water over here....

Best,

[Guest guest]

My daughter tried Seroquel -- though more for her severe insomnia than for her

psych symptoms. It did help to even her out slightly but she then started having

precocious breast development (and she was five). We did not have much success

with psych meds prior to antibiotics -- she was on Zyprexa, which made the rages

much much worse, and also tried Risperadol -- which had some mild positive

effects but again worsened her raging and also seemed to cause her to lose

fluids rapidly (through urinary incontinence -- not a known side effect, which

puzzled the doctors).

I think a lot depends on what's going on with the child, especially in relation

to brain chemistry. During the height of her Lyme my daughter often had unusual

responses to meds -- even with something like Benedryl, which should have made

her sleepy, it would rev her up. Now she is on dexedrine to help with focus and

while her dose should be out of her system by noon-ish or so, what actually

happens is that we see it leave her system by late afternoon and dinner time, so

things seem to remain in her system at lesser doses for much longer. Perhaps

that was the problem for her with the psych meds -- her doctors tried increasing

and that made things far worse rather than better.

Sorry to hear about the rages -- I am surprised to find out how many more

children seem to have them. In my daughter's situation, I had to physically

restrain her or she would self-injure (biting herself or smashing her head into

the floor). She was pretty much unable to leave the house. Treatment got rid of

them -- the last one was four months into antibiotics. She never did receive IV

-- only orals, and the rages went when she had sulfa added to her mepron/azith

combo -- because our Lyme specialist suspected bart.

But it is so challenging for a parent to deal with.

>

> my daughter uses Seroquel. It works on the moods as well as the pain.

However,

> if that's not an option our doctor has also used Abilify and Zoloft with kids.

> Psychotropic meds absolutely work on the Lyme mood things. Zoloft is good for

> anxiety in general and might help as it is used for OCD as well. My kids have

> had help from Cymbalta as well (and that works on the neuro pain too).

>

> I wouldn't rule out herbs too quickly.

>

> This is so tough. Definitely try the psych drugs.

>

>

> Natasha

>

>

>

>

> ________________________________

> From: exec5565 <exec5565@...>

>

> Sent: Thu, February 3, 2011 6:32:40 PM

> Subject: [ ] PLEASE HELP! On the verge....

>

>

> My daughter is 9 and has Lyme and Bartonella. She recently had a midline put

in

> for IV treatment of Rocephin because her rage attacks were out of control. She

> was like a wild animal. 3 days into treatment, she got a 6 inch blood clot

which

> luckily we caught and are now treating with 2 injections daily of Lovenox. For

a

> child who is already so anxious, and can't even stand in the bathroom by

> herself, you can just imagine how the shots are going.

>

>

> At the moment, we are not treating Lyme or Bartonella because I am nervous to

> use any herbs (which is what Dr. C primarily uses for treatment) because of

> their effect on the blood clot. We have met with a couple of Psychiatrists to

> try to find a psychotropic drug to help calm my daughter during this time and

> during treatment. One doc recommended Seroquel. Another Abilify. There is a

> strong history of Diabetes in the family so we quickly ruled out Seroquel. Her

> symptoms are rage, anger, hostility, anxiety, fear, OCD and motor and vocal

> tics.

>

>

> Has anyone had any luck with Psychotropic drugs with their children and if so,

> can you provide any guidance as to which drugs you have worked with?

>

> Thanks so much. I am treading water over here....

>

> Best,

>

>

>

>

>

>

>

[Guest guest]

My daughter (and one of my other children, who is non-Lyme) have been on

Abilify, Geodon, Seroquel (daughter only), Trazadone, Prozac, Klonipin, and

Clonodine.

Abilify - has been " my best friend " , for us, this has been the wonder drug for

mood stabilization.

Geodon - has been quite good, almost as good as Abilify, but with my daughter

she became " immune " to it after a few months, which was when we made the change

to Abilify. Geodon can also limit which abx can be taken with it.

Seroquel - prescribed in November by my daughter's new LLMD. She only took it

about a week, then went off of it. It left her feeling way too drugged and she

didn't like it.

Prozac - worked well, but wasn't enough by itself. We used it in conjuction

with Abilify.

Klonipin - worked well for anxiety in my son, however with my daughter she had a

severe tremor that occurred when taking it (known side effect). My son still

takes it when necessary for anxiety, however my daughter can't take it as the

side effect is too severe.

Clonodine - off label use as an anti-anxiety med, works on blood pressure, which

in turn lowers anxiety. Didn't make a drastic difference.

Trazadone - prescribed for sleep (off label use) for my daughter. Didn't even

come close to making her sleepy, even at above the highest dose for an adult.

Didn't affect her mood either.

Charlotte

iamwhimsy@...

http://whimsy.t35.com

[ ] PLEASE HELP! On the verge....

My daughter is 9 and has Lyme and Bartonella. She recently had a midline put

in for IV treatment of Rocephin because her rage attacks were out of control.

She was like a wild animal. 3 days into treatment, she got a 6 inch blood clot

which luckily we caught and are now treating with 2 injections daily of Lovenox.

For a child who is already so anxious, and can't even stand in the bathroom by

herself, you can just imagine how the shots are going.

At the moment, we are not treating Lyme or Bartonella because I am nervous to

use any herbs (which is what Dr. C primarily uses for treatment) because of

their effect on the blood clot. We have met with a couple of Psychiatrists to

try to find a psychotropic drug to help calm my daughter during this time and

during treatment. One doc recommended Seroquel. Another Abilify. There is a

strong history of Diabetes in the family so we quickly ruled out Seroquel. Her

symptoms are rage, anger, hostility, anxiety, fear, OCD and motor and vocal

tics.

Has anyone had any luck with Psychotropic drugs with their children and if so,

can you provide any guidance as to which drugs you have worked with?

Thanks so much. I am treading water over here....

Best,

[Guest guest]

Effexor was what worked best for my son after trials on several other things

that made him manic. Once he started Lyme treatment, it was 3 months and things

got better. Then he started IV and many of those neurological mood problems have

gone away. We also treat the ADHD and see a more stable kid with adderall. He

was in a very dark place for about a year until diagnosis and treatment.

I hope things get better for you!

Kari

[Guest guest]

My daughter finds more benefit in taking Charcoal and /or Questran than she has

with any psych drugs. She has been very sensitive to the toxins of the Lyme

Disease, Bartonella, and Babesia. I also suspect she has secondary porphyria -

because Tagamet usually calms her anxiety. My daughter also suffered from severe

separation anxiety, but that has been gone for a couple of years. Don't stop

treatment - it will get better.

>

> My daughter is 9 and has Lyme and Bartonella. She recently had a midline put

in for IV treatment of Rocephin because her rage attacks were out of control.

She was like a wild animal. 3 days into treatment, she got a 6 inch blood clot

which luckily we caught and are now treating with 2 injections daily of Lovenox.

For a child who is already so anxious, and can't even stand in the bathroom by

herself, you can just imagine how the shots are going.

>

> At the moment, we are not treating Lyme or Bartonella because I am nervous to

use any herbs (which is what Dr. C primarily uses for treatment) because of

their effect on the blood clot. We have met with a couple of Psychiatrists to

try to find a psychotropic drug to help calm my daughter during this time and

during treatment. One doc recommended Seroquel. Another Abilify. There is a

strong history of Diabetes in the family so we quickly ruled out Seroquel. Her

symptoms are rage, anger, hostility, anxiety, fear, OCD and motor and vocal

tics.

>

> Has anyone had any luck with Psychotropic drugs with their children and if so,

can you provide any guidance as to which drugs you have worked with?

>

> Thanks so much. I am treading water over here....

>

> Best,

>

>

>

[Guest guest]

So sorry to hear about all the difficulties your daughter is having. Didn't she

have 6 weeks of IV in the fall that really helped her a lot? Did they have to

pull the midline this time because of the clot?

I'm sorry I don't have any advice or suggestions on psychotropic drugs. I just

wanted to tell you to hang in there! I hope things turn around soon for you and

your daughter!

Beth

>

> My daughter is 9 and has Lyme and Bartonella. She recently had a midline put

in for IV treatment of Rocephin because her rage attacks were out of control.

She was like a wild animal. 3 days into treatment, she got a 6 inch blood clot

which luckily we caught and are now treating with 2 injections daily of Lovenox.

For a child who is already so anxious, and can't even stand in the bathroom by

herself, you can just imagine how the shots are going.

>

> At the moment, we are not treating Lyme or Bartonella because I am nervous to

use any herbs (which is what Dr. C primarily uses for treatment) because of

their effect on the blood clot. We have met with a couple of Psychiatrists to

try to find a psychotropic drug to help calm my daughter during this time and

during treatment. One doc recommended Seroquel. Another Abilify. There is a

strong history of Diabetes in the family so we quickly ruled out Seroquel. Her

symptoms are rage, anger, hostility, anxiety, fear, OCD and motor and vocal

tics.

>

> Has anyone had any luck with Psychotropic drugs with their children and if so,

can you provide any guidance as to which drugs you have worked with?

>

> Thanks so much. I am treading water over here....

>

> Best,

>

>

>

[Guest guest]

what do you exactly mean by mood stabilization ??

From: CT <iamwhimsy@...>

Subject: Re: [ ] PLEASE HELP! On the verge....

Date: Thursday, February 3, 2011, 11:49 PM

My daughter (and one of my other children, who is non-Lyme) have been on

Abilify, Geodon, Seroquel (daughter only), Trazadone, Prozac, Klonipin, and

Clonodine.

Abilify - has been " my best friend " , for us, this has been the wonder drug for

mood stabilization.

Geodon - has been quite good, almost as good as Abilify, but with my daughter

she became " immune " to it after a few months, which was when we made the change

to Abilify.  Geodon can also limit which abx can be taken with it.

Seroquel - prescribed in November by my daughter's new LLMD.  She only took it

about a week, then went off of it.  It left her feeling way too drugged and she

didn't like it.

Prozac - worked well, but wasn't enough by itself.  We used it in conjuction

with Abilify.

Klonipin - worked well for anxiety in my son, however with my daughter she had a

severe tremor that occurred when taking it (known side effect).  My son still

takes it when necessary for anxiety, however my daughter can't take it as the

side effect is too severe.

Clonodine - off label use as an anti-anxiety med, works on blood pressure, which

in turn lowers anxiety.  Didn't make a drastic difference.

Trazadone - prescribed for sleep (off label use) for my daughter.  Didn't even

come close to making her sleepy, even at above the highest dose for an adult. 

Didn't affect her mood either.

Charlotte

iamwhimsy@...

http://whimsy.t35.com

  [ ] PLEASE HELP! On the verge....

   

  My daughter is 9 and has Lyme and Bartonella. She recently had a midline put

in for IV treatment of Rocephin because her rage attacks were out of control.

She was like a wild animal. 3 days into treatment, she got a 6 inch blood clot

which luckily we caught and are now treating with 2 injections daily of Lovenox.

For a child who is already so anxious, and can't even stand in the bathroom by

herself, you can just imagine how the shots are going.

  At the moment, we are not treating Lyme or Bartonella because I am nervous to

use any herbs (which is what Dr. C primarily uses for treatment) because of

their effect on the blood clot. We have met with a couple of Psychiatrists to

try to find a psychotropic drug to help calm my daughter during this time and

during treatment. One doc recommended Seroquel. Another Abilify. There is a

strong history of Diabetes in the family so we quickly ruled out Seroquel. Her

symptoms are rage, anger, hostility, anxiety, fear, OCD and motor and vocal

tics.

  Has anyone had any luck with Psychotropic drugs with their children and if so,

can you provide any guidance as to which drugs you have worked with?

  Thanks so much. I am treading water over here....

  Best,