Fw: Response of CDC to a fellow lymie...notice e-mail on bottom let's write them

[Guest guest]

 

Hello,

 

Your inquiry was forwarded to CDC's Division of Vector-Borne Diseases. We are

sorry to hear of your health issues.  Please be assured that CDC is constantly

reviewing the scientific literature and makes recommendations according the

quality of the scientific evidence.  At this juncture, the risk of extended

antibiotic treatment well outweighs any perceived benefits.  As a public health

agency, we are concerned not just about those with true Lyme disease, but also

the multitudes of people being misdiagnosed with Lyme disease and treated for a

disease that is not the cause of their symptoms.

 

Many of the statements that you make in your email are not accurate, and are

examples of the type of misinformation that is spread through the internet and

many advocacy groups regarding Lyme disease.  In fact, if someone is not

diagnosed until later stages of illness, IV antibiotics are recommended (not

oral).  That may not have been the case back then, but scientific evidence has

demonstrated that to be the case.  Unfortunately, there are a small number of

people, who receive appropriate treatment, still continue to have symptoms.  The

cause of this is unknown, but there has been no evidence to support the idea

that these people are still actively infected.  There is a lot of current

research on this front, and the leading hypothesis at this time is that it is an

autoimmune response (this is not that unusual in infectious diseases). The

mainstream medical community has searched for the cause for these symptoms, and

there have been 4 placebo

controlled clinical trials to assess whether continued antibiotic treatment was

helpful for these patients.  No long lasting improvement was shown over placebo.

Anecdotes of recovery with nonstandard treatments are shared widely, but you

can't base scientific recommendations on anecdotes.  It is incumbent upon the

proponents of continued and nonstandard treatment for Lyme disease to do the

research needed to demonstrate the position that they so strongly believe in. 

In the meantime, there are many doctors and laboratories that operate a " for

profit " business diagnosing anyone with Lyme disease. The reason some clinicians

have been brought up on disciplinary charges is not because they operate outside

the mainstream, it is because patients have suffered dire consequences from

their experimental treatments, and some have even died.

 

Sincerely,

 

Centers for Disease Control and Prevention

Division of Vector-Borne Diseases

Bacterial Diseases Branch

Fort , Colorado

email:dvbid@...

 

 

[Guest guest]

" if someone is not diagnosed until later stages of illness, IV antibiotics are

recommended (not oral) "

However, when my daughters were diagnosed, the insurance company based their

denial of payment on the fact that IV antibiotics were not shown to help past

one month.

I hate this disease and all the well-intentioned idiots out there who completely

buy the IDSA cabal's line.

Ugh.

________________________________

From: Dolores Claesson <dclaesson@...>

Sent: Fri, February 4, 2011 7:10:24 AM

Subject: [ ] Fw: Response of CDC to a fellow lymie...notice

e-mail on bottom let's write them

Hello,

Your inquiry was forwarded to CDC's Division of Vector-Borne Diseases. We are

sorry to hear of your health issues. Please be assured that CDC is constantly

reviewing the scientific literature and makes recommendations according the

quality of the scientific evidence. At this juncture, the risk of extended

antibiotic treatment well outweighs any perceived benefits. As a public health

agency, we are concerned not just about those with true Lyme disease, but also

the multitudes of people being misdiagnosed with Lyme disease and treated for a

disease that is not the cause of their symptoms.

Many of the statements that you make in your email are not accurate, and are

examples of the type of misinformation that is spread through the internet and

many advocacy groups regarding Lyme disease. In fact, if someone is not

diagnosed until later stages of illness, IV antibiotics are recommended (not

oral). That may not have been the case back then, but scientific evidence has

demonstrated that to be the case. Unfortunately, there are a small number of

people, who receive appropriate treatment, still continue to have symptoms. The

cause of this is unknown, but there has been no evidence to support the idea

that these people are still actively infected. There is a lot of current

research on this front, and the leading hypothesis at this time is that it is an

autoimmune response (this is not that unusual in infectious diseases). The

mainstream medical community has searched for the cause for these symptoms, and

there have been 4 placebo

controlled clinical trials to assess whether continued antibiotic treatment was

helpful for these patients. No long lasting improvement was shown over placebo.

Anecdotes of recovery with nonstandard treatments are shared widely, but you

can't base scientific recommendations on anecdotes. It is incumbent upon the

proponents of continued and nonstandard treatment for Lyme disease to do the

research needed to demonstrate the position that they so strongly believe in.

In the meantime, there are many doctors and laboratories that operate a " for

profit " business diagnosing anyone with Lyme disease. The reason some clinicians

have been brought up on disciplinary charges is not because they operate outside

the mainstream, it is because patients have suffered dire consequences from

their experimental treatments, and some have even died.

Sincerely,

Centers for Disease Control and Prevention

Division of Vector-Borne Diseases

Bacterial Diseases Branch

Fort , Colorado

email:dvbid@...