Feel like I am going crazy!

[Guest guest]

Some of you might remember I have written before about our struggle with school

for my 7yo with lyme disease. We got neuropsych testing with a lyme literate

neuropsych which came up with lot of cognitive deficits, language issues,

sensory and attention issues, and was interpreted and explained in the context

of lyme disease. The school insisted on their own testing; I got the reports

back last week and the dreaded IEP mtg to discuss is tomorrow. All that is on

the neuropsych report has been discredited (no surprise), by the school either

saying they got different results, or the cog deficits that did come up were

attriuted to attention issues and a label of ADHD was splapped on. They say he

has no language issues. I called a private language pathologist today who spoke

to me at length, and it is clear that she would not be able to interpret the

symptoms in context of Lyme. Problems with reading could be language, could be

attentional. He could benefit from small classes of a private school, or he

could need language and reading resources a private school does not have. I am

reluctant to get a full eval with her, as I think she would just label him with

ADHD too. She says an ADHD label could work in our favor to get accomodations;

the lyme literate neuropsych tells me not to have him labeled that. It is all so

layered and complicated, I don't know what to fight for or what school setting

is best for him anymore. My head is spinning and I don't feel like there is

anyone qualified to tell us really what is going on with him and to advise us.

Because we think this is congenital, I have no baseline to go on.

DOES anyone know of a lyme literate speech pathologist?

Thanks,

Dara