misc

[Guest guest]

Gretchen,

I think it was you talking about your body " locking " up. When I sleep my arm

is under my pillow. When I awake I must pick up my arm with the opposite

hand. The part that hurts and can't move is the upper arm between shoulder

and elbow. Is this what you meant by locking up?

Anesthetic...What is the problem here? I once had thyroid surgery and spent

an extra four hours in recovery unable to be awakened. When I did wake up it

felt like the elephants had just left my chest.. I'm concerned as my

brother(skinny legs) but no other major problems is having surgery. He had

seeds implanted for cancer of the prostate and they failed. Now he is facing

major surgery. His son is the one of my family that has the CMT symptoms .

If my brother doesn't have CMT, is he a carrier being his son has it? Would

a carrier be in just as much jeopardy.

I haven't received my packets yet from CMTI and CMTA that's why I'm asking

the experts.

I had mentioned that the past years progression of symptoms is what made me

look again for answers. Since my bx in December my symptoms have really

progressed. My right leg has been most affected. Now my left feels very weak

at the ankle. the right side of my torso(back) feels like it freezes up upon

rising from a sitting position,(need to sit and try again) face and neck

twitches, swallowing has been a problem for awhile. Vision has gotten way

worse.Hands aren't affected but finger dexterity is awful. Is it possible

for these things to go into remission or slow down or do I need to start

drawing up plans for my ranch house with wide hallways quick? I know

everyone is different but what's the general consensus on this? I wonder too

how the fatigue factor enters into this. Surgery, bad chemical burn on my

leg from something sprayed on during surgery, Holidays, back to work,

admittedly I'm tired. Also have a husband who had a brain injury and when

things get stressful his Obsessive compulsive behaviors get worse. To add to

the stress. Before Christmas he had shopping money on him. He went to a

diner for lunch-long story short-he paid a waitress's electric bill $380. It

was to be turned off the next day. Fortunately he went to the electric co.

and paid it but it sure wasn't in my budget.

Sorry this is so long, but just needing some answers.

Judi