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Hi all --

My daughter just turned thirteen today.  She has been in treatment since last

August and really seemed to have turned the corner a month ago -- back in school

for almost 4 straight weeks, energy, happy ... then about 2 weeks ago she

tanked.  I chalked it up to estrogen surge with PMS, then to the barometric

pressure (lots of rain).  A week went by and I expected her to get better. 

Another week.  Her birthday party was on Saturday and she went to see Wicked

with a couple of friends -- huge treat.  She fell asleep halfway through the

second act of the afternoon show.  She rested all day yesterday and today, woke

up with excruciating pain and bone-tired.  She just woke up and is reading in

bed.  Happy Birthday :0(

So my question -- have you had kids who went through much treatment, then got

better, then a LOT worse and if so how did you address it and how long was the

setback generally speaking?  Because my daughter is still a lot better than when

she was seen in October (when we switched to a great LLMD from an overly

experimental one) but she is in rough shape.

Any feedback appreciated.

Thanks

Natasha

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