Has anyone tried Oriencia for PA and had any bad side effects?

[Guest guest]

Hi Group, I feel bad for not posting for so long, but arthritis

moved

into my hands and it's made being on the computer harder than ever.

I

saw my rheumy yesterday and he said the inflammation is running wild

right now in my body and he wants me to try Oriencia, for PA. I know

it's normally only approved for RA, but there has been a lot of

controversy between my doctors on whether I'm dealing with PA or RA,

or both. So he thinks he can get it approved.

From what I've read about this drug, my biggest problem is going to

be the fact

that I have COPD. My lungs have been really clear though since last

January when I caught a bad chest infection from my daughter over

Christmas. I also had really severe reactions to Humira, Enbrel and

Methotrexate. I ended up in congestive hearth failure, and my lungs

have never been the same from taking Humira, even though it was only

10 days. I also know my doctor plans on monitoring me after taking

this new drug for several hours to make sure no reaction occurs.

I guess all that sounds pretty depressing and you wonder why I would

even try a new strong drug that hasn't even been approved for PA

yet? I guess it's reached the point where I'm so desperate I'm ready

to give

up without trying something new. I'm on pain meds, and they help

some, and I probably wouldn't make it withtout them, but they

don't take away all the pain. Let's face it nothing really ever

does. I also need a double knee replacement as

soon as possible, but my diabetes has been out of control as well,

mainly due to my use of predisone, and that's not good for surgery,

but

then neither is Oriensa either. I think the idea is to hope this

cuts

the inflammation back and then go off of it once my sugar is ok and

then I can have the surgery. I'm not an easy patient as far as my

health goes to say the least, but I have a great doctor and I totally

trust him. Any advice

on this drug would be great.

Thanks again adn I hope everyone h as a wonderful holdiay.

Love, Fran staying warm in Florida

[Guest guest]

I did not have luck with Orcenia. Was on it for approx. 8 months. For the

first 6 months remained on steroids . When they took me off the steroids,

the flare ups were the worst I think I ever had. Inflammation was

unbelievable, and the psoriasis became terrible. On my face, groin, etc on top

of all

the other places. But I gave it a try, and am now back on Enbrel. It is not

working as well as the first time I was on it a few years back. But it seems

to work the best of them for me. Remicade didn't work either, that was when

I went back on the steriods. I wish you luck. I am always willing to try

something new if the pain is so bad I cant take it anymore. Let me know how

it works for you.

God bless

Happy Holidays

Joyce

[Guest guest]

Hi, Fran! I don't have any answers to your questions but just wanted

to say how good it is to hear from you again - I missed you. I'm sorry

to hear how rough things have been. I hope that something, Orencia or

something else, will be able to help. Keep us posted if you can. And

know that whether you post often or not, you are not forgotten! best

regards, sherry z

>

> Hi Group, I feel bad for not posting for so long, but arthritis

> moved

>

[Guest guest]

Fran, I'm new to this group and wish I could offer you some help! The

more I read about PA the stupider I feel! I have just begun to ask

some questions and learn what I can. My doc (dermatologist)

suggested Humira but I'm quite hesitant to start it.

In the meantime I'm going to try some supplements. One that I used

to reduce inflammation after knee surgery (it helped tremendously) and

a couple others that I've known about and used but used them

half-heartedly.

I hope very much for you that you will find some answers.

> I saw my rheumy yesterday and he said the inflammation is running >wild right

now in my body and he wants me to try Oriencia, for PA.