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Enbrel and psoriasis

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Welcome Libby,

I am surprised that neither the pred nor mtx took the ps away. I did not

have that much ps, mostly was on my scalp, but when I was on pred it started

going away, and then when I started the mtx, it all went away. I finally

weined myself off the prednisone but sometimes wonder if I shouldn't start it

again. I hated the way if had me all puffed up. I also have fibromyalgia and

nothing so far helps with that pain. Glad you are here and sorry you need to

be. You will find lots of friends here and lots of different reactions to the

same drugs and treatments. You then can draw your own conclusions. God

Bless.

Janet in Ca

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Hi Libby

We take the same cocktails(g). I believe enbrel is known to work

better on the arthritis component than the skin, some folks have

changed from Enbrel to Humira to get better skin control.

Since you had such a positive reaction to antibiotics, maybe you would

like to investigate the Antibiotic Protocol (AP)treatment? I don't

have the references close at hand ( I'm not on this personally ), but

I'm sure someone here will pipe up and provide. My bet is you would

have a good response.

Although I'm 60-70% better and very thankful for it, I still get mild

to moderate flares and an occasional skin patch - have this one

stubborn spot on my nose that must really love steroid cream(g).

Best regards -

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  • 2 years later...

Backstory: I have had PA for about 7 years and psoriasis for 17. The

PA appeared after my 7 year old was born. I was able to get my

symptoms under control and go into a remission of sorts until I had a

baby 4 months ago. I have had a terrible flare up and now my psoriasis

which was only on my scalp and ears is now spreading everywhere! I

have spots on my arms and legs and back. I am wondering how well you

all think Enbrel works on the pain and if it helps with the psoriasis

and if anyone has any suggestions on controlling the psoriasis. I am

having to wear long sleeves everyday and don't know what I'll do when

it starts getting warmer if I can't control this. Just wanted some

advice before heading back to the rheumy. Thanks!

" lainyf75 " <lainyf75@...>

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Hi,

I am exactly like you plus -2-. 27 years.

Enbrel did not help me at all. Neither with pain, nor with psoriasis.

But as you know, every body reacts in its special, specific way.

I wish it will do you better. I left Enbrel behind me.

Arie

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Hi,

You may have to get a cream or one of those special lamps used for

depression, for the red spots in the winter but in summer please expose

these spots to the sun for very short periods as the sun will help get

rid of them.

I tried Enbrel and had a very bad reaction, but it really did help with

the pain, lack of energy, and psoriasis. Keep an eye on the injection

spot and if you see anything that doesn't look right let your doctor

know immediately.

Some people take glucosamine tablets or other things from a health food

store for arthritis -- your choice. You may want to use goats milk

soap or at least something along that line. You can buy soap with tar

in it from the US if you are interested. You probably already know

about the special shampoos available.

Lastly, please remember your family and friends will still love you

with or without red spots, so as a last resort spend your valuable time

thinking about them and don't worry about the spots.

One last item -- you may want to keep an eye on your kids because

psoriasis/arthritis is hereditary and most of the time shows in the

teen years.

Good luck and keep in touch.

SD

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