Re: Conducting an unofficial pool of Lymeaid members

[Guest guest]

HI Natasha,

My son was diagnosed with ADHD,OCD, Tourettes, Bipolar, and PDD-NOS  prior to

his lyme diagnosis

..

My son shows no signs of tourettes anymore. He does have ocd , adhd, bipolar and

pdd-nos symptoms, although I do not believe he has any of those diagnosis's.

 I agree with your theory!!!!

Hugs

Judy

________________________________

From: Natasha Moiseyev <nmoiseyev@...>

Sent: Fri, July 23, 2010 3:43:40 PM

Subject: [ ] Conducting an unofficial pool of Lymeaid members

 

I am curious, because I am researching (in the sense of reading all the

available literature I can find on the subject) how many of you have children

who were diagnosed with some sort of autistic spectrum condition and then it

turned out it was Lyme? Questions:

1. Was your child diagnosed with ADD, ADHD, Auditory Processing Disorder,

Autism, Asperger's ... If so, which one(s)?

2. How was your child diagnosed with Lyme?

3. Did the autism spectrum symptoms subside with treatment?

4. How long was treatment before symptoms subsided?

I have a child who was diagnosed bipolar, ADHD, and auditory processing disorder

over the years. She turned out to have Lyme and coinfections and after 1 year

of treatment she is almost completely off her Ritalin patches. I have a theory

that the rise in autism in our country may correlate to the rise in

(undiagnosed) Lyme...

NAtasha

[Guest guest]

follow up -- does his doc (LLMD?) say that the Lyme is gone?

Forgot to ask about coinfections....

Thanks for your speedy response! I'm interested to see how this plays out.

:0) N

________________________________

From: jchabot <jchabot@...>

Sent: Fri, July 23, 2010 12:49:48 PM

Subject: Re: [ ] Conducting an unofficial pool of Lymeaid members

HI Natasha,

My son was diagnosed with ADHD,OCD, Tourettes, Bipolar, and PDD-NOS prior to

his lyme diagnosis

..

My son shows no signs of tourettes anymore. He does have ocd , adhd, bipolar and

pdd-nos symptoms, although I do not believe he has any of those diagnosis's.

I agree with your theory!!!!

Hugs

Judy

________________________________

From: Natasha Moiseyev <nmoiseyev@...>

Sent: Fri, July 23, 2010 3:43:40 PM

Subject: [ ] Conducting an unofficial pool of Lymeaid members

I am curious, because I am researching (in the sense of reading all the

available literature I can find on the subject) how many of you have children

who were diagnosed with some sort of autistic spectrum condition and then it

turned out it was Lyme? Questions:

1. Was your child diagnosed with ADD, ADHD, Auditory Processing Disorder,

Autism, Asperger's ... If so, which one(s)?

2. How was your child diagnosed with Lyme?

3. Did the autism spectrum symptoms subside with treatment?

4. How long was treatment before symptoms subsided?

I have a child who was diagnosed bipolar, ADHD, and auditory processing disorder

over the years. She turned out to have Lyme and coinfections and after 1 year

of treatment she is almost completely off her Ritalin patches. I have a theory

that the rise in autism in our country may correlate to the rise in

(undiagnosed) Lyme...

NAtasha

[Guest guest]

The doc has not said his lyme is gone. We have an appt with the LLMD on

Thursday.He only tested with a weak positive for babesia as far as co infections

go.

I hope this is helpful for you!

Hugs'judy

________________________________

From: Natasha Moiseyev <nmoiseyev@...>

Sent: Fri, July 23, 2010 3:53:14 PM

Subject: Re: [ ] Conducting an unofficial pool of Lymeaid members

 

follow up -- does his doc (LLMD?) say that the Lyme is gone?

Forgot to ask about coinfections....

Thanks for your speedy response! I'm interested to see how this plays out.

:0) N

________________________________

From: jchabot <jchabot@...>

Sent: Fri, July 23, 2010 12:49:48 PM

Subject: Re: [ ] Conducting an unofficial pool of Lymeaid members

HI Natasha,

My son was diagnosed with ADHD,OCD, Tourettes, Bipolar, and PDD-NOS prior to

his lyme diagnosis

..

My son shows no signs of tourettes anymore. He does have ocd , adhd, bipolar and

pdd-nos symptoms, although I do not believe he has any of those diagnosis's.

I agree with your theory!!!!

Hugs

Judy

________________________________

From: Natasha Moiseyev <nmoiseyev@...>

Sent: Fri, July 23, 2010 3:43:40 PM

Subject: [ ] Conducting an unofficial pool of Lymeaid members

I am curious, because I am researching (in the sense of reading all the

available literature I can find on the subject) how many of you have children

who were diagnosed with some sort of autistic spectrum condition and then it

turned out it was Lyme? Questions:

1. Was your child diagnosed with ADD, ADHD, Auditory Processing Disorder,

Autism, Asperger's ... If so, which one(s)?

2. How was your child diagnosed with Lyme?

3. Did the autism spectrum symptoms subside with treatment?

4. How long was treatment before symptoms subsided?

I have a child who was diagnosed bipolar, ADHD, and auditory processing disorder

over the years. She turned out to have Lyme and coinfections and after 1 year

of treatment she is almost completely off her Ritalin patches. I have a theory

that the rise in autism in our country may correlate to the rise in

(undiagnosed) Lyme...

NAtasha

[Guest guest]

good luck and let me know how it goes.

hugs

Natasha

________________________________

From: jchabot <jchabot@...>

Sent: Fri, July 23, 2010 1:01:34 PM

Subject: Re: [ ] Conducting an unofficial pool of Lymeaid members

The doc has not said his lyme is gone. We have an appt with the LLMD on

Thursday.He only tested with a weak positive for babesia as far as co infections

go.

I hope this is helpful for you!

Hugs'judy

________________________________

From: Natasha Moiseyev <nmoiseyev@...>

Sent: Fri, July 23, 2010 3:53:14 PM

Subject: Re: [ ] Conducting an unofficial pool of Lymeaid members

follow up -- does his doc (LLMD?) say that the Lyme is gone?

Forgot to ask about coinfections....

Thanks for your speedy response! I'm interested to see how this plays out.

:0) N

________________________________

From: jchabot <jchabot@...>

Sent: Fri, July 23, 2010 12:49:48 PM

Subject: Re: [ ] Conducting an unofficial pool of Lymeaid members

HI Natasha,

My son was diagnosed with ADHD,OCD, Tourettes, Bipolar, and PDD-NOS prior to

his lyme diagnosis

..

My son shows no signs of tourettes anymore. He does have ocd , adhd, bipolar and

pdd-nos symptoms, although I do not believe he has any of those diagnosis's.

I agree with your theory!!!!

Hugs

Judy

________________________________

From: Natasha Moiseyev <nmoiseyev@...>

Sent: Fri, July 23, 2010 3:43:40 PM

Subject: [ ] Conducting an unofficial pool of Lymeaid members

I am curious, because I am researching (in the sense of reading all the

available literature I can find on the subject) how many of you have children

who were diagnosed with some sort of autistic spectrum condition and then it

turned out it was Lyme? Questions:

1. Was your child diagnosed with ADD, ADHD, Auditory Processing Disorder,

Autism, Asperger's ... If so, which one(s)?

2. How was your child diagnosed with Lyme?

3. Did the autism spectrum symptoms subside with treatment?

4. How long was treatment before symptoms subsided?

I have a child who was diagnosed bipolar, ADHD, and auditory processing disorder

over the years. She turned out to have Lyme and coinfections and after 1 year

of treatment she is almost completely off her Ritalin patches. I have a theory

that the rise in autism in our country may correlate to the rise in

(undiagnosed) Lyme...

NAtasha

[Guest guest]

Natasha,

Check out the L.I.A. Foundation at www.lymeinducedautism.com for lots of info on

this topic.

Both of my children were diagnosed with multiple psych and neurological

conditions. My little one became completely autistic-like in a matter of weeks

following his tick bite. He also was very much involved in terms of anxiety/OCD,

psychosis, and movement disorder symptoms. His personality changed dramatically

and he became violent. We got him treatment quickly and the majority of these

dissipated over the following few months, though the anxiety stuck and continues

to the present (this was 2 1/2 years ago).

My oldest was dx with ADHD, non-verbal learning disability, anxiety, tic

disorder and had Central Auditory Processing and Sensory Integration Disorders.

He's been treated for 2 years now (misdiagnosed for 8) and has NONE of these any

longer. Last year was his 1st year in Middle School and he received straight A's

all 4 quarters and moved into honors classes. For both of my sons, the

Bartonella was viewed by their LLMD as the origin of the neuropsych sx, but

research shows that Lyme can also be the culprit.

I work in a large school district and see this often with kids. It breaks my

heart that this is happening over and over again. Some parents go ahead with my

advice to assess for lyme and OTBI's but many don't. They go to their children's

pediatricians and are usually told that this is impossible. The children

continue to suffer. Families suffer needlessly. Marriages break apart from all

the stress. This is a stealth illness on so many levels. It's absolutely

shameful that this is happening in the United States! Who could ever imagine?

Anyway, keep researching and spreading the word. At some point the truth will be

exposed.

Peace,

Kim

Sent on the Sprint® Now Network from my BlackBerry®

[ ] Conducting an unofficial pool of Lymeaid members

I am curious, because I am researching (in the sense of reading all the

available literature I can find on the subject) how many of you have children

who were diagnosed with some sort of autistic spectrum condition and then it

turned out it was Lyme? Questions:

1. Was your child diagnosed with ADD, ADHD, Auditory Processing Disorder,

Autism, Asperger's ... If so, which one(s)?

2. How was your child diagnosed with Lyme?

3. Did the autism spectrum symptoms subside with treatment?

4. How long was treatment before symptoms subsided?

I have a child who was diagnosed bipolar, ADHD, and auditory processing disorder

over the years. She turned out to have Lyme and coinfections and after 1 year

of treatment she is almost completely off her Ritalin patches. I have a theory

that the rise in autism in our country may correlate to the rise in

(undiagnosed) Lyme...

NAtasha

[Guest guest]

oh, THANKS! I will. And pass it onto our psychiatrist. DAughter just got off

Ritalin, 1st time since diagnosis 5 years ago, 1 yr after beginning treatment.

I think there is so much there to explore...

________________________________

From: " kimperrymsw@... " <kimperrymsw@...>

Sent: Fri, July 23, 2010 1:22:10 PM

Subject: Re: [ ] Conducting an unofficial pool of Lymeaid members

Natasha,

Check out the L.I.A. Foundation at www.lymeinducedautism.com for lots of info on

this topic.

Both of my children were diagnosed with multiple psych and neurological

conditions. My little one became completely autistic-like in a matter of weeks

following his tick bite. He also was very much involved in terms of anxiety/OCD,

psychosis, and movement disorder symptoms. His personality changed dramatically

and he became violent. We got him treatment quickly and the majority of these

dissipated over the following few months, though the anxiety stuck and continues

to the present (this was 2 1/2 years ago).

My oldest was dx with ADHD, non-verbal learning disability, anxiety, tic

disorder and had Central Auditory Processing and Sensory Integration Disorders.

He's been treated for 2 years now (misdiagnosed for 8) and has NONE of these any

longer. Last year was his 1st year in Middle School and he received straight A's

all 4 quarters and moved into honors classes. For both of my sons, the

Bartonella was viewed by their LLMD as the origin of the neuropsych sx, but

research shows that Lyme can also be the culprit.

I work in a large school district and see this often with kids. It breaks my

heart that this is happening over and over again. Some parents go ahead with my

advice to assess for lyme and OTBI's but many don't. They go to their children's

pediatricians and are usually told that this is impossible. The children

continue to suffer. Families suffer needlessly. Marriages break apart from all

the stress. This is a stealth illness on so many levels. It's absolutely

shameful that this is happening in the United States! Who could ever imagine?

Anyway, keep researching and spreading the word. At some point the truth will be

exposed.

Peace,

Kim

Sent on the Sprint® Now Network from my BlackBerry®

[ ] Conducting an unofficial pool of Lymeaid members

I am curious, because I am researching (in the sense of reading all the

available literature I can find on the subject) how many of you have children

who were diagnosed with some sort of autistic spectrum condition and then it

turned out it was Lyme? Questions:

1. Was your child diagnosed with ADD, ADHD, Auditory Processing Disorder,

Autism, Asperger's ... If so, which one(s)?

2. How was your child diagnosed with Lyme?

3. Did the autism spectrum symptoms subside with treatment?

4. How long was treatment before symptoms subsided?

I have a child who was diagnosed bipolar, ADHD, and auditory processing disorder

over the years. She turned out to have Lyme and coinfections and after 1 year

of treatment she is almost completely off her Ritalin patches. I have a theory

that the rise in autism in our country may correlate to the rise in

(undiagnosed) Lyme...

NAtasha

[Guest guest]

Natasha,

If your doctor is willing to hear the info, Dr. Bransfield did a wonderful

presentation on the Lyme/Autism connection at last year's ILADS conference. It's

on disk in powerpoint format. I can help you get it if you want it. Quite

fabulous. All research-based.

Kim

Sent on the Sprint® Now Network from my BlackBerry®

[ ] Conducting an unofficial pool of Lymeaid members

I am curious, because I am researching (in the sense of reading all the

available literature I can find on the subject) how many of you have children

who were diagnosed with some sort of autistic spectrum condition and then it

turned out it was Lyme? Questions:

1. Was your child diagnosed with ADD, ADHD, Auditory Processing Disorder,

Autism, Asperger's ... If so, which one(s)?

2. How was your child diagnosed with Lyme?

3. Did the autism spectrum symptoms subside with treatment?

4. How long was treatment before symptoms subsided?

I have a child who was diagnosed bipolar, ADHD, and auditory processing disorder

over the years. She turned out to have Lyme and coinfections and after 1 year

of treatment she is almost completely off her Ritalin patches. I have a theory

that the rise in autism in our country may correlate to the rise in

(undiagnosed) Lyme...

NAtasha

[Guest guest]

I would love to and yes, he is very open minded -- treating my kids has been eye

opening for him.

________________________________

From: " kimperrymsw@... " <kimperrymsw@...>

Sent: Sat, July 24, 2010 6:38:07 AM

Subject: Re: [ ] Conducting an unofficial pool of Lymeaid members

Natasha,

If your doctor is willing to hear the info, Dr. Bransfield did a wonderful

presentation on the Lyme/Autism connection at last year's ILADS conference. It's

on disk in powerpoint format. I can help you get it if you want it. Quite

fabulous. All research-based.

Kim

Sent on the Sprint® Now Network from my BlackBerry®

[ ] Conducting an unofficial pool of Lymeaid members

I am curious, because I am researching (in the sense of reading all the

available literature I can find on the subject) how many of you have children

who were diagnosed with some sort of autistic spectrum condition and then it

turned out it was Lyme? Questions:

1. Was your child diagnosed with ADD, ADHD, Auditory Processing Disorder,

Autism, Asperger's ... If so, which one(s)?

2. How was your child diagnosed with Lyme?

3. Did the autism spectrum symptoms subside with treatment?

4. How long was treatment before symptoms subsided?

I have a child who was diagnosed bipolar, ADHD, and auditory processing disorder

over the years. She turned out to have Lyme and coinfections and after 1 year

of treatment she is almost completely off her Ritalin patches. I have a theory

that the rise in autism in our country may correlate to the rise in

(undiagnosed) Lyme...

NAtasha

[Guest guest]

My son has been diagnosed with a tic disorder. He meets the criteria for

Tourette's now, but we haven't been back to the neuro to get that " official "

diagnosis. I figured out it was Lyme before then. He has some mild behavioral

issues as well (emotional lability, attention issues, etc.), but nothing

officially diagnosed.

My son was diagnosed with Lyme after I found info online about Lyme causing

motor tics, took him to a new doc and requested testing through IGeneX. He had

a history of tick bites 6 months prior to the motor tics starting.

We have seen minimal improvement so far, but I'm still hopeful. He's been in

treatment about 5 months.

Beth

>

> I am curious, because I am researching (in the sense of reading all the

> available literature I can find on the subject) how many of you have children

> who were diagnosed with some sort of autistic spectrum condition and then it

> turned out it was Lyme? Questions:

>

> 1. Was your child diagnosed with ADD, ADHD, Auditory Processing Disorder,

> Autism, Asperger's ... If so, which one(s)?

> 2. How was your child diagnosed with Lyme?

> 3. Did the autism spectrum symptoms subside with treatment?

> 4. How long was treatment before symptoms subsided?

>

> I have a child who was diagnosed bipolar, ADHD, and auditory processing

disorder

> over the years. She turned out to have Lyme and coinfections and after 1 year

> of treatment she is almost completely off her Ritalin patches. I have a

theory

> that the rise in autism in our country may correlate to the rise in

> (undiagnosed) Lyme...

>

> NAtasha

>

>

>

[Guest guest]

Thinking of you and hoping things turn around for him soon. Sounds like htere

is lots of room for hope.

Warmly

Natasha

________________________________

From: mom2_jt <mbnienaber@...>

Sent: Mon, July 26, 2010 6:16:05 PM

Subject: [ ] Re: Conducting an unofficial pool of Lymeaid members

My son has been diagnosed with a tic disorder. He meets the criteria for

Tourette's now, but we haven't been back to the neuro to get that " official "

diagnosis. I figured out it was Lyme before then. He has some mild behavioral

issues as well (emotional lability, attention issues, etc.), but nothing

officially diagnosed.

My son was diagnosed with Lyme after I found info online about Lyme causing

motor tics, took him to a new doc and requested testing through IGeneX. He had

a history of tick bites 6 months prior to the motor tics starting.

We have seen minimal improvement so far, but I'm still hopeful. He's been in

treatment about 5 months.

Beth

>

> I am curious, because I am researching (in the sense of reading all the

> available literature I can find on the subject) how many of you have children

> who were diagnosed with some sort of autistic spectrum condition and then it

> turned out it was Lyme? Questions:

>

> 1. Was your child diagnosed with ADD, ADHD, Auditory Processing Disorder,

> Autism, Asperger's ... If so, which one(s)?

> 2. How was your child diagnosed with Lyme?

> 3. Did the autism spectrum symptoms subside with treatment?

> 4. How long was treatment before symptoms subsided?

>

> I have a child who was diagnosed bipolar, ADHD, and auditory processing

>disorder

>

> over the years. She turned out to have Lyme and coinfections and after 1 year

> of treatment she is almost completely off her Ritalin patches. I have a

theory

>

> that the rise in autism in our country may correlate to the rise in

> (undiagnosed) Lyme...

>

> NAtasha

>

>

>

[Guest guest]

My son started to display an eye tick half way through his fifth grade school

year. It developed into a head toss as well, Ped. said it was just a tick, like

the mildest form of tourettes perhaps brought on by stress. That summer he

started complaining of frequent stomache pains and fatigue by November he also

had blurry vision,leg pains and weakness,headaches. Ped treated him for a sinus

infection with a Z-pack and it all went downhill from there. His eye tick

increased till one night it was constant. Once we finally figured out he had

Lyme Disease months later and started treatment the eye/head tick was the first

symptom to go and hasn't returned despite all of the stressful circumstances he

has seen through out his long recovery.