PA - Doctors and Legislation!

October 6, 2010

Hello all, especially those discussing teens/youth with Lyme -- It is just

horrendous that this suffering, and the challenges of coping. Sometimes it

just hits me again how absolutely horrible it is - how amazingly

resilient you all can be, and how very much we need LEGISLATIVE action in this

state.

I am chair of LymeActionPA - if you are in PA - please take note -- we

started this all volunteer state-wide coalition of Lyme support and advocacy

groups last year as part getting Lyme legislation passed in PA.

1) If you need doctors, you can email: _montcolyme@..._

(mailto:montcolyme@...) or _lymepa@..._ (mailto:lymepa@...)

.. You can

also call LDASEPA, (not toll free) at 610-388-7333. They do a fabulous

job of doctor referrals. Also - please do NOT name doctors in writing here -

there are many reasons why doctors names treating Lyme longer-term should

not be publicly " out there " . Email privately with names.

2) If you have not already been added to the LymeActionPA email list,

please go to _www.lymeactionpa.com_ (http://www.lymeactionpa.com) - and click

on the " add me to your email list " link. And, if you can document and

share your story, or your child's, please do - we are collecting these and

using them with Senators/Representatives -they are very impactful. You can

email to _lymeactionpa@..._ (mailto:lymeactionpa@...) . We have 3

kids in my family affected - these stories, your stories need to be

documented and told.

3) For anyone that has been tracking PA Senate Bill #1199 - we got a

positive response but NO ACTION - due primarily to the insurance provision, and

the very short session this fall (3 weeks) due to elections -- noone wants

to be involved in anything " controversial " . We need to gear up for FAST

ACTION for next year -- WHAT WE NEED ARE PEOPLE WILLING TO STAY CLOSELY

CONNECTED AND IN THEIR SENATORS/REPRESENTATIVES FACES. We need to have more

PEOPLE talking to their legislators and getting in front of them - we had a

great showing at the 6/22/10 public hearing, but after that not enough. And -

if you have any personal political connections, we NEED them - this made

the difference in other states. Contact me at _montcolyme@..._

(mailto:montcolyme@...) if you do.

Thank you - let's join together and make this issue HEARD and acted on.

The education and physician protection parts of the bill got a good response

- insurance will be the tough part, and we need your VOICE and data!

- Wagner, Chair LymeActionPA, _montcolyme@..._

(mailto:montcolyme@...)

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