Re: 9yr. old son dx of erlichia

[Guest guest]

my daughter tested positive for erlichia.  It basically is similar to LYme in

the symptoms -- just makes them worse.  Yuck.  I will try to find a link

though. 

Natasha

From: le Handy <kndplus2@...>

Subject: [ ] 9yr. old son dx of erlichia

" Lyme Treatment " <Lyme Treatment >

Date: Wednesday, January 6, 2010, 11:26 AM

 

hi all,

my son just turned 9 and has had lots of symptoms the last 3 or so years. he

tested for lyme and coinfections with igenex and just got the results that

he is positive for erlichia and highly suspicous for lyme. anyone else have

children that tested for erlichia? i don't know anything about it and find

little on the internet.

thanks,

danielle

[Guest guest]

natasha,

did your daughter test positive for anything else including lyme? is she in

treatment? is she getting better? i felt prepared to hear lyme and possibly

the other co's but have no clue what this one is about.

thanks for any info!

danielle

On Wed, Jan 6, 2010 at 9:46 PM, Natasha Moiseyev <nmoiseyev@...>wrote:

>

>

> my daughter tested positive for erlichia. It basically is similar to LYme

> in the symptoms -- just makes them worse. Yuck. I will try to find a link

> though.

>

> Natasha

>

>

>

> From: le Handy <kndplus2@... <kndplus2%40gmail.com>>

> Subject: [ ] 9yr. old son dx of erlichia

> " Lyme Treatment "

<Lyme Treatment <Lyme Treatment%40>

> >

> Date: Wednesday, January 6, 2010, 11:26 AM

>

>

>

>

> hi all,

>

> my son just turned 9 and has had lots of symptoms the last 3 or so years.

> he

>

> tested for lyme and coinfections with igenex and just got the results that

>

> he is positive for erlichia and highly suspicous for lyme. anyone else have

>

> children that tested for erlichia? i don't know anything about it and find

>

> little on the internet.

>

> thanks,

>

> danielle

>

>

[Guest guest]

Oh boy, did she ever.  She tested positive for Lyme, Erlichia, Bartonella and

Babesia.  Royal flush!  That's all they tested her for -- for all we know she

has mycoplasma and bubonic plague, lol.

She is in treatment with a great LLMD now.  We love him.  He has been

targeting the Bart symptoms because they were the most problematic, and in the

last month has blasted the Lyme.  It has made her hurt a lot, but her brain

seems to be functioning better (she was diagnosed with ADHD, auditory processing

disorder and bipolar before we got the Lyme dx).  Her doctor says that the Lyme

will hit the joints on its way out -- that is a good sign that it is mobilizing

out of her brain.  Ack!  He also said kids who are still growing have a great

chance of completely outgrowing all this stuff.

As far as erlichia info, I don't know a lot.  I DO know there are two forms,

monocytic and granulocytic.  My daughter has the former.  I also know that

left untreated it *can* (but doesn't always) kill because it attacks the

spleen.  It can also be really mild.

Here is a little synopsis I found somewhere:

Ehrlichiosis is a bacterial infection that invades and infects the

white blood cells. There are two types of Ehrlichiosis: Human Monocytic

Ehrlichiosis (HME) and Human Granulocytic Ehrlichiosis (HGE). Symptoms

include malaise, fever, sweating, nausea, dry cough, headache, anemia,

muscle aches and pain. First line treatment is most often Doxycycline,

Minocycline and/or Rifampin. but Cipro, Levaquin, Biaxin and

Azithromycin have shown in some cases to be effective.

My daughter (who is 11 1/2 by the way)  was on Doxy before and it was too hard

on her body and not esp effective, and also on Levaquin which is not appropriate

for kids.  That was when we switched doctors.  She is now on Rifampin and

Azithromycin and we see progress. 

Erlichia is one that people often don't talk about.  It does seem to have less

on the internet about it, but hopefully this information will help a bit. 

Sorry for your son's trouble but glad of the diagnoses and beginning of

treatment.  People DO get better if treated!

Warmly,

Natasha

>

> From: le Handy <kndplus2gmail (DOT) com <kndplus2%40gmail. com>>

> Subject: [ ] 9yr. old son dx of erlichia

> " Lyme Treatment " <Lyme Treatment<Lyme Treatment%

40groups. com>

> >

> Date: Wednesday, January 6, 2010, 11:26 AM

>

>

>

>

> hi all,

>

> my son just turned 9 and has had lots of symptoms the last 3 or so years.

> he

>

> tested for lyme and coinfections with igenex and just got the results that

>

> he is positive for erlichia and highly suspicous for lyme. anyone else have

>

> children that tested for erlichia? i don't know anything about it and find

>

> little on the internet.

>

> thanks,

>

> danielle

>

>