Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 Many in the Gulf war consumed gallons of soda pop sweetened with aspartane which breaks down into formic acid and methyl alcohol which in turn will create formaldehyde and attacks the nerve system ( Gulf war syndrome???????). A good web site on the is www.dorway.com/nomarkle/html W. Pfeiffer,D.C.;D,A.B.C.O. P. O. Box 606 Pendleton, Or. 97801 541. 276.2550 Re: Myasthenia Gravis Carl I am sure that by now you have got all the info on MG. I have had a few pts with it but the most interseting was a pt who was dx'd with it after the first gulf war. He started off with flu s/s then fatigue and when it was full bore the only real s/s was he would lose control of eye mvmnt and start getting double vision. The army docs figured it out and he leads a fairly normal life except that he has to watch his activity level, if he goes to hard for a few days it usually takes about a week of rest to catch up. I dont think this one fell under the " Gulf War " syndrome pts bbecause it was dx'd and tx'd but have not heard of any others getting MG after the war. What alot of people didn't hear was ALL of the soldiers were vacinated for a variety of conditions and situations. The kicker is that alot of these vaccines were not approved by the FDA so these vacines were not administered on US soil, alot of the soliers did not get vaccinated untill they were in Kuait hmmm...kind of makes you wonder! Dr. Charlie Caughlin DC 155 NW 1st Ave Day, Or 97845 off 541-575-1063 hm 541-575-1103 fax 541-575-5554 ----- Myasthenia Gravis > Anybody have any information or thoughst on Myasthenia Gravis > > Carl Bonofiglio ------- End of Original Message ------- OregonDCs rules: 1. Keep correspondence professional; the purpose of the listserve is to foster communication and collegiality. No personal attacks on listserve members will be tolerated. 2. Always sign your e-mails with your first and last name. 3. The listserve is not secure; your e-mail could end up anywhere. However, it is against the rules of the listserve to copy, print, forward, or otherwise distribute correspondence written by another member without his or her consent, unless all personal identifiers have been removed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 In a message dated 7/9/2005 2:30:13 PM Eastern Standard Time, DeTannous@... writes: Lately I started drinking Scandishake to help gain weight. After I started drinking it (for about a week), I started feeling really weighed down and my muscles have started aching. I haven't noticed any visible weight gain so I don't think it's the extra weight that's causing this. I was wondering if anyone else who drinks Scandishake has gone through this. I've stopped drinking it but if this is normal (growing pains), then I want to keep drinking it b/c it doesn't taste half bad and i need to fatten up a bit. Weird! I've gained 3 lbs in a little under 2 weeks, but haven't had any pain or anything. Are you maybe getting sick? Amy Wife to Will 11/3/95 Mama to Olivia Isabelle 9/18/03 A new addition due 12/05 http://www.babiesonline.com/babies/o/oliviathegreat/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 In a message dated 7/9/2005 5:22:12 P.M. Pacific Standard Time, those2@... writes: Umm...maybe you've gained but not enough to notice. Can your caregiver weigh you so you can keep track? weighs himself and picks me up and we get weighed together, then of course, subtract. I haven't weighed myself in a loooooooong time. Maybe you're right though. There is a particular article of clothing that feels a little snug but I've chalked that up to female issues. That's how I usually measure if I've gained or lost weight.... by how my clothes fit. I guess I'll keep drinking it for another week and see what happens and how the clothes fit. Deena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 In a message dated 7/9/2005 5:50:00 P.M. Pacific Standard Time, blueyedaze@... writes: Weird! I've gained 3 lbs in a little under 2 weeks, but haven't had any pain or anything. Are you maybe getting sick? No, I don't think I'm getting sick. Other than the aches and weakness, I feel fine... no increased secretions or anything. ::shrugs:: My body is so strange sometimes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 Yes...a few years ago I took a week out from work and drank 2 scandishakes a day. I gained 10 lbs. and happily went back to work. At work I noticed how weak I was (could barely lift a few sheets of paper). I thought maybe my sma was progressing but I figured out it was the extra weight. After awhile I must have gained my strength back because I eventually did the things I was doing before the weight gain. Umm...maybe you've gained but not enough to notice. Can your caregiver weigh you so you can keep track? weighs himself and picks me up and we get weighed together, then of course, subtract. Lori. DeTannous@... wrote: > Lately I started drinking Scandishake to help gain weight. After I > started > drinking it (for about a week), I started feeling really weighed down > and my > muscles have started aching. I haven't noticed any visible weight gain > so I > don't think it's the extra weight that's causing this. I was > wondering if > anyone else who drinks Scandishake has gone through this. I've stopped > drinking > it but if this is normal (growing pains), then I want to keep drinking > it b/c > it doesn't taste half bad and i need to fatten up a bit. > > Deena > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2005 Report Share Posted July 10, 2005 I did not drink supplements but did double my weight in 99. It has severely affected my strength. I cannot do even half of what i was doing then b/c my muscles cannot handel the extra weight. i was also in an extreme rehab program to try to gain what i lost and only gained a few fuctions, such as typing, sitting, and moving in my chair. i know most of u r not looking to dbl ur weight but that was my exp. Kimi In a message dated 7/9/2005 8:22:11 PM Eastern Daylight Time, those2@... writes: Yes...a few years ago I took a week out from work and drank 2 scandishakes a day. I gained 10 lbs. and happily went back to work. At work I noticed how weak I was (could barely lift a few sheets of paper). I thought maybe my sma was progressing but I figured out it was the extra weight. After awhile I must have gained my strength back because I eventually did the things I was doing before the weight gain. Umm...maybe you've gained but not enough to notice. Can your caregiver weigh you so you can keep track? weighs himself and picks me up and we get weighed together, then of course, subtract. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2005 Report Share Posted July 10, 2005 Good for you! L > > I've gained 3 lbs in a little under 2 weeks > Amy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2005 Report Share Posted July 10, 2005 Good luck! L DeTannous@... wrote: > > In a message dated 7/9/2005 5:22:12 P.M. Pacific Standard Time, > those2@... writes: > > Umm...maybe you've gained but not enough to notice. Can your caregiver > weigh you so you can keep track? weighs himself and picks me up > and we get weighed together, then of course, subtract. > > > I haven't weighed myself in a loooooooong time. Maybe you're right > though. > There is a particular article of clothing that feels a little snug but > I've > chalked that up to female issues. That's how I usually measure if I've > gained or > lost weight.... by how my clothes fit. I guess I'll keep drinking it for > another week and see what happens and how the clothes fit. > > Deena > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2005 Report Share Posted July 10, 2005 How did you gain so much wt.? L Ksmile96@... wrote: > I did not drink supplements but did double my weight in 99. It has > severely > affected my strength. I cannot do even half of what i was doing then > b/c my > muscles cannot handel the extra weight. i was also in an extreme > rehab program > to try to gain what i lost and only gained a few fuctions, such as > typing, > sitting, and moving in my chair. i know most of u r not looking to > dbl ur > weight but that was my exp. > Kimi > > > > > > > In a message dated 7/9/2005 8:22:11 PM Eastern Daylight Time, > those2@... writes: > Yes...a few years ago I took a week out from work and drank 2 > scandishakes a day. I gained 10 lbs. and happily went back to work. At > work I noticed how weak I was (could barely lift a few sheets of > paper). I thought maybe my sma was progressing but I figured out it was > the extra weight. After awhile I must have gained my strength back > because I eventually did the things I was doing before the weight gain. > > Umm...maybe you've gained but not enough to notice. Can your caregiver > weigh you so you can keep track? weighs himself and picks me up > and we get weighed together, then of course, subtract. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2005 Report Share Posted July 10, 2005 Kimi, I am the same way. I just gained 20 pounds within the last 8 months (nearly 1/3 of my previous weight) without eating the shakes and have seen a significant weakness. I am no longer transferring on my own. I have a harder time lifting my arms to my face to put on makeup, whereas I was able to pull a shirt over my head before the weight gain without help. I can't brush my own hair since gaining. I'm not standing on my own without assistance. I can't lift so many things or even bend over as far (little belly!). I expected becoming weaker when gaining. My doctor told me it was the one thing he was worried about when I told him I wanted to gain weight. For me, it's worth the compromise. I'm healthier and have a better chance of fighting off illnesses. I look great, can fill out clothing, shop in normal women's sections, and I feel more womanly and beautiful having curves instead of being boney. It's a choice we have to make, deciding between feeling good & being healthy and maintaining our strength a little longer. -Kendra > I did not drink supplements but did double my weight in 99. It has severely > affected my strength. I cannot do even half of what i was doing then b/c my > muscles cannot handel the extra weight. i was also in an extreme rehab program > to try to gain what i lost and only gained a few fuctions, such as typing, > sitting, and moving in my chair. i know most of u r not looking to dbl ur > weight but that was my exp. > Kimi > > > > > > > In a message dated 7/9/2005 8:22:11 PM Eastern Daylight Time, > those2@h... writes: > Yes...a few years ago I took a week out from work and drank 2 > scandishakes a day. I gained 10 lbs. and happily went back to work. At > work I noticed how weak I was (could barely lift a few sheets of > paper). I thought maybe my sma was progressing but I figured out it was > the extra weight. After awhile I must have gained my strength back > because I eventually did the things I was doing before the weight gain. > > Umm...maybe you've gained but not enough to notice. Can your caregiver > weigh you so you can keep track? weighs himself and picks me up > and we get weighed together, then of course, subtract. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2005 Report Share Posted July 10, 2005 In a message dated 7/10/2005 1:41:40 PM Eastern Standard Time, those2@... writes: Good for you! Thanks! Amy Wife to Will 11/3/95 Mama to Olivia Isabelle 9/18/03 A new addition due 12/05 http://www.babiesonline.com/babies/o/oliviathegreat/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2005 Report Share Posted July 10, 2005 This is an interesting subject for me too.. I weighed about 58-63 lbs most of my life until about 2 years ago.. I don't really know why I was finally able to gain some weight except that I really tried to increase my calorie intake. I also eat at night after I go to bed. Yogurt and cookies or cheese crackers, now I have been eating peanut butter at night. Anyway I am 56 years old now and since gaining the 15- 20 lbs I am much weaker. I never really noticed any progression of my strength for all those years (my onset was before birth but I am diagnosed as type 3) It used to be really easy to transfer to the toilet or my bed but now it seems to take everything I have. I can just barely sit up from the bed when I get up and since I have live-in PA I have her pull me up to sitting. I still do it myself every once in a while just to know that I still can. I figured that the transferring has to do the the extra weight but now that you guys are experiencing a similar weakness associated with weigh gain, I at least know it's not just me. Thanks for sharing. Elaine Those Two <those2@...> wrote: Yes...a few years ago I took a week out from work and drank 2 scandishakes a day. I gained 10 lbs. and happily went back to work. At work I noticed how weak I was (could barely lift a few sheets of paper). I thought maybe my sma was progressing but I figured out it was the extra weight. After awhile I must have gained my strength back because I eventually did the things I was doing before the weight gain. Umm...maybe you've gained but not enough to notice. Can your caregiver weigh you so you can keep track? weighs himself and picks me up and we get weighed together, then of course, subtract. Lori. DeTannous@... wrote: > Lately I started drinking Scandishake to help gain weight. After I > started > drinking it (for about a week), I started feeling really weighed down > and my > muscles have started aching. I haven't noticed any visible weight gain > so I > don't think it's the extra weight that's causing this. I was > wondering if > anyone else who drinks Scandishake has gone through this. I've stopped > drinking > it but if this is normal (growing pains), then I want to keep drinking > it b/c > it doesn't taste half bad and i need to fatten up a bit. > > Deena > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 In a message dated 7/10/2005 2:04:25 PM Eastern Daylight Time, those2@... writes: How did you gain so much wt.? L I was very sick and was put on TPN and then j tube feeds. Kimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Kendra, I didn't really want to gain this much weight but I can't seen to lose enough to gain some strength. I think it's been so long that I will never regain my abilities. Sometimes it's frustrating when I know 5 yrs ago I could transfer to bed, brush my teeth, put on make up, comb my hair, crawl, write, etc, esp when it comes to things concerning my bf and I. I always say if only we met 5 yrs ago.... Kimi In a message dated 7/10/2005 2:20:59 PM Eastern Daylight Time, kendranicole@... writes: Kimi, I am the same way. I just gained 20 pounds within the last 8 months (nearly 1/3 of my previous weight) without eating the shakes and have seen a significant weakness. I am no longer transferring on my own. I have a harder time lifting my arms to my face to put on makeup, whereas I was able to pull a shirt over my head before the weight gain without help. I can't brush my own hair since gaining. I'm not standing on my own without assistance. I can't lift so many things or even bend over as far (little belly!). I expected becoming weaker when gaining. My doctor told me it was the one thing he was worried about when I told him I wanted to gain weight. For me, it's worth the compromise. I'm healthier and have a better chance of fighting off illnesses. I look great, can fill out clothing, shop in normal women's sections, and I feel more womanly and beautiful having curves instead of being boney. It's a choice we have to make, deciding between feeling good & being healthy and maintaining our strength a little longer. -Kendra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 That'll do it! L Ksmile96@... wrote: > In a message dated 7/10/2005 2:04:25 PM Eastern Daylight Time, > those2@... writes: > How did you gain so much wt.? > > L > > > > I was very sick and was put on TPN and then j tube feeds. > Kimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 dont be upset when they refuse you as now they usually refuse at least one time to scare you away just keep fighting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 You can apply for social security disability at your local office. Then, when they send you a letter rejecting you, you need to get a lawyer for the appeal process. My lawyer is going to take 25% of the back pay when it's settled. But people say that without one, you never win. My lawyer just told me that my court date is a year away (if I was appearing in the city of St. Louis-it would be 18 mos.) I was hoping for the Medicare insurance (just incase my husband was laid off or something and I was ready for a transplant). I know what you mean about the energy level and weakness. I can't lift anything like I used to. A trip to Walmart and the grocery store wears me out. Today, I go to my primary care for a follow up-I've had double pneumonia for a week. I am worse than I was so I will probably be admitted to the hospital. Haven't stayed in a hospital since '97. I just want to get rid of this. Hope my experience with social security is helpful. The number of forms you fill out to appeal is a lot of fun, if you have any problems with confusion. I was in tears.. Connie <angel34@...> wrote: Jackie I to am unable to take Imuran because it makes me sick. I take CellCept now. I do not know if it works or not. I also take 20 mg of Prednison. My liver test are usually in the 60's I feal the same as when they are in the 400's. I have exstream weakness and get short of breath easly. I can walk 4 block at a time. It takes 3 hrs to do just my kitchen work because I have to take many breaks. I have only had AIH for a year and have not been able to return back to work as of yet. I am trying for disability, believe I will have to get a lawyer though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 THIS day and time you must have an attorney to get disability It just does not work without it as I have seen sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Dear Bee, thanks for your answer! I am hanging in there. Yesterday I felt 100x better after a hot shower, it must have helped to take some toxins out. Even the anxiety disappeared. I'm almost completely convinced my anxiety is candida toxin related and not psychological since I never had it 5 years ago. This diet has done miracles for me. The anxiety only flares up when I try to make changes (like now) or am going through a die-off. Sometimes my mind tries to play tricks on me and say things like it is all in your head, you don't have candida, you are a hypochondriac etc etc.. but then i just have to look through my notes (I have written all my symptoms down and graded them on a scale from 1 to 10, so it is easy to see what changes my body has undergone in just one and a half months) and feel strong again I got migraine for days also when i quit coffee or every time I started low carb diet. I know it is withdrawal/die-off but it is so hard to function, go to work and do other things when that happens. Oh well, it is worth it. Best! Ivanda ==>Hi Ivanda. Fatigue and migraines are a couple of the numerous die- off/healing/ detoxifying symptoms you can experience. See the article " Fatigue & Candida " ; http://www.healingnaturallybybee.com/articles/treat10.php Also your body will be retracing, or re-experiencing all past symptoms, illnesses, diseases, malfunctions, injuries, operations, etc., etc., including feeling the affects of any drugs, anesthetics, novacaine or other toxins as the body is detoxifying them. At the same time you will go through many emotional ups and downs. This article might help you understand better what is happening... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Thanks, Jecca! Actually I am feeling much better today, was a bit lightheaded in the morning, but now it's gone and my energy is so much better. Hurray!!! So relieved. I guess body needs to adjust to such changes, but now it seems to be happy to run on the good fats. So I'll give it a go. Cheers! Ivanda >>Hi Ivanda, I just wanted to say that if you are adding complex carbs back into your diet, make sure you are soaking them so they at least do not disturb nutrient absorption too much. http://www.healingn aturallybybee. com/articles/ foods18.php Jecca ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 > > Dear Bee, > > thanks for your answer! I am hanging in there. Yesterday I felt 100x better after a hot shower, it must have helped to take some toxins out. Even the anxiety disappeared. I'm almost completely convinced my anxiety is candida toxin related and not psychological since I never had it 5 years ago. This diet has done miracles for me. The anxiety only flares up when I try to make changes (like now) or am going through a die-off. Sometimes my mind tries to play tricks on me and say things like it is all in your head, you don't have candida, you are a hypochondriac etc etc.. but then i just have to look through my notes (I have written all my symptoms down and graded them on a scale from 1 to 10, so it is easy to see what changes my body has undergone in just one and a half months) and feel strong again ==>You are making progress Ivana! Good for you! Unfortunately natural healing is not a steady uphill climb towards complete health; it has its ups and downs. As you continue your good days will increase! Keep up the good work my friend! I also kept a journal when I was curing my candida. It made it easier to see that I was making progress. I also had a point system for doing the things that would help me get well, i.e. walking, taking supplements, eating 3 meals a day, communicating with family and friends, etc. The best, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 I always believed that to recover we need to approach the problem from all possible angles: physically, mentally and spiritually In fact, I am having fun in the process, it's like my own personal project and I am very motivated to see it through. I read the information on anxiety and other mental issues. Makes a lot of sense to me. Thanks again, Bee. This group you created is truly God sent. Ivanda > ==>You are making progress Ivanda! Good for you! Unfortunately > natural healing is not a steady uphill climb towards complete health; > it has its ups and downs. As you continue your good days will > increase! Keep up the good work my friend! > > I also kept a journal when I was curing my candida. It made it > easier to see that I was making progress. I also had a point system > for doing the things that would help me get well, i.e. walking, > taking supplements, eating 3 meals a day, communicating with family > and friends, etc. > > The best, Bee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 > > I always believed that to recover we need to approach the problem from > all possible angles: physically, mentally and spiritually In fact, > I am having fun in the process, it's like my own personal project and > I am very motivated to see it through. > > I read the information on anxiety and other mental issues. Makes a lot > of sense to me. Thanks again, Bee. This group you created is truly God > sent. ==>You are so welcome Ivanda, and thanks. I am honored and humbled to be able help so many people. Luv & Hugs, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 > > Hi Bee, > I have been on the diet for 3 weeks now and have had some good days but > alot of the time I feel weak and lethargic. Especially after I eat. I > also feel hungry alot...even when my stomach is filled and completely > distended. I look like one of the starving children with a big belly > and nothing else. Thank you for all your support and information! Any > advice for how I can pick up my energy. I haven't been able to work or > even begin to look for a job because of my energy level. > ps:(I can't get myself to drink raw eggs) Hi there. What is your name please? Feeling weak, lethargic and fatigued is part of the healing process, caused by candida being killed off, which is called die-off symptoms. In addition it takes time for your body to switch over from running on carbs to running on good fats, and in the meantime it may cause symptoms. To understand more about healing/die-off reactions see this article: http://www.healingnaturallybybee.com/articles/heal2.php Also see this article " Fatigue and Candida " ; http://www.healingnaturallybybee.com/articles/treat10.php The eggs aren't totally raw in my egg drink, since boiling water is added which quickly turns the egg whites to white, which means they are cooked. This drink is more like a " smoothie " and you certainly won't notice it starts with raw eggs. Hang in there. Such symptoms will come and go as your body heals. The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 > > Hi Bee, Sorry, my name is Rose.. I sent you a message to your personal email already but I do have other questions...If I have low blood sugar will this diet make those symptoms worse too since I am having no or very little carbs? I use my coconut oil daily @3 TBS so far. I also added some Raw garlic plus I take C, B-complex, Bio E gamma Plex, omega 3 and calc/mag citrate supplements. No A or D yet. Is that a problem? Also my probiotic is 50 billion ! Is that too much to start with? Again, thanks for all your help! Rose in PBG florida. Quote Link to comment Share on other sites More sharing options...
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