Lyme Disease Survey

[Guest guest]

Hi Everyone

I'm forwarding this message from National Captial Lyme, they need our help. It

only took me about 7 min to complete. Hugs

From: National Capital Lyme

Would you invest 15 minutes to help with Lyme?

We need useful data for the study of Lyme and how it affects patients?

We need your help! You CAN help by taking this survey!

This survey is sent by the National Capital Lyme and Tick-borne Disease

Association to gather information for a new paper, " The Human Dimension of Lyme

Disease and Other Tick-Borne Diseases: A Patient's Perspective. " The paper is

for the Institute of Medicine's scientific workshop entitled, Lyme Disease and

Other Tick-Borne Diseases: The State of the Science. The workshop is charged to

represent the broad spectrum of scientific views on Lyme disease. It is expected

to provide a forum for public participation and input from individuals with Lyme

disease, as requested in congressional appropria tions report language in House

Committee Report 111-120 and Senate Committee Report 111-66.

Your participation is greatly valued and needed to add validity to the " Human

Dimensions " paper. Earlier, we requested your personal story; now we are asking

you to participate in this survey. Your contribution to this database will add

depth and validity to the descriptions that will be submitted on the patient

experience in obtaining a diagnosis, seeking treatment, obtaining insurance

coverage, and living with Lyme disease.

The survey is divided into 6 segments and consists of 4 types of questions: a

" matrix " of opinion scaled questions, multiple choice questions where you select

from a drop-down menu, multiple answer questions where you select all that

apply, and an open ended question where you can describe your experience. The

survey is anonymous.

The survey should take less than 15 minutes to complete. Due to a time

limitation, we are asking that all surveys be returned by July 19th, 2010. If

you have any problems or questions, please email Diane Wilcox at

drdianewilcox@....

Your participation will make all the difference. Click on the link below to take

the survey. After you take the survey, please forward this message to other Lyme

patients you know. If you are a medical professional, please consider sending

this out to your patients.

Thank You

Click here to take Survey

http://www.surveymonkey.com/s/CQHNB5G