what is congenital Lyme ??

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What exactly is congenital Lyme ???

From: margaret_behrns <spamneggs@...>

Subject: [ ] Diagnosing congenital Lyme

Date: Thursday, October 7, 2010, 8:04 AM

For those of you who have kids with congenital Lyme, can you please share the

best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

negative twice on the Western Blot (but band 41 is reactive same as my first

" negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and C4a

and they do not indicate Lyme infection. He said not to bother with the IGenex

Western Blot or any other antibody test and instead he came up with about 5

different tests that we should do (since no one test is definitive) to the tune

of $1,200 which we just can't do. It is so frustrating that there isn't a good

test to help us know whether this bacteria is affecting my daughter. Any advice?

We've realized that a ton of her symptoms were caused by yeast and working on

that has helped a lot, and she has just been diagnosed with pancreatic

dysfunction (enyzyme are blocked or not being produced) but no cause has been

identified (ruled out Cystic

Fibrosis). She's a former preemie so it is hard to differntiate what caused

what, but I suspect I've had Lyme for 20 years and could very well have passed

it along.

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