Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Hi Anne Firslty please don't give up, don't give up on anything, your life, your hopes your dreams. keep them all! See you are getting me all worried about you, I am so sorry to hear you are feeling this way, sucks heh! I don't have any magic words to make it all ok, if only life were that easy but please know that you are wanted and loved by everyone on this list and I love ya babes and send you huge chockie coated cyber huggies!!!!!! You can only ever be you and true to who you are and do what is best for you. You can never live up to other peoples views, opinions, standards if you are not happy with who you are. Only you know what is best for you and that is all anyone else can expect from you, be your self and if other people have a problem with it, as hard as it is, it is their problem and they are the ones who will lose out on knowing you, a great fun, caring , compassionate, smart, sensitive, knowledgeable, friendly person, to name just some of your good points. I think I will start the "we love Anne fanclub" You have been through so much shit, to put it midly and you deserve better than you are being treated! Nothing that has happened to you is your fault, don't ever let anyone get away with saying that crap!! OOh it makes me blood boil! I think I will put cow turds on the heads of all the people who say this and slap them, it can be my first task as founder of the"we love Anne" fan club, I will get Aisha to help with the slapping as I believe she can deliver quite an expert slap when required!! LOL You need to talk about what is happening to you how you are feeling etc, to just cope with the day to day existence let alone "getting past this"!! Have you spoken to Missy since yesterday? Did she say why she didn't get together? Have you told her how you feel about it? She could have let you know!!Grrr!!! I know how it feels, i have no friends except one in Sydney (other side of the country) and you guys online. I am very lucky to have my hubby who is my best friend and would be lost without him. What i am trying to say is hang in there, you deserve the best and happiness in abdunance!! I am here if you want to talk Take care lots of love Nersy...getting that Aisha bug... Nerys (that's right!!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 I couldn't agree more!!!! Very well said. I want to be a member of the fab club!!! Hang in there, Anne. God isn't ready for you yet. ne >From: " dolphin & dragon " <nerick@...> >Reply-egroups ><egroups> >Subject: Re: Done! >Date: Fri, 28 Jul 2000 17:03:48 +0800 > > > Hi Anne > Firslty please don't give up, don't give up on anything, your life, your >hopes your dreams. keep them all! > See you are getting me all worried about you, I am so sorry to hear you >are feeling this way, sucks heh! > I don't have any magic words to make it all ok, if only life were that >easy but please know that you are wanted and loved by everyone on this list >and I love ya babes and send you huge chockie coated cyber huggies!!!!!! > You can only ever be you and true to who you are and do what is best for >you. You can never live up to other peoples views, opinions, standards if >you are not happy with who you are. Only you know what is best for you and >that is all anyone else can expect from you, be your self and if other >people have a problem with it, as hard as it is, it is their problem and >they are the ones who will lose out on knowing you, a great fun, caring , >compassionate, smart, sensitive, knowledgeable, friendly person, to name >just some of your good points. I think I will start the " we love Anne >fanclub " > You have been through so much shit, to put it midly and you deserve >better than you are being treated! > Nothing that has happened to you is your fault, don't ever let anyone >get away with saying that crap!! OOh it makes me blood boil! I think I will >put cow turds on the heads of all the people who say this and slap them, it >can be my first task as founder of the " we love Anne " fan club, I will get >Aisha to help with the slapping as I believe she can deliver quite an >expert slap when required!! LOL > You need to talk about what is happening to you how you are feeling etc, >to just cope with the day to day existence let alone " getting past this " !! > Have you spoken to Missy since yesterday? Did she say why she didn't get >together? Have you told her how you feel about it? She could have let you >know!!Grrr!!! > I know how it feels, i have no friends except one in Sydney (other side >of the country) and you guys online. I am very lucky to have my hubby who >is my best friend and would be lost without him. > What i am trying to say is hang in there, you deserve the best and >happiness in abdunance!! > I am here if you want to talk > Take care > lots of love > Nersy...getting that Aisha bug... > Nerys (that's right!!!) > > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Anne I really don' t know what to say. I am so sorry that you are experiencing the pain that you now have. I too have ended many friendships due to being ill. Most healthy people do not understand that our days are moment to moment and we need to take the opportunity as it arises. But I do need to disagree with you in that you do matter to each and every one of us in the group. I have read your responses with great interest as they demonstrate you as a very caring and loving individual. Your friends are missing out on the generosity that you have in your heart. Keep your dreams as they are yours and will get you through the darkest times. Will they come true only time will tell, but you cannot give up believing in them. Being sick on a day to day basis is extremely difficult I know, but you need to grab the smallest joys. I look for laughter when I can, even if it is curling up with a good movie. As laughter is a cleansing emotion. In closing, the only person it matters whether or not you do what is expected of you is YOU...I quit trying to please others a long time ago as I know I will never live up to their expectations because they are not mine. Live for yourself not for what others expect. Hugs to all Jan SclerodermaHope PartnersinCaring http://www.geocities.com/HotSprings/Villa/3892/index.html ICQ # 24934693 AIM: FargJan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Hi Nerys- Hi AnneFirslty please don't give up, don't give up on anything, your life, your hopes your dreams. keep them all!See you are getting me all worried about you, I am so sorry to hear you are feeling this way, sucks heh!I don't have any magic words to make it all ok, if only life were that easy but please know that you are wanted and loved by everyone on this list and I love ya babes and send you huge chockie coated cyber huggies!!!!!! Thank you, I need all the huggies I can get. Cyber or otherwise! You can only ever be you and true to who you are and do what is best for you. You can never live up to other peoples views, opinions, standards if you are not happy with who you are. Only you know what is best for you and that is all anyone else can expect from you, be your self and if other people have a problem with it, as hard as it is, it is their problem and they are the ones who will lose out on knowing you, a great fun, caring , compassionate, smart, sensitive, knowledgeable, friendly person, to name just some of your good points. I think I will start the "we love Anne fanclub" You don't have to go that far, just don't run away from me... please! You have been through so much shit, to put it mildly and you deserve better than you are being treated!Nothing that has happened to you is your fault, don't ever let anyone get away with saying that crap!! OOh it makes me blood boil! I think I will put cow turds on the heads of all the people who say this and slap them, it can be my first task as founder of the"we love Anne" fan club, I will get Aisha to help with the slapping as I believe she can deliver quite an expert slap when required!! LOL I'd like to see that! Can I come help to? You need to talk about what is happening to you how you are feeling etc, to just cope with the day to day existence let alone "getting past this"!! Could you pass on this piece of information to my family and friends, because I swear if I hear.... "You need to JUST GET OVER IT!!!!" one more time, I am going to do something drastic! Probably to the person saying it! Have you spoken to Missy since yesterday? Did she say why she didn't get together? She told me that she had gone out and done all her errands, because she figured I didn't want to go to all the places she had to. And we had discussed it the night before, the ONLY place I didn't want to go was the laundry mat, because of the fragranced detergents, and it was ONLY because I would have left there by 911 ALS ambulance! So it kind of makes sense why I didn't want to go. We could have gone, she run in put the rugs in the washer/dryer etc. and we could have gone to get something to eat, and just do it outside... she gets her rugs washed, I don't go away in an ambulance.... Have you told her how you feel about it? She could have let you know!!Grrr!!! She knows!!!!!! She has been my best/closest friend since I was a senior in High School! We met the summer before my senior year. We were both in a Nursing Assistant class.... I was the youngest! I have made medicine my blood, sweat, and tears. But it was long before that too..... I have wanted to be a nurse since December 1977 when my baby cousin died in the Neonatal ICU. We had quite the conversation a few weeks ago! Because after talking to her the few times, I always left with a huge nasty feeling in my stomach. So I asked her point blank about some of the bigger points/stressors in my life! The doctors & the pretty diagnoses that they come up with because they are lazy and don't want to actually find out what and why... my allergies are being so charming, my fight with the doctors... over my allergies, my PTS, my screwed up life! Basically she doesn't want to know or hear anything about my health, my happiness (which isn't often), whatever. So I am supposed to "JUST GET OVER IT" .....it doesn't help that I was notified of PJ's release from prison on Missy's birthday. I tried really hard NOT to let it affect her day. So I didn't go to their (she lives with her mom & son) house for dinner with everyone (her parents, brother & his kids, etc.) My NOT going actually had MORE to with my allergies being set off BEFORE I even knew that PJ was being released! Because I can't drive after injectable Benadryl! Basically no one, including my family wants to hear about it, anymore. And I understand to a point, but I have tried to be "positive" for everyone... I can't anymore because it is tearing me up inside!! I know how it feels, i have no friends except one in Sydney (other side of the country) and you guys online. I am very lucky to have my hubby who is my best friend and would be lost without him.What i am trying to say is hang in there, you deserve the best and happiness in abdunance!! I am here if you want to talk I am sure you will be hearing from me again soon! Take carelots of loveNersy...getting that Aisha bug...Nerys (that's right!!!) Having problems writing your own name.... glad I am not the only one that does that. Thank Goodness, for automatic spell check before sending! I have spelled my name as.... Amme, instead of Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 In message <gm4jqg+ulnneGroups> you wrote: > A baby floats on 2 liters of sugared Yunnan Gold, > in a 3 l jar on the top of my fridge. > Let's be patient now ! I had to laugh, Antoine, because today I had an almost identical email from my son and daughter-in-law from America whose new baby Kombucha, which I sent about a week ago, is also safely established in a similar size container on top of their fridge :-) They used a mixture of green and black teas for their Kombucha. Wish you all well, and of course, patience. First brews do tend to take longer ... but it will get there ;-) All the best woth blessings! Margret from snowy UK -- +------------------ Minstrel@... --------------------+ <)))<>< http://www.therpc.f9.co.uk <)))<>< http://bavarianminstrel.wordpress.com http://www.AnswersInGenesis.com The best prayer is to rest in the goodness of God. (n of Norwich) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 In message <gm4krg+2jigeGroups> you wrote: > > I had to laugh, Antoine, because today I had an almost identical email > > from my son and daughter-in-law from America whose new baby Kombucha, > > which I sent about a week ago, is also safely established in a similar > > size container on top of their fridge :-) > > Do you mean my Scoby has a twin in America ??? > (I hope they won't monopolize my comp to exchange e-mails !) LOL! Maybe it's a clone rather than a twin? I wonder what they would talk about ;-) Margret:-) P.S. Is Golden Yunnan a green tea? The Yunnan I sometimes use, is. -- +------------------ Minstrel@... --------------------+ <)))<>< http://www.therpc.f9.co.uk <)))<>< http://bavarianminstrel.wordpress.com http://www.AnswersInGenesis.com The answer to every human problem is God's help. Yes, it is that simple! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 > I had to laugh, Antoine, because today I had an almost identical email > from my son and daughter-in-law from America whose new baby Kombucha, > which I sent about a week ago, is also safely established in a similar > size container on top of their fridge :-) Do you mean my Scoby has a twin in America ??? (I hope they won't monopolize my comp to exchange e-mails !) > Wish you all well, and of course, patience. Thanks a lot, Margret ! Antoine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 > P.S. Is Golden Yunnan a green tea? No, this one is a gorgeous black tea. When I have several scobies, i'll surely try with green tea and cane sugar. (I am a tea lover, and have lots of good teas at home. Just need to know first if the quality of the tea is transmitted to the KT ...) Antoine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 > I wonder what they would talk about ;-) Scobies things... " With the change of weather, my yeast is very painful tonight " or " I hate my state of slave! My brewer drinks too much KT! I have to work a lot without any social insurance! Please help me getting out there!!! " A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 In message <gm4n85+kp16eGroups> you wrote: > > > I wonder what they would talk about ;-) > > > Scobies things... " With the change of weather, my yeast is very > painful tonight " or " I hate my state of slave! My brewer drinks too > much KT! I have to work a lot without any social insurance! Please > help me getting out there!!! " Antoine, I didn't know the French could be so funny ;-) I've never listened that closely to any conversation by my scobys, of which there are many... scobys, I mean.;-) There is so much bubbling and blowing off of 'wind' that it is hard to hear anything intelligible or speech-like. Have a good night! Margret:-) much amused! -- +------------------ Minstrel@... --------------------+ <)))<>< http://www.therpc.f9.co.uk <)))<>< http://bavarianminstrel.wordpress.com http://www.AnswersInGenesis.com Life is what happens to you when you make other plans. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 > Antoine, I didn't know the French could be so funny ;-) Margret, Don't worry, your national humour is safe. I can only be funny when I write in English. Cheers! Antoine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 In message <gm68jf+6c52eGroups> you wrote: > > > Antoine, I didn't know the French could be so funny ;-) > Don't worry, your national humour is safe. I can only be funny when I > write in English. Antoine, :-)) I can totally empathise there: Being German, I can only really be funny in English. Maybe, that's why I married an Englishman ;-) Kombucha, however is multinational!! ;-) Margret in a blizzard ;-) -- +------------------ Minstrel@... --------------------+ <)))<>< http://www.therpc.f9.co.uk <)))<>< http://bavarianminstrel.wordpress.com http://www.AnswersInGenesis.com Eternity is a long time to be wrong. Especially about Jesus. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 You score 11 out of a possible 10 for that alone, I can't even write in French, not being funny. Except possibly to the French trying to read it. . ________________________________ From: Antoine Carolus Subject: Re: Done! > Antoine, I didn't know the French could be so funny ;-) Margret, Don't worry, your national humour is safe. I can only be funny when I write in English. Cheers! Antoine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Sue, That is wonderful! Thanks so much for sharing your great news! May I ask what the autoimmune condition is that she is left with? I'm asking because I'm wondering if it's similar to my son's situation. I'm hoping that he's close to being able to come off meds. We've been trying to gradually back off his meds to see if he continues to do well that way. But he does have periodic motor/vocal tics (much, much less frequent than he used to) and I'm wondering if that part will always be there or if he just continues to have infection. I have had discussions with his LLMD on this but just curious what your daughter's leftover condition is. Thanks again for sharing and enjoy your daughter's good health. Patty [ ] done! My daughter is better! She's actually been doing well for awhile, but now it's official. She's been discharged by her LLMD, declared recovered & is off abx after almost 5 years! Seven years since the nightmarish symptoms began, three years of missed school, almost 5 of abx, & the permanent " souvineer " of an autoimmune condition triggered by the lyme (but well-managed). Her biggest problems right now are which college to pick & her upcoming driver's test. It's been a very long journey & I wasn't always sure the outcome would be so positive. Her LLMD was sure, & so, we just kept going. For those of you at a different place in the journey, I hope my good news gives you a little hope. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 congrats! i feel like that is so far away for me but hearing your story is so inspiring!!thats wonderful!God bless! From: Patty Belke <pbelke1@...> Subject: Re: [ ] done! Date: Monday, January 11, 2010, 7:21 AM  Sue, That is wonderful! Thanks so much for sharing your great news! May I ask what the autoimmune condition is that she is left with? I'm asking because I'm wondering if it's similar to my son's situation. I'm hoping that he's close to being able to come off meds. We've been trying to gradually back off his meds to see if he continues to do well that way. But he does have periodic motor/vocal tics (much, much less frequent than he used to) and I'm wondering if that part will always be there or if he just continues to have infection. I have had discussions with his LLMD on this but just curious what your daughter's leftover condition is. Thanks again for sharing and enjoy your daughter's good health. Patty [ ] done! My daughter is better! She's actually been doing well for awhile, but now it's official. She's been discharged by her LLMD, declared recovered & is off abx after almost 5 years! Seven years since the nightmarish symptoms began, three years of missed school, almost 5 of abx, & the permanent " souvineer " of an autoimmune condition triggered by the lyme (but well-managed) . Her biggest problems right now are which college to pick & her upcoming driver's test. It's been a very long journey & I wasn't always sure the outcome would be so positive. Her LLMD was sure, & so, we just kept going. For those of you at a different place in the journey, I hope my good news gives you a little hope. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Well done! From: smd <merrymom1013@...> Subject: [ ] done! Date: Monday, January 11, 2010, 3:49 AM  My daughter is better! She's actually been doing well for awhile, but now it's official. She's been discharged by her LLMD, declared recovered & is off abx after almost 5 years! Seven years since the nightmarish symptoms began, three years of missed school, almost 5 of abx, & the permanent " souvineer " of an autoimmune condition triggered by the lyme (but well-managed) . Her biggest problems right now are which college to pick & her upcoming driver's test. It's been a very long journey & I wasn't always sure the outcome would be so positive. Her LLMD was sure, & so, we just kept going. For those of you at a different place in the journey, I hope my good news gives you a little hope. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Fantastic! Congratulations! Go celebrate. Annie ________________________________ From: smd <merrymom1013@...> Sent: Mon, January 11, 2010 6:49:17 AM Subject: [ ] done!  My daughter is better! She's actually been doing well for awhile, but now it's official. She's been discharged by her LLMD, declared recovered & is off abx after almost 5 years! Seven years since the nightmarish symptoms began, three years of missed school, almost 5 of abx, & the permanent " souvineer " of an autoimmune condition triggered by the lyme (but well-managed) . Her biggest problems right now are which college to pick & her upcoming driver's test. It's been a very long journey & I wasn't always sure the outcome would be so positive. Her LLMD was sure, & so, we just kept going. For those of you at a different place in the journey, I hope my good news gives you a little hope. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Hooray! What wonderful news. Thank you for sharing. It it inspiring and gives me hope. Dara > > My daughter is better! She's actually been doing well for awhile, but now it's official. She's been discharged by her LLMD, declared recovered & is off abx after almost 5 years! Seven years since the nightmarish symptoms began, three years of missed school, almost 5 of abx, & the permanent " souvineer " of an autoimmune condition triggered by the lyme (but well-managed). Her biggest problems right now are which college to pick & her upcoming driver's test. It's been a very long journey & I wasn't always sure the outcome would be so positive. Her LLMD was sure, & so, we just kept going. For those of you at a different place in the journey, I hope my good news gives you a little hope. > Sue > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Thanks Sue for the upbeat message  I have three girls going through this and myself.......only a year into it. May I ask what is your daughters auto immune condition? My 14 year old has arthritis and IBS and just went in to get tested for more...........her GI doc just told us that once one gets an auto immune condition that most likely you will get more of them....... Thanks - wish we could stop other auto immune stuff!! Diane ________________________________ From: Natasha Moiseyev <nmoiseyev@...> Sent: Mon, January 11, 2010 9:09:53 AM Subject: Re: [ ] done!  Well done! From: smd <merrymom1013@ comcast.net> Subject: [ ] done! Date: Monday, January 11, 2010, 3:49 AM  My daughter is better! She's actually been doing well for awhile, but now it's official. She's been discharged by her LLMD, declared recovered & is off abx after almost 5 years! Seven years since the nightmarish symptoms began, three years of missed school, almost 5 of abx, & the permanent " souvineer " of an autoimmune condition triggered by the lyme (but well-managed) . Her biggest problems right now are which college to pick & her upcoming driver's test. It's been a very long journey & I wasn't always sure the outcome would be so positive. Her LLMD was sure, & so, we just kept going. For those of you at a different place in the journey, I hope my good news gives you a little hope. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Patty & Diane, My daughter's " left-over " condition is narcolepsy- as of recently considered to be an autoimmune neurologic problem. She will always require medication, but managing one condition is nothing compared to all of the symptoms & problems that come with the Lyme. Hang in there. If you are lucky enough to have a good LLMD, keep the faith. Sue Quote Link to comment Share on other sites More sharing options...
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