Re: questions- no easy answers

[Guest guest]

Welcome to the group! Pain is an awful thing with Lyme. It seems the spirochetes

can hang out in any part of the body and cause pain. Throw in those coinfections

and pain is a reality of Lyme. My 15 year old son is getting relief from pain

now after a long year with undiagnosed Lyme. You are fortunate to know of the

tick bite. My son ended up taking a pain medication called tramadol. It helped

with the pain long enough for the antibiotics to work. He only takes in now

maybe twice a week. I have Lyme and experience painful feet usually only in the

morning or after I have been off of them. It does let up for me once I move

around. Everyone is different so keep that in mind. You will know your son best.

The teenager with Lyme is a tricky situation, especially one with anxiety.

It sounds like this week may be a turning point for you- getting labs and

starting a sound treatment based on symptoms and labs. Because he has had Lyme

running through his body for almost 3 years, you will want to be in the care of

an educated Lyme doctor. For me I chose an ILADS doctor and travel 5 hours to

see him. It is worth it. The doctor replied to my questions via email last night

at 1:10 AM. He is so good that way. He has Lyme himself and makes him

compassionate and creates a desire to stay up with the latest in Lyme treatment.

My son is on his 3rd week of IV antibiotics and I am actually thinking he will

be back in school at the semester break. Three months ago was agony for him. It

will get better- there is hope.

Everyone here will help you as much as they can.

Kari

>

> Hello. We are new to this group, and I hope some of you might be able to

> answer some questions that I have.

>

>

>

> My son Tim is 16 and was bitten by a deer tick 2 ½ years ago. 6 months

> later he began to complain of attention issues at school, and his grades

> dropped. He became increasingly anxious, and really went downhill about 6

> months ago. After 9 doctors and many prescriptions and diagnoses (ADHD,

> anxiety, depression, bipolar), we went to a new doctor who said he was

> positive it's Lyme. Tim had tested negative in the spring, so it never

> occurred to us that it could be Lyme. We are now waiting for results from

> IGenix .

>

>

>

> Given that the doctor was so adamant that he has Lyme, we started

> Doxycycline in mid-September. We also started him on Omega-3 supplements

> b/c his cholesterol levels were so low (107) and many other supplements

> including a pro-biotic.

>

>

>

> My primary question is about the extreme pain he is in. He says even the

> soles of his feet hurt, and it's painful to walk. This is much more than

> just the joint pain he started with, and so it seems that this is not a

> herx. His anxiety is still high and he is on a low dose SSRI. The doctor

> suspects that the SSRI might be what is causing him pain. Can anyone weigh

> in on this? Is that possible? He also recommended stopping the doxy until

> we get back the IGenix report, just to give his body a rest. Also, if the

> tests come back negative then I really have no idea what to do.

>

>

>

> Like all of you, I am scared and worried and frustrated. I appreciate any

> feedback you might have.

>

>

>

> Ellen

>

> Bethesda, MD

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