Lyme Posts

[Guest guest]

Ladies:

My boys ages 15 and 17 have congenital Lyme. Both have showed Lyme bands through

IGeneX. My oldest doesn't have any symptoms other than chronic swollen glands. I

decided to have him tested since he is going off to college in less than a year.

I do not want Lyme coming out while he is 300 miles away or overseas doing a

co-op. Once on doxy, it is expected that his labs will show " more " Lyme.

Both my 15 year old and I have heart involvement. I had SVT or supraventricular

tachycardia and my heart was beating over 300 beats per minute. I loss use of my

extremities as they weren't getting blood. There was a specialized med that I

got that corrected it. Now my heart just races when I overdo it. My son has POTS

and a resting heart rate of 120. We both cannot wait for the day when Lyme is

gone and the heart is normal.

My youngest and I are set to start artemesia again today. It is never an easy 10

days for us. I know the herxing is a good thing but difficult to work full time

with.

Does anyone have experience with Paramount Insurance? My work is switching on

November 1st. I'm thinking I should try to get a month of IV ordered before the

switch. I think Aetna will pay for a month at least.

Kari

>

> From: margaret_behrns <spamneggs@...>

> Subject: [ ] Diagnosing congenital Lyme

>

> Date: Thursday, October 7, 2010, 8:04 AM

>

> For those of you who have kids with congenital Lyme, can you please share the

> best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

> negative twice on the Western Blot (but band 41 is reactive same as my first

> " negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and

C4a

>

> and they do not indicate Lyme infection. He said not to bother with the IGenex

> Western Blot or any other antibody test and instead he came up with about 5

> different tests that we should do (since no one test is definitive) to the

tune

> of $1,200 which we just can't do. It is so frustrating that there isn't a good

> test to help us know whether this bacteria is affecting my daughter. Any

advice?

>

> We've realized that a ton of her symptoms were caused by yeast and working on

> that has helped a lot, and she has just been diagnosed with pancreatic

> dysfunction (enyzyme are blocked or not being produced) but no cause has been

> identified (ruled out Cystic

> Fibrosis). She's a former preemie so it is hard to differntiate what caused

> what, but I suspect I've had Lyme for 20 years and could very well have passed

> it along.

>

> ------------------------------------

>

> Lyme Disease News continually updated from thousands of sources around the

> net: http://www.topix.net/health/lyme-disease

>

> MedWorm: The latest items on: Lyme Disease

> http://tinyurl.com/23dgy8

>