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My daughter who herxes very bad is starting rifampin for the first time for

bart......any experiences or help you could give me?

thanks - love you all!!  Diane  (how long will it take to see improvement? she

has missed her whole 6th grade year :(

 

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My daughter hasn't had any problems taking Rifampin. She is taking 300mg 2x

day. (Of course this is the same child that didn't have any reaction to Mepron,

and had no problem with Bicillian injections 1 each side, 2x week.) I guess

she's just odd. :o)

Charlotte

iamwhimsy@...

http://whimsy.t35.com

Re: [ ] child starting rifampin

My daughter who herxes very bad is starting rifampin for the first time for

bart......any experiences or help you could give me?

thanks - love you all!! Diane (how long will it take to see improvement? she

has missed her whole 6th grade year :(

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Diane, about missing sixth grade --we had that happen too and my one daughter is

back in school this year with a modified, late start schedule but my older one

is out of school for second straight year (though feeling better -- just not

well enough to go to school).

Just to say, it's so different for everyone. LLMD ought to be ble to make a

guess. Ours told us at the end of 6th grade that she would be great by the end

of eighth and that looksl ike she's on track. Two years seemed unimaginable and

yet, with PICC and meds and everything, we look like we may be on track. She's

actually dreaming of dancing and playing volleyball again. Now THAT'S

progress... (for today -- we take 'em as they come)

________________________________

From: CT <iamwhimsy@...>

Sent: Thu, February 3, 2011 7:11:28 AM

Subject: Re: [ ] child starting rifampin

My daughter hasn't had any problems taking Rifampin. She is taking 300mg 2x

day. (Of course this is the same child that didn't have any reaction to Mepron,

and had no problem with Bicillian injections 1 each side, 2x week.) I guess

she's just odd. :o)

Charlotte

iamwhimsy@...

http://whimsy.t35.com

Re: [ ] child starting rifampin

My daughter who herxes very bad is starting rifampin for the first time for

bart......any experiences or help you could give me?

thanks - love you all!! Diane (how long will it take to see improvement? she

has missed her whole 6th grade year :(

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Share on other sites

Hi Diane

My 13yo daughter has been taking Rifampin for 3 months now. She had stopped

herxing on her previous antibiotics and once she started the Rifampin she began

herxing again. Sometimes she feels pretty bad but the hot baths, drinking lots

of water and heat packs help. I'll be praying for your daughter - it's always a

time of great anxiety when we have to switch meds. Hang in there.

* ´¨) ¸.• ´¸.•* ´¨)¸. •*¨)

(¸.•´ (¸ ;. •´ Tricia

________________________________

From: Diane Biel <dkbmama@...>

Sent: Thu, February 3, 2011 10:04:14 AM

Subject: Re: [ ] child starting rifampin

My daughter who herxes very bad is starting rifampin for the first time for

bart......any experiences or help you could give me?

thanks - love you all!! Diane (how long will it take to see improvement? she

has missed her whole 6th grade year :(

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The first time my daughter tried Rifampin she got very tired, and so the

doctor switched to Cipro and Bactrim. The 2nd time she had a reaction

after the 2nd dose within a half hour. She suddenly got very nauseous

and I believe had a shooting pain in her arm. (This was the same pain

she had when she was allergic to the IV Claforan). The doctor

discontinued it and went back to the Cipro and Bactrim which had worked

in the past.

Good luck. I know many who Rifampin has really helped.

On 2/3/2011 10:04 AM, Diane Biel wrote:

>

> My daughter who herxes very bad is starting rifampin for the first

> time for

> bart......any experiences or help you could give me?

> thanks - love you all!! Diane (how long will it take to see

> improvement? she

> has missed her whole 6th grade year :(

>

>

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On all other antibiotics, initially, my daughter experienced often dramatic

herxing (azith, amoxi, sulfa, ceftin, omnicef, tini). However, Rifampin was the

one med that did not seem to cause any noticeable herxing---probably because it

only targets the Bart and doesn't address Lyme particularly. She was on

azithromycin to keep the Lyme in check, but by the time she was on it, her

herxing was fairly manageable and predictable (monthly flares mostly). Rifampin

did seem to make her sleepy and gave her some unusually vivid dreams. Also,

found that it made her appetite diminish a bit. We also dealt with the koolaid

orange urine, so had to prepare her daycare people and kindergarten teacher, so

they wouldn't panic if they happened to help her out in the bathroom.

The other thing that the rifampin seemed to provoke were many of the bart rashes

-- she developed the stretch mark variety on her torso and also had clear

bubbles show up on her face -- looked a bit like teenage acne, except she was

five!

After the rifampin treatment her rashes have vanished completely as well as many

of the bart symptoms (sore soles of her feet, rages -- mostly -- still has some

mood volatility, so I do wonder if bart may still be mildly in the picture,

though the majority of her current symptoms are pretty typical neurolyme).

So, my experience was that rifampin has been one of the 'easier' medications for

daughter.

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HI ,

My son does not have bartonella,only lyme, but has been on rifampin for 16

months now. He has not had any problems with it.

Hugs

Judy

From: Tricia Soderstrom <TriciaSod@...>

Subject: Re: [ ] child starting rifampin

Date: Thursday, February 3, 2011, 10:47 AM

 

Hi Diane

My 13yo daughter has been taking Rifampin for 3 months now. She had stopped

herxing on her previous antibiotics and once she started the Rifampin she began

herxing again. Sometimes she feels pretty bad but the hot baths, drinking lots

of water and heat packs help. I'll be praying for your daughter - it's always a

time of great anxiety when we have to switch meds. Hang in there.

* ´¨) ¸.• ´¸.•* ´¨)¸. •*¨)

(¸.•´ (¸ ;. •´ Tricia

________________________________

From: Diane Biel <dkbmama@...>

Sent: Thu, February 3, 2011 10:04:14 AM

Subject: Re: [ ] child starting rifampin

My daughter who herxes very bad is starting rifampin for the first time for

bart......any experiences or help you could give me?

thanks - love you all!! Diane (how long will it take to see improvement? she

has missed her whole 6th grade year :(

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