Guest guest Posted August 28, 2002 Report Share Posted August 28, 2002 Hey -dz- ...... Glad to see you back again.. I am happy that you had a nice vacation altho' is sounds soggy..... Hi Jan...You've done enough for 1 day... Get those long legs on the couch and rest. Sharon keep the puke there.... This group is for sharing, but not everything.... ;o Terry... Suzy is a very lucky woman to have you. . When I saw noneya on the screen I almost fell out laughing....That is my favorite saying when someone asks me something. They just look at me when I say it .. Then I say none ya business. I have to save that post to show my Grandson. He will swear we know one another.... LOL.... I can't believe you wrote that... hahahahaha.... it is good to hear from you. And a warm welcome to everyone else... Angel Hugs, Diane May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 I had a 14 day rest as I had my Mom in respite care. I got her back yesterday and she is now unable to walk because they never got her up to use her walker..... If anyones sends Floyd to me he win get a return flight by Air Mail...... On the end of my Foot after I put it as far in the air as it will go!!! LOL..... It was bad before but now it is brutal on me..... I'll write as soon as I can. I was at the campground for the 2 weeks..... Boy did that go by quick!!!! Angel Hugs, Diane May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Jan!!!!!!! NO WAY!!!!!!!!!!!!!!!! Send him on vacation with Sharon!!!! LOL... Sorry Sharon....... Angel Hugs, Diane May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Jan, It is my web addy at msn messenger....... My Mom is doing worse. I have to hold her up to make her walk. It is dead weight. She was away in the respite care for 2 weeks and this is how I got her back.... She has a huge blister on her foot now and the skin is breaking down on her behind. OK I gotta go get her ready for bed!!!!!!!! I'll try to get back out if I can... Angel Hugs, Diane May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 Hey Eddie I hope you both have a wonderful weekend and a safe one My son is joining the Marines next year when he graduates..I don't want him to but it is his decision..I have to keep faith this stupid war will be over soon and my son never has to see such horror. I have been ok except my kneeshurt so bad it is very hard to even walk at times without making a YIKES noise.Guess old age has something to do withit..LOL.. To the rest of you great people out there please have a GREAT,SAFE, HAPPY 4TH OF JULY WEEKEND Please if any of you remember our friend Tammi keep her in your prayers..She is having a bone scan and CT done today to see if that dreaded monster Caneris back..Let's pray it isn't.. Love to all,JanTubs46@... wrote: I hope everyone has a wonderful long weekend, or day off, which ever applies. Everyone needs to say a prayer for those who have made freedom possible and are still fighting to keep us free. I'm going dial up till Wednesday so I won't be checking anything but work e-mails. The beach is a calling and my wife deserves a nice quiet long weekend. Love you all and just really can't express what it means to see the sharing and posting that goes on here. God bless you all and have a Happy Fourth!!!!!!!!! "Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body...but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming, WOW! What a ride!"...Eddie Hinman Jan Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 Hey Eddie I hope you both have a wonderful weekend and a safe one My son is joining the Marines next year when he graduates..I don't want him to but it is his decision..I have to keep faith this stupid war will be over soon and my son never has to see such horror. I have been ok except my kneeshurt so bad it is very hard to even walk at times without making a YIKES noise.Guess old age has something to do withit..LOL.. To the rest of you great people out there please have a GREAT,SAFE, HAPPY 4TH OF JULY WEEKEND Please if any of you remember our friend Tammi keep her in your prayers..She is having a bone scan and CT done today to see if that dreaded monster Caneris back..Let's pray it isn't.. Love to all,JanTubs46@... wrote: I hope everyone has a wonderful long weekend, or day off, which ever applies. Everyone needs to say a prayer for those who have made freedom possible and are still fighting to keep us free. I'm going dial up till Wednesday so I won't be checking anything but work e-mails. The beach is a calling and my wife deserves a nice quiet long weekend. Love you all and just really can't express what it means to see the sharing and posting that goes on here. God bless you all and have a Happy Fourth!!!!!!!!! "Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body...but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming, WOW! What a ride!"...Eddie Hinman Jan Sneak preview the all-new .com. It's not radically different. Just radically better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Hi my name is Misty. I wanted to say thanks for letting me join this board. I am new to PA. I was officially dx 2 weeks ago. I have had symptoms since Aug 09. I would say the past 2 months have definitely been the worst. Before I got my dx I planned a trip to Disney with my husband and my 3 kids, my parents and my sister and her 2 kids. We leave in 74 days. I have always been the official trip planner for our vacations. I get VERY EXCITED and I was. But now, I am not even sure that I want to go. I know that my family thinks that I am being a hypochondriac, but I'm not. I am in real pain. Part of that is depression, I just had them up my anti depressant. I am hoping that part will at least get better in a few weeks. I am considering renting a scooter. I really think that I will need it. I am currently on MTX and I am very fatigued and nauseous. I am switching from oral to shots this week so I am hoping that helps as well. I know that there is a lot of walking and with 2 tweens they will not want to rest as much as I need too. I am sort of embarrassed that I am 35 years old and will need a scooter to get around. Have any of you been faced with something like this? How do I answer my kids questions? I haven't really told them a lot about it, except that I have been extra tired lately. Misty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Hi Misty, Got some good news about your question:Â I am considering renting a scooter. I really think that I will need it. I am currently on MTX and I am very fatigued and nauseous. I am switching from oral to shots this week so I am hoping that helps as well. I know that there is a lot of walking and with 2 tweens they will not want to rest as much as I need too. I am sort of embarrassed that I am 35 years old and will need a scooter to get around. My kids are in their 20s and still love the Florida parks. One thing to watch down there when on MTX - I got the absolutely worst migraine of my life after sitting in the Florida sun while on MTX. Stay in the shade. We got a manual wheelchair and my kids loved pushing mom around the parks, especially when they discovered the wheelchair lines for most rides are much shorter and quicker than the regular ones. In return for pushing me around they get to spend more time on rides and a lot less in lines. It only works for the wheelchair and her party so there's great motivation on their part to include you in all the fun. The chair is also a great way to save your energy so you can enjoy every minute. Have fun! Janette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Hey Misty My name is Herb. I have had P for almost 30 years now. PA the last 5. If you want the most understanding from your family, you should give them the most info on your condition. They are probably more understanding than you know. Don't you dare set back and let the world go by. Even if it is in a scooter. If you do, you will find your self giving up more and more. I live in constant pain also. Bu I refuse to take the pain meds they want me to take because of side affects. It even keeps me up at night a lot sometimes. But I choose to be happy in spite of it. They wanted me to be on anti-depressants because truthfully I was feeling down mentally. You can't expect your loved ones to understand if you don't level with them. You will feel better about yourself there darlin'. So keep your chin up and be proud of who you are inside. It works itself to the outside. Herb Quote Link to comment Share on other sites More sharing options...
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