D-Ribose

[Guest guest]

On Wed, 17 Aug 2005, DesertGal2 wrote:

> I tried a short trial of D-ribose (about 1 gram a day). It caused

significant hypoglycemia for me. Even when I tried to eat often, etc., I was

shaking, extra brain-fogged and vision graying out. I didn't notice any

improvements during that week.

>

> Perhaps I should try again, preparing myself more for the blood sugar drop.

>

> -- in AZ

Thanks for the warning - will watch out for that when I get

started...

Honey

[Guest guest]

In a message dated 12/31/2005 1:56:12 PM Eastern Standard Time,

orchidwish@... writes:

I added d-ribose to my 'regimen' and noticed no change whatsoever.

How much were you taking and for how long?

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

What is the source of the D-ribose? I have been interested in trying

this supplement with my son, but he is allergic to corn. The sugar in

the product I use, Corvalen, is corn based. The symptoms you describe

are possible food allergy symptoms that I have seen in my son.

>

> Hi all,

>

> I'm re-trying the Peckerman/Myhill/Sinatra protocol now that most of

> the celbrations are over.

>

> Starting with a tiny amount of D-ribose (1/8th tsp diluted and taken

> over the course of a day) and have been doing so for 4 days now. Even

> at this level I seem to be getting an exacerbation of my restless/jumpy

> cns symptoms and worsening of my temperature sensation. This does seem

> to be forming a pattern on all the times I have tried it. Any one

> eslse had anything like this?

>

>

> Rosie

>

>

> PS my endogenous ATP was one of the lowest DR Myhill has ever seen and

> I wonder if my body simply can't handle this assault to it?

>

[Guest guest]

yes, i've been on a few weeks. nothing good or bad yet.

jim

> Has anyone tried D-Ribose??

>

[Guest guest]

OK, I was wondering because on the National Fibromyalgia Assn website, they have

products and its listed in quite a few. Please let me know how it goes.

Janet

jschm111@... wrote:

yes, i've been on a few weeks. nothing good or bad yet.

jim

> Has anyone tried D-Ribose??

>

[Guest guest]

Before trying any products to boost energy through supplementation it makes

sense to try to clear as much toxins away as possible first.

Regards

CS

[Guest guest]

Hi Janet,

I tried it as part of Dr Myhill's protocol but couldn't tolerate it at

all. I have very very low endogenous ATP, perhaps the two aren't

compatible?

Rosie

OK, I was wondering because on the National Fibromyalgia Assn website,

they have products and its listed in quite a few. Please let me know how

it goes.

Janet

jschm111@... wrote:

yes, i've been on a few weeks. nothing good or bad yet.

jim

> Has anyone tried D-Ribose??

>

[Guest guest]

Did nothing at all for me.

[Guest guest]

In a message dated 17/06/2006 15:16:20 GMT Standard Time,

maycross@... writes:

Just wondered if anyone here has tried D-Ribose and did it help any? I have

been reading good things about its affect on CFS/FM.

Thanks

Suz

***Have you looking into detoxing first ?

Regards

CS

[Guest guest]

Hi Suz,

I am unable to tolerate D-ribose even in the tiniest dose on the tip of

my tongue. I find it almost 'takes my breath away' - sort of 'winds' me

when I take it initially and they I get palpitations, chest pain, chest

pressure (as though someone is sitting on my chest) irregular heart

beats - missed beats etc and generally feeling more unwell.

Rosie

Subject: D-Ribose

Just wondered if anyone here has tried D-Ribose and did it help any? I

have been reading good things about its affect on CFS/FM.

Thanks

Suz

[Guest guest]

Hi Suz

I have only been taking the D-ribose for a few weeks but have already noticed

a marked improvement with muscle pain especially after walking. I have also

noticed a slight increase in mental energy. I think I may also have an increase

in physical energy because I seem to be able to walk a bit further but as my

physical energy fluctuates a lot anyway it is less clear so the jury is still

out on that one.

Take Care

Lou

Rosie <rosiecox@...> wrote:

Hi Suz,

I am unable to tolerate D-ribose even in the tiniest dose on the tip of

my tongue. I find it almost 'takes my breath away' - sort of 'winds' me

when I take it initially and they I get palpitations, chest pain, chest

pressure (as though someone is sitting on my chest) irregular heart

beats - missed beats etc and generally feeling more unwell.

Rosie

Subject: D-Ribose

Just wondered if anyone here has tried D-Ribose and did it help any? I

have been reading good things about its affect on CFS/FM.

Thanks

Suz

[Guest guest]

sb2boys wrote:

> I have a lot of exhaustion, cognitive problems (brain fog),

> lack of energy and pain. I've heard that D-Ribose is helpful. Has

> anyone here found it to help any of these things? I'm at the point

> that I'm not getting anything done anymore.

>

I've tried D-ribose, and can't say that it did anything for me.

What does help me most is CoQ10 and various forms of carnitine. I can

highly recommend a product at www.lef.org or lifeextensionvitamins.com

called " Mitochondrial Energy Optimizer " . It definitely helps me get

more done, and clears my mind.

If your pain is muscular (fibromyalgia), then make sure you get enough

magnesium and malic acid.

And be sure to do anything possible to ensure sound, restful sleep, if

you're not already. If you're not sleeping well, every symptom you

mention gets a whole lot worse. I'm currently using clonazepam,

Rozerem, and CPAP, and sleeping well these days.

Good luck!

--

el (andreafrankel at sbcglobal dot net)

" wake now! Discover that YOU are the song that the morning brings... "

[Guest guest]

hi i have been taking d ribose daily and extra doses when i get pulling in my

chest due to overexerition( past that magic line of physical activity or being

out to appointments without enuf sleep ,seems to help) take 1/4 - 1/2 tsp

twice daily and inbetween as needed ...there is some protocol out there for

taking 15 grams for two weeks than decresing it that my cfids friend has been on

but this stuff is very expensive to use that high dose..sorry forgot mds name

for the protocol

it seems to help my heart and no adverse effect on my blood sugar levels based

on symptoms only.

btw : also past history of tinniutis early in this illness but rarely have it

now but am a diabetic who is carefully watching my diet and hemoglobin A1 c

levels and frucotsemia levels and borrow my moms glucose meter for 2 hour

post meal glucose readng ,but i suspect as my insulin levels decline further ,

along with increased insulin resistance i will need to go on medication( strong

family history) ..my md is leary of putting me on anything with cardiac, liver

and kidney abnormalities sigh.

hope this information helps

tealk

D-Ribose

Hi,

I haven't been here for a while. I'm wondering if anyone is taking

D-Ribose? I have a lot of exhaustion, cognitive problems (brain fog),

lack of energy and pain. I've heard that D-Ribose is helpful. Has

anyone here found it to help any of these things? I'm at the point

that I'm not getting anything done anymore. I'll try about anything.

Thank you for your help!

Sue B.

[Guest guest]

I also think this stuff helps functionality. I've heard a 2-month trial is

necessary to see full

benefit. I think someone recently posted a suggested dose is 15 gm per day.

I am considering trying Nutratose, which has ribose and other " glyconutrients. "

I asked

about it here a couple weeks ago, but no one responded.

>

> Its sort of early to know for sure and could be coincidence---but I

> think this stuff is giving me more energy and making it easier for me

> to stay upright for longer periods of time before I need to lie down

> (lying down intermittently throughout day is my main medication,helps

> me keep going).

>

[Guest guest]

Ribose makes ATP. It is a definite for CFS. And yes, Tetlebaum suggests 15 grams

a day. Check out his site endfatigue.com for other helpful information.

Janet

shakerz25 <shakerz25@...> wrote:

I also think this stuff helps functionality. I've heard a 2-month

trial is necessary to see full

benefit. I think someone recently posted a suggested dose is 15 gm per day.

I am considering trying Nutratose, which has ribose and other " glyconutrients. "

I asked

about it here a couple weeks ago, but no one responded.

>

> Its sort of early to know for sure and could be coincidence---but I

> think this stuff is giving me more energy and making it easier for me

> to stay upright for longer periods of time before I need to lie down

> (lying down intermittently throughout day is my main medication,helps

> me keep going).

>

[Guest guest]

>

> Ribose makes ATP. It is a definite for CFS. And yes, Tetlebaum

suggests 15 grams a day. Check out his site endfatigue.com for other

helpful information.

>

I would put d-ribose in the top 5 drugs/supplements I have done. I

did not do well on the Jarrow brand at all. I only seem to get

results with the Pur Encapsulations brand (which is, of course, more

expensive).

If you have blood sugar issues, you do have to watch it because it is

a sugar and it can cause problems. But aside from that, I have found

it to boost energy. Getting 15 g of it in daily is difficult for me,

but I have found even smaller amounts are helpful.

[Guest guest]

Interesting feedback, I have been splitting a capsule of it up into 2

doses in drinks througout the day, but thats less than a gram(750mg)

I am hypersensitive to many things though, so wouldnt be surprised if

had an effect, like a speck of dust size of stimulant medication can

wreak havoc on me. I am doing better energy wise since been trying it

last week or 2, just settling into taking it daily now cus it first I

thought it felt too stimulating or anxiety provoking, not now though.

One interesting aside though, someone else here rec'd yesterday

trying to avoid magnesium stearate as the theory is it makes one

spacy for some reason; well its in my capsules of d-ribose. I will

look for a brand without it, am using the " now " brand currently.

> >

> > Ribose makes ATP. It is a definite for CFS. And yes, Tetlebaum

> suggests 15 grams a day. Check out his site endfatigue.com for other

> helpful information.

> >

>

> I would put d-ribose in the top 5 drugs/supplements I have done. I

> did not do well on the Jarrow brand at all. I only seem to get

> results with the Pur Encapsulations brand (which is, of course, more

> expensive).

>

> If you have blood sugar issues, you do have to watch it because it

is

> a sugar and it can cause problems. But aside from that, I have

found

> it to boost energy. Getting 15 g of it in daily is difficult for

me,

> but I have found even smaller amounts are helpful.

>

>

>

[Guest guest]

> One interesting aside though, someone else here rec'd yesterday

> trying to avoid magnesium stearate as the theory is it makes one

> spacy for some reason; well its in my capsules of d-ribose. I will

> look for a brand without it, am using the " now " brand currently.

Both the Jarrow and the Pur Encapsulations come in a powder form that

is pure d-ribose. It's sweet tasting, so it's not bad to dump

straight in your mouth which is what I generally do, then drinking

water afterwards. I also blend it with kefir and fruit in smoothies.

I would bet it would make a good iced tea sweetener except I don't

drink tea!

[Guest guest]

I tried it years ago when my adrenals were still a wreck and it made my

heart race. NOT a good thing. After all, it is sugar, but I've heard others

say it helps.

Wendi Carrillo

From:

[mailto: ] On Behalf Of bernieanneca

Sent: Monday, May 19, 2008 1:49 PM

Subject: D-Ribose

Has anyone had favourable results using D-Ribose? I recently purchased

a six month supply, however, after a comment made by Dr. Pall I am not

sure now whether or not to use it.

Dr. Pall doesn't recommend it because " D-ribose is a potent glycating

agent, leading to protein glycation at about 50 times the activity of D-

glucose. Glycation is not a good thing - it is the reaction of certain

groups on proteins with sugars, changing the protein structure and

often function. It is responsible for many of the problems that

diabetics have with high blood sugar (D-glucose). " (see msg

#1361/TenthParadigmSociety).

However, Dr. Teitelbaum claims that it results in improved energy;

sleep; mental clarity; pain intensity; and well-being (Pubmed

#17109576).

Would anyone recommend that I stay away from D-Ribose?

Take care.

Bernie

[Guest guest]

Hello Bernie

I have been taking a combination of D-Ribose and COQ10 and together

they have made a some improvement in my energy levels.

I was interested in what you are saying regarding glycation. I do try

and eat low GI foods eg oats (in the morning and before bed) so I

think that helps to stabilise my blood sugar levels.

The problem is it that everyone is different and without knowing the

cause of the symptoms it is very difficult to say how an individual

will respond. D-Ribose certainly hasn't made me any worse, and was

recommended to me by Dr Myhill (in the UK) after having had a

mitochondrial function test done. Her website gives some very

detailed information regarding her approach to ME and is worth a look.

Best wishes

Dawn

>

> Has anyone had favourable results using D-Ribose? I recently purchased

> a six month supply, however, after a comment made by Dr. Pall I am not

> sure now whether or not to use it.

>

> Dr. Pall doesn't recommend it because " D-ribose is a potent glycating

> agent, leading to protein glycation at about 50 times the activity of D-

> glucose. Glycation is not a good thing - it is the reaction of certain

> groups on proteins with sugars, changing the protein structure and

> often function. It is responsible for many of the problems that

> diabetics have with high blood sugar (D-glucose). " (see msg

> #1361/TenthParadigmSociety).

>

> However, Dr. Teitelbaum claims that it results in improved energy;

> sleep; mental clarity; pain intensity; and well-being (Pubmed

> #17109576).

>

> Would anyone recommend that I stay away from D-Ribose?

>

> Take care.

> Bernie

>

[Guest guest]

>

> I tried it years ago when my adrenals were still a wreck and it made

my

> heart race. NOT a good thing. After all, it is sugar, but I've heard

others

> say it helps.

>

>

>

***Hi - An interesting thing I have discovered is that everytime

my CFS gets worse is when I clean up my diet and cut sugar out. Within

weeks I become much more exhausted and much weaker. Sugar really seems

to help me energy wise. The down side is weight gain, and hand and foot

pain. I'm guessing that it is causing inflammation. I'm just not sure

why it only affects my hands and feet??

Bernie

[Guest guest]

" bernieanneca " <TigerLilea@...> wrote:

>

> Has anyone had favourable results using D-Ribose?

> Dr. Pall doesn't recommend it because " D-ribose is

> a potent glycating

> agent, leading to protein glycation at about 50 times

> the activity of D-glucose.

I've been experimenting with Now Foods brand D-Ribose powder

for a couple of months. I take about 3/4 - 1 teaspoon, less

than suggested on the label and much less than amounts I've read

about in studies. I typically take less of a substance than

the label suggests or has been used in studies. I just don't need

that much to get an effect. Mild energy boost, not sure all

of what it's doing yet. Have not experienced anything I'd associate

with sugar, but am not taking that much either. If taken in

the higher amts suggested or researched, yes I could see that

glycation could potentially be a problem.

Have also been experimenting with Now Foods BCAA (branch chain

aminos) powder based on my organic acids test,

and Carlson's Aspartic Acid since my UAA showed very

low aspartic acid. Also experimenting with high Biotin 1000 mcg

and extra Vit B1 (thiamine), based on organic acids test high

lactate and pyruvate.

I say have your own experience. :-)

Carol W.

[Guest guest]

Is the Myhill protocol pre or post 2004, please...... (In other words,

can we talk about it - pleease?!)

Rosemary-in-Greece

hectorbun wrote:

> Hello Bernie

>

> I have been taking a combination of D-Ribose and COQ10 and together

> they have made a some improvement in my energy levels.

>

> I was interested in what you are saying regarding glycation. I do try

> and eat low GI foods eg oats (in the morning and before bed) so I

> think that helps to stabilise my blood sugar levels.

>

> The problem is it that everyone is different and without knowing the

> cause of the symptoms it is very difficult to say how an individual

> will respond. D-Ribose certainly hasn't made me any worse, and was

> recommended to me by Dr Myhill (in the UK) after having had a

> mitochondrial function test done. Her website gives some very

> detailed information regarding her approach to ME and is worth a look.

>

> Best wishes

> Dawn

>

>

>

>

>

>

>> Has anyone had favourable results using D-Ribose? I recently purchased

>> a six month supply, however, after a comment made by Dr. Pall I am not

>> sure now whether or not to use it.

>>

>> Dr. Pall doesn't recommend it because " D-ribose is a potent glycating

>> agent, leading to protein glycation at about 50 times the activity of D-

>> glucose. Glycation is not a good thing - it is the reaction of certain

>> groups on proteins with sugars, changing the protein structure and

>> often function. It is responsible for many of the problems that

>> diabetics have with high blood sugar (D-glucose). " (see msg

>> #1361/TenthParadigmSociety).

>>

>> However, Dr. Teitelbaum claims that it results in improved energy;

>> sleep; mental clarity; pain intensity; and well-being (Pubmed

>> #17109576).

>>

>> Would anyone recommend that I stay away from D-Ribose?

>>

>> Take care.

>> Bernie

>>

>>

>

>

>

>

[Guest guest]

It made me crave sweets just as regular sugar would. That track is death, for

me.

Adrienne

D-Ribose

Has anyone had favourable results using D-Ribose? I recently purchased

a six month supply, however, after a comment made by Dr. Pall I am not

sure now whether or not to use it.

Dr. Pall doesn't recommend it because " D-ribose is a potent glycating

agent, leading to protein glycation at about 50 times the activity of D-

glucose. Glycation is not a good thing - it is the reaction of certain

groups on proteins with sugars, changing the protein structure and

often function. It is responsible for many of the problems that

diabetics have with high blood sugar (D-glucose). " (see msg

#1361/TenthParadigmSociety).

However, Dr. Teitelbaum claims that it results in improved energy;

sleep; mental clarity; pain intensity; and well-being (Pubmed

#17109576).

Would anyone recommend that I stay away from D-Ribose?

Take care.

Bernie

------------------------------------

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Yes Doug, ribose is one of the structural components rather than one of the

burnable sugars; it's safe.

Duncan

>

> I know that D-Ribose is a type of sugar, but since it is supposed to be so

heart healthy I wondered if it were an acceptable part of the candida diet? Doug

>